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Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease


 
01-26-2014, 10:19 PM   #361
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So I made the switch to medical herb, since I live in California I got the card. So far everything seem to be much better since I'm tapering off the norcos and using herbs more often for pain instead of the pain killers. I strongly recommend people take this step for pain relief because its instant relief instead of waiting for the pills to " kick in ".
02-05-2014, 07:03 AM   #362
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So I came off codeine following my surgery last October, because I suffered post-surgical ileus and the doctors wouldn't risk the codeine slowing down my already completely paralysed digestive-system. So I did a horrible cold-turkey detox. Now my ileostomy is suddenly extremely watery so I've been prescribed codeine again, along with loperamide, this time for the purpose of slowing things down. But yes, I'm looking forward to the other effects of codeine kicking in again now that my tolerance has probably gone down a bit. For me this means energy - yes, I know codeine is supposed to be a sedative, but it gives me energy (and I know some others on this forum also experience this effect). It means I can walk around without aching terribly, and that I can focus on a book or on the Internet without feeling it a huge effort and that all my energy has drained away.

Even when completely detoxed I haven't felt as good off it as I ever felt on it - i.e. it's not just withdrawal symptoms that make me feel worse - codeine has genuine positive effects for me as well. Plus maybe now my stoma bag will stop filling up so often.
02-05-2014, 07:14 PM   #363
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What herbal medicine is effective and legal? Are they addictive?
02-05-2014, 07:28 PM   #364
CrohnDad
 
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Anyone hear of Kratom?
02-05-2014, 08:03 PM   #365
JohnnyRottenAppleseed
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What herbal medicine is effective and legal? Are they addictive?
Effective and legal in CA and 20+ other states: Cannabis.
02-06-2014, 06:27 AM   #366
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Anyone hear of Kratom?
I know very little about it, but I heard of it on a documentary on "legal highs". Although this may have been a biased documentary, I was convinced by it that using legal highs is generally not a good idea - being legal doesn't mean it's safe, and substances within this category often have not been well researched - meaning their effects on the body are not well understood - and are often unregulated making it difficult to know that you are obtaining the substance you are led to believe it is. (Also I'm not sure whether in some countries it might not be legal anyway.)

I do believe that drugs which pose problems when they are used recreationally can still have a place as treatments for pain or other symptoms, and that criticising or banning substances outright rather than allowing them to be used in certain circumstances - e.g. prescribed by doctors to patients in pain - is unhelpful and often leads to people missing out on potential treatments. However, as things are at the moment, I'd be wary of trying kratom as it doesn't appear to have been studied enough to be able to determine its safety.
02-08-2014, 07:07 AM   #367
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So I'm back on codeine and functioning so much better on it or off! In my case, the benefits are worth the difficulties of being addicted. It's not slowing my stoma output down any though.
02-15-2014, 03:59 PM   #368
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Hi All

So I'm off all my pain meds except tramadol now( as of July '13).I'm on the max 8 a day on the tram but I came down from 120 mg of oxycontin.I'd still like to try to get down to around 4ish, but I definately notice an extreme lack of energy and have focus issues just trying to cut down slightly.

I do have an apt at the pain clinic in a couple of weeks, but I think I'm going to ask for vicodin this time instead of oxy.I've noticed I don't have a tendency to go "overboard" with those like I can with other pain meds.Probably bc of the tylenol that's in them.
All I know is it's a constant battle.I get so sick of dealing with pain meds, the hassle of it all makes me not want to deal with them, but at the same time I really feel like I need them especially since my medications have all failed now and pain meds have been the only thing that slows the D down for me.They never constipate me but they do help cut bathroom time in half.
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Dx with Crohns disease in 2010.Have been dealing with symptoms since 1999.
I was the 1 percent chance of the camera pill getting stuck, so off to emergency bowel resection surgery in July of 2010/removed 13 inches.

Currently dealing with another obstruction.Don't know what the plan is yet.Surgery or? I don't know of any other options....
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Prednisone 20mg
Vitamin D (50,000 units)
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Butran patch 15 mcg
Imuran
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02-25-2014, 06:16 AM   #369
Rishi
 
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Unless your in "real pain" they give you Toradol now... It is a strong NSAID and not addicitive... It is not safe for long term use though....
GncCrohn'sman! thanks... What should be the long term mean here?
02-28-2014, 06:52 AM   #370
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Update: I'm still taking codeine daily again, but I think my tolerance reduced quite a bit during my break from it, as I'm getting quite a good beneficial result from taking less than half the recommended maximum dosage each day. I'm going to try and keep to this dose, and save taking the maximum dose for days when I really need it.
02-28-2014, 11:51 AM   #371
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Update: I'm still taking codeine daily again, but I think my tolerance reduced quite a bit during my break from it, as I'm getting quite a good beneficial result from taking less than half the recommended maximum dosage each day. I'm going to try and keep to this dose, and save taking the maximum dose for days when I really need it.

