I have Crohns and HS, both for 10+ years, but the HS was only recently diagnosed. I have it pretty badly, having constant boils in both armpits, my groin, inner thighs, lower stomach and under my breasts. I just started Remicade today, I have researched and seen that it has had some luck in curing or reducing symptoms for HS.
I hope to be able to get radiation therapy as that seems to be the best option for someone with a severe case of HS. I have constant boils, and just lancing them doesn't do anything, just makes it go away for a while, but they always come back.
Unfortunately HS is even more difficult to treat that Crohn's, and 20% of people can't find anything to give relief. I've had surgery twice, and multiple antibiotics, and its worse than its ever been.
I would urge you to see your doctor right away, because in the early stages of the disease 6-12 months of antibiotics can cure the disease, or surgery, but once you're in stage 3 like me your options are very limited, so don't wait until it gets bad, get treated now!!
I am going to see a dermatologist at the University of Illinois in February, so hopefully then something can be done to help me out. I'm also hoping that Remicade will help, I actually asked my GI to start me on Remicade because it has been shown to help HS as well, and my Crohns was not well controlled, so I needed a stronger medicine than Pentasa anyway.
Good luck to you all!! Having both of these debilitating diseases really sucks and I feel your pain!!