Does anyone else have swollen lips due to Crohn's? My doctor said that's what is causing my swollen lip and it's just terrible. I have a hard time going out in public because of it. It's so miserable. If anyone else has it, has anything you've done reduced the swelling?
Has anyone else had any positive experience with this, I would be very interested in giving it a pop. I'm not very well versed in the subtle differences in supplements and the like would any advanced B complex do/be the same thing? The other one isn't available on Amazon's UK website.It's called Activated B Complex and you can find it here:
Breesie, I have been searching for someone else with crohns in their esophagus! I hope you still come on here, id love to talk to you! I have been prescribed carafate, disnt do anything, and I have been prescribed lidocaine. My docs actually have me swallow the lidocaine before eating, as I can't eat or drink otherwise. My ulcers start in the back of my throat, and go all the way down into my stomach. How have your docs treated you? Have you reached remission???! Agh! I hope you'll read this!I have had problems with swelling of my lips. I also get crohns lesions in my mouth, throat and esophagus. I have had lesions removed from my tongue twice.
The doc gives me carafate, which I think just helps to coat them so they aren't as raw. I also have a prescription for topical lidocaine gel. I use that when the sores on my lips and in my mouth are really bad. I apply a small amount on my lips, and swish it around in my mouth, then spit. They really discourage me from swallowing it, but I have swallowed a small amount on occasion when the pain in my throat and esophagus is really, really bad. I am just really careful about it, because I know it can numb enough to interfere with swallowing. I definitely don't eat anything for a while after I use it.
Don't know how to or where I should be writing my messages, but really wanted to share how I deal with mouth and lip sores. I am so grateful for my Alo Vera plants growing plantation. As soon as I feel that tingling pain of a sore coming on I break off a tip of the leaf and rub it on and around the area. If it hasn't become a sore yet it just reverses it to nothing. If it's a sore already it goes away much faster. I just love my Alo Vera plant. Hope this helps. I am proof of it's miracle gel. Best of luck. Lily's of the valleyHi everyone,
This forum has really put my mind at ease. I was diagnosed with Crohns a year ago (age of 23) but I have had frequent swellings of the lips since I was 12. It really had a big effect on my confidence levels and I dread the next swelling. My doctor said it may have nothing to do with my Crohns which really confused me. It seems that you all have been affected by this same problem I have been going through.. I've luckily found a link between eating gluten/dairy/eggs/yeast and my swellings so they've become less frequent. Does anyone have any tips on anything else I could do to reduce the likelihood of it coming back?
Thanks a lot everyone and I really wish you alll the best!!
I have Crohn's of my esophagus as well!!! I have had swelling of the lips and eyes as wells as mouth ulcers. When I was diagnosed, the GI counted 20 ulcers in my esophagus. I have Crohn's all the way through my GI tract, bit the doctors basically stare blankly at them when I have the facial swelling. Aloe juice really helps my throat, but the only thing I've found that helps the face stuff is steroids--either OTC cortisone cream, or one time I had to get an injection and go on prednisone for a week. Myrrh essential oil seems to calm the itching..Breesie, I have been searching for someone else with crohns in their esophagus! I hope you still come on here, id love to talk to you! I have been prescribed carafate, disnt do anything, and I have been prescribed lidocaine. My docs actually have me swallow the lidocaine before eating, as I can't eat or drink otherwise. My ulcers start in the back of my throat, and go all the way down into my stomach. How have your docs treated you? Have you reached remission???! Agh! I hope you'll read this!