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Crohn's Disease Forum » Your Story » Success Stories » Im a believer in herbs now! Herbs that helped me


 
12-03-2012, 11:12 PM   #91
David
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Welcome to the forum Joey Thank you for sharing your thoughts.

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12-03-2012, 11:49 PM   #92
FullM3lt
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Reading this thread, I understand where Muppet us coming from in terms of pseudo-science but I also believe that Gianni is right to be concerned about the financial interests of doctors pharmaceutical companies and the FDA when it comes providing the best care rather than the most profitable.

I think what needs to be said is the standard that Muppet is demanding, peer-review, FDA approval etc. is unlikely to happen when it comes to herbal remedies themselves (rather than a synthetic analog) because it is unlikely that it will ever be in any companies financial interest to pour money into clinical trials and FDA approval to prove that an already easily accessible herbal remedy is an effective treatment for a disease.

This means that, if there are such effective herbal treatments, our best basis for determining which they are is public aggregates of anecdotal evidence such as this forum.

Obviously, one person's story is useless to this end, but a hundred people corroborating that some substance reduces symptoms is meaningful and can be used as the basis of a valid inference that it would be effective on oneself. The knowledge isn't as conclusive as peer reviewed studies but its still good.

I agree that people should not forgo standard medical treatment in favor of a purely herbal remedy (at least not forgo standard medical monitoring), but I also think that this does not mean that well intentioned advocacy for such methods should not be stifled or admonished. This IS the place where we can get the best information about alternative methods because the memberships interests are primarily concerned with providing support and education, and doctors certainly won't provide such information. In the end I believe that poss such as these do far more good than harm.

So anyway, my point is that I understand Muppet's concern, but I believe they are misplaced.
I understand Muppet's concern too...but most people on this board that have gone the alternative route have already tried all the traditional western medications. I know I have.

The pharmaceutical industry helps a LOT of people, but it's also a complete sham in a way.

The FDA is currently conducting trials for a medication called Sativex that mimics the effects of cannabis. So while MM is laughed at now....will it suddenly hold merit if a guy with a white coat can prescribe it for cancer related nausea, MS or IBD? I just don't see the point. When it's all said and done, it comes down to money.

I still get my regular scopes to monitor my disease and I would never go more than 2 years without one.... but I'd rather not continue to take medication that costs thousands of dollars per year with very little increase when it comes to quality of life (again, just my experience).

There is no cure, all medications (natural or pharmaceutical) are essentially managing the symptoms. That's all. If a diet can manage your symptoms, great! If mesalamine or remicade works for you, great! If other options relieve your symptoms and make life liveable...GREAT!

I don't see the point in bickering over what medications we choose to take. Live and let live....we're all built differently. Some of us have great success with traditional medications and some of us have success with alternative methods that are frowned upon.
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Past (failed) Meds: Prednisone, Mesalamine, 6MP, Remicade, Flagyl, etc...all traditional western medicine has failed me time after time.
12-04-2012, 09:03 AM   #93
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It's semantics, but vocabulary is important when you're giving what borders on medical advice: nothing can be a complete sham "in a way". It's either a complete sham, or it's not a complete sham. The meaning hinges on the definition of "complete". There are no shades of completion, there is complete or not complete.

Anyway, I understand that medications fail some minority of people and once you've been sort of "cut loose" from traditional medicine by failing all of it, there's only so many options. However, while alternative medicine definitely has promise in a lot of areas, I don't agree that ad-hoc, amateur research is on a plane with well regulated, peer reviewed, professionally conducted research. Instead of putting all of our resources into either corporate funded research riddled with conflicts of interest, or backyard research, anecdote, and honestly, a lot of potential for people to stretch the truth or even outright lie, though hopefully not in aggregate, there should be some effort to reform medical research in such a way as to either remove conflicts of interest entirely or create a channel where they are eliminated but where real, rigorous research using proper scientific methods is still conducted.

