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Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease


 
03-16-2013, 03:34 PM   #331
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I thought the same about NSAIDs - they make me feel a bit sick and don't do much for my pain either.

You get energy from opiates? I always feel so much more energetic after taking codiene, but when I told my GP she said that was surprising as it's supposed to be a sedative. She thought that the fatigue I feel when I've not taken any codeine was withdrawal, but after months with no opiates at all I concluded that I actually do get bursts of energy from codeine. I take regular breaks off codeine to avoid building up too much tolerance, so I can still get the energy, pain relief and anti-diarrhoea effects when I need to.
Yeah, NSAIDS aren't very effective for me at least, they really have a tendency to tear my stomach up.
Opiates are supposed to be "downers" but I do get energy from them.However, I need to be cautious with them, since they take the pain away sometimes I find myself doing more than what I should be doing, and can therefore hurt myself more if that makes sense.
I believe codeine is a form of opiates.I like using the term opiates instead of narcotics, as narcotics can mean everything including cocaine and other drugs where as opiates are only refering to pain medication.
I'm glad the codeine seems to be helpful for you, that is one pain med that I didn't care for.It tore my stomach up,maybe that's because of the tylenol in them? I've always preffered pain meds like oxycontin that is tylenol free.
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Dx with Crohns disease in 2010.Have been dealing with symptoms since 1999.
I was the 1 percent chance of the camera pill getting stuck, so off to emergency bowel resection surgery in July of 2010/removed 13 inches.

Currently dealing with another obstruction.Don't know what the plan is yet.Surgery or? I don't know of any other options....
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03-17-2013, 06:43 AM   #332
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Yeah, NSAIDS aren't very effective for me at least, they really have a tendency to tear my stomach up.
Opiates are supposed to be "downers" but I do get energy from them.However, I need to be cautious with them, since they take the pain away sometimes I find myself doing more than what I should be doing, and can therefore hurt myself more if that makes sense.
I believe codeine is a form of opiates.I like using the term opiates instead of narcotics, as narcotics can mean everything including cocaine and other drugs where as opiates are only refering to pain medication.
I'm glad the codeine seems to be helpful for you, that is one pain med that I didn't care for.It tore my stomach up,maybe that's because of the tylenol in them? I've always preffered pain meds like oxycontin that is tylenol free.
I get my codeine on prescription so there's no paracetamol (the UK name for the ingredient in tylenol) in it, it's just pure codeine. In this country, if you buy it over-the-counter rather than on prescription, it's always got paracetamol in. The packaging blurb makes it sound like the paracetamol is there for its own pain-relieving properties, but I've heard it's actually there to keep people from getting adicted, because if you take enough codeine to feel "high," you'll feel sick from the paracetamol, discouraging you from overdosing again.
05-07-2013, 08:55 AM   #333
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Hello, I am addicted to dilaudid. I was in the hospital for two years, more on than off and recently cane home after almost 6months. I am home with sub Q dilaudid due to pain of Imuran. But before that we were weening me off from 4ml every two hours to 2.5 every 4 hours! So I'm pleased we are making some kind of progress. Of course than along comes the pain again. It's tough getting your body not to crave something its had for so long. I wouldn't wish it on anyone
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07-05-2013, 11:14 AM   #334
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Well, I was one of the people that heard dont start prescription pills cause you will get addicted and I didnt want to hear that because I was in pain and it couldnt happen to me.

Well after 4 years of going to a pain clinic I was prescribed (5) 30mg oxycodone a day and (3) 100mg morphine sulfate a day. I was taking double that at my worse point because they just wouldnt help anymore because I became tolerant to the meds. I would go to the ER and was still in agonizing pain after 6mg dilaudid in an hour. Went to rehab 3 times.

It is hard for me to say to stay away from these meds but I would advise be open and honest with your doctor and ask every question you can ask. Ask what the meds are going to help you with and can you get dependent on them and what will they do if that happens.

also, go to a legitimate pain management doctor and not a shopping center pill mill. Those doctors give you scripts for cash and you will end up addicted by using them. A true pain specialist will use medicines and other treatments to help your pain.

one piece of advice or just my .02 worth: don't go to anyone expecting for your pain to totally go away. This may happen for mild pain but for severe crohnic pain, you need to just search for a better quality of life and try to do other things to help along with the pills and dont rely on them alone.

I didnt put everthing in here because I could write a book,but if you are struggling and want more advice then feel free to PM me and I will be glad to help.
08-23-2013, 04:37 PM   #335
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While in hospital for severe crohn's last year I was prescribed a strong pain killer called tremadole. I would take one about 10pm and it allowed me to sleep until about 2 or 3 am. Without it I was up every 15-30 min or so on the toilet Which resulted in severe cramping pains. I had the pains and BM all through out the day too but was only prescribed one pill per day so I would prefer to take it when I wanted to try and sleep. Even then, the nurses would try to talk me into taking just a panadol. I guess I felt kind of addicted but I was like a fear of what its like to not take it and struggle through the night. I was in there around 2 months and was still having terrible cramping and BM for about two weeks after being released. So far, they have been the worst two and a half months of my life, But its early days yet..
10-03-2013, 01:03 PM   #336
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Well, I was one of the people that heard dont start prescription pills cause you will get addicted and I didnt want to hear that because I was in pain and it couldnt happen to me.

Well after 4 years of going to a pain clinic I was prescribed (5) 30mg oxycodone a day and (3) 100mg morphine sulfate a day. I was taking double that at my worse point because they just wouldnt help anymore because I became tolerant to the meds. I would go to the ER and was still in agonizing pain after 6mg dilaudid in an hour. Went to rehab 3 times.

It is hard for me to say to stay away from these meds but I would advise be open and honest with your doctor and ask every question you can ask. Ask what the meds are going to help you with and can you get dependent on them and what will they do if that happens.

also, go to a legitimate pain management doctor and not a shopping center pill mill. Those doctors give you scripts for cash and you will end up addicted by using them. A true pain specialist will use medicines and other treatments to help your pain.

one piece of advice or just my .02 worth: don't go to anyone expecting for your pain to totally go away. This may happen for mild pain but for severe crohnic pain, you need to just search for a better quality of life and try to do other things to help along with the pills and dont rely on them alone.

I didnt put everthing in here because I could write a book,but if you are struggling and want more advice then feel free to PM me and I will be glad to help.
Excellent advice and very true! Nothing will take away all the pain. I'm been off of opiates for 1 1/2 yrs. was on mass doses for years as well. That was the hardest thing! Our bodies get so addicted. Now i go to the er when the pain gets unbearable. Just found out i have inflammation throughout my colon from a CT i received last night from an ER visit. I've been in remission for years so quite surprised and pray no surgery. I dont want to get back on all those opiates again!
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surgeries: 2 bowel resections(removed ilium; approx 2 1/2-3ft of small bowel and some of colon) 4-5 rectal fistula repairs; gallbladder and appendix removed
Current medications: Immuran(azathioprine)100mg, nexium 40mg, alprazolam, wellbutrin, lexapro, lomotal, donnatol, monthly B12 injection

