Hi,
My name is Adri. I am 28 years old. I am writing to see if there are any other people in this country that are having a tremendous time getting a diagnosis.
For as long as I can remember I have had tummy troubles from always running to the bathroom, cramps, nausea, constipation and bloating. This has been going on for at least 18 years of my life. I remember my mom always joking about me knowing where every bathroom was in every store because I was always going to them. Due to these problems and pain over the years I had my gallbladder removed at age 20. This may have been a premature eviction of an innocent organ at the time. Who knows? So originally through my life I got a diagnosis of IBS (irritable bowel syndrome). OK. Well I ran with that for 10 years. Yes 10!!!. I have had 2 colonoscopies and 4 EGDs in the last 10 years. I am only 28. I will be having yet another EGD and flex sigmoid study in a few weeks. (I will get to that later).
I was going OK for years. Not any better not any worse. Then BAM.... May 2016 hit my like a Mack truck. Intense cramps, diarrhea, nausea, soreness, bloating. Now when I say pain I mean, on the floor fetal position and feeling like little trolls are jack-hammering concrete in my bowels. Yes. It sucked. This lasted 24 hours. I did not sleep. For 6 days after that i had no appetite, and my belly was sore to the touch. I was exhausted and just felt beat up, jack-hammers . I have a friend who is a NP (nurse practitioner) for a GI doctor. I texted her my symptoms and mentioned a bloody stool 3 days after the episode. She scheduled me for a colonoscopy and EGD at this time. DUM DUM DUM. Weeks later I get the results that I have inflammation in my sigmoid colon, stomach, and duodenum. It wasnt new inflammation but pseudopolyps from chronic inflammation. HUM? Well this means IBD (Inflammatory Bowel disease) doesn't it?
To make a very long story shorter. I had Prometheus testing. It said Crohns. None of my blood levels like CRP or HGB were altered, and my symptoms are inconsistent. Ok? So off to a new doctor I go because the one in my small town can not get to the bottom of this problem.
Now I see a specialist he is running tons and tons of tests including: hydrogen breath testing (not fun), ARM testing, TSN testing, EGD and Flex sigmoid, and a capsule endo. not to mention tons of blood work and stool samples.
What do I do now? I am not miserable I feel pretty good 1/2 of the time, but I definately function and I am eating just fine unless im in pain. No weight loss here. .
Any advice? Any similar stories?
My name is Adri. I am 28 years old. I am writing to see if there are any other people in this country that are having a tremendous time getting a diagnosis.
For as long as I can remember I have had tummy troubles from always running to the bathroom, cramps, nausea, constipation and bloating. This has been going on for at least 18 years of my life. I remember my mom always joking about me knowing where every bathroom was in every store because I was always going to them. Due to these problems and pain over the years I had my gallbladder removed at age 20. This may have been a premature eviction of an innocent organ at the time. Who knows? So originally through my life I got a diagnosis of IBS (irritable bowel syndrome). OK. Well I ran with that for 10 years. Yes 10!!!. I have had 2 colonoscopies and 4 EGDs in the last 10 years. I am only 28. I will be having yet another EGD and flex sigmoid study in a few weeks. (I will get to that later).
I was going OK for years. Not any better not any worse. Then BAM.... May 2016 hit my like a Mack truck. Intense cramps, diarrhea, nausea, soreness, bloating. Now when I say pain I mean, on the floor fetal position and feeling like little trolls are jack-hammering concrete in my bowels. Yes. It sucked. This lasted 24 hours. I did not sleep. For 6 days after that i had no appetite, and my belly was sore to the touch. I was exhausted and just felt beat up, jack-hammers . I have a friend who is a NP (nurse practitioner) for a GI doctor. I texted her my symptoms and mentioned a bloody stool 3 days after the episode. She scheduled me for a colonoscopy and EGD at this time. DUM DUM DUM. Weeks later I get the results that I have inflammation in my sigmoid colon, stomach, and duodenum. It wasnt new inflammation but pseudopolyps from chronic inflammation. HUM? Well this means IBD (Inflammatory Bowel disease) doesn't it?
To make a very long story shorter. I had Prometheus testing. It said Crohns. None of my blood levels like CRP or HGB were altered, and my symptoms are inconsistent. Ok? So off to a new doctor I go because the one in my small town can not get to the bottom of this problem.
Now I see a specialist he is running tons and tons of tests including: hydrogen breath testing (not fun), ARM testing, TSN testing, EGD and Flex sigmoid, and a capsule endo. not to mention tons of blood work and stool samples.
What do I do now? I am not miserable I feel pretty good 1/2 of the time, but I definately function and I am eating just fine unless im in pain. No weight loss here. .
Any advice? Any similar stories?