Desperate people tend towards magical thinking, and many can get very defensive of that thinking even in the face of contrary evidence be it research, statistics, or even first hand results. That's a real danger and it should be something anyone participating in alternative medicine should be aware of every single day and with every single supplement and treatment.
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12-04-2012, 01:59 PM   #94
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Hi David, I do have crohn's. I was diagnosed in 2008 (I believe). It was pretty much unproblematic for years without meds, but I had a flare in September and its ached ever since. Right now I've been looking into treatments that don't involve serious side effects, so I joined this forum.

An aside about fullm3lt's comment about mm and others like it: although I do use it and disagree with the illigalization and criminalization of M, there are sound reasons to be apprehensive of mm from a research methodology point of view.

MM does not really make sense as a MEDICAL unit of treatment. It is composed of hundreds of duffrent compounds, and has very intense (although often pleasant ) side effects. The only really justifiable form of mm, from a research methodology point of view, is isolated compounds derived from M.

This point may be irrelevant to some, but it does justify the medical communities resistance to mm as such.

Last edited by joeydj87; 12-04-2012 at 11:58 PM.
12-04-2012, 10:48 PM   #95
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Great to hear herbs working, I have tried TCM which included many various herbs to make a tea that tasted disgusting but definitely helped me quite a lot
12-04-2012, 11:19 PM   #96
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Good deal. This is the second time I've seen Cat's Claw listed as a good remedy. I don't have that on my list. The one thing that concerns me is the timing of taking these herbs. I try to spread them out as much as possible so my liver could process everything. In the morning, I take my Imuran with 2 boswellia/turmeric extract caps, 1 L-Glutamine. Lunch = 1 Fish Oil, 3 Curcumin, 4 Rainbow Light supplements. Dinner = 2 Rainbow Light Supplements, 2 boswellia/turmeric.
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Sub-total colectomy ileo-rectal anastamosis (2007)
12-15-2012, 07:54 PM   #97
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Hello everyone! New to the forum. But been following it for awhile. I do agree with Gianni, as stated above by joeydj87, is misplaced. Muppet needs to re-think the possibility that the current medical practices are the only possible alternatives. As he states he has used some himself. All good advise on the forum.
P.S. that's allot of herbs he is on!
12-15-2012, 08:17 PM   #98
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I never once said that prescription medications are the only alternatives.
12-15-2012, 08:40 PM   #99
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Wow havent been here in a while cant believe this thread promotes such strong feelings. I dont understand why people wouldnt at least give them a try for a month. If you will take the time to research it everyone of them I take has a study proving their benefits. Take the CLA for an example their was a study done near me at Virginia Tech. It showed the anti-inflammatory benefits for IBDs. If I found a study showing positive results I figured it was worth a try.
12-19-2012, 03:01 PM   #100
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Well said FULLM3it. When I see someone denying an actual reality like natural medicine & promoting only traditional medicine it makes me wonder what their true motives are. Many in the medical field might feel that way.

Is that attutude beneficial to anyone on this forum ? What is beneficial is to note specific therapies that was a success in treating your Crohn's disease (Natural or Traditional).

Now I know that natural medicine is not a placebo or magical, because for over 20 years I have been maintaining Crohn's with Natural & Nutritional Medicine- I have never had any operations nor have I used prescription meds since '91. I have had Crohn's since a child, but things got really bad when i was about 25 yrs old. If I continued to eat & drink like I did when I was a youngster I would probably have to undergo drastic medical intervention, which many of you had to experience. Our physical bodies & life exist entirely on the correct nutritional intake, not man-made chemicals. Traditional Medicine has its place & Natural Medicine has its place. We are all here for one specific reason to benefit one another & to LEARN from each other.
12-23-2012, 07:11 PM   #101
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I have a friend who see's osteopath doctor ( he is on the holistic side). Well my friend said that she met a lady there who was also seeing this osteopath that has crohns. This lady was really bad off. She did all the western med drugs and was just getting worse. She was at a point where her doctors were telling her she needed to have her colon removed. She decided to go the natural route with this osteopath. I guess he put her on a juicing diet and a special diet as well and a year later she is better than she ever was! I mean she told my friend she was told there was no help for her and she needed her colon removed it was in such bad shape by the westen med doctors. Yet after a year on a specail diet she is better than ever. How do you expalin that? I mean I think special diets can help some. I also think some herbs can be very beneficial.

