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Crohn's Disease Forum » Treatment » My Stem Cell Journey


 
06-13-2010, 05:35 PM   #31
DustyKat
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Hi Ziggy,

If you don't mind me asking, how are you going emotionally? Do you have any family or friends with you?

Keeping my fingers and toes crossed that everything goes according to plan.
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06-13-2010, 05:50 PM   #32
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Hey Zig, I'm surprised you aren't kept in isolation or something while your immune system is being destroyed.
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06-14-2010, 02:30 PM   #33
CrohnsHobo
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Glad to hear it is going well. When they take your blood they take it for 4-6 hours? That must be a ton of blood.

Amazed how calm you are. I get nervous just reading this, but hospitals kind of freak me out in general.
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06-14-2010, 02:46 PM   #34
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Good to hear things are relatively smooth , stay strong! We're all rooting for you!
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06-14-2010, 04:43 PM   #35
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WOW you are truly inspirational. Please keep posting when you are able too and know that everyone is behind you. I had no idea this was possible. It's brave people like you that shape the future of medicine. You give us all hope and reminded me of this quote..... "Nothing is impossible - it just hasn't been done yet." You can do it Ziggy x x
06-16-2010, 12:51 PM   #36
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Hi Ziggy,

If you don't mind me asking, how are you going emotionally? Do you have any family or friends with you?

Keeping my fingers and toes crossed that everything goes according to plan.

Great question Dusty! Emotionally I have prepared myself before hand as much as i possibly could before taking this route I chose(and believe in). I truly believe the emotional state is the hardest part about going through something this "extreme". However I have never been one to panic when in a crisis, nor get sad or depressed when times are rough...rather I seem to get a bit upset/angry, and then make a plan. After all is said and done, if things don't go my way, I eventually become content in knowing I tried my best. You can't control what life throws your way, but you can control your perception of any situation. Staying positive is key to this thearpy - I can't stress that enough to anyone considering taking on this ASCT.

Thanks again Dusty - It is very comforting knowing I have so many people behind me! =)

Last edited by Guest9283; 12-30-2012 at 04:45 PM.
06-16-2010, 12:54 PM   #37
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Hey Zig, I'm surprised you aren't kept in isolation or something while your immune system is being destroyed.
Dexky, During the next stage of chemo I will be isolation as stage 2 of chemo is 7 days.

Last edited by Guest9283; 12-30-2012 at 04:45 PM.
06-16-2010, 01:00 PM   #38
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Glad to hear it is going well. When they take your blood they take it for 4-6 hours? That must be a ton of blood.

Amazed how calm you are. I get nervous just reading this, but hospitals kind of freak me out in general.
Yeah and to boot, I hate needles lol. I was actually diagnosed with a "needle phobia"(yes there is such a diagnosis lol) when I was younger.I have gotten a bit better since then. I wouldn't say I am as calm as can be about it, but I am as ready as ever to get it done - Friday it will be!

- I'll find out just how much blood they take out for ya lol.

Last edited by Guest9283; 12-30-2012 at 04:46 PM.
06-16-2010, 01:01 PM   #39
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Good to hear things are relatively smooth , stay strong! We're all rooting for you!
Thanks so much Claire! Nice to hear from ya!
06-16-2010, 01:18 PM   #40
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06-17-2010, 05:03 AM   #41
Barbie
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I'm so glad you seem to be doing soo well, keep it up if you ever want to chat you know where we all are! I'm so glad I have found this site xx People are amazing x You are doing the RIGHT thing because you followed your instincts. Dont you dare let anyone tell you otherwise. Trust your voice x x You can do it!!!! xx (I know its easy for me to say cos Im not the one going through what you are but I think your a complete inspiration you deserve an award. Maybe they can award you a pride of crohn's award or something on here??? Stay strong cant wait to read more x x
06-17-2010, 05:14 AM   #42
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Hey Zig, from your earlier post on 6/13, you should be in your neutropinic phase. It seems we are asking too many questions to let you update your progress. How long will you be kept in isolation? I hope you'll still be able to post during that time as it really has become fascinating to follow. Good luck and keep us posted.
06-17-2010, 04:19 PM   #43
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06-17-2010, 05:47 PM   #44
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Wow, gone for a minute and I missed all this! This is totally remarkable and I really hope this could lead to a cure some day. I commend you for being one of the firsts to try this. Keep it up, we are sending positive energy and hope! I am so glad you were persistant to stay with us! Good luck tomorrow!
06-17-2010, 06:16 PM   #45
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Hey man I just want to say big thanks for posting all this and keeping us updated. I remember reading about the stem cell treatment a few months ago and I've been interested in developments since then.

