- Location
- UK south west
:sign0085:
Sorry I'm very new to this, it's a bit long winded but I will try and be brief.
In November 2014 I was very heavily pregnant and admitted to hospital with food poisoning/ crohns flare where as I had both crohns and gestational diabetes I stayed for 2 weeks until on the 2nd of December I had my beautiful baby boy. A dreadful labour led to another 8 days in hospital but eventually we got home where I became gradually worse, the baby weight fell of at a drastic rate and after months on predisolone and modulin I returned to hospital for bowel rest...
A colonoscopy showed a bit of active crohns and I ended up having my gall bladder out... 6 weeks later I came home. Where I still got worse, sick after food and terrible back pain and tummy ache.. In August my son got took ill and ended up in hospital, and when he came out I went back in only to discover he had salmonella poisoning... After actually (for the first time )testing my stool they found so did I. They treated me for salmonella and I returned home but I was even worse so returned to hospital for more iv fluids and antibiotics only in September to test positive for c-diff....
6 months later .... I still have c-diff .... They tried metronidazole( very allergic) vancomycin 5 times and tapered vancomycin... I had a fecal transplant which we thought had worked but I then tested positive for salmonella yet again which appears to have never gone either..I am now on tpn as I have lost over 4 stone ... Elemental.. Vancomycin .... Tapentadol liquid and tablets... Pregabalin.... Renitadine... Ondansetron....cyclazine.....paracetamol and various vitamins.....
Please can anyone give me any advise?
Had bowel resection nov 2011
Was on azathioprine until May 2016
Currently untreatable for crohns
:sign0085:
Sorry I'm very new to this, it's a bit long winded but I will try and be brief.
In November 2014 I was very heavily pregnant and admitted to hospital with food poisoning/ crohns flare where as I had both crohns and gestational diabetes I stayed for 2 weeks until on the 2nd of December I had my beautiful baby boy. A dreadful labour led to another 8 days in hospital but eventually we got home where I became gradually worse, the baby weight fell of at a drastic rate and after months on predisolone and modulin I returned to hospital for bowel rest...
A colonoscopy showed a bit of active crohns and I ended up having my gall bladder out... 6 weeks later I came home. Where I still got worse, sick after food and terrible back pain and tummy ache.. In August my son got took ill and ended up in hospital, and when he came out I went back in only to discover he had salmonella poisoning... After actually (for the first time )testing my stool they found so did I. They treated me for salmonella and I returned home but I was even worse so returned to hospital for more iv fluids and antibiotics only in September to test positive for c-diff....
6 months later .... I still have c-diff .... They tried metronidazole( very allergic) vancomycin 5 times and tapered vancomycin... I had a fecal transplant which we thought had worked but I then tested positive for salmonella yet again which appears to have never gone either..I am now on tpn as I have lost over 4 stone ... Elemental.. Vancomycin .... Tapentadol liquid and tablets... Pregabalin.... Renitadine... Ondansetron....cyclazine.....paracetamol and various vitamins.....
Please can anyone give me any advise?
Had bowel resection nov 2011
Was on azathioprine until May 2016
Currently untreatable for crohns
:sign0085:
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