In the midst of my first flare in 13yrs
10-03-2013, 01:21 PM   #337
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Regarding addiction: You can be psychologically and physically addicted. No matter who you are or what your pain is, if you are on long term opiate medication, which includes codeine, your body is physically addicted and does make the pain worse due to with drawl and increased tolerance. It sucks, but its the truth. If you are seeking a high, or using it to make you feel not so depressed, or going to different drs to get the medication, then you are psychologically addicted and most likely physically as well. This is one of the side effects of our disease. We do have valid pain and will need some relief at times, sometimes long periods of time. But do have an aware doc that is strong enough to wean you off if you appear to be ok medically. Its a vicious cycle but sometimes unavoidable...
10-04-2013, 04:04 AM   #338
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Regarding addiction: You can be psychologically and physically addicted. No matter who you are or what your pain is, if you are on long term opiate medication, which includes codeine, your body is physically addicted and does make the pain worse due to with drawl and increased tolerance. It sucks, but its the truth. If you are seeking a high, or using it to make you feel not so depressed, or going to different drs to get the medication, then you are psychologically addicted and most likely physically as well. This is one of the side effects of our disease. We do have valid pain and will need some relief at times, sometimes long periods of time. But do have an aware doc that is strong enough to wean you off if you appear to be ok medically. Its a vicious cycle but sometimes unavoidable...
Very true. It took me a while to understand that although I wasn't psychologically addicted, I was physically addicted/tolerant. Without the psychological addiction, it was possible to stop them - I had the will power (or whatever you'd call it) to make myself stop taking them, but physically my body wasn't happy about it!
11-04-2013, 09:34 PM   #339
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Earlier study, published in European Journal of Pharmacology said resveratrol improves IBD symptoms too.
11-08-2013, 06:44 AM   #340
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Well, during my hospital stay following surgery a couple of weeks ago, I got a rapid detox from codeine. I couldn't have any opiates as they didn't want risk slowing my digestive system down. I was feeling so incredibly sick anyway that I couldn't say whether I actually went into withdrawal or not. But anyway, now I'm off codeine completely, and plan to stay that way for a while. I will use it again when things get bad, but I'm going to make the most of being off of it for a while.
11-08-2013, 01:43 PM   #341
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Wow UnXmas that had to be tough! Recovering from surgery and detoxing as well? Sounds kinda irresponsible on their end to go thru that at the same time. Hope they gave you something to ease the process. Happy to hear you're off of them tho and pray the results of your surgery are positive! The one big benefit of opiates, for me anyways, is it is the only thing that stops my chronic D! Trying to stay off all of them too! Good luck!!
11-09-2013, 05:13 AM   #342
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Wow UnXmas that had to be tough! Recovering from surgery and detoxing as well? Sounds kinda irresponsible on their end to go thru that at the same time. Hope they gave you something to ease the process. Happy to hear you're off of them tho and pray the results of your surgery are positive! The one big benefit of opiates, for me anyways, is it is the only thing that stops my chronic D! Trying to stay off all of them too! Good luck!!
They didn't really have a choice - my digestive system became temporarily paralysed as an unexpected complication of the surgery, so they couldn't risk anything that would slow it down further and took me off codeine and significantly lowered my dose of Amitriptyline, which is also constipating. I was more upset by the Amitriptyline reduction as it also causes withdrawal and in particular insomnia - I had awful awful nights in the hospital, though I'm not sure whether that was just the Ami withdrawal, as I always sleep badly after surgery. I'm back on my usual Ami dose now and sleeping very well again. I've no idea how sick withdrawing from codeine actually made me or how much of the sickness was from the surgery and the intestinal paralysis.

There wasn't really any alternative they could give me, as all opiates slow digestion. They did give me paracetamol for pain relief, though I've never found that actually helps me with pain. When I was in real agony from the paralysis, they gave me some anti-anxiety drug because I was so distressed - which made the pain bearable... for about an hour. Then it wore off and I started asking for more. A doctor told me I couldn't have any more because it's highly addictive. I was so desperate I was begging them to give me something for pain. My mum told me that the doctor had got worried when I started begging for this addictive medication, and had told my mum she hadn't realised I'd respond like that - which didn't give me a good opinion of the doctor. She makes my pain bearable for an hour - what did she think I'd do when that hour was over?!

After a couple of days of agony, a nurse realised what was wrong with me, and they put a tube into my stomach and pumped out all the bile that was stuck there, unable to move through my paralysed digestive system. That - fixing the cause of the pain - gave me more relief than any medication could have given me.

I think the codeine detox was hardly noticeable in the midst of all that.
11-09-2013, 11:42 AM   #343
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UnXmas, that sounds like a horrible ordeal to go thru! What's strange is that that your doc was surprised of your wanting pain medication. You just had surgery! Of course you'll have pain w or w/o the withdrawl!! Sometimes I think docs need to go on this forum and peruse a while and really find out what we all go thru. I was recently up at the ER for pain relief, cause my docs wont't prescribe anymore, and thru a cat scan xray found my colon and rectum were inflamed. My GI doc put me on Prednisone and Amitriptyline. 3wks later he checks my colon and finds NO crohns or colitis!?! Now Im all blown up and feeling crappy w all other side effects from pred and didn't even need it?? He has no idea what happened except that possibly my colon was spasming and was contracting at the time. I have had persistant symptoms for years and they never find a crohns relapse. I just don't get it?

