Hey guys,
So, before I was diagnosed and started any treatment for crohns I had 'sero negative inflammatory arthritis' my knees (mainly my right knee) and ankles were very swollen, painful and unable to bare much weight. My toes, foot arches and left wrist were painful, like someone had been jumping up and down on them, had restricted movement and again couldn't bare much weight. This went on for several months and although I was given lots of different treatments none were very successful. I tried paractamol, ibuprofen, diclofenac, paracetamol and codeine, fluid drainage and steroid injections (in that order). The thing that helped the most were the steroid injections, but they only lasted for 2 weeks max. The other treatments didn't help with the swelling or pain.
Fast forward to the present day and the arthritis has started manifesting in my small joints, wrists, left foot arch and ankle. The small joints have been happening for aboot three or four months, but I've mainly been able to ignore them as they are more of an annoyance, the small joints on my fingers get red and swollen, stopping me from being able to bend my fingers properly or grip heavy things. For the last month my left wrist has been painful, had restricted movement and been very weak, getting progressively worse as the weeks go on. Over the last few days my right wrist, left foot arch and ankle have started to join in
I, for the last two weeks have promised myself that I will get a warming wrist support, but haven't got to the shop to get it yet, I will deffo get it at some point this week, just have to convince my fiance that it is a neccessary expence haha! (but that's another story that I won't go into!) :ymad:
Anyhow, I've managed to babble and not get to the point as usual lol I have been looking at celecoxib as a potential treatment, but need to get my GI's permission and then go to my GP to ask for it - haven't done it cos I've been in denial, telling myself that there are people worse off and I shouldn't bother my IBD nurses, that I'm sure it will get better in a couple of days, but that's not happening so I need to do something aboot it instead of ignoring it.
Does anyone know if this is a potential side effect of Remicade, or is it the crohns rearing its ugly head? Any other alternative treatments that you think will be effective?
I have been having some other crohns type symptoms like bms changing from C to D, but the frequency is still very low (max 3 daily, usually once daily), what I presume was a sort of UTI last week - increased frequency, but small output, dark, smelly, cloudy urine which after 5ish days started to cause pain after going but after treating it with cranberry juice and increased water intake it seems to have settled down. GERD symptoms and aboot 5 - 6 weeks ago some sort of partial blockage maybe? - was woken up because of pain in right lung which was stopping me from breathing properly, then I noticed pain in the lower part of my stomach, which got worse and worse, felt very sick and fainty, eventually projectile vomitted which relieved some of the pain, only for it to come back again, and after projectile vomiting again the pain settled to a level I could block out by sleeping. Felt in pain and bruised for a few days after and then it settled again.
Sorry for such a long post which could have been summarised in a couple of sentences lol - I'm rubbish at explaining things IRL but give me a keyboard and I'm away! haha!
So, before I was diagnosed and started any treatment for crohns I had 'sero negative inflammatory arthritis' my knees (mainly my right knee) and ankles were very swollen, painful and unable to bare much weight. My toes, foot arches and left wrist were painful, like someone had been jumping up and down on them, had restricted movement and again couldn't bare much weight. This went on for several months and although I was given lots of different treatments none were very successful. I tried paractamol, ibuprofen, diclofenac, paracetamol and codeine, fluid drainage and steroid injections (in that order). The thing that helped the most were the steroid injections, but they only lasted for 2 weeks max. The other treatments didn't help with the swelling or pain.
Fast forward to the present day and the arthritis has started manifesting in my small joints, wrists, left foot arch and ankle. The small joints have been happening for aboot three or four months, but I've mainly been able to ignore them as they are more of an annoyance, the small joints on my fingers get red and swollen, stopping me from being able to bend my fingers properly or grip heavy things. For the last month my left wrist has been painful, had restricted movement and been very weak, getting progressively worse as the weeks go on. Over the last few days my right wrist, left foot arch and ankle have started to join in
I, for the last two weeks have promised myself that I will get a warming wrist support, but haven't got to the shop to get it yet, I will deffo get it at some point this week, just have to convince my fiance that it is a neccessary expence haha! (but that's another story that I won't go into!) :ymad:
Anyhow, I've managed to babble and not get to the point as usual lol I have been looking at celecoxib as a potential treatment, but need to get my GI's permission and then go to my GP to ask for it - haven't done it cos I've been in denial, telling myself that there are people worse off and I shouldn't bother my IBD nurses, that I'm sure it will get better in a couple of days, but that's not happening so I need to do something aboot it instead of ignoring it.
Does anyone know if this is a potential side effect of Remicade, or is it the crohns rearing its ugly head? Any other alternative treatments that you think will be effective?
I have been having some other crohns type symptoms like bms changing from C to D, but the frequency is still very low (max 3 daily, usually once daily), what I presume was a sort of UTI last week - increased frequency, but small output, dark, smelly, cloudy urine which after 5ish days started to cause pain after going but after treating it with cranberry juice and increased water intake it seems to have settled down. GERD symptoms and aboot 5 - 6 weeks ago some sort of partial blockage maybe? - was woken up because of pain in right lung which was stopping me from breathing properly, then I noticed pain in the lower part of my stomach, which got worse and worse, felt very sick and fainty, eventually projectile vomitted which relieved some of the pain, only for it to come back again, and after projectile vomiting again the pain settled to a level I could block out by sleeping. Felt in pain and bruised for a few days after and then it settled again.
Sorry for such a long post which could have been summarised in a couple of sentences lol - I'm rubbish at explaining things IRL but give me a keyboard and I'm away! haha!