Now am I saying all drugs are bad?? No, not at all. Just that some of these drugs can have very bad long term effects on the body. I know I myself have not even been diagnosed with crohn's yet, I still have to have some tests done. But I can say that I do NOT do well with medications. I get all kinds of reactions and side effects. I likley will have to do mostly natural stuff if I get dx with this disease due to my chemcial sensitivities.

I will say that I do also think that the doctors are in bed with the Big Pharma, that is for sure. I remember waiting in my doctors office for an appt. and there had to be like 6 pharma reps come in during that time handing their drugs out for doctors to give out. There are kick backs, dont think for one minute there isn't. As far as a cure, well that remains to be seen. I also have IC bladder which is another debilitating disease. It is another " chronic" condition. Chronic means NO CURE. The reason is because they have no clue what the cause is, so without finding a cause, there will never be a cure. And doctors and hospitals and Big pharma do NOT want cures. If there were cures, they would go broke! I mean I just found out from a person I know who is being treated with humira, that it costs $ 4000 to $6000 per infusion!!!! What a fricking Joke! No way do they want to have a cure when they can keep people paying them $2400 a month for meds!! That is outrageous. NO drug on this earth is worth that kind of money. It is like being robbed without a gun! And yes, the FDA is in cahoots with the pharmacies and all that as well. The FDA never will approve an herbal med or natural approach, they wont and cannot make money off of it plain and simple.

Unfortunately the world runs off of greed as sad as that is. Unfortunately your best interest is usually not the doctors best interest. Money is their interest. You have to be your own advocate and look out for yourself. I mean I am not saying that western meds should not be used, that is not true at all. Medications have there place and have saved lives. But they can also take lives as well. You have to do research and find what works best for you. Each person is different and I guess we all have to find our own path in terms of treatments to see what works.... That is just my two cents..
12-24-2012, 01:56 PM   #102
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Just to throw in my 2 cents, I agree with Full3Mit. I didn't resort to alternatives until after spending a lot of time and money on ineffective medical treatments and prescription meds.

I'm not a fanatic though. Just as an example, I get frequent, reoccuring ear infections stemming from swimming many years ago in an infected bayou of Louisiana. I don't normally seek medical treatment, because about 90% of all ear infections resolve on their own, usually within 7-10 days.

Last one didn't though, so I had to go on a regiment of antibiotics. But by the time I finally gave in and went to the clinic, my ear drum was perforated--which is really, really painful! But even though it was excruciatingly painful, I refused to allow my doctor to prescribe any pain meds, in the hope the memory of the agony will enable me to "know better" in the future.

So I see Muppet's point too. And everyone else's as well.
01-27-2013, 11:30 AM   #103
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There is no documented proof of anything curing Crohn's, including prescription meds. Is documented proof of lots of side effects however. That is documented following the ads however.
Placebo is very powerful but it won't heal your crohns. You devalue the efforts of doctors and researchers everywhere, to the community's detriment, when you push nonsense like this. Yes, some herbs are medicinal and positive thought is very therapeutic but no, none of it is as effective as a proper medical and dietary regimen and most of it has not even been proven to work even slightly.

After 3 decades' experience with Crohn's, I've no more patience for snake oil or superstition, especially not when offered as advice to people who are still coming to grips with Crohns and trying to learn.