I completely understand your situation. I was on Tramadol for just over a year and felt like it was becoming addictive so I stopped. It wasn't the best, but I adjusted to it. I recently had to go back on it because of the pain. I'm taking 2-3 doses a day instead of the 4-5 I was on before. It definitely feels more potent and I'm not sure how I was really functioning with the higher amounts in my system. Granted it's not codeine, but it is effective.


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03-07-2014, 02:29 PM   #372
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just looking at how many people take pain meds for crohns shocks me- I am one also that is on pain meds- hydro 7.5 325 mg. I use to be on 4 a day and doc dropped me to 2 day and now has me on oxycotin ER. any extended release tabs I find do not help crohns pain and yet my pain med doc keeps making me try them. why not continue giving me what was working??? Any suggestions. oh and I laugh because my sis just got a new gi doc and they told her they do not treat crohns with pain med haha. so she also just got into a pain management doc and they told her Tylenol or gabapentin. they will also not use narcotics, well for gods sake what do they want us to stay in bed curled up in pain everyday... docs make me laugh...
03-07-2014, 06:16 PM   #373
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thaler: Your doc may want you to take oxycontin due to it not having acetamenophen in it like the hydro does and may want to lower how much you have in your system. A lot of the meds we take, over time, may hurt the liver. The problems I always had w extended release pain meds is they flew right thru me and never broke down! I have Crohn's too, and I literally had to fish the pills out of the toilet to show him I poop them right out! I can't take any type of ER medications. Unfortunately, pain can be a big part of many of our lives from time to time, and due to the constant pressure docs are under to control the amount of narcotics they prescribe, many don't want to prescribe them anymore ie: GI docs. Mine won't. Had to go thru a pain management clinic or my primary doc, who are also under extreme scrutiny for the amount of drugs they prescribe. Its a big horrible mess, for ALL those involved w treating chronic pain. I finally got off pain meds after years of being on them. I still have pain, but can use them sparingly now that my body no longer craves them. A wicked cycle for a wicked disease. Good luck to you and your sis!!
P.S. Wish my state had medical MJ, that would help a lot and not physically addicting!
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surgeries: 2 bowel resections(removed ilium; approx 2 1/2-3ft of small bowel and some of colon) 4-5 rectal fistula repairs; gallbladder and appendix removed
Current medications: Immuran(azathioprine)100mg, nexium 40mg, alprazolam, wellbutrin, lexapro, lomotal, donnatol, monthly B12 injection

In the midst of my first flare in 13yrs
03-08-2014, 06:05 AM   #374
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I'm glad your able to stop all pain meds long time crohnie. It was tough cause I also cold turkey on pain pills norco 10/325 strengths. What I end up doing is using medical marijuana for my pain management replacement. So far it has help and been super effective. With all this new advancement with medical cannabis, you don't even need to smoke to get medicated.
03-08-2014, 07:49 AM   #375
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long time crohnie: as for the er tablets they do not go right through me, I currently have a ileostomy. they don't seem to work at low doses and when you up some of these meds to high doses they me extremely tired, I mean add in the depression, low vitamin levels etc. etc. its hard enough to balance day to day but then give me a med that is making me tired does not work for me at all. I am a mother of 2 youoys, I need something that will work fast and notware me out my problem is when it comes to pain is I am having a flare up with the bag so I also have stool coming out of the rectum when I am not suppose to be. sicker than ever some days, I don't feel i should have to find a sitter and take my self to the hosp. to get iv pain med, such a hassel. and its so long and drawn out when you go there, your looking at 4 hours I was told they just legalized med. mar. in my state but doc has never mentioned it the sad part is I have been on those hydo's for 8 years why mess with my meds now .....
03-09-2014, 12:06 PM   #376
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long time crohnie: as for the er tablets they do not go right through me, I currently have a ileostomy. they don't seem to work at low doses and when you up some of these meds to high doses they me extremely tired, I mean add in the depression, low vitamin levels etc. etc. its hard enough to balance day to day but then give me a med that is making me tired does not work for me at all. I am a mother of 2 youoys, I need something that will work fast and notware me out my problem is when it comes to pain is I am having a flare up with the bag so I also have stool coming out of the rectum when I am not suppose to be. sicker than ever some days, I don't feel i should have to find a sitter and take my self to the hosp. to get iv pain med, such a hassel. and its so long and drawn out when you go there, your looking at 4 hours I was told they just legalized med. mar. in my state but doc has never mentioned it the sad part is I have been on those hydo's for 8 years why mess with my meds now .....
How about hydromorphone? Dilaudid? It is straight narcotics and did better and not so "intoxicating" and work faster but not as long. and it doesn't have tylenol in it. I'd ask about med MJ. My GI docs have always been pro MJ, and admit to having patients who use it but cannot prescribe due to illegal here. Hope things get better!!
03-09-2014, 12:20 PM   #377
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I would second Dilaudid, that's what I request if I'm in major pain. It's what they gave me for the first 48 hours post-op. They have since transitioned me to Percocet 5/325 which wears off after about 3-3.5 hours.

