Crohn's Disease Forum » General IBD Discussion » Tooth Problems and Crohns


 
03-12-2012, 03:34 PM   #31
CLynn
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Add me to the list of bad teeth. I had no problems until I had suffered from Crohn's for a few years, now, at 46 years old, I only have front teeth left, and am currently waiting (on the money) to have the front uppers pulled and a whole denture upper, partial on the bottom. I believe it's a cross between years of prednisone, years of malabsorption due to the Crohn's, and having 2 babies. But it is my utter embarrassment to be in the predicament at my age, my mother died at 68 with her own teeth, and my mother in law is almost 82 and still has her own teeth.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
03-12-2012, 04:32 PM   #32
Manatey
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Ya I hear ya!
03-12-2012, 05:09 PM   #33
tots
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Awbrey- During a flare and at a time I didnt have a mouth full of ulcers (canker sores) my new dentist asked if I had IBD. I said yes why? Turns out his sister died from Crohns and he could see evidence of inflamation in my gums that would lead him to think I had IBD. He was the best dentist I ever had.
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Diagnosed= 1992 and again Feb 2012 Confirmed with
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Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


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03-12-2012, 05:22 PM   #34
Chrismac
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I have good teeth generally, I'm 27 and never had work done despite going through a few years in my early teens where I was really bad at brushing and had tons of sweets.

However after being on various doses of Pred non-stop for 7 years my pelvis and my teeth have suffered. I still don't need work on them, but they are cracked, chipped and I have a few holes.

I always find it amazing how much Crohns can affect your body. People think it's just 'the stomach' but don't we all know how wrong they are?!
03-12-2012, 07:46 PM   #35
Irene3
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It is crohns disease. My dentist told me it's common to have teeth problems, gums, even without the meds for crohns.
I too have horrid teeth. Given I don't take the best care of them, but it's cos I hate to even look at them. I originally wanted porcelain veneers, but their too far gone. Like a lot of you, I can't afford the screw INS, so it's left with the option of dentures. I'm seriously considering them now, even though, at 29, the thought of having dentures seems surreal.

Chip.....I too have anxiety about my smile, I hide it from almost everyone except close family, but I still, out of habit don't fully open my mouth to smile, even around them.

Beach.....same same... Lots of cavities, I think I have a total of 2 'good' teeth, which hasn't had a cavity, or something. Root canals, had a few pulled, had absecess, and my front teeth looking horrid. Not that the rest are pretty.

