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Crohn's Disease Forum » Tests for IBD » Mri Scan Small Bowel Study?


 
10-01-2013, 12:57 PM   #31
NomadWarMachine
 
Join Date: Oct 2013
Location: Glasgow, United Kingdom
Hi

I'm having an MRI scan on my small intestine this Friday. I had one on my bladder recently and had a panic attack at the beginning, but was ok once it started.

I'm going to get something to sedate me, but I was really wondering how far into the scanner you go for this - my head was sticking out for the last one and that was ok.
10-01-2013, 01:07 PM   #32
Ihurt
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Hey there,

I had to have an MRE of the small bowel last year. I am severely claustrophobic too. You will be all the way in the scanner, your whole body. This is what I did and it worked. I told the technician that I was severely claustrophobic before hand. I brought with me a blindfold( actually I got one of those eye blinders they give you when you go on a plane to cover your eyes). I put this on before I even entered the room where the scanner was. The tech was very nice and understanding about it. He guided me to the machine. Because I did not see it before hand I did fine, no issues. This worked for me. It is mind over matter. Having the blind fold on did the trick. It was like I went in their blind. I kept my eyes closed the whole time too even with the blind fold on. It is just an idea and I thought I would pass it along.
10-01-2013, 01:38 PM   #33
NomadWarMachine
 
Join Date: Oct 2013
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Thank you - that is a really good idea. I know I will be ok, because I was last time, but it's just a bit panicky now.

05-13-2014, 11:00 AM   #34
Addie726
 
Join Date: May 2014
Hello! Just wondering if anyone has gone lately for the MRI with the contrast? I am worrying myself sick. I had the CT with contrast and after I started drinking it had to be running to rest room with terrible Diarrhea. The CT scan is fast but the MRI takes at least 45 min, without moving. I know i need it done, but what do they do for people that have a problem and not be bale to make it that long without running to restroom. Any advice would be helpful, i am making myself sicker just thinking about it. Thank-you
05-13-2014, 11:27 AM   #35
Hot Tub
 
Join Date: Mar 2013
Hi,

I had the MRI scan done and I started experiencing diarrhea even before the drink was finished. I had to go to the loo a couple of times before going in to the MRI scan and I told the tech this. I laid in the machine and managed to keep my buttocks clenched tightly, long enough to get the scan done. Towards the end when the tech came over the auto com to tell me that it would only be another ten minutes, I screamed at him to "Get a bloody move on!" I managed to hang on and raced out to the loo, but the situation had eased a little by then.

I wish you the best of luck and please remember that the staff at the hospital have seen it all before.
05-13-2014, 12:32 PM   #36
Ihurt
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Oh yeah, same thing happened to me HotTub! I will NEVER drink that crap again! It caused me severe diarrhea and messed up my whole stomach and I itched from that stuff. I was a bit mad because I asked the tech what the ingredients were in that contrast you have to drink. He said just barium! He lied. It was full of that fake sugar crap! I cannot tolerate that stuff at all! Also the glucagon shot they give made me sick as a dog as well. I almost threw up in the machine. Thank God I was able to keep it down. I was sick for over three days after that test. I also got a infection(UTI) due to that stupid Glucagon shot! My regular primary care doctor told me that the glucagon is like a massive steroid, it plateau's your immune system. She said that likely left my immune system vulnerable. In any event, I think if I ever have to go through that again, I will only do it if they find something else for me to drink. I will never drink that stuff again.....
05-13-2014, 12:42 PM   #37
Addie726
 
Join Date: May 2014
Thank-you both for your message. I am so afraid to go, because of the problem I had when i drank the same solution for the CT. It was right after I started drinking I had instant "D". My family keeps telling me, "you just have to do it" but they dont understand because they haven't been through it. I only weigh 100lb.'s and I have had 17 inches of bowel removed, so i think it makes it even worse.
05-13-2014, 04:08 PM   #38
Ihurt
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Is there anyway you could ask if there is a way to do it without drinking that stuff? I mean there has to be. There are people out there who are allergic to that stuff( I mean I wont drink it again because it made me itch all over). I remember reading on here in an older post about a woman who said she also could not tolerate that stuff and was able to just drink rice milk and it did the job. They were able to get good pictures. I would talk to the doctor and explain your concerns to him. There has to be an alternative. I mean like I said, there are people who just cannot tolerate that stuff at all..
05-13-2014, 09:05 PM   #39
Addie726
 
Join Date: May 2014
I did ask the Tec and they have to use that solution to highlight the area of the colon. There is nothing eles you can drink, he said its the best test they have to get a good picture of that area.I dont doubt that , its just what it does to me i know i can lay there for 45 min. I have a lot of adhesion and they have been causing bowel obstructions. Luckily the last one I need a operation for was in 2000, but i have been getting them frequently now, and they just put me on liquids and it has got untwisted by itself. But i worry the next time i may not be so luckily. I am glad I found this site, I just feel like the people on here understand, because you have all been having similar issues. Thanks!
05-14-2014, 12:18 AM   #40
Hot Tub
 
