I woke up around 12 midnight hearing the watery sounds my husband's tummy makes. I have been listening to those sounds for the last 8 1/2 months. There were moments I thought I was loosing him. He was diagnosed when he was 12, then Chron's went into remission. I did not know anything about this illness until I met him. But I did not know how serious it is until his flare ups started last July 2011. We do not have insurance, he was and has been unemployed since January 2011. So my attempt to convince him to go to a doctor or a hospital was almost impossible, because he did not want to go. Me personally have never been in a hospital, and I try to keep my own health state based on a vegan diet. So far until here I haven´t had any health problem. But seeing my husband in his condition something kept telling me that there was something else going on. My dear man still said he knew what he had already and those flare ups would disappear sometimes... I wondered, when is going to be that sometimes? So the word hospital was displaced and not even mentioned ever more. Until last February 28, around 2:00 he asked me to call the ambulance. Part of me was grateful he finally gave up and decided to look for medical assistance but also I was worried how serious would his problem be... He had the NG tube for two days, two and 1/4 of canisters filled up with all the bad materia, XR's showed he had a bowel obstruction in his small intestine (not where the initial problem was diagnosed when he was child). My husband was weighing 91 lbs, dehydrated and emaciated. So far doctors did not considered surgery necessary but told him to be careful and obviously, this time not to ignore at least their assistance even to check how the illness goes. He has next appointment on March 22. It has been only 2 weeks since he has been out of the hospital, has gained 6 pounds so far, his feet were very swollen but now he is able to walk, though he feels still weak and sometimes like he loses his balance. He is also eating practically continually. Last Friday he had 4 plates of spaghetti, later he could not help to buy some chocolate when we went to the theater... oh Good Lord! I did not say anything but just that night he woke me up saying he felt again some pain, I used the same question doctors used: how would you rate your pain? When he told me from 6-7 I got really worried, inside me I thought, oh here we might go again to ER! But thanks goodness it went down and after he went to the bathroom he was able to sleep well.
Like I said before, I am new in this experience, I wish I could take his pain away, and heal him!!! Now maybe I am still with the paranoia of those watery sounds that I think still has inflammation, or maybe he should be careful in the amount of food he has through the day. I understand he is now so hungry and wants to eat a lot. Yet I do not want to bother him saying what to or not to eat... he is having a low fiber diet, I found that yogurt and kefir with probiotics can help so I got for him at Whole Foods. He says that they do not affect him. I was mentioning in other posts how I have become to help my husband, but I wish to know more, maybe I ask too much when I said I want healing powers!!! I hold his hand as much as I can, he likes me rub his head and back, he feels it soothing. Sometimes I just sit by his side and listen. I feel that for him and me help to talk about future, about the places we want to go. I do not deny I feel very frustrated and impatient sometimes, in those moments I take a walk, alone. It is good to scream in the car, too! that helps me personally so getting at home I will not be taking stress for him. But after all, I am very very thankful I am by his side, I wish I could do more though. Sometimes I wonder and try to understand the ways the Lord opened for me to get here and met him and be his wife. I think it was in His plan we'll be together. We try to keep the good humor. Today I was at work and he sent me a txt: I am your cheerleader! I love you! ... that put on me a big smile, I replied: what about a green mini skirt and a pony tail too? Saint Patrick Day is coming so I guess I will bring him for real a green mini skirt... :ylol:
Like I said before, I am new in this experience, I wish I could take his pain away, and heal him!!! Now maybe I am still with the paranoia of those watery sounds that I think still has inflammation, or maybe he should be careful in the amount of food he has through the day. I understand he is now so hungry and wants to eat a lot. Yet I do not want to bother him saying what to or not to eat... he is having a low fiber diet, I found that yogurt and kefir with probiotics can help so I got for him at Whole Foods. He says that they do not affect him. I was mentioning in other posts how I have become to help my husband, but I wish to know more, maybe I ask too much when I said I want healing powers!!! I hold his hand as much as I can, he likes me rub his head and back, he feels it soothing. Sometimes I just sit by his side and listen. I feel that for him and me help to talk about future, about the places we want to go. I do not deny I feel very frustrated and impatient sometimes, in those moments I take a walk, alone. It is good to scream in the car, too! that helps me personally so getting at home I will not be taking stress for him. But after all, I am very very thankful I am by his side, I wish I could do more though. Sometimes I wonder and try to understand the ways the Lord opened for me to get here and met him and be his wife. I think it was in His plan we'll be together. We try to keep the good humor. Today I was at work and he sent me a txt: I am your cheerleader! I love you! ... that put on me a big smile, I replied: what about a green mini skirt and a pony tail too? Saint Patrick Day is coming so I guess I will bring him for real a green mini skirt... :ylol: