Hey, had surgery about 2 months ago and had a seton placed in. And normally haven't had that much blood loss. But just after using the bathroom it was dripping into the toilet. Not sure why it would happen now? Any one else have an idea?
I know this is a couple of months old now. But I also have this and when I wipe, I get bloody clots on the tissue alsoHey, had surgery about 2 months ago and had a seton placed in. And normally haven't had that much blood loss. But just after using the bathroom it was dripping into the toilet. Not sure why it would happen now? Any one else have an idea?
How about a sitz bath? I know these are more for pain than cleaning but it may relieve your pain too. Do you use moist toilet wipes rather than toilet roll?I ended up having to use the shower nozzle and a clean hand to clean my backside as I always get blood and bad irritation from wiping with any kind of paper. I could really use a bidet. Maybe someday... There are kits for a regular toilet to have a bidet sprayer. To my knowledge they aren't heated and I'm not really into the cold water idea personally.
My fistula's run through the very top of my sphincter so I would lose ALL continence if they're repaired I have a Horseshoe Fistula and extrasphincteric collections. It has branched off in every which way possible.Hi, Sorebutt,
I had my outer anal sphincter completely severed from complicated fistula surgery. Some of my fistulas went right through both sphincters. So now some of what was the inside, has become the outside and it is very, very tender. My seton days were over long ago, thank goodness, (touch wood). Sitz baths are good for setons a couple or three times a day too but if you have to go a lot, the shower method is way faster and easier. I never liked the sitz bath's, they helped with healing, yet they were cumbersome. A person really should always consult with a doctor on how often to use a sitz bath. Toilet paper and setons just never worked very well, not for me anyhow. Now I'm water wash only. Such is life.
Each one of us is different, best wishes,
cmack
Bufford - do you have Crohn's or is it purely just fistula's you suffer with?I have a colostomy due to fistualas and I get mucous with blood during a flare and the rectal area can become soar and itchy. I use mouthwash applied to a paper towel and gently wipe off my rectal area. Relief is instant soothing and cooling. I figure that mouth wash is oral, then there should be no problem using it to clean the anal area. My GI supports my use of it and has heard from other patients he sees that use it.
Thanks cmack. How did you eventually get rid of these buggers?I'm sorry you have to go through this. I was once in your shoes, I really do hope you heal up. There is still hope. I had those bloody fistulas running every which way too. It was terrible.
Thank you.Hey Sorebutt,
I think I was just lucky and also I believe taking a stool softener,(lactulose) helped a great deal. I additionally had a lot of cipro and flagyl. So yeah, that and fistula surgeries, It was a rough time in my life. At one point they said I was having a bag and I just about went round the bend. I am very stubborn, I felt like that wasn't an option I could deal with at the age of 27. I refused and toughed it out. I still wonder if I was right or wrong. Oh well, the choice was mine and I made it. Still alive and kicking.
I hope the best for you, talk to me any time bud,
cmack
i have Crohn's, its active in my rectal area and further up by my resection where the colon and small bowel come together along with patches in both. I am currently in a semi controlled remission and for the most part I control it with diet and lifestyle that involves reducing stress.Bufford - do you have Crohn's or is it purely just fistula's you suffer with?
Never heard of the mouthwash idea. May give it a go. Does it not sting?
Thank you. I'll give it a try. I'm sick and tired of these bloody fistula's! I'll try anything! I'm even willing to have a colostomy if it means getting rid of them!i have Crohn's, its active in my rectal area and further up by my resection where the colon and small bowel come together along with patches in both. I am currently in a semi controlled remission and for the most part I control it with diet and lifestyle that involves reducing stress.
Do try the mouthwash, it is cheap and does a wonderful job cleaning sensitive areas and cooling off fissures and burning itch of the area.