There is no herbal remedy in the world that rivals medical treatment of Crohns and anybody who says otherwise is selling you something.
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Suffered badly with Crohn's/Ileitis till diagnosis in 1971and received bowel resection surgery to fix resulting obstruction and perforation the spring of that year. Few symptoms displayed since then, but diagnosed with Celiac Disease about 6 years ago.
Take Asacol occasionally for flare-ups (due mostly to antibiotics), supplements like multi-vitamins, Calcium and OPC-3 in Isotonix form.
01-27-2013, 09:17 PM   #104
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There is no documented proof of anything curing Crohn's, including prescription meds. Is documented proof of lots of side effects however. That is documented following the ads however.
Very true, and I'm finding the timing of the resurrection of this thread more than a little ironic.

My husband's currently hospitalized with a life threatening skin condition called TEN (Toxic Epidermal Necrolysis), which is a severe form of Steven-Johnson Syndrome. Roughly 75% of his skin was covered in gigantic red welts, and now turning black, peeling off in huge scaley chunks, oozing fluids, exposing his body to bacterial infection, lowering his body core temperature, potentially damaging his other organs, etc.

But he's recovering. Thanks to the massive dosages of Prednisone they've been treating him with intravenously, which is working amazingly well, especially when you consider the mortality rate of this syndrome is estimated between 30-70%. It's like a miracle drug!

But ummm, this syndrome is also a KNOWN side effect of the prescription heart medication he's been taking, which his doctors have also confirmed was the most likely cause. Resulting in him developing a life threatening condition induced by a severe adverse reaction to prescription medication.

Sometmes, the cure can be worse than the disease, only he doesn't even have a heart condition. That prescription heart medication? It was preventative. His doctor prescribed it because he thought he "might" develop one.

My husband gets very irritable and sarcastic on prednisone, and told his doctor that, "monkeys might also fly out of my butt, so shouldn't I be on a medication to prevent that too?"

After 3 decades' experience with Crohn's, I've no more patience for snake oil or superstition, especially not when offered as advice to people who are still coming to grips with Crohns and trying to learn.
Speaking of "snake oil", this heart medication is an ACE inhibitor, synthesized from...rattle snake venom!

Oh, the irony.

Last edited by Ya noy; 01-27-2013 at 09:47 PM.
01-27-2013, 10:20 PM   #105
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Speaking of "snake oil", this heart medication is an ACE inhibitor, synthesized from...rattle snake venom!
Now that is funny!

Dan
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01-27-2013, 10:34 PM   #106
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Good thread and I think good points on both sides. Of course big pharma is trying to push their drugs out to docs with their "drug reps". after r&d costs, they are under huge pressure to sell the drugs and find a use for them even after failure. A lot of the drugs we have weren't even originally developed for the ailments they treat! However on the other side of the coin we at least know the drugs have been studied correctly and scientifically. Be careful out there and do your own research and stay closely monitored!
01-27-2013, 10:38 PM   #107
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Speaking of "snake oil", this heart medication is an ACE inhibitor, synthesized from...rattle snake venom!

Oh, the irony.
Venoms are really cool and hugely complex. They could hold the cures for many diseases if we only study them more!
01-28-2013, 12:00 PM   #108
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Venoms are really cool and hugely complex. They could hold the cures for many diseases if we only study them more!
You're right, and there's no reason anyone should feel compelled to "pick sides" on this issue. Both have their benefits and shortcomings.

My husband's condition is actually pretty rare, however the more medications you take, over an extended number of years, is bound to increase the odds of eventually developing an adverse reaction to at least one of them.

At the same time, if he hadn't gone into the hospital, or had waited any longer, his chances of recovery would have decreased dramatically. Most patients hospitalized with this syndrome do not respond anywhere near as well, or as quickly, to treatment.

Probably the reason he responded so incredibly well is because he's only taken Prednisone twice before and that was a number of years ago. So his body hasn't built up a tolerance to it, which very likely, could have rendered it far less effective, if at all.

When he took Prednisone in the past, he had pretty bad reactions to it. but they weren't life threatening, while his current condition is. So in this situation, the good outweighs the bad.

Even most of those incredibly expensive medical treatments for Crohns only have around a 35% effective rate, and even then, often only remain effective for a period of time.

