I did post this but for some reason i cant find it now (head is all over the place no sleep etc lol so i apologise)
I thought it might be best in here
Hey there :ysmile:
Im pompeybird aka Char , im 28 and live in portsmouth with my partner of nearly 12 years and my 2 sons aged nearly 10 and 7
I have been ill for around a year and after many many tests it was found i have osteoperosis , arthritis , ankylosis spondalitis , B12 deficancy and extreme weight loss
I have been under so many specialists i didnt know weather i was coming or going as they have all been trying to find the cause of all these problems and after throwing up for near on 3 months solid and barely abled to get out of bed i was referred for a colonoscopy and gastro oscopy and an in depth scan (after my GP told me it was all in my head and i was anorexic)
Yesterday i was FINALLY given an answer it has all been cause by chrons !!!
On a scale of 1 - 10 im a 4 to 5
I dont get diorreah or stomach cramps but have had bad bouts of vomiting
My chrons is where my B12 would normally be absorbed hence being B12 deficant
The problem is they cant treat me with what they would normally prescribe as it could make the other problems i have worse mainly the osteoperosis
Im in agony 24/7 due to the ankylosis spondalitis but cant have anything for it as it could make the chrons worse so i have been given Budesonide for now
My main concern is trying to gain weight as im 5ft 4 and weight 6 stone 2 , the specialist who diagnosed me is suggesting i go into hospital for a couple of weeks to be fed through a tube so im getting food 24 /7 im not keen so he wants me to go back in 3 months to see if i have put any weight on
He has reffered me to a dietican and a rhumetoligist which is going to take a few weeks to come through
Im not sure what the next step is to be honest my head is all over the place , i thought i would of been pleased to finally have an answer and whilst i suspected it was chrons and was ok with that i feel strangely deflated and out of my depth as im not sure what happens next
All i know is i have to put weight on in 3 months and i just dont know where to start with it as no matter what i eat i cant put the weight on
Anyway im so sorry for the long post just i was only diagnosed yesterday and heads a still bit all over the place
Will look forward to chatting to you all :thumright:
I thought it might be best in here
Hey there :ysmile:
Im pompeybird aka Char , im 28 and live in portsmouth with my partner of nearly 12 years and my 2 sons aged nearly 10 and 7
I have been ill for around a year and after many many tests it was found i have osteoperosis , arthritis , ankylosis spondalitis , B12 deficancy and extreme weight loss
I have been under so many specialists i didnt know weather i was coming or going as they have all been trying to find the cause of all these problems and after throwing up for near on 3 months solid and barely abled to get out of bed i was referred for a colonoscopy and gastro oscopy and an in depth scan (after my GP told me it was all in my head and i was anorexic)
Yesterday i was FINALLY given an answer it has all been cause by chrons !!!
On a scale of 1 - 10 im a 4 to 5
I dont get diorreah or stomach cramps but have had bad bouts of vomiting
My chrons is where my B12 would normally be absorbed hence being B12 deficant
The problem is they cant treat me with what they would normally prescribe as it could make the other problems i have worse mainly the osteoperosis
Im in agony 24/7 due to the ankylosis spondalitis but cant have anything for it as it could make the chrons worse so i have been given Budesonide for now
My main concern is trying to gain weight as im 5ft 4 and weight 6 stone 2 , the specialist who diagnosed me is suggesting i go into hospital for a couple of weeks to be fed through a tube so im getting food 24 /7 im not keen so he wants me to go back in 3 months to see if i have put any weight on
He has reffered me to a dietican and a rhumetoligist which is going to take a few weeks to come through
Im not sure what the next step is to be honest my head is all over the place , i thought i would of been pleased to finally have an answer and whilst i suspected it was chrons and was ok with that i feel strangely deflated and out of my depth as im not sure what happens next
All i know is i have to put weight on in 3 months and i just dont know where to start with it as no matter what i eat i cant put the weight on
Anyway im so sorry for the long post just i was only diagnosed yesterday and heads a still bit all over the place
Will look forward to chatting to you all :thumright: