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05-04-2010, 03:29 PM   #1
crystal5520002000
 
Join Date: Jun 2009
Location: kansas city, Missouri

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lialda

I went to the doctors office today and he really wanted to put me on entocort but sice i don't have insurance and apparently they stopped having the free plan on it they gave me lialda. Just wondering how this has effected people and Im a little worrisome that he told me to come back in 3 months to check my kidneys. I hope this helps.
05-05-2010, 11:28 AM   #2
CrohnsHobo
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Location: San Diego, California
I took Lialda for at least a year. I was taking a ton of Asacol a day (8 or so pills) so the Dr. moved me to 2 Lialda a day to minimize the amount of pills I would need to take.

Never had any adverse side effects, just stopped working after awhile.
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Diagnosed in 1996
Currently on: Nothing!
Colostomy surgery 4/24/12

Past Failed Treatments:
Prednisone
Remicade
Asacol/Lialda
6 MP
Cipro/Flagyl
Humira
Methotrexate
Cimzia
Azothiropine
Entyvio
Augmentin
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05-05-2010, 12:23 PM   #3
Cookie
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I also switched to Lialda from Asacol to cut down on the amount of times I had to take my meds each day. It is the same drug as Pentasa and Asacol, it is just designed to be released differently. My doc said it's best for people with Crohn's in their colon. As far as a know, all of these drugs (mesalamine) have very, very minimal side effects and I never heard that it can cause kidney problems (Google mesalimine). Strange thing is, my Lialda is expensive, even with my insurance.
05-05-2010, 12:53 PM   #4
CrohnsHobo
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I remember it being pretty pricey also Shady.
10-06-2010, 07:35 AM   #5
pugmonster
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I'm new and this may be old news to you guys but my pharmacist told me about a Lialda Loyalty card that helps pay part of the co-pay. I'm a grad student with decent insurance (knock-on-wood) but little expendable income and this was a God-send. I had to call around to get it...I started by calling my GI's office but it's worth a shot.
10-06-2010, 07:46 AM   #6
2thFairy
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I had a good experience with Lialda until it just stopped being effective. No side effects at all, other than a purple splattered underside on the toilet seat (with any mesalamine drug). Yes, a plastic toilet seat is my friend... hahaha!

Lialda is expensive without insurance, but definitely check into the Lialda Loyalty card thing that Pugmaster mentioned. There is one program available right now that makes Lialda only $10 with or without insurance.
10-06-2010, 07:47 AM   #7
2thFairy
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Here is one: www.Connect2More.com

Actually, that one may only be available until December 31, 2010, but it's worth looking into.

EDIT: Apparently that link is now dead... hmm.. sorry about that.

Last edited by 2thFairy; 10-06-2010 at 07:50 AM.
10-03-2011, 10:50 AM   #8
KTA
 
Join Date: Aug 2011
My adult son was on Sulfasalazine for years when he got diagnosed at 15 but when he turned 21 and had to see an adult GI specialist that doc took him off and gave him Lialda. He took it for 7 years and thought it did nothing since he was passing the whole pill in his bowel movement. His adult GI refused to give him a script for Alzulfidine. My son decided to get a script for Sulfasalazine from our family doctor. I don't think you would consider that in the same class as 5-ASA.

By the way, my son's GI doc gave him a card from the company that makes Lialda so he would only have to pay $10 a month for the medication. The card lasted a whole year and the company automatically sent him a new card when the year was over! Maybe some of you folks who have trouble with the price of Lialda could look into getting that.
01-25-2012, 07:34 PM   #9
Beach Living
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Location: San Diego
I have been on Lialda for about 2.5 years. I have been using the discount card the whole time with insurance and only pay $10, its cheaper then mail order this way. I switched to this because taking 10 Asacols a day was not something I could work into my daily life. When I go to the DR in March I am going to ask about doubling the script to twice a day since I haven't been feeling good.
12-02-2012, 03:23 PM   #10
stevej54
 
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I've been on Lialda for about two months now. I'm also receiving Remicade infusions every 2 weeks. I'm having my second tomorrow. My nurse told me that if I am going to have an allergic reaction to the Remicade it will probably happen during my second infusion. I take 4 Lialda pills a day which seems like a lot but I was recently diagnosed with crohns so maybe the doctor is just trying to crush my symptoms. So far so good. My only symptoms are a little bit of fatigue and shortness of breath.
12-03-2012, 12:31 PM   #11
KTA
 
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Hi Everyone: My son actually went back on the Lialda after taking Azulfidine for 10 months. He felt the Azulfidine wasn't making him feel any better, so he went back to the Lialda. I'm pretty sure he takes 4 pills a day. And he is still able to use the card to get it for only $10.
12-22-2012, 11:10 PM   #12
starsandbucks
 
Join Date: Sep 2012
Location: Woodland Hills, California
I've been on Lialda since September and it's been a miracle for me. I feel so much better that's it's almost hard for me to remember how awful I felt. However, I forgot to pick up my prescription last week and ended up going two days without medication and saw an immediate return to my symptoms and even pooped blood three times in one night. It kind of hit home for me how much I need this medicine. So, do you just keep taking it indefinitely? Obviously I still need it but do you ever STOP needing it or am I looking at taking this for the rest of my life? (oh and once the medicine kicked back in after my two days off the bleeding and diarrhea stopped.) Thanks, all.
12-23-2012, 12:10 AM   #13
2thFairy
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It's a maintenance drug, so yes, you will probably be taking it until it stops working...IF it ever stops working.
12-23-2012, 11:44 AM   #14
starsandbucks
 
Join Date: Sep 2012
Location: Woodland Hills, California
Thank You!
01-12-2013, 09:22 PM   #15
Edanera
 
Join Date: Jan 2013
Location: Los Angeles, California
I was diagnosed with moderate Crohn's in the fall of 2011.

Used Lialda 4x/day for two scripts (or, two months) and have slowed down to an as needed basis. I haven't even gone thru my third script yet!
01-15-2014, 01:46 PM   #16
atteberyc
 
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So i have been taking Lialda 2x a day for three days and today i passed alot of blood. I know that is a serious side affect, i called the GI Dr and now i'm just waiting to hear back from them...pretty scary for me. I've never been through anything like this before...
01-15-2014, 07:01 PM   #17
2thFairy
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What were you taking before the Lialda? I would sooner think that your body is adjusting to a new medication rather than this being a side effect. I passed a lot of blood with every flare up or whenever I needed my meds adjusted. Sounds like you need a higher dose of Lialda.
01-16-2014, 09:03 AM   #18
atteberyc
 
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I havent been on anything before. I just found out I have Crohn's' Colitis and this is the first medication that i've been put on. I called my GI dr & he said tha it was probably from the procedure on monday (i had a colonsopy monday) and they took biospys...he also said that the pathology suggests Crohn's too so they are also going to start me on steriods. He wants me to continue takign the Liada, and start the steroids once i get them and they also pushed my appointment up a week...
01-16-2014, 08:09 PM   #19
2thFairy
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Bleeding from biopsies is very common and sounds about right from what you described. Good luck with all of your treatments!
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