You can't completely discount the effectiveness of herbs, vitamins and alternative treatments because it's been known for a very long time that Vitamin C can prevent and cure scurvy, over 90% of all goiters are caused by an iodine deficiency, and highly unorthodox treatments, such as "fecal transplants" have been producing some amazing results.

Now we usually try natural remedies first, and have found they are usually effective in assisting our bodies heal and recover from many things. The human body contains a number of natural healing mechanisms, and sometimes it just needs some help, which herbs and other natural remedies can provide.

But not everything, not always, and sometime we have to "bite the bullet" and accept that fact that natural remedies have their limitations too.

It's your life, your body, so choose wisely.
01-28-2013, 04:03 PM   #109
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Wow i thought this thread died off! Lots of different opinions and info here. I’ve been reading the forum for awhile, really have not put my two cents in thou. I do agree that herbs/ plant remedies are very helpful. I was Dx’d with crohns 10/2010 after going to the ER totally falling apart ( bloody stools, fever, delirium ) after 5 days of test’s, I was told crohns with fistula and obstruction. Starting at the ilea- cecal to mid trans-verse colon.
After I was sent home with pred. I did the research for herbs, like we all did, (think of all the great side affects form rx. Meds ) And used many of the ones rlslmshdy is using. They seem to be effective so you can’t discount them. I can see muppets point that when things are out of control rx. Meds do have there place. That being said the cost to the body is sometimes more than the worth in a long term. Therefore natural will always be a better option. Rectum! Damn ner’ killed’em.

Hope this finds you well.
01-28-2013, 04:06 PM   #110
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I have to do a full intro of myself, time and energy constraints. I will post as soon as things solw down.
06-09-2013, 04:47 PM   #111
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I am a 54 year old who has had gastro problems for the past 20 years and was diagnosed with IBS about 15 years ago. After experimenting with some prescriptions for IBS I had no relief. I sought dietary information and an Herbalist. The Herbalist developed an herbal formula for me to take every day and they include two of the mentioned herbs, marshmallow root and ashwanganda. My symptoms mostly stayed at bay for the past 15 years except when I would start feeling good and drinking wine daily. Recently I cut back on my herbs and had her change the formula a bit, eliminating the marshmallow and replacing it with another root. I began entering menopause, and things began getting worse. I saw an Integrative Gastroenterologist last month and he did a number of tests including a Colonoscopy (my 3rd in 15 years) and this time saw evidence of Crohn's. I may have had this all along, but my herbs and diet (gluten/dairy free) previously protected me. When I follow up with him I am going to ask him if I can continue using the herbal formula, maybe stepped up with some more anti-inflammatory herbs instead of using drugs. I have every side effect in the book with drugs, and since I have managed pretty well till now, I am hopeful to heal and prevent any further damage. Reading the stories of the serious nature of this disease has really frightened me! Especially because the drugs used to treat it have so many bad side effects.
06-10-2013, 08:21 AM   #112
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It's all horse for courses.
One of my little girls I think would have died from pneumonia 4 years ago - she was in a real bad way but fully recovered thankfully, due to the local hospital, antibiotics and a tube down her throat giving her fluids.

However, conventional medicine whilst great with these life threatening short term illnesses is not so good with the long term chronic ones.

I really get a bit annoyed when people talk about drug trails and how alternative medicine has not been tested etc...
There is over 5 thousand years of testing that has been going on with some Chinese or Indian type remedies. Over here in the UK, big pharma is so scared that it is trying to bring in legislation that removes some of these well tried well known alternatives - if they did not work then it would not be doing such ieeople would just not use them.
Once it has removed the alternatives then big pharma has the whole market to itself.

The other thing that gets my goat is that no one is allowed to mention the 'cure' word. Well I am, I am not in remission, I am cured - there I said it, what are you gonna do about that!!!
I can eat a vindaloo curry, a peperami pizza, anything I want, I seem to have the cast iron gut that I used to have.
I maybe tempting providence but I just had to say it. If I get ill again then I consider it the same as contracting the flu - just god damn bad luck.