Anyway, I am happy to hear you are on the mend and no longer in such pain. Addictive or not, sometimes we need relief. This disease sucks!!
11-10-2013, 05:10 AM   #344
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UnXmas, that sounds like a horrible ordeal to go thru! What's strange is that that your doc was surprised of your wanting pain medication. You just had surgery! Of course you'll have pain w or w/o the withdrawl!! Sometimes I think docs need to go on this forum and peruse a while and really find out what we all go thru. I was recently up at the ER for pain relief, cause my docs wont't prescribe anymore, and thru a cat scan xray found my colon and rectum were inflamed. My GI doc put me on Prednisone and Amitriptyline. 3wks later he checks my colon and finds NO crohns or colitis!?! Now Im all blown up and feeling crappy w all other side effects from pred and didn't even need it?? He has no idea what happened except that possibly my colon was spasming and was contracting at the time. I have had persistant symptoms for years and they never find a crohns relapse. I just don't get it?

Anyway, I am happy to hear you are on the mend and no longer in such pain. Addictive or not, sometimes we need relief. This disease sucks!!
It wasn't my regular doctor who gave me the anti-anxiety medication; my surgeon, who is brilliant and has known me for years, got sick the day after he operated on me, so the doctors who ended up treating me during the recovery were not specialists, they were just the doctors who happened to be on-call on the surgical recovery wards.

I wouldn't have needed so much pain medication if it weren't for the ileus (intestinal paralysis). It wasn't supposed to be a particularly painful operation. The first couple of days after surgery, I felt quite good, and the plan was I'd go home after two or three days. But then I developed this ileus. They couldn't diagnose it for a couple of days, because I wasn't vomiting, which is usually the main symptom. The reason I was left in such agony was because of the delay in diagnosis. Once someone figured out the diagnosis and they pumped my stomach, I had some pain, but not so much I couldn't handle.

Are you able to get off the prednisone now? I remember the side effects righted themselves pretty fast once I was off it.
11-12-2013, 06:30 PM   #345
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Im still weaning off of the prednisone, now at 20mgs. Doc has me on 50mg of amitriptyline, 100mgs Imuran, and now trying levsin (hysocalimine) for bowel spasm and chronic D. If that, the levsin, doesn't work other options are donnatol (belladonna) or codine sulfate. Sx doing well at the moment. But Im constantly tired. Hopeful to be done w prednisone by the holidays. Then I can really see where I am at. Hope all is well w you all. I wouldn't have gotten thru all this without this forum
11-18-2013, 04:54 AM   #346
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No Doctor will prescribe me pain meds no matter how much pain im in
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11-18-2013, 05:00 AM   #347
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every time I tell a doctor Im in pain they look at me like im lying. wtf? I got a chronic disease with no cure but no one believes me when I say im in pain.
11-18-2013, 09:06 AM   #348
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You can thank the doctors, big Pharma, and addicts for lack of access to pain meds.
11-18-2013, 11:15 AM   #349
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No Doctor will prescribe me pain meds no matter how much pain im in
What type of pain do you have? Have you ever been prescribed pain meds in the past? Have you tried any over the counter brands?

Doctors have to be wary about prescribing anything addictive for chronic pain, and sometimes taking certain pain meds when you have bowel problems carries risks; some painkillers irritate the stomach, others - opiates in particular - slow the digestive system and can lead to blockages, and aren't always considered safe with Crohn's disease.

Do you know the reasons why your doctors won't prescribe anything for you? If you can discuss the reasons with them, you may be able to find a solution.

It can be very difficult for doctors to find pain relief in some cases though. I was in hospital recently and was in agony, but as the cause of my agony was that my digestive tract was paralysed after surgery, there was no way they could let me have opiates. In the end the only way to end the pain was to go to the source of it; they pumped out everything that was stuck in my stomach, and the pain was eased without using any type of painkiller. Have your doctors looked for the specific cause of your pain to see if there is something that can be treated?

