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Crohn's Disease Forum » Treatment » My Stem Cell Journey


 
06-26-2010, 12:01 PM   #61
Guest9283
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ziggy im loosing the words to speak..... your amazing! x
Aww I try my best.

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06-26-2010, 12:07 PM   #62
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Wow! It's amazing that your doing this! I'm so glad you are posting this all here....you have alot of valuable information to share!

Good Luck! I hope this works out for you ....and for everyone one else that may benefit from this trial!
Yeah, I when I was first looking into it I couldn't find much information, and the blogs done in the past were great, but just not as detailed as I would of liked before I put my foot forward. So I figured I try my best to put that "detailed" blog I "was" looking for out there. We need more canidates for stem cell transplants, and to get these people, we need to educate them so they understand everything 100%. In my eyes, if(WHEN) this works out for me like I am hoping(expecting based on previous results ect) it would of all been 110% worth it, no doubt. The doc I have IS the leading doc in the world when in comes to stem cell thearpy. He has cured MS, Crohn's, Lupus, and the list and number just seem to be accumulating

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06-26-2010, 12:10 PM   #63
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Hi there Ziggy I am new to this site but alas not to crohns, I just wanted to say thankyou so much for your blog I have been very interested in stem cell therapy as a treatment for CD as my story is so much like your own especially the part where you could not absorb anything and became dehydrated kidneys failing extreme wieght loss etc and the subsequent lung problems so your blog is very much of great interest and if not for people like yourself others such as myself can find it very difficult to make a true informed choice when offerd different treatments, but with blogs like your own it gives us that bit more in the way of choice because while indeed everybody responds in different ways the procedure is the same, also they may find that they respond in a way similar to yourself which because of your blog and others like it they understand whats happening and it becomes less worrying so again thankyou so much for taking the time even though there are times when you must be exausted or feeling very unwell you are an inspiration. Thank You x also I hope eveything goes well for you!
Exactly my friend. Hopefully you get well. If not you will now have another story to base your decision on yet another great treatment for our disease.
I will keep you in my prayers buddy.

Thanks again.
06-26-2010, 12:13 PM   #64
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Thinking about you Ziggy. Hope all is going well.

Dusty.
Thanks

Everything is going great. I feel like 100% to be honest...maybe a bit breezy with the hair gone though lol. I hope you are doing well too!
06-26-2010, 12:20 PM   #65
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06-26-2010, 12:27 PM   #66
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06-26-2010, 12:28 PM   #67
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Hope the neck thing went well Ziggy! Thanks for the updates!
Piece of cake my man! I'll bring up the blog here in a sec.
06-26-2010, 12:28 PM   #68
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06-26-2010, 12:30 PM   #69
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06-26-2010, 12:43 PM   #70
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http://www.stemcell-immunotherapy.com/

Everyone please take some time out to check this doctors web site out. His name is doctor Burt. He is the one saving mine and many other lives right now through the use of stem cell therapy. If we want this to become a cure thats as refined and easy for people with crohns/MS/Lupus ect we need to get the word out there and get more funding for this.

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06-26-2010, 12:49 PM   #71
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.?.

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06-26-2010, 01:35 PM   #72
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It continues to be fascinating Zig. Hope you enjoy your stay at home and I look forward to the next leg of your journey. Stay well!!
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06-26-2010, 02:05 PM   #73
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It continues to be fascinating Zig. Hope you enjoy your stay at home and I look forward to the next leg of your journey. Stay well!!
Thanks so much for your stay here on my blog Dex. Yes it continues to fascinate me more and more each day as well. It was only a day or two ago that I caught the end of a story on the news where through some stem cell treatment they made a middle age guy that was completely blind, see again!!
Wow.

Right now I wish I could pass time and begin my next phase, but I have always been a bit impatient. lol

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06-26-2010, 03:43 PM   #74
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This could clearly be a breakthrough. How does one sit for 3.5 hours without going to the bathroom? I know you probably mentioned it, sorry if it has but are they using adult human stem cells or embryo stem cells?

BtW I heard that bald was in lol, a little humour. I still think this is amazing, I hope everyday for a cure, and maybe it is coming. I still think you are brave. I think we should be grateful for you doing this for mankind. Thank you from the bottom of my heart. Fingers crossed!!
06-26-2010, 11:12 PM   #75
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How does one sit for 3.5 hours without going to the bathroom?
Haha Jett, I was going to ask the same thing. Urinals and bedpans?