My local doctor once told me that medicine is not an exact science and I believed him, he was a great supporter of what I was doing and my results. The hospital however were very different, they struck me off their lists because I stopped taking one of their prescribe drugs - in fact I was told that 'you need to take this, else we cannot see you again'. From an outsiders point of view I could believe that doctors have shares in this big pharma companies - I also noticed that some of the local crohns support groups are funded by these big companies - its like they need you to believe you need them - all very sinister.

For me, I am well out of it, drug free and symptom free for about the last 6 years. In fact am hoping to hit 7 years - is it right that every cell in you body (with the exception of neurons) gets replaced every 7 years - hit that milestone and I will know that there is not a single cell in my body that has been doing unwarranted damage to my colon. Fingers crossed.
06-10-2013, 11:08 AM   #113
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Rog - glad to hear you have been symptom free for so long without medications - hope that continues. As for being 'cured' - may you have a life-long remission period....as truly, that what it is - remission. I used to go years between flares and having to be on medications....unfortunately, that time got to be less and less in between flares....thanks to modern medicine, I have been in remission now for over 7 years...but am in no way cured, as the medicine is needed to keep things at bay.
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06-12-2013, 06:05 PM   #114
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anniegetyoursax : Have you tried " Whole Leaf ALoe Vera Juice daily ?
I have been using it off and on for over 20 years. Along with other natural anti-inflammatories. Aloe really work for Crohns if you are disciplined with eating healthy low fat foods. I take 1/2 cup 2x day. When Im flaring I take more. But I rarely flare when I am consistent with the Aloe.
06-18-2013, 01:03 AM   #115
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Thanks for the information. I have heard that Aloe Vera Juice is pretty regularly mentioned as a natural treatment option that works quite well for many people.
Jim
06-18-2013, 05:26 AM   #116
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· Stoma
It's all horse for courses.
One of my little girls I think would have died from pneumonia 4 years ago - she was in a real bad way but fully recovered thankfully, due to the local hospital, antibiotics and a tube down her throat giving her fluids.

However, conventional medicine whilst great with these life threatening short term illnesses is not so good with the long term chronic ones.

I really get a bit annoyed when people talk about drug trails and how alternative medicine has not been tested etc...
There is over 5 thousand years of testing that has been going on with some Chinese or Indian type remedies. Over here in the UK, big pharma is so scared that it is trying to bring in legislation that removes some of these well tried well known alternatives - if they did not work then it would not be doing such ieeople would just not use them.
Once it has removed the alternatives then big pharma has the whole market to itself.

The other thing that gets my goat is that no one is allowed to mention the 'cure' word. Well I am, I am not in remission, I am cured - there I said it, what are you gonna do about that!!!
I can eat a vindaloo curry, a peperami pizza, anything I want, I seem to have the cast iron gut that I used to have.
I maybe tempting providence but I just had to say it. If I get ill again then I consider it the same as contracting the flu - just god damn bad luck.

My local doctor once told me that medicine is not an exact science and I believed him, he was a great supporter of what I was doing and my results. The hospital however were very different, they struck me off their lists because I stopped taking one of their prescribe drugs - in fact I was told that 'you need to take this, else we cannot see you again'. From an outsiders point of view I could believe that doctors have shares in this big pharma companies - I also noticed that some of the local crohns support groups are funded by these big companies - its like they need you to believe you need them - all very sinister.

For me, I am well out of it, drug free and symptom free for about the last 6 years. In fact am hoping to hit 7 years - is it right that every cell in you body (with the exception of neurons) gets replaced every 7 years - hit that milestone and I will know that there is not a single cell in my body that has been doing unwarranted damage to my colon. Fingers crossed.
I think the problem with talking about a "cure" is when it's proposed to exist for Crohn's in general. It's possible you may be cured, obviously I don't know your situation, but I'm open minded enough to admit it's a possibility. However, even if you are cured, that's one piece of anecdotal evidence. There's no evidence that whatever it was that you believe has cured you would help anyone else with Crohn's. A cure for a disease implies it stands a chance of working for anyone with that disease, and in that sense there is no evidence whatsoever of a cure for Crohn's.