If the cause is not fixable and the pain is chronic, have you asked for non-addictive painkillers, ones you can't build up a tolerance to? Have you tried methods of pain relief besides medication? Sometimes simple things can be surprisingly effective. A hot water bottle for stomach cramps, for example, relaxes the muscles and can really ease that type of pain.
11-18-2013, 12:42 PM   #350
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every time I tell a doctor Im in pain they look at me like im lying. wtf? I got a chronic disease with no cure but no one believes me when I say im in pain.
Find a pain management clinic/doctor. What is causing your chronic pain? I would address the cause. I was addicted to pain meds and now use cannabis and aspirin (rarely). My friend had hand Surgury with pins no anasthesia only cannabis and ibuprofen. He too was addicted to pain meds. Be very carefull.
11-18-2013, 04:45 PM   #351
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Unfortunately JohnnyO, most states still consider cannabis as illegal and therefore hard to obtain.

Amaze, I truly feel for u and your pain. The medical profession is to blame. They over prescribed pain meds (opiates) and created a big addiction mess. There is not a time that I don't feel like a drug seeker when I go to the ER to get some pain relief. I go to the ER after Iv'e had several days of unbearable pain so I don't keep opiates at home. I tend to take them when I get any pain and my body will become addicted and that sucks! I have not had any active crohns in years but still have bouts of pain and they dont know why. It's true that you need to watch taking opiates, and avoid any pain clinics that dont provide a full program ie: physical therapy, relaxation methods, bio-feedback, massage. They should also have a pain psychologist on staff too. You don't want a clinic that just hands out pills, they are the worst!! See if your GI or primary care doc can recommend a clinic for you. Hope you find some type of relief.
11-18-2013, 04:54 PM   #352
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Yeah but the person I was responding to lives in NY. NJ has medical cannabis, and I never had a problem finding it when it was illegal. Opiates aren't worth it. If my friend had pins out in his hand with just ibuprofen and cannabis than imagine the possibilities. Opiates are for short term use or for terminally ill IMO. If you want to know true pain it is opiate addiction.
11-18-2013, 09:24 PM   #353
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Doctors always tell me "I wont prescribe you pain meds because I don't feel comfortable doing so" or "it wont help anyways, it'll just mask the situation"

I have the worst doctors/GI around. As a patient I feel neglected and not cared for. When ever I have an issue no one ever has an answer, reason, or a solution to things.

As for the marijuana.... I can not smoke marijuana. It is illegal here in NY. I do understand NJ has medical cannabis but I have a job that gives out drug tests once in a while and even with medical card I'll still get fired.
11-18-2013, 09:28 PM   #354
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the pain I suffer can be tremendous. I have Crohns Disease, hemorrhoids, ulcers, and fissures. A cocktail of pain.
11-19-2013, 06:54 AM   #355
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The medical profession is to blame. They over prescribed pain meds (opiates) and created a big addiction mess.
I'm usually the last person to defend the medical profession, but I do think they can't win on this one. If they prescribe opiates, they get blamed for creating addictions; if they withhold them, they get blamed for not treating patients' pain. Ideally they'd be able to assess each patient individually, take into account the type of pain, the length of time medication will be needed for, the patient's tendencies towards addictive behaviour, and prescribe correctly for each patient - but in reality that's incredibly difficult to do. Sometimes they're going to make mistakes. Though of course there are doctors who are far to liberal in handing out opiates inappropriately without considering other options and creating addictions - I just don't think this is always the case.

When I was in hospital in pain and couldn't have opiates because their effect on the digestive system made it unsafe, the doctors were really stuck. Nothing beats opiates when it comes to pain relief (in most cases). I think it can be the same when doctors are faced with dealing with chronic pain; non-opiate options often don't work, and they're faced with leaving the patient in pain or with potentially creating an addiction (which wouldn't necessarily take care of the pain either, as the patient may become tolerant to opiate medication).

the pain I suffer can be tremendous. I have Crohns Disease, hemorrhoids, ulcers, and fissures. A cocktail of pain
What other forms of treatment are you getting? Have you ever considered treating your haemorrhoids with surgery? I've had surgery to remove haemorrhoids - it's usually only used in extreme cases, but it can work very well. What treatments have been tried to treat your fissures? If possible, maybe you could consult a colorectal surgeon?
01-18-2014, 04:53 AM   #356
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Have anyone consider switching to medical marijuana as a replacement for pain mangement. I know I'm addicted to pain killers the norco 10/325 one. I'm am really tired of ytaking pills and I just found out that medical herbs has help me more then the pain killers.
01-19-2014, 08:53 PM   #357
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I must admit that reading many of these comments I feel frustrated. I too have found myself in the situation of inadequate pain relief. I have had ALL treatment approaches , with the exception of medical cannaboids, yet nothing works.