I am so happy for you that things are working out thus far and hope and pray they stay that way. Thank you so much again for allowing us this opportunity to read about your journey. There's nothing better than a first hand personal experience, warts and all!

Just one question. When it is all finished and if you respond (thinking positive thoughts here) favourably, how long before they will actually say you are cured and what tests do they use to determine that?

Take care and thinking about you Ziggy.
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06-26-2010, 11:15 PM   #76
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Glad to hear that things are going well so far Ziggy!
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06-27-2010, 12:56 PM   #77
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Correct me if i'm wrong but to answer Jetta's question didn't you mention you have an ileostomy?
I really am so pleased to read that everything is going well, I know if it was me i would regularly be having teary moments however if I ever do this I will certainly re-read your story to give me strength!
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06-27-2010, 02:36 PM   #78
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Ziggy, I just found this thread. Read the entire thing and it's fascinating. I'm praying for the best outcome for you.

Your efforts to enlighten and inform this community and to stay as sober as possible to improve the information are nothing less than heroic.
06-27-2010, 07:21 PM   #79
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OMG! Mr. Z, I held my breath reading the entry about the catheter in your neck. I would need to be medicated! You are unbelievable! Praise to you and your physician. This is unreal. I mean--for me--sorry to be selfish. But, as I sit here in my mid 40's...Been diagnosed with Crohns last year who would a throught I'd be thinking this Zig man could be me in the futre. Sorry to be selfish. Back to you...I hope, sorry I am kinda ADD. Didn't read every entry. I hope that you have family and friends close to you as you go through these next steps. This is hard for me to read...and I don't even know you! I mean, heres a hug from Michigan...we are all here for you. Stay strong....Wish I could do more. Peace, Sue
07-05-2010, 11:11 AM   #80
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Where is Zig Man???
07-05-2010, 06:40 PM   #81
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Hi Ziggy:

I just read your further updates and am looking forward to hearing how things are going. I hope you are well. You are still in my thoughts and prayers. I have one question for you--not sure if you know the answer being that you are male. But here goes: if you are a woman of child-bearing age, and want to have children, how do this stem cell therapy affect ones ability to have children in the future, if at all? Just wondering if you know, though by the time this type of therapy becomes open to the rest of us crohnnies, I may be past my child-bearing years anyway.

All the best!
Chris
07-06-2010, 01:45 PM   #82
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Greetings Mr. Ziggy,
I have been following this thread since the start, and have read every post.
It has been interesting, informative and encouraging!
I admire and applaud your brave and positive outlook.

Most often when we hear about 'attitudes', it is in a negative context.
Well, I gotta say, you have the most amazing and inspiring attitude I've seen in a Crohn's patient!

You give me hope that medical advances may someday wipe out my crohns,
which has been trying to wipe out me.

I hope that you are doing well.
Thanks for taking us along for the ride.
I am sure your "plate" is full, but give us an update when you find time.

Good show!
be well
Walt
07-06-2010, 02:35 PM   #83
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Hi Walt, welcome to the forum! I am glad you joined us and Ziggy posts from time to time, we all await his findings.

Please let us know how you are with your journey of Crohns on a Your Story thread so we can all welcome you. Lots of info here, and nice people.

welcome aboard!
07-07-2010, 04:18 AM   #84
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Thumbs up for you, Ziggy!

Best of luck! Will be reading your story in here.

Hugs,
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07-07-2010, 05:53 AM   #85
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First time I have read your story/blog. WOW is all I can. Big journey but sure it will be a great result at end. Good luck with everything and will keep reading

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07-07-2010, 04:59 PM   #86
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Thanks for the updates Ziggy.

What is the next step once you go back in a month?

It has been about a month since you started this treatment right? Just trying to get an idea of the full time frame of treatment.
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07-14-2010, 12:04 PM   #87
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07-14-2010, 12:32 PM   #88
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07-14-2010, 12:33 PM   #89
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Glad to hear that things are going well so far Ziggy!
Thanks Belle!
07-14-2010, 12:40 PM   #90
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