I'm also not sure about your claim that if alternative treatments didn't work no one would be using them. When I first became ill, I was a naďve teenager. I was very gullible - when I saw various alternative practitioners and read web pages on alternative medicine, I assumed that the treatments must work - why would someone claim something that isn't true? When I met for one-on-one sessions with alternative nutritionists, homeopaths, hypnotherapists, etc., etc., and described my digestive symptoms to them, they invariably claimed that not only did their practice work, but that they could help me . I consequently handed them large sums of (my parents') money. Then I'd find that their treatments didn't work at all. The nutritionists actually succeeded in making my symptoms worse.

Why did I keep trying so many? Because I was desperate. I was losing control of my bowels at school, I couldn't stand the thought of living my life this way forever. So when one alternative treatment didn't work, I'd move on to something different. Deep down I knew that these treatments were a load of rubbish, but I was so desperate, I needed to feel like I was trying something, just to stop me having to face the reality of a lifetime of humiliation and sickness, and alternative practitioners took advantage of this situation.

The reason I turned to alternative medicine in the first place was because I was getting no help from conventional medicine. My doctors put me on long waiting lists to see consultants, have tests, and yes, gave me prescriptions for medications that didn't help me. They didn't seem concerned and I couldn't get across to them how badly I wanted to be cured. I don't claim conventional medicine is perfect, or even always better than alternative medicine. I was abused by a doctor; I was put in psychiatric care because I was losing weight and my doctors assumed I was anorexic before bothering to listen when I told them there was something wrong with my digestive system.

However, the troubles I have found in conventional medicine have been largely the result of individuals (the abusive doctor; doctors who didn't believe I had stomach problems; doctors who were prescribing medications when they lacked the knowledge to accurate assess my illness), rather than a result of the practice itself. When I found the right doctors and the right treatments, conventional medicine has saved my life. If you want to go back far enough, I wouldn't have survived being born if it weren't for contemporary medical care. It has eliminated some of my worst symptoms altogether even though it can't "cure" me completely.

Contemporary medicine is researched and tested with techniques that alternative medicine simply wouldn't pass. Yes there's bias in conventional medicine, and money plays a big role in determining which drugs get developed, etc. However, every alternative practitioner I saw was happy to take my money, and when I informed them that I wasn't getting any better, they never once offered me my money back - they usually became very irritated with me and my failure to get better.

To say that greed at the expense of health is only an issue with big pharmaceuticals and doesn't come into alternative medicine is very inaccurate. One hypnotherapist advised me, in a free consultation, to go to a "real" hospital because I was too sick to be managed by hypnotherapy. I think he was the only decent alternative practitioner I saw. I've read that many people benefit from alternative medicine because they are given attention and understanding not found in the mainstream - alternative practitioners listen to them, relax them and give them hope. I never found this. Alternative practitioners wanted my money, gave me hope that they quickly dispelled by failing to produce the results they promise, and often had a tendency to become very short with me when I began questioning why I wasn't feeling better, often blaming me for my failure to improve.

Overall I think my experiences have led me to be incredibly cynical about both conventional and alternative medicine. I think they've just led me to lose my faith in human kind in general. However, it's conventional medicine that has come up with things - medications and surgery - that have helped me hugely, something alternative medicine has never done. If I get run over by a bus, I think I'd like real medications, a mainstream hospital, and definitely real painkillers, not a homeopathic remedy, a gluten-free diet, or a hypnotherapist.
06-18-2013, 05:58 AM   #117
Rog
 
