Hey everyone,
I just discovered this site this morning and really enjoyed learning and reading through some of the sections. My name is Mike and I'm a Psych/Bio major at URI and starting to look at grad school. I was diagnosed with Crohns in September of 2009 after about eight months of suffering.
A little after Christmas of 2008, just about everything I ate made me throw up and I went from my hockey playing size of 6' and 210 pounds down to 160 pounds by July and skinny. I also had a fistula blow up to the size of a golf ball on my butt and had three surgeries to clear that up. I had one doctor cancel three appointments on me, another kept insisting it was just simple IBS, but a third one finally did an endo and found several ulcers right after my stomach and the colon showed my Terminal Ileum all ulcerated as well.
He diagnosed it right away and put me on 40mg on Prednisone, 8 Pentasa, along with Omeprazole. I also started talking daily vitamins, along with Calcium, D, Iron, Magnesium, and Fish Oil.
The Prednisone just made me eat and as soon as I dropped down to 20mg I felt awful again. I really started watching my diet and started living off sticky white rice and protein bars/shakes. I also started on Cimzia which was useless for me.
So now I am still on all my vitamins and others for the Crohns and Anemia. Also just on Pentasa and Omeprazole and still living off the white rice and protein bars/shakes. The doctor wants to get me started on Remicase asap, but I'm very hesitant. Despite feeling well and gaining twenty pounds back, he still wants to get me on it to avoid stricturing and other complications. (Excuse my ignorance I'm still learning the lingo).
A couple days a week I will still have to go to the bathroom six or seven times a day but I'm down to usually only two or three. I also am always tired but I'm still playing hockey a few days in the week and spend about two hours five/six days a week in the gym.
Thanks for reading
I just discovered this site this morning and really enjoyed learning and reading through some of the sections. My name is Mike and I'm a Psych/Bio major at URI and starting to look at grad school. I was diagnosed with Crohns in September of 2009 after about eight months of suffering.
A little after Christmas of 2008, just about everything I ate made me throw up and I went from my hockey playing size of 6' and 210 pounds down to 160 pounds by July and skinny. I also had a fistula blow up to the size of a golf ball on my butt and had three surgeries to clear that up. I had one doctor cancel three appointments on me, another kept insisting it was just simple IBS, but a third one finally did an endo and found several ulcers right after my stomach and the colon showed my Terminal Ileum all ulcerated as well.
He diagnosed it right away and put me on 40mg on Prednisone, 8 Pentasa, along with Omeprazole. I also started talking daily vitamins, along with Calcium, D, Iron, Magnesium, and Fish Oil.
The Prednisone just made me eat and as soon as I dropped down to 20mg I felt awful again. I really started watching my diet and started living off sticky white rice and protein bars/shakes. I also started on Cimzia which was useless for me.
So now I am still on all my vitamins and others for the Crohns and Anemia. Also just on Pentasa and Omeprazole and still living off the white rice and protein bars/shakes. The doctor wants to get me started on Remicase asap, but I'm very hesitant. Despite feeling well and gaining twenty pounds back, he still wants to get me on it to avoid stricturing and other complications. (Excuse my ignorance I'm still learning the lingo).
A couple days a week I will still have to go to the bathroom six or seven times a day but I'm down to usually only two or three. I also am always tired but I'm still playing hockey a few days in the week and spend about two hours five/six days a week in the gym.
Thanks for reading
I don't have any advice for you...but there are lots on here that I'm sure can give you some!