I'l be following this thread and I hope it all goes as smoothly as possilbe for you

Cheers,
Matt
06-17-2010, 07:06 PM   #46
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06-17-2010, 07:19 PM   #47
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Hey Ziggy!

It sounds like you are doing fairly well! Keeping you in my prayers that all goes great for you! I love reading your posts about how you are doing. I love your take on things. I, too, try to keep a positive attitude for the most part, but the crohn's gets into my head at times and likes to eff with me :0)

Keep on keepin' on!

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06-17-2010, 09:53 PM   #48
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Monday I did the Neupogen shots and antibiotic meds at 7am, and then went for blood work shortly thereafter. Doctor called me back several hours later to inform me that all my levels looked good and that I am not neutropinc yet! I spent the day away from public and kept as sanitized as possible. I mainly just tried to keep myself occupied. I kept up with the other crohn’s patients and, also did a bit of studying on a business venture I will be pursuing after the transplant (with my fellow transplant buddy).
06-17-2010, 09:55 PM   #49
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06-17-2010, 09:56 PM   #50
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06-17-2010, 09:57 PM   #51
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06-18-2010, 12:13 AM   #52
stylinmama
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Wow! It's amazing that your doing this! I'm so glad you are posting this all here....you have alot of valuable information to share!

Good Luck! I hope this works out for you ....and for everyone one else that may benefit from this trial!
06-18-2010, 03:39 PM   #53
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Hi there Ziggy I am new to this site but alas not to crohns, I just wanted to say thankyou so much for your blog I have been very interested in stem cell therapy as a treatment for CD as my story is so much like your own especially the part where you could not absorb anything and became dehydrated kidneys failing extreme wieght loss etc and the subsequent lung problems so your blog is very much of great interest and if not for people like yourself others such as myself can find it very difficult to make a true informed choice when offerd different treatments, but with blogs like your own it gives us that bit more in the way of choice because while indeed everybody responds in different ways the procedure is the same, also they may find that they respond in a way similar to yourself which because of your blog and others like it they understand whats happening and it becomes less worrying so again thankyou so much for taking the time even though there are times when you must be exausted or feeling very unwell you are an inspiration. Thank You x also I hope eveything goes well for you!
06-19-2010, 02:36 AM   #54
Barbie
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ziggy im loosing the words to speak..... your amazing! x
06-20-2010, 11:24 PM   #55
DustyKat
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Thinking about you Ziggy. Hope all is going well.

Dusty.
06-21-2010, 08:24 AM   #56
donna martinez
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i am keeping you in my prayers! i have been newly diagnosed with crohns and recently found research on the stem cell research but since i don't know if the treatment is going to work on me yet i'm not a candidate for a stem cell transplant.
06-22-2010, 12:25 PM   #57
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Ziggy! I want to thank you from the bottom of my heart and toes! It is people like you who have given us the meds today that have been able to help others with our disease. I look as frequent as I can on line at everyones posts...Trying not to get to deep and overwhelmed. But, bless you! Keep posting because we are all cheering, watching and listening. I am thankful to be in your audience. Peace, Sue
06-22-2010, 01:06 PM   #58
CrohnsHobo
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Hope the neck thing went well Ziggy! Thanks for the updates!
06-22-2010, 01:53 PM   #59
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Keep going!!! (give me some stock tips through PMs too LOL)
06-26-2010, 11:59 AM   #60
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Basically that next day (friday) I had my harvest done and then caught a flight back home. Well After not being home for 4 weeks there has been a ton of things keeping me away from responding. However, let me get to it!

Last edited by Guest9283; 12-30-2012 at 04:47 PM.
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