I'm chris, 30 years old. I just had a colonoscopy last week. After consulting with multiple doctors based on my blood test(higher levels of CRP, ESR), CT scan and pathologic analysis, I was confirmed(sort of) with (silent)crohn's disease.
So a little background here. Back in 2005 my freshman year in college, I had a rosacea breakout. At first we all thought maybe alcohol triggered it because I was intolerant to alcohol so I was told to put steroid cream on my face(I didn't know it was steroid at the time), It worked like a charm. But gradually the flare-ups became more frequent and serborrheic dermatitis started showing up as well.
I struggled with these 2 conditions for about 6 years before another problem arrived in 2012: haemorrhoids. Surgery went pretty smoothly but soon I found out that my wounds around my anus just couldn't heal. No matter what meds I tried, it didn't seem to be affected by anything. So I basically lived with this problem for another 4 years, along with my skin disorders until a few months back I was suggested to check my intestines.
I finally started to connect the dots:
1. I was diagnosed with acute appendicitis when I was 5 years old and got my appendix cut out. ( although now I wonder whether or not the diagnose was correct? maybe I had crohn's back then? but it wouldn't have made any difference because it was so rare back then).
2. For a period of time from primary school to junior high, I got nosebleed and constipation very often, then it stopped.
3. Some time later, I started having recurrent aphthous ulcer no matter what i ate. But again, it stopped. That's when rosacea started appearing.
I don't have the typical severe syptoms in my abdomen, guess that puts me in the silent category, my main syptoms are:
1.Fatigue(very)
2.Low degree fever whenever I have constipation or a flare up on my face
3.Ocular rosacea(or Iritis?), afraid of lights, itchy etc.
4.Weight loss. I'm 180cm at 66kg, I haven't been able to put on weight since high school.
5.Low muscle mass & poor strengh.
6.Dizziness whenever I stand up.
7.Erectile Dysfunction and low sperm quality. I felt generally tired trying to engage in sexual activity, I do have a great sperm count, but most of them aren't moving.(quality below 20%)
8.Lower back pain. whether this contributes to ED, I'm not sure.
As you can see, my overall health is impaired. If you can relate to any of the points above I'd like to discuss more about the connection to crohn's. I do believe the imblance of the microbes in my gut are to blame for most(if not all) of my problems. I already started very low-carb paleo like diet, and it cleared out my SD in days, but 3 days ago had a fever and the syptoms are back. So I think imflammation is the key, there is new study done about the link between IBD and rosacea.
As for the cure, I'd like to ask all of you if anyone has tried the following two methods:
1. Breast milk. It contains hundreds of different bacterial species according to this, so potentially it has the ability to rebalance our gut flora?
2. stale bread, a 73 year old claimed he cured crohn's by eating this.
I feel like both of these methods are possible, and I'd like to try them out, would appreciate any other suggestions/methods, thanks for reading and have a good day
Edit: Point 8 I think it's more lower back soreness than pain to be exact. Also I forgot to mention depression. During my worst days where I'd have low temp fever, fatigue every day, I could literally feel my depression, I tried to get out of it by going out to exercise in the evening, but didn't help much.
So a little background here. Back in 2005 my freshman year in college, I had a rosacea breakout. At first we all thought maybe alcohol triggered it because I was intolerant to alcohol so I was told to put steroid cream on my face(I didn't know it was steroid at the time), It worked like a charm. But gradually the flare-ups became more frequent and serborrheic dermatitis started showing up as well.
I struggled with these 2 conditions for about 6 years before another problem arrived in 2012: haemorrhoids. Surgery went pretty smoothly but soon I found out that my wounds around my anus just couldn't heal. No matter what meds I tried, it didn't seem to be affected by anything. So I basically lived with this problem for another 4 years, along with my skin disorders until a few months back I was suggested to check my intestines.
I finally started to connect the dots:
1. I was diagnosed with acute appendicitis when I was 5 years old and got my appendix cut out. ( although now I wonder whether or not the diagnose was correct? maybe I had crohn's back then? but it wouldn't have made any difference because it was so rare back then).
2. For a period of time from primary school to junior high, I got nosebleed and constipation very often, then it stopped.
3. Some time later, I started having recurrent aphthous ulcer no matter what i ate. But again, it stopped. That's when rosacea started appearing.
I don't have the typical severe syptoms in my abdomen, guess that puts me in the silent category, my main syptoms are:
1.Fatigue(very)
2.Low degree fever whenever I have constipation or a flare up on my face
3.Ocular rosacea(or Iritis?), afraid of lights, itchy etc.
4.Weight loss. I'm 180cm at 66kg, I haven't been able to put on weight since high school.
5.Low muscle mass & poor strengh.
6.Dizziness whenever I stand up.
7.Erectile Dysfunction and low sperm quality. I felt generally tired trying to engage in sexual activity, I do have a great sperm count, but most of them aren't moving.(quality below 20%)
8.Lower back pain. whether this contributes to ED, I'm not sure.
As you can see, my overall health is impaired. If you can relate to any of the points above I'd like to discuss more about the connection to crohn's. I do believe the imblance of the microbes in my gut are to blame for most(if not all) of my problems. I already started very low-carb paleo like diet, and it cleared out my SD in days, but 3 days ago had a fever and the syptoms are back. So I think imflammation is the key, there is new study done about the link between IBD and rosacea.
As for the cure, I'd like to ask all of you if anyone has tried the following two methods:
1. Breast milk. It contains hundreds of different bacterial species according to this, so potentially it has the ability to rebalance our gut flora?
2. stale bread, a 73 year old claimed he cured crohn's by eating this.
I feel like both of these methods are possible, and I'd like to try them out, would appreciate any other suggestions/methods, thanks for reading and have a good day
Edit: Point 8 I think it's more lower back soreness than pain to be exact. Also I forgot to mention depression. During my worst days where I'd have low temp fever, fatigue every day, I could literally feel my depression, I tried to get out of it by going out to exercise in the evening, but didn't help much.
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