After going through 4 doctors since my diagnosis last February at the Bourland Groover Clinic Jacksonville FLorida i gave up and decided to try another option. Today was my first trip to Mayo Clinic Jax Fl. I am currently on Humira 40 mg every 15 days. The Humira worked great for about a month and then the reactions started. The reaction i got at my injection site started two months ago and my previous doctor was hardly concerned. It is a red, itchy, hot , raised bump, that is larger than a softball, and lasts about 3-4 days. My husband and i dread the injections anyway and now im not only having the rash but also extreme headaches as well as symptoms of my Crohns. Not as bad as before i was on Humira but still not ideal.
I was referred to this group of doctors by another Crohns patient and i agree that they seem to be the best i have come across so far. Extremely thorough and willing to look at all aspects of treatment, especially side effects.
Today i was told that these new doctors would like to do another colonoscopy to see how my ileum has responded to the Humira drug. It is possible that it has responded some but has quit working, and it is also possible that it hasnt worked at all.
Upon the results of this scope i am doomed to have relatively soon i am faced with some options which is where i could use some opinions guys!!!!!!!!!!
1. First these doctors recommend "treatment" : in the form of 6mp and for the 6mp to be combined with another drug such as imuran.
My doctors were very thorough in explaining the side effects of skin cancer, lymphoma, and leukemia. and also gave me brochures telling me to research the medicine.
2. I could potentially need surgery at the site of my Crohns. Where the Illieum and the Small Intestine Meet . In hopes to get rid of the small place where there is both scar tissue and inflammation.
Today was a difficult day. Not only another colonoscopy but now some whole new medication route. please veterans let me know what you think.
3 . MY husbands idea is while off all medications to try an extremely strict diet w exercise / all natural approach.
Thanks everyone for your time
I was referred to this group of doctors by another Crohns patient and i agree that they seem to be the best i have come across so far. Extremely thorough and willing to look at all aspects of treatment, especially side effects.
Today i was told that these new doctors would like to do another colonoscopy to see how my ileum has responded to the Humira drug. It is possible that it has responded some but has quit working, and it is also possible that it hasnt worked at all.
Upon the results of this scope i am doomed to have relatively soon i am faced with some options which is where i could use some opinions guys!!!!!!!!!!
1. First these doctors recommend "treatment" : in the form of 6mp and for the 6mp to be combined with another drug such as imuran.
My doctors were very thorough in explaining the side effects of skin cancer, lymphoma, and leukemia. and also gave me brochures telling me to research the medicine.
2. I could potentially need surgery at the site of my Crohns. Where the Illieum and the Small Intestine Meet . In hopes to get rid of the small place where there is both scar tissue and inflammation.
Today was a difficult day. Not only another colonoscopy but now some whole new medication route. please veterans let me know what you think.
3 . MY husbands idea is while off all medications to try an extremely strict diet w exercise / all natural approach.
Thanks everyone for your time