Docs are still wary about using medical marijuana because it's still pretty new as an acceptable treatment option and because of the laws surrounding it. I would be open to it but it's not yet legalized here in NC if I remember correctly.


03-17-2014, 02:59 AM   #378
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HI all-
So, I have been in a lot of pain lately due to a bad Crohns flare. I see a Pain Specialist and get 100mg cultural twice a day and doxycycline 40mg every 8 hrs. I have a huge tolerance to almost everything ans I am starting to feel that this regimen isn't working. I also have no large intestine (I have a J-Pouch) and have had pills pass right through me. I also have chronic diarrhoea; (I go 5-10x/day) so codeine is great for slowing the motility of my bowels. But, I had a liver transplant at age 13, so I don't want to take Tylenol on a regular basis.
Who all is on Oxycontin, what dose, and does it help? I have been thinking it would be good to try since I have never been on it and shouldn't have a tolerance.

Last edited by Crohnnie; 03-17-2014 at 03:01 AM. Reason: left off title
03-27-2014, 11:19 AM   #379
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HI all-
So, I have been in a lot of pain lately due to a bad Crohns flare. I see a Pain Specialist and get 100mg cultural twice a day and doxycycline 40mg every 8 hrs. I have a huge tolerance to almost everything ans I am starting to feel that this regimen isn't working. I also have no large intestine (I have a J-Pouch) and have had pills pass right through me. I also have chronic diarrhoea; (I go 5-10x/day) so codeine is great for slowing the motility of my bowels. But, I had a liver transplant at age 13, so I don't want to take Tylenol on a regular basis.
Who all is on Oxycontin, what dose, and does it help? I have been thinking it would be good to try since I have never been on it and shouldn't have a tolerance.
Hi Crohnie! RE oxycontin, you mentioned that pills pass right thru u, than oxycontin not a good med. It has a coating for extended release, I pooped them right out and I have a colon. You may want to consider a transdermal fentanyl patch. It absorbs thru the skin and provides long term relief. There are also liquid forms of pain medications that contain no additives that would hurt your liver. Dilaudid is another option for short term pain that also does not contain tylenol. There are options out there, dilaudid helped me w my chronic diarrhea. Hope this helped some.
03-28-2014, 12:34 AM   #380
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I am in pain everyday and I have terrible anxiety. No doctor will prescribe pain meds nor anxiety meds. I have gone to countless doctors and psychiatrists and no one wants to help. They want me to suffer.
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04-02-2014, 01:02 PM   #381
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Amaze, I feel for you! Like Ive said in earlier posts, that more and more docs are pulling away from using narcotics due to over proscribing in the past. If he won't help, go to your primary physician and explain whats going on. That doc may help or refer you to individuals who can. It is a well known fact that those who deal with a chronic illness are much more prone to clinical depression and anxiety. A good psychiatrist along with a therapist who specializes in those with chronic pain may be of help for you. I am confused as to why he has you on Naltrexone? Had you had opiate addictions in the past? Hope to hear from you soon.
04-28-2014, 04:16 PM   #382
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I am wondering if anyone in ct area can suggest someone who does deal with pain appropriately. My current dr told me he just thinks i like pain meds (while I was in the hospital) and suggested I go into pain management but then said he does not do referrals for pain management?!?! He also is constantly putting me on prednisone (up to 80mg) and then yelled at me for blowing up. Im to the point where i jsut want to cry in bed every day from the pain and the stress. Any help would be greatly appreciated
05-01-2014, 06:21 AM   #383
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I didn't see where anyone complained of joint pain with the Crohn's. My GI doc sent me to see a rheumatologist who diagnosed me with Crohn's arthritis and fibromyalgia. Alot of the drugs used for the Crohn's arthritis pain helps the crohn's symptoms. I do take hydrocodone and dilaudid for severe pain and it helps. What has also helped is Neurontin. I take Elavil at bedtime since I had problems with pain waking me at night. It is still a challenge day to day (my hands have weakened and are painful) and I can't do nearly what I used to. The arthritis has really kicked me hard. Now I have been recently diagnosed with PSC so that complicates all more. I have not had any problems with addiction but I have found I am allergic to most of the TNF drugs or can't take them because they have a latex contamination (I am anaphylactic to Latex). I have been in liver failure once and had serum sickness from these drugs but I am excited for those folks that can take them. I am currently on Methotraxate and steroids for the Crohn's and the PSC but monitored closely. Hope this helps.
10-02-2014, 11:39 PM   #384
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So I came off codeine following my surgery last October, because I suffered post-surgical ileus and the doctors wouldn't risk the codeine slowing down my already completely paralysed digestive-system. So I did a horrible cold-turkey detox. Now my ileostomy is suddenly extremely watery so I've been prescribed codeine again, along with loperamide, this time for the purpose of slowing things down. But yes, I'm looking forward to the other effects of codeine kicking in again now that my tolerance has probably gone down a bit. For me this means energy - yes, I know codeine is supposed to be a sedative, but it gives me energy (and I know some others on this forum also experience this effect). It means I can walk around without aching terribly, and that I can focus on a book or on the Internet without feeling it a huge effort and that all my energy has drained away.

