R
rumplestiltskin
Guest
I found this site whilst researching crohn's as it looks like Crohn's is the reason I am so unwell. Let me explain a bit of the backgound information as to why I am looking for some support here.
I have had almost the full work up to a diagnosis and I see my GI in about 2 weeks.
They have established I do have an ongoing inflammatory condition by colonoscopy, white cell scan and faecal/calprotein and blood tests, but up to now they cannot say it is definetly crohn's as the biopsys (taken during scopes) were inconclusive.
They did put me on a maintenance dose of asacol when they found the inflammation, whilst the investigations were ongoing but I reacted to that, so I have had to stop taking them. Fortunatley they had dampened down the pain before I reacted.
I have mixed feelings about the GI visit. Part of me wants a diagnosis as I will then be able to get proper treatment, but another part of me is panicking as after reading up on the subject, crohn's is not a nice disease to have.
I am usually a strong independant person, but I feel that this has been going on for many years and the constant dismissal of my symptoms has shaken my confidence and left me very weary of doctors ( there were times I thought that it must be all in my head).
Sorry if I went on a bit, but it feels good to just talk (write) about it. I don't mean to bore anyone but once I started typing I couldn't stop.
Rumplestiltskin
I have had almost the full work up to a diagnosis and I see my GI in about 2 weeks.
They have established I do have an ongoing inflammatory condition by colonoscopy, white cell scan and faecal/calprotein and blood tests, but up to now they cannot say it is definetly crohn's as the biopsys (taken during scopes) were inconclusive.
They did put me on a maintenance dose of asacol when they found the inflammation, whilst the investigations were ongoing but I reacted to that, so I have had to stop taking them. Fortunatley they had dampened down the pain before I reacted.
I have mixed feelings about the GI visit. Part of me wants a diagnosis as I will then be able to get proper treatment, but another part of me is panicking as after reading up on the subject, crohn's is not a nice disease to have.
I am usually a strong independant person, but I feel that this has been going on for many years and the constant dismissal of my symptoms has shaken my confidence and left me very weary of doctors ( there were times I thought that it must be all in my head).
Sorry if I went on a bit, but it feels good to just talk (write) about it. I don't mean to bore anyone but once I started typing I couldn't stop.
Rumplestiltskin
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