- Location
- UK
Hi there!
My problems have been ongoing for a while now and I should make it celar that I have EDS, POTS and a mast cell problem. I am also fed enterally through a PEGJ tube due to vomiting probably due to dysmotility.
My local hospital diagnosed me with crohns after seeing ulcers in the ileum, they put me on Budesonide then IV Hydrocortisone and then eventually prednisolone which seemed to cure the inflammation and helped the pain.
I then got stomach ulcers and bad stomach inflammation with bile reflux although the bile is most likely down to the dysmotility.
I was then referred to a hospital which have been appalling. They said I do not have crohns and its all IBS. They also said I do not have dysmotility even though this is clearly written on prescription forms. My dr was also a complete idiot and threw a pen in our last (and the last one EVER might I add) consultation when I brought up something she did not like. Well anyway, I refused to leave the area until my biopsy results were printed out and from what I can gather the professor in pathology seems to think my case is suggestive of crohns. I am fuming how this hospital lied as they said it wasnt when clearly the pathologist has said this.
I am now going through a flare without any dr! Im getting blood, feeling exhausted, getting bad lower right sided pain, nausea, mouth ulcers and the list continues really.
Just wondering whether anyone else has gone through the same thing. I'll try and post updates but from what i last heard the waiting list for my local team is months and months so looks like im alone for a while
.
Heres my biopsy report anyway:
Small bowel: There is patchy mild acute inflammation
Ileum: Fragment of granulation tissue. Shows an area of active chronic inflammation with ulceration. There is patchy mild-moderate inflammation.
Colon: focal cryptitis
comments: features are those of a patchy mildly active ileocolitis. The appearences are non-specific
Gastric: focal mild increase in inflammatory cells within the lamina propia with occasional intraepithlial neutrophils and a single crypt abscess. The features are those of a focal active chronic gastritis suggestive of upper GI tract involvment by crohns disease
Mast cell numbers are also high
Thanks for reading x
My problems have been ongoing for a while now and I should make it celar that I have EDS, POTS and a mast cell problem. I am also fed enterally through a PEGJ tube due to vomiting probably due to dysmotility.
My local hospital diagnosed me with crohns after seeing ulcers in the ileum, they put me on Budesonide then IV Hydrocortisone and then eventually prednisolone which seemed to cure the inflammation and helped the pain.
I then got stomach ulcers and bad stomach inflammation with bile reflux although the bile is most likely down to the dysmotility.
I was then referred to a hospital which have been appalling. They said I do not have crohns and its all IBS. They also said I do not have dysmotility even though this is clearly written on prescription forms. My dr was also a complete idiot and threw a pen in our last (and the last one EVER might I add) consultation when I brought up something she did not like. Well anyway, I refused to leave the area until my biopsy results were printed out and from what I can gather the professor in pathology seems to think my case is suggestive of crohns. I am fuming how this hospital lied as they said it wasnt when clearly the pathologist has said this.
I am now going through a flare without any dr! Im getting blood, feeling exhausted, getting bad lower right sided pain, nausea, mouth ulcers and the list continues really.
Just wondering whether anyone else has gone through the same thing. I'll try and post updates but from what i last heard the waiting list for my local team is months and months so looks like im alone for a while
.Heres my biopsy report anyway:
Small bowel: There is patchy mild acute inflammation
Ileum: Fragment of granulation tissue. Shows an area of active chronic inflammation with ulceration. There is patchy mild-moderate inflammation.
Colon: focal cryptitis
comments: features are those of a patchy mildly active ileocolitis. The appearences are non-specific
Gastric: focal mild increase in inflammatory cells within the lamina propia with occasional intraepithlial neutrophils and a single crypt abscess. The features are those of a focal active chronic gastritis suggestive of upper GI tract involvment by crohns disease
Mast cell numbers are also high
Thanks for reading x