I'm sorry to read this could you try Metronidazole AND Cipro together and ask for some anti sickness medication to take with is (and you must ensure you eat when taking Metronidazole too to help the side effects).I was diagnosed with Crohn's two years ago and have been on 150 mg of Azasan since then. I am very fortunate in that I was able to retire from my job and have had severe cramps only occassionally. My problem is this horrible, disgusting fistula which started in August. My GI ordered an MRI and CTSCAN with and without contrast. Nothing showed up and he said just deal with it. My urologist also did a cystoscope which showed nothing. I had a colonoscopy with another GI who is supposed to be top notch, and my colon looked good. There was just a small amount of inflammation (8mm) in my rectum. She said the only way they would be able to locate the fistula was with surgery, which they wouldn't perform unless an absess developed. The fistula wasn't too bad at the time, but now it is constant and I can't even walk around without the nasty discharge front and back. My GP has tried three separate regimins of Cipro, but all it does is to help my appetite a bit, which I greatly appreciate. My fever hasn't gone over 102, but I have no appetite and nausea, especially after I try to eat. Does anybody think going to a gynecolorectal (??) doctor might shed some light on the fistula's location? I'm just not up to another series of "come see me in a week" useless doctor's visits. My husband has become brain damaged and I am his ONLY caregiver, so I am extremely hesitant to try any biologics. Flagyl makes me sicker than a dog, but I'm afraid to keep taking Cipro in case it loses it's potency. Is this something I'm just going to live with? Worst of all is my husband constantly griping about me being sick and everything else under the sun. Thank you God for my Xanax
I can just about cope with Metronidazole tablets, they make me feel sick but I nibble ginger nut biscuits to help lol. But when I receive it IV in hospital it makes me vomit!I kept telling my GI that I thought it was the Flagyl making me so sick, but he did not agree. He and my pharmacist tried every anti-nausea med out there and none of them helped. The GI was about to put me in the hospital, but as soon as he took me off the Flagyl, the nausea subsided. Imagine that! Thanks so much for your quick reply. I hope things are going well for you.
I'm so glad you finally found the cause. It sounded just like a fistula. I have just got home from hospital a couple of hours ago. I had my seton replaced, and EUA and biopsies taken.Well, I went to a urogynecologist yesterday and, lo and behold, one minute into my examination, she located an external perianeal fistula. She got me into a colorectal surgeon that afternoon and he scheduled an "examination under anaesthesia" and seton placement for Monday morning. I'm so glad I went ahead and saw the new doctor despite all of my other doctors saying it would be a waste of time. (Thanks cmack and Sorebutt26 for y'all's advice and encouragement!) Hopefully, I'll get some relief now. The only downside is that I am going to have to go on a biologic to complete the process. But the doctor said it's either that or a colostomy. Can anyone give me their advice as to which biologic would be the best alternative?
Ah I've been wondering where you've been an how you were getting on. Sorry to hear you've had such a rough time, so glad to hear you're out of the other side now. I hope things keep improving for you.Hey Cmack:
Unfortunately, my flap surgery failed and I ended up in the hospital with uncontrollable diarrhea and dehydration. After an EUA and colonoscopy, my doctor said I would need a temporary colostomy. I don't plan on reversing it unless a cure for Crohn's is found. I don't ever want to go through that nightmare again. Having the ostomy is not as bad as I thought it would be. I can finally leave the house without worrying every second about having to run to the bathroom. It has given me my life back.
Thanks so much for checking on me. I hope you are doing well.
DzdNCnfzd
I'm not doing too great at the moment. But hoping things will improve soon xxI had to go through my own personal hell to appreciate the benefits of having an ostomy. I was deadset against it before.
I hope you are doing well also.
Thank you xxx drop me a message on fb if you fancy a chat xI'm so sorry to hear that. You are in my prayers.
Ah ok, I'll drop you a message now xxxSure, I'd love to. Send me your info. I left the fistula group.
cmack... how are you doing? XHi, DzdNCnfzd
I'm sorry to hear about the surgery, it is never pleasant. Take good care and be sure to keep in touch.
I'm keeping you all in my prayers.
Hi ChrisHi Sorebutt,
I'm pretty good compared to most of us. I'm not having any serious medical problems but it is hard to be unemployed. Being disabled due to surgery isn't the best, however, it is better than what a lot of people have to deal with. My biggest frustration is finding a way to work from home.
Best wishes to you,
Chris
Definitely worth a look at. Could be fun too.I hadn't thought of that. Great idea! I may very well look into that one, thanks.