Hello all, my son is 12, he was diagnosed with crohn's at the age of 5. We have had pretty smooth sailing (only on Pentasa all this time) up until a month ago when he landed in the hospital with his first ever flare. His GI started him on Remicade and he bounced right back. But that drug scares the heck of me for my 12 year old!! He got his second infusion 2 weeks ago and landed in the hospital this week with horrible stomach pains. He had an UGI with small bowel follow through and discovered he has a stricture!! I am so confused as to what to do. The doc says get the next remicade infusion and he will be ok. But lots of reading has shown me that the remicade doesnt promote healing it promotes scar tissue. She is pushing the remicade and not wanting to use prednisone or something to reduce the possible inflammation. I want to try the pred to see if it is inflammation and might reduce the stricture but she is saying no. I just dont know what to do or who to listen to. He is my baby and I hate to see him in pain, it is killing me!!!
Can anyone offer any light for the end of my dark tunnel or share some examples of treatment that helped.I am very glad i found this site and the reading has been very insightful. Thank you everyone.
Can anyone offer any light for the end of my dark tunnel or share some examples of treatment that helped.I am very glad i found this site and the reading has been very insightful. Thank you everyone.