Join Date: Mar 2013
I'm sorry to hear about your problems, but I'm sure that you will be alright. It may be possible for you to drink the fluid a bit earlier, so that any nasty effects have passed before you go into the tunnel. After a couple of visits to the loo I was alright.
05-14-2014, 01:14 AM   #41
Tantija
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Thank-you both for your message. I am so afraid to go, because of the problem I had when i drank the same solution for the CT. It was right after I started drinking I had instant "D". My family keeps telling me, "you just have to do it" but they dont understand because they haven't been through it. I only weigh 100lb.'s and I have had 17 inches of bowel removed, so i think it makes it even worse.
Hi. Here in UK we have to drink stuff what expands inside to allow them to see better and we have 2 injections: 1 with iodine as a contrast in a blood vessel and buscopan to stop intestines moving. I guess that stuff what expands blocks everything inside for a while.
I understand you very well as I have been there. Have you considered SCD diet?
All the best.
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05-14-2014, 07:10 AM   #42
Ihurt
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I do remember talking with a friend of mine after I had it done. I was telling her how awful that stuff that I drank made me feel. Her husband is a doctor and told her that they "can" do this test without the oral contrast. They just do not like to as it will make their job a bit harder. It is true that the contrast helps the intestines become more visible. BUT, with a very trained specialist, they can read the scan without having to drink all that crap. They just don't like to, and you probably do get a little bit better picture with the contrast. Another thing is that they have to have an alternative. I mean what happens to people who are severely allergic to that stuff. I know LOTS of people who cannot ingest ANY fake sugars( which that stuff is filled with). That is what gives the diarrhea I believe. Also another reason they have you drink that stuff is because they need the intestine to be expanded, which is why they give you so much to drink. That is why I was thinking drinking something else, like rice milk or something would do the same thing, it would expand the gut in order for them to see better without making you so sick. Is there any way you can talk to your GI about it. Maybe they will work with you on it.
05-14-2014, 07:25 AM   #43
Addie726
 
Join Date: May 2014
I also had my Ileum removed. Do you have issues with scar tissue? I have not heard anything about the SCD diet, but I am going to look it up. Does the B 12 shot seem to help?
05-14-2014, 07:32 AM   #44
Tantija
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I also had my Ileum removed. Do you have issues with scar tissue? I have not heard anything about the SCD diet, but I am going to look it up. Does the B 12 shot seem to help?
Hi, I guess these questions are for me . Sorry what do you mean by issues with csar tissue please? I do not think that B12 helps with Crohn,s in any way. It is just that ileum should be involved in vitamins B absorbtion and once we do not have it we have to get it from outside. I am an activist of SCD diet. It did change my life a lot. It did not heal Crohn's but i fell much much better. I do not loose weight at all now, my blood test does not show any inflamation, no pain, no cramps, better stool.
05-14-2014, 08:02 AM   #45
Addie726
 
Join Date: May 2014
I have Scar tissue (adhesion's) It forms from having multiple abdominal surgery's. So at the point where they did my resection I have a narrowing. That is what is causing my pain and blockages. I am not on any Crohns medication, my problems are all stemmed now from the scar tissue. My daughter and my sister are both on Remicade IV drip medication every 8 weeks, but has really helped them.
07-30-2014, 12:16 AM   #46
Prologue
 
Join Date: Jun 2014
ughh, I had an MRE and had to drink some nasty crap. It was light yellow in color and I sweet in taste. I believe it also was full of that artificial sweetner stuff. IT made so SOOOOO sick. I hardly got out of the machine and I was running to the toilet with awful Diarrhea all day long. I would NEVER drink that poison again. I even asked before hand to make sure there was no inactive ingredients in it due to me being sensitive. I knew when I started drinking it that the tech lied when he said there were none. I cannot tolerate ANY of those fake sugars at all. I will never drink that stuff again. They will have to come up with something without all that fake sugar stuff..... I am glad to did ok, that is great. Hope everything turns out ok.
hahahahaha yes!!!!!! I just had one done today and i felt the same way. I was nauseous while drinking it! I nearly puked when they injected me with some glyco what ever the heck. The test was simple, just all the crap they stuck in me made it terrible! Gotta find dat crohns though.
03-07-2015, 10:52 PM   #47
Goldilocks
 