I wish I knew about vit d, and calcium as a kid, but even if we take good care of teeth, like so many of you I'm reading about, with crohns it's a given for a lot of us to have tooth probs. If you have genetics as a bonus, maybe less so, but in my family, in the ppl with no ibd, still lots of tooth probs, so I think for me it was a given that they'd stuff up, considering mum lost all hers by 30, and dad around the same I think. I'd love to not hide my smile though, that's why I'm considering the dentures now :/
04-23-2012, 04:53 PM   #36
sruberti
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I saw your question about your teeth and crohns. One of the first signs something was wrong with my son was he was getting little holes in his teeth. His dentist was the first person to ask if he was having stomach issues. Now my daughter is starting to have little holes in her teeth, I have had her checked and so far nothing, thank goodness. I think it was associated to the acid in his stomach.
04-23-2012, 06:05 PM   #37
marjory2020
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More than tooth decay, gum recession has been an issue for me! The gum lining on my canines and incisors have retracted, and I'm going to have to go in for surgery soon. Am wondering whether this is just aging, or also due to Crohn's? Can anyone relate?
05-03-2012, 07:08 AM   #38
malmae
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I've had crohns most of my life, my dad had it as well. He dad receding gums as well, but in those days no one connected the two conditions. I have been lucky since I have had great teeth up until about 10 years ago. Now I am 55 and my gums are receding. Anyone who is young and is concerned, I really do feel the first sign of trouble is the sensitivity, In my experience it had nothing to do with the meds, but crohns itself. There is definitely a connection. I noticed a substantial change in my gums after my most severe attack. I was one knock away from death.
Good luck to you all, I feel your pain.
mal
07-18-2012, 05:42 PM   #39
KitKat08
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Well I'd like to add myself to the list of bad teeth. I was always good at brushing and taking care of my teeth. When we finally went around to seeing a dentist (I was 13) I ended up with 7 cavities. VS my little brother (11 at the time) who NEVER brushed his teeth regularly had 1 cavity. Here I am 10 years later. "diagnosed" with Crohn's almost 2 years ago, I've had countless cavities filled. I just recently was put on Prednisone which made me feel so great! And I just ended my taper about a week ago.. Then last Thursday I started getting horrible tooth pain and Friday night it was full blown horrible tooth pain. Saturday I went to a dentist and they said one of my molars was cracked and need to have it pulled, but prescribed me Penicillin instead of pulling it then and there. They said more than likely there is an infection there and need to treat it before they can pull it. Well anyways, with out knowing I'm allergic to penicillin, I started taking it and my face swelled up big time. I've since seen my normal dentist who switched my antibiotic. But my facial swelling hasn't died down much. I was wondering if anyone has had any issues like this? I'd like to blame everything on my Crohn's. But I know I can't. I've been missing work for 3 days now. Still can't open my mouth barely more than an inch. I'm tired of my face being swollen, yet I can't get much help from anyone!
07-18-2012, 10:37 PM   #40
ZM1019
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Such a familiar story. I was very sickly from an infant. I had chronic problems with tonsils and ear infections, fevers spiking up to 105 and Scarlet fever. I can remember it even though I was very very young. They would put me in ice baths or alcohol baths in the hospital. They bombarded me with penicillin until I had an anaphylactic reaction to it then they took out my tonsils. At five I needed a filling and my tooth fell apart when they tried to fill it. I had to go to a pediatric specialist dentist who told my mother if she gave me flouride tablets every day I would have my teeth until I was 30 and if not I would lose them all by the time I was 20. (I was sitting right there hearing this!) He told her that my teeth were like swiss cheese from the fevers and antibiotics and that my adult teeth were forming the same way. I finally found a dentist who would try braces on me as an adult. When they took them off, they ripped chunks out of my teeth and I had to have all but four crowned. My teeth have spontaneously abscessed over the years when I don't have an infection (a sign of low Amylase actually). I have at least the cost of a Mercedes in my mouth if not more.

I don't think Crohn's caused it. My Crohn's was just diagnosed and is very early stages. I wondered if all of my dental problems caused an infection that caused the Crohn's. Mostly though I just think I'm defective genetically. I have a lot of issues. I have an "infantile" mouth, very small fingers compared to my hands (ring finger size 3 1/2), skinny feet (AAA), underdeveloped lungs (couldn't run track in school), allergies to almost all antibiotics and pain killers, migraines, appendix almost burst, fibroid tumors which led to a hysterectomy, extreme starch intolerance and so on. And no one in my family has Crohn's but I have three mutated genes for it from both maternal and paternal sides. What I do know is that in my family girls are extremely rare (generations of 9 or 10 boys and 1 or 0 girls) and that they all died young. My father had nine siblings and I'm the only girl from all of their children. I had two nieces and one died at two, while the other developed a genetic form of stomach cancer (from her mother's side not my brother's) and died at 32. My eight nephews are fine. My five brothers are fine. I am a genetic defect. Honestly, I think it's that simple. There may have been a trigger but I was a defective model waiting to be set off by something.
07-19-2012, 08:09 AM   #41
malmae
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Hello
Sorry about all the conditions you have.
Diet is very important with crohn's the problem is it is different for all. Trial and error. In my case all healthy foods, that I love are bad for me; vegetables, fruit, dairy...........
Red meat is good for me, so I had to change my attitude toward it.
As far as swelling of the face, I had that for a long time, it was the lead up to a very severe attack. They call it moon-face, I had to buy larger clothes due to puffiness all through my body, I would wake up 17lbs heavier, really!!!!!!!!
I treat my crohn's as an allergy, it works for me, although it did take some time to realize what I can and can not eat, while trying to keep balance. keep an eye on sweet cravings, for they tend to feed this condition.
I was on meds for 3.5 years, they helped me greatly, although they do cause many different side effects, so you do want to get off them as soon as you can. Experiment with different foods. I was at a stage where nothing was absorbed by my system, there fore I was wasting away, (starvation).
Emotionally you can become isolated easily, because it is impossible to make plans, because you don't know how you will feel on that day. If you check out all the depression sites, 80% are crohn's sufferers.
I am not a doctor, but I really believe in choosing the right foods for you.
Some other conditions that I have, which I believe is related; gum recession, skin problems (including some cancers), breast lumps (cancerous), lactose intolerance, vision issues, cervical polyps.
So is it genetic, bacterial, viral??????? Who knows?????
We must take it one day at a time, and listen to your body.
My sincere hope and love to all sufferers out there.
mal
08-10-2012, 03:14 PM   #42
Crohny
 