Join Date: Jun 2013
Yes, been there, done that, had my fair share of alternative quackery.
I mentioned the (well know british goth band from the eighties - won't mention the word as I have already had my wrists slapped for using it) as its just the way I feel. I have had the remission feeling, you know, am coping but get the odd bout of big D.
Now the thing with alternatives is that just popping pills I don't think works all that well. For me it was seeing a guy who gave me acupuncture combined with chinese herbs. The person giving the treatment seems to be part of the solution. Ok so this sounds really strange and in the beginning I really didn't think this was the case. There was a very interesting horizon programme (science) TV a couple of years ago where they tried to replicate homeopathy. What they found is that out of the scientists doing the experiment and preparing the solutions, some of the them produced effective solutions others not. It's almost like a quantum effect where the observer becomes part of the experiment. They were able to repeat this effect, doing it several times even with in a blind study situation.
All I can say is that for me I found someone who worked for me, the chinese herbs I took and I asked him what they were and for and I quote "damp heat in the colon - giovanni decoction"
The recipe is secret and chinese herbalists will probably have their own remedy/potion to this condition.
All I can say is don't give up on the alternatives - there are 'good guys' out there, not just after your money, but you need to find that special person that can work for you.
06-18-2013, 06:46 AM   #118
UnXmas
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Thanks Rog. I'm afraid I have given up on alternative medicine, I guess I just saw too many alternative practitioners for me to believe it's worth going to any more. I also avoid seeing any new conventional doctors though, so sometimes I'm really not sure which "side" of this argument I'm on, as although I'm pro-medications, I'm anti every kind of medical practitioner!

I do think a big part of the problem for me was that I was wanting a cure. I saw many alternative practitioners during a time when I didn't yet know what was wrong with me - I'd been misdiagnosed by conventional doctors with IBS, something that alternative practitioners claimed to be able to cure, and even conventional medicine seemed to think improvements were achievable. If I'd known my expectations were unrealistic, perhaps I could have benefitted more from alternative medicine, at least from the aspect of having someone to talk to about my problems, even if they couldn't alleviate my symptoms. Perhaps it would have helped if the alternative practitioners themselves had tried to dispel my unrealistic hopes from the start though, rather than encouraging them!

Having gone back and read through earlier replies, I realise this thread is actually quite an old one. I'm not sure if you're still checking this thread, muppet , but I wish I'd had someone like you to talk sense into me when I was a gullible teenager, new to illness and very desperate!
06-18-2013, 08:00 AM   #119
Beach
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Join Date: May 2011

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UnXmas - it sounds as if you have had a rough go of it, with both conventional and alternative ideas to address your GI issues. Sadly it seems there are a good number of snake oil sales men on both sides of the health care issue, conventional and alternative.

On the study methods you highlight mentioning, have you been reading about the problem of misrepresentation or sometimes hiding of results in the BMJ, out of your country? We have a similar issue here in the US many note. I know that the issue is trying to be addressed, but imagine it will take years to work out, if ever. As is said, sunlight is often the best cleanser.

I recall seeing you mentioning recently that you take an antidepressant. A write up I recall about about these medication test results.

"British Medical Journal seeks to re-evaluate medical ‘evidence’"

http://www.drbriffa.com/2011/04/29/b...ical-evidence/
06-19-2013, 04:07 AM   #120
UnXmas
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Join Date: Oct 2012

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UnXmas - it sounds as if you have had a rough go of it, with both conventional and alternative ideas to address your GI issues. Sadly it seems there are a good number of snake oil sales men on both sides of the health care issue, conventional and alternative.

On the study methods you highlight mentioning, have you been reading about the problem of misrepresentation or sometimes hiding of results in the BMJ, out of your country? We have a similar issue here in the US many note. I know that the issue is trying to be addressed, but imagine it will take years to work out, if ever. As is said, sunlight is often the best cleanser.

I recall seeing you mentioning recently that you take an antidepressant. A write up I recall about about these medication test results.

"British Medical Journal seeks to re-evaluate medical ‘evidence’"

http://www.drbriffa.com/2011/04/29/b...ical-evidence/
That's a very interesting article. I guess that even though conventional medical research theoretically has high standards, in reality it fails to live up to its own ideals a lot of the time.
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