Even when completely detoxed I haven't felt as good off it as I ever felt on it - i.e. it's not just withdrawal symptoms that make me feel worse - codeine has genuine positive effects for me as well. Plus maybe now my stoma bag will stop filling up so often.
Vic's have the same effect for me, i.e. I regain energy and feel somewhat normal, also I don't get addicted at all. Its supposed to be tougher for people that are actually in pain to get addicted, as we are taking those substances to negate negative effects and pain we experience, where the person looking for a high is looking for a glow to go with their already good health.

I'd take being healthy and feeling healthy again over a high any day myself. One thing I do tend to worry about with the meds is that I know the "healthy" feeling they add is false and overdoing it by doing stuff I suddenly feel I am able to, but I know that no way in hell I would feel up to without them, like a false glow.

I also don't get why they are the only pain med that is at all effective with me so far, I've been on many, including Tramadol which is supposedly quite effective, but did nadda for me, and I gobbled them like M&M's trying to get relief, they just didn't work at all. I really think that because I am hyper most meds just do not work on me, no other explanation.
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10-03-2014, 07:06 AM   #385
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I also don't get why they are the only pain med that is at all effective with me so far, I've been on many, including Tramadol which is supposedly quite effective, but did nadda for me, and I gobbled them like M&M's trying to get relief, they just didn't work at all. I really think that because I am hyper most meds just do not work on me, no other explanation.
See, from what I've heard from others is tramadols haven't done anything for them either.I've been on trams for many years now.Not because they are a great help with pain, but because they were much easier to get from doctors, and I felt somewhat normal on them.(ie no high feeling)
Since trams were just recently classified as a narcotic now, they probably won't be as easy to get.I'm actually glad they did that.Tramadols are just as addictive as any other pain med and doctors didn't believe me if I told them I was going through withdraw if I didn't have any.Plus since they have serotonin in them, you get a double whammy.Withdraw from the serotonin as well. :/
10-03-2014, 07:08 AM   #386
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I didn't see where anyone complained of joint pain with the Crohn's. My GI doc sent me to see a rheumatologist who diagnosed me with Crohn's arthritis and fibromyalgia. Alot of the drugs used for the Crohn's arthritis pain helps the crohn's symptoms. I do take hydrocodone and dilaudid for severe pain and it helps. What has also helped is Neurontin. I take Elavil at bedtime since I had problems with pain waking me at night. It is still a challenge day to day (my hands have weakened and are painful) and I can't do nearly what I used to. The arthritis has really kicked me hard. Now I have been recently diagnosed with PSC so that complicates all more. I have not had any problems with addiction but I have found I am allergic to most of the TNF drugs or can't take them because they have a latex contamination (I am anaphylactic to Latex). I have been in liver failure once and had serum sickness from these drugs but I am excited for those folks that can take them. I am currently on Methotraxate and steroids for the Crohn's and the PSC but monitored closely. Hope this helps.
Me.Me. and me! I feel like a 90 yo my arthritis is so bad.I'm usually just curled up in a big ball most of the time.
10-03-2014, 11:13 AM   #387
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See, from what I've heard from others is tramadols haven't done anything for them either.I've been on trams for many years now.Not because they are a great help with pain, but because they were much easier to get from doctors, and I felt somewhat normal on them.(ie no high feeling)
Since trams were just recently classified as a narcotic now, they probably won't be as easy to get.I'm actually glad they did that.Tramadols are just as addictive as any other pain med and doctors didn't believe me if I told them I was going through withdraw if I didn't have any.Plus since they have serotonin in them, you get a double whammy.Withdraw from the serotonin as well. :/
I noticed what you said with the Oxy and the Vic's, isn't it funny how the supposedly constipate the hell out of normal people and when the doctors ask you about it its like you grew two horns when you tell them, no, if anything they help regulate me ?