Join Date: Jul 2011
Location: Oklahoma City, Oklahoma
if this is related to an illness, wouldn't it be covered under regular Health Insurance? I'm wondering if anyone has queried this before. I have limited dental ins now, and they only pay out a small portion annually. If this was to fall under my health insurance i would have benefits allowing me to be treated, and not put it off until its affordable.
I am trying very hard to find a case where medical insurance has paid out.
An insurance rep recently told me "medical will cover any dental procedures, as long as they are performed in a hospital."
But I'm pretty sure they don't do cosmetic dentistry at a hospital...
If someone could prove me wrong, that would be fantastic!
I'm staring at a $14,000 estimate from my dentist.
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11-02-2012, 10:47 AM   #43
christie_lyn
 
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Google the blog "cooling inflammation" by Dr Art Ayers... he's a biochemist who theorizes that inflammatory diseases such as Crohns are caused by damage to gut flora as a consequence of western diet, antibiotic use and TOOTH DECAY, which acts as a continual source of bad bacteria which makes its way into the gut.
11-02-2012, 03:31 PM   #44
JMC
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Have any of you had any problems with your teeth because of Crohn's or the medication you take?
Yes. I got my first Crohn's symptoms aged 9, just as all of my adult teeth were coming through. I was diagnosed at the time as lactose intolerant, so like you ended up drinking soya milk and probably did not get enough calcium.

In my early teenage years, my teeth got into a very bad state and I ended up with loads of fillings. Since then, I have cleaned my teeth very carefully with the best electric toothbrush (Braun) I can find and regularly floss. My teeth are in reltively good shape now considering all the damage that was done 25+ years ago now, but I think poor calcium absorption could be common with Crohn's.
11-02-2012, 04:05 PM   #45
Beatit
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I never had cavities before crohns at 18. I had not been to the dentist since 2006 when I got crohns but recently went this year for a cavity. My teeth are not super thick but average you can still see that my teeth are thin. when you have crohns you pee out so much calcium and go the bathroom loosing the calcium.
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12-26-2012, 10:52 PM   #46
lmd2071
 
Join Date: Dec 2012
Location: pasadena, Maryland
Add me to the list of bad teeth. I had no problems until I had suffered from Crohn's for a few years, now, at 46 years old, I only have front teeth left, and am currently waiting (on the money) to have the front uppers pulled and a whole denture upper, partial on the bottom. I believe it's a cross between years of prednisone, years of malabsorption due to the Crohn's, and having 2 babies. But it is my utter embarrassment to be in the predicament at my age, my mother died at 68 with her own teeth, and my mother in law is almost 82 and still has her own teeth.
YES MY NICK NAME WILL BE GUMBY OR MOOSH MOUTH SOON.I'LL BE 42 NEXT MONTH. I HAVE HAD CROHNS SINCE MY LATE TEENS AND THOUGHT IT WAS DO TO WITHDRAW FROM AN OPIATE ADDICTION.WHEN THE DIARIAH DID NOT GO AWAY AFTER 6 MONTHS I KNEW SOMETHING WAS WRONG.I DID'NT HAVE INSURANCE AT THE TIME SO I JUST PUT UP WITH IT FOR A LONG TIME.I ENDED UP SEEING A G.I. FOR A CASH DISCOUNT AND HE TOLD ME I HAD IBS.IT WAS THE BEST HE COULD DO BECAUSE I HAD NO INS. OR $$ FOR SCOPES AND SMALL BOWEL SERIES AND BLAH,BLAH BLAH.I'VE JUST HAD MY SECOND SURGERY IN A SHORT PERIOD OF TIME.THE FIRST ONE WAS STRICTUREPLASTY IN SEPT.2006.I BECAME ILL AGAIN IN SEPT.OF 2008 AND THIS FLARE UP LASTED UNTIL 3WEEKS AGO DECEMBER 4TH,2012 WHEN I HAD BOWEL RESECTION.THE SURGEON FROM HOPKINS REMOVED 75CM FROM THE SMALL INTESTINE.SO IN THE PAST FOUR YEARS MY TEETH HAVE CRACKED,BROKEN OFF FLUSH AT THE GUM LINE AND HAVE BECOME DEEPLY DECAYED AT THE GUM LINE.THERE IS NO PAIN JUST ALOT OF EMBARRESMENT DUE TO THE MOST UGLY,ROTTEN MOUTH I HAVE EVER SEEN.I CAN ALMOST COUNT THE TEETH I HAVE LEFT ON ONE HAND.
I MIGHT AS WELL NOT HAVE ANY BECAUSE IM SO EMBARRESSED I HARDLY TALK AND NEVER SMILE.IF FOR SOME ODD REASON I LAUGH I WILL COVER MY MOUTH.
I REALLY DO NOT WANT FALSE TEETH FOR MANY REASONS BUT,LIKE ALOT OF PEOPLE WHO CAN AFFORD IMPLANTS.THEY ALSO TAKE ALONG TIME TO COMPLETE ONCE THE JOB IS STARTED.
MEDS IVE BEEN ON:
ASACOL
PREDNISONE ALWAYS
REMICADE TILL IT ALMOST KILLED ME
HUMIRA
CIMZIA
IM NOT SURE WHICH ONE OR IF IT WAS A COMBO OF PREDNISONE AND CIMZIA BUT,IVE HAD BLOOD CLOTS IN BOTH LEGS(DVT),OSTEOPEROSIS,BLOOD PRESSURE PROBLEMS,PNEUMONIA A COUPLE TIMES ALL IN THE PAST FOUR PLUS YEARS.I WISH THIS ON NOBODY.I MEAN NOBODY.GOD BLESS ALL OF YOU WHO SUFFER FROM THIS HORRIBLE DISEASE.IM NOT EVEN A RELIGIOUS MAN.
01-26-2013, 09:32 PM   #47
PhoenixBird
 