Join Date: Mar 2015
I guess I'm late to the party. I recently had one of these, and I could have sworn that one of the techs said the stuff was Miralax, though I can't be entirely certain. Anyways, they wanted me to drink three cups (plastic cups, might have been 12oz. each) of the slippery clear liquid (relatively tasteless or at least without notable flavor except a little bit of an aftertaste that's hard to describe). They offered Crystal Light to make it better, though I turned it down; they later also offered to mix it with apple juice. I struggled with drinking it, but I have trouble drinking large quantities of water, as well, which I told them. I made it through maybe 1.5 cups, though I'm not sure exactly how much, as I switched to room temperature liquid from cold part way through the first cup. I couldn't really tolerate much more without vomiting. One of the techs wasn't sure whether they'd be able to do the test; a different one just urged me to take another couple gulps if I could and ran my test. She said afterwards that everything was adequately coated (what the tech said was the purpose of the liquid). I did have some mild cramping during the exam, but nothing too bad; I had diarrhea a few hours later, though ... and my stool has been irregular and less formed since (it was fine before the test). I do wonder if that stuff screwed up my flora/fauna.

Seeing some of these comments mentioning milk as an alternative makes me really curious ... I can drink a considerably larger quantity of milk at a time than I can of water or that prep. liquid (I don't know why). I'm definitely going to ask my doctor about that.
03-11-2015, 01:17 PM   #48
brooklyn23
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I think I had that one done a while back. Like way way back. 2011. Don't drink the barium prep too quickly. I ended up throwing most of it up.
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03-11-2015, 02:28 PM   #49
CalMom
 
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Hi All. I am new to this Forum. Just found it today. My son has Crohn's and had the MRE for the small bowel this past August when he was still 12 years old. He did have to drink a barium-like substance and he did have contrast via an IV. He was awake the whole time and was fine the whole time - lucky him. He could not drink all of the concoction though. It was just too much for him to consume and we were pushing our luck keeping him from throwing up. He is really sensitive to new tastes (one of his issues I think is a result of his health history). The milk/water combination would be much better for kids I would think.
Good luck with your test.
10-21-2016, 11:58 PM   #50
warrior2
 
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Angelica, could it be ibs instead if ibd? i dont think i saw what your symptoms were other then pain upper area??
10-22-2016, 02:54 AM   #51
Blu's Tale
 
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Hi everyone so just come back from my mri scan today and i fainted! So embarrasing i had crampy pains in my tummy in the needle room prior to going in for scan and the radiographer went out the room and i couldnt breathe and just went. The scan itself was okay it is really noisy and quite claustrophobic i had to drink this clear solution drink wasnt very nice and then had a dye injected in. Results should be back with my gastro next week please god let it show something


I have a small bowel MRI on Monday because although my colonoscopy showed inflammation and an ulcer my GI is not convinced it's Crohns. Just praying that something shows up or the will diagnosis ibs


10-27-2016, 05:03 PM   #52
Scipio
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I have a small bowel MRI on Monday because although my colonoscopy showed inflammation and an ulcer my GI is not convinced it's Crohns. Just praying that something shows up or the will diagnosis ibs
If the colonoscopy showed inflammation and an ulcer that by itself suggests that this is something more than IBS. By definition, IBS is non-inflammatory.
12-04-2017, 12:06 AM   #53
francesca12403
 
Join Date: Dec 2017
hi i was recently diagnosed, i had to drink the liquid too! oh my it was horrible, i only drank one and then i puked and retired to drink more, then they told me i had to drink a ton of water so maybe i they could see stuff in the pictures, then when i was in the thing they injected me with this stuff and i felt horribly sick and i puked again, i am not looking forward to doing this again soon to see if my treatment is working, also iím taking Humira and itís is the worse pain ever, the shot it unlike anything i have ever felt in my life, my experience may be different than yours so donít take my experience as what yours may be like
12-04-2017, 08:58 AM   #54
ronroush7
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hi i was recently diagnosed, i had to drink the liquid too! oh my it was horrible, i only drank one and then i puked and retired to drink more, then they told me i had to drink a ton of water so maybe i they could see stuff in the pictures, then when i was in the thing they injected me with this stuff and i felt horribly sick and i puked again, i am not looking forward to doing this again soon to see if my treatment is working, also iím taking Humira and itís is the worse pain ever, the shot it unlike anything i have ever felt in my life, my experience may be different than yours so donít take my experience as what yours may be like
I could be wrong but I think I have heard that if you apply an ice pack first that it can help some with the pain.
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12-04-2017, 07:36 PM   #55
my little penguin
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Ds started humira at age 9 ANd was on it for well over 5 years
Things that help
Ice prior to and after
Lollipops or other sugar during -sugar blocks pain receptors
Have some one ask you hard questions you need to think about -math history science etc.. not yes or no - though process blocks pain
Ask your doc about adding lidocaine to humira (this lowers the ph so it burns less
We did this for ds for years

That said humira changed formulas in the US which doesnít have citric acid and doesnít burn
This should be put as soon as the distributors use up all the older humira

Good luck
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