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#1 |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 4,194
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Crohn's & Colitis websites..
Just thought you guys would be interested in these websites I got from my Prez in our chapter. Saves alot of time!
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Formerly: Pen Symptoms of Crohn's 35 years DX in 1993-2 resections, 1993 & 2003 Been on all drugs available in Canada VSL#3 900 Billion probiotic bacteria. Pred, 15mg dose until possible 3rd surgery ...winging it now.
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#2 |
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Member
Join Date: Mar 2010
Location: Australia
Posts: 41
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Great post.
Thanks Jetta!
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A/S/L: 23/M/Aus Diagnosis:CD/Moderate/Nov. 2009 Treatment: Self management - Strict diet & bioresonance |
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#3 |
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Senior Member
Join Date: Mar 2010
Location: Connecticut
Posts: 116
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Thanks, great information and does save time. Nice to just have this at our finger tips
I started a new post called NEW PRODUCTS, to sort of do the same thing for ostomy patients. There is so much information out there for us, but sometimes hard to find the the stuff that is good. I was shocked when I did some research on all the items out there, to find out the prices of a lot of them. Most of these we have to pay out of pouch and would hate people or myself to spend money that is not worth it.
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LMPO - "Laugh my pouch off" Facebook - Inkedmedic Age 8 - ABD pain, weight loss, no appetite Age15 - Admitted with rectal bleeding and pain - treated as Colitis Age 19 - Colon removal with a ileostomy Age 20 - J Pouch with a Pull through procedure Age 32 - Complete blockage (due to scar tissue) Age 34 - Partial blockage and found to have Crohn's Age 35 - J pouch has a fistula & both connected to spine Age 36 - Ileostomy and rectum closed |
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#4 |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 4,194
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Glad it was worth putting it up on here. Just got a new computer and the hookups took forever, scanner is older , and needed drivers, so I am happy people are using it. I hate looking in phone books or slow internet searching.
Glad it helps!
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Formerly: Pen Symptoms of Crohn's 35 years DX in 1993-2 resections, 1993 & 2003 Been on all drugs available in Canada VSL#3 900 Billion probiotic bacteria. Pred, 15mg dose until possible 3rd surgery ...winging it now.
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#5 |
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Senior Member
Join Date: Mar 2010
Location: Connecticut
Posts: 116
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Plus there is so much stuff out there, that is a waste of time. I swear some people feed on people with conditions to make money.
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LMPO - "Laugh my pouch off" Facebook - Inkedmedic Age 8 - ABD pain, weight loss, no appetite Age15 - Admitted with rectal bleeding and pain - treated as Colitis Age 19 - Colon removal with a ileostomy Age 20 - J Pouch with a Pull through procedure Age 32 - Complete blockage (due to scar tissue) Age 34 - Partial blockage and found to have Crohn's Age 35 - J pouch has a fistula & both connected to spine Age 36 - Ileostomy and rectum closed |
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#6 |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 4,194
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Yes they do! What most people may NOT realize is you have to find the money trail in order to believe some research material. There usually is one. My daughter learned that in psych class. Official sites are best but find the sponser and it can be bias. Just an opinion.
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Formerly: Pen Symptoms of Crohn's 35 years DX in 1993-2 resections, 1993 & 2003 Been on all drugs available in Canada VSL#3 900 Billion probiotic bacteria. Pred, 15mg dose until possible 3rd surgery ...winging it now.
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