It is interesting to note that traditionally vets get significantly more training in pain management than doctors. Furthermore, drug companies have been found by the courts of having provided false data pertaining to newer opiate medications to doctors. This tallied with inadequate training, legal and personal ethical stances makes the practice of pain management chaotic.

What is really needed is proper development of pain management services and medications. Given, the commonality of the issue across various disease types there should be enough people to make an effective pressure group. If we look at how effectively our friends who faced with HIV in the 80 ' marshaled the medical and political establishments to find newer and more effective treatments we should be inspired to do the same for pain. The situation with respect to HIV is such that people can approximate normal life expectancy, mothers can avoid passing it to their children at birth, PEP can significantly reduce the risk of acquisition after exposure, the disease mechanism is very well understood, and many treatment approaches are being developed.

I think it would help a lot if we were to learn the lessons from the HIV/Aids lobby groups and apply their techniques to pain management development. The least we should demand is that all doctors are given detailed training in pain management, and that treatment should be considered a failure if pain control has not been achieved.

As an aside, when analgesics and anesthetics were initially developed many in the medical profession considered them inappropriate because it was only proper that the patient endure the pain! What is amazing is that their are still some who believe this - I have actually met a doctor who believes it! Fortunately, he wasn't mine - though given some doctors I've had you'd be forgiven for believing that of them

Under old Irish Law, should a treatment fail, the medic was required to return all fees and take on the cost and responsibility of all future treatments. I like that idea, but I'll settle for their active pursuit of better and effective treatments and processes.
01-26-2014, 08:01 AM   #358
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Hello Every one .
I need advice.. I am suffering by back-pain. But I don't take drug's. Please let me know without drug's how to reduce my pain..
01-26-2014, 09:57 AM   #359
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Hello Every one .
I need advice.. I am suffering by back-pain. But I don't take drug's. Please let me know without drug's how to reduce my pain..
Yoga type stretching.
01-26-2014, 09:58 AM   #360
JohnnyRottenAppleseed
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I must admit that reading many of these comments I feel frustrated. I too have found myself in the situation of inadequate pain relief. I have had ALL treatment approaches , with the exception of medical cannaboids, yet nothing works.

It is interesting to note that traditionally vets get significantly more training in pain management than doctors. Furthermore, drug companies have been found by the courts of having provided false data pertaining to newer opiate medications to doctors. This tallied with inadequate training, legal and personal ethical stances makes the practice of pain management chaotic.

What is really needed is proper development of pain management services and medications. Given, the commonality of the issue across various disease types there should be enough people to make an effective pressure group. If we look at how effectively our friends who faced with HIV in the 80 ' marshaled the medical and political establishments to find newer and more effective treatments we should be inspired to do the same for pain. The situation with respect to HIV is such that people can approximate normal life expectancy, mothers can avoid passing it to their children at birth, PEP can significantly reduce the risk of acquisition after exposure, the disease mechanism is very well understood, and many treatment approaches are being developed.

I think it would help a lot if we were to learn the lessons from the HIV/Aids lobby groups and apply their techniques to pain management development. The least we should demand is that all doctors are given detailed training in pain management, and that treatment should be considered a failure if pain control has not been achieved.

As an aside, when analgesics and anesthetics were initially developed many in the medical profession considered them inappropriate because it was only proper that the patient endure the pain! What is amazing is that their are still some who believe this - I have actually met a doctor who believes it! Fortunately, he wasn't mine - though given some doctors I've had you'd be forgiven for believing that of them

Under old Irish Law, should a treatment fail, the medic was required to return all fees and take on the cost and responsibility of all future treatments. I like that idea, but I'll settle for their active pursuit of better and effective treatments and processes.
Cannabis and Aspirin combo FTW!
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Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease
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