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Does anyone else experience extreme tooth sensitivity (i.e the whole mouth or one side of the mouth) on large doses of Pentasa? I've recently been made to double my dose to 12 500mg tablets a day and my teeth hurt like hell which is most unusual for me.
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Meds: Tried and failed on: Pred, Azathioprine, Cyclosporin, MP6. Not ready yet to try methotrexate. Currently on Pentasa, Pentasa enemas, colifoam, imodium, suppositories, B12 injections, Vitamin D and probiotics. Starting Remicade August 2013.
Surgery: Appendectomy March 2013.
01-26-2013, 09:49 PM   #48
missylock42
 
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My teeth are bad , i am gettin them pulled them gettin false
05-25-2013, 04:49 PM   #49
purdueCrohns
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I have had to have 2 gum surgeries. My periodontist believes it is Crohn's related
05-27-2013, 09:30 AM   #50
Gra
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I don't feel pain from eating really, not through my teeth anyway, it's my gums, where it's sort of receeded and now the bottom of my tooth is showing. I'm going to have to look into this as, if it is my saliva doing this, then a scrape and polish isn't really going to do much is it? It will just come back?? I have some errotion in between the two bottom ones and they are sort of see through, have they said for you to try/take anything scifi? And can your nerves just die like that?? I'm getting quite frightened that mine may fall out... I hate going to the Dentist or anyone touching my teeth as I had a bad dentist when I was younger who went pull happy with my teeth when I had my brace. He ended up getting tried and sued... wish I sued him now!!
Ladyvik, I suspect what you have is gingivitis (Google it for more info). I developed this about 8 years ago, long before I was diagnosed with Crohns. Basically it means your gums are becoming unhealthy, and will eventually develop inflammation and will then recede, exposing soft, vulnerable parts of the teeth to decay. You need to get it checked by a dentist, who will probably send you to a Periodontist who specializes in this sort of thing. I had treatment for a couple of years to get my gums and teeth back to being reasonably healthy. Don't delay - the longer you leave it, the more damage will be done to your teeth and gums.
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ABOUT: male, 66 yo, DX CD Terminal Ileum, 1-May-2012
MEDS-PREVIOUS: Prednisone: 6 months, stopped 19 Dec 2012. Imuran: bad reaction.
Humira: 5th Oct 2012 till July 2013. Worked well for me.
SURGERY: 6 Aug 2013: Ileostomy, Temporary stoma.
29 Oct 2013: takedown.
23 Jan 2015: in remission - my goal is to stay there.

"What doesn't kill us, makes us stronger!"
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