Also saw what you said about having a pain clinic appointment soon, the first thing they will do is epidermal's, or if its a weird new on electric treatment, if and only if they don't work they will consider other options. I honestly don't care, I just want something that works, it just offends the hell out of me knowing there is something that does work and they diddle and waste months to years of my time deciding to go back to that. I'm the one in pain, no skin off their backs but they are frigging supposed to be trying to help me, not treating me as a lab rat, I mean how long does it really take to decide something doesn't work ? Some things they want you on for weeks, its like come on, don't you think I know after a day, never mind that one hour if they freaking work ? Oh its all ok, yeah because you're not the one in constant pain asshat ! If I could have a super power, I would choose to be able to transfer my pain to each one of those dicks, I bet you they'd come up with a pain relief med that worked for themselves in a day to a week as opposed to weeks to a year and then switching you just because some damn laws changed because some twit doctors were subscribing to people they shouldn't have been in the first place.
10-03-2014, 02:57 PM   #388
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I had a horrible experience with pain med addiction recently. I had emergency surgery and a new stoma (my third in under a year) due to a blocked intestine which perforated. I have very little memory of the days before and after the surgery, but I do remember being in intensive care and not being particularly uncomfortable. Later I was moved to another ward, and I had oxycodone through an IV in my arm, and a button to press when I wanted it. A pain specialist nurse came to see me, and she said I should push the button as often as I wanted; she said don't wait until you get pain, push the button at any discomfort, before it develops into pain. So I did. A couple of days of this, a different pain specialist nurse came to see me, and he said they should take the button away now. Since I didn't seem to have much pain, just a bit when I moved, I said fine.

Later that day, I wasn’t in much pain, but I was so uncomfortable, I couldn’t keep still, couldn’t sleep, and the restlessness was just unbearable. I know that sounds strange to say – that restlessness is unbearable, it sounds like something much more minor, but it really was terrible. Each minute dragged by like an hour. I begged them for the button back, and they gave it to me. And I felt so much better – I felt right again.

But the next day, they took it away again, saying I had to come off it some time. I wanted to cut down gradually, but they said no. Later in the day –same thing – I couldn’t stand it, and all I wanted was the button back. They called the pain specialist back again – the second one, not the woman who’d told me to use it as much as I liked. I told him I needed the button back, but when he asked me if I was in pain, I had to be honest and say no. He said if I wasn’t in pain, no painkillers. I told him I was addicted to the oxycodone, and that it was the withdrawal I couldn’t stand, but he was very uncaring and just told me I’d not been on it long enough to get withdrawal. The following night was awful, of the whole of that emergency admission, it was the hardest to get through, it felt like an eternity. If I’d known some way to get the oxycodone myself, I would have done it, and I think I drove the nurses up the wall asking them to give me something that would help.

Luckily the withdrawal did end. When I saw the pain specialist again, I told him that no matter what he said about my not being on it long enough to be addicted, I knew that I had been addicted. He really didn’t seem at all interested in what I had to say though.

I spoke to doctors about it though, and they said that the only thing with worse withdrawal than oxycodone was heroin. My codeine addiction was nothing to them – they were quite happy, once I was off the oxycodone to give me plenty of codeine and oral morphine. (When I was off everything, I realised I did actually have quite a bit of pain, but the morphine and codeine kept it under control. They gave me paracetamol too, though I’ve never noticed that actually having any effect on pain.) Because this surgery was an emergency, I didn’t discuss pain relief beforehand – by the time I was with it enough to know what was going on, I think I’d already been having IV oxycodone along with some other things for a couple of days. But if I ever do need surgery again, I honestly think I’d rather the pain than the withdrawal from painkillers. I’ve had many surgeries before and had no pain relief after them – my surgeon didn’t want to risk any opiates as they slow down bowel function; they did give me paracetamol, but as I said, I don’t count that as pain relief. The withdrawal was definitely worse.
10-14-2014, 04:13 AM   #389
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Why did I think it was a good idea to finish all my codeine over the weekend when I knew I won't be getting any more for a few days?
10-14-2014, 10:47 AM   #390
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And I made an extra trip to the chemist and got my codeine, so feeling ok again.
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