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Anyone here with the same diagnosis? non specific Colitis/Crohn's

Hello,
I am 47 yo male and one of those unspecific Colitis/Crohns people. Was told since 1990 I have UC, Asakol and Pred with Rowasa enema pretty much managed it all these years. Last year started having more extra intestinal issues - hip pain, abscess, fistula. Have been in terrible mental and body pain since first fistula surgery in July of 09 - failed fistula plug, 3 hosp stay, 2 c-diff's, fistulatomy in Oct 09 - still healing, fissure, skin tag. Most of my pain is in my rectum/anus, some belly pain, no dria. Leaking after BM. Can't sit longer then 15 min, my job is a desk job, so I am on long term disability - thank GOD for my wife support! Remicade was ok for 2 infusions, got reaction on the 3d. Pill cam test was clear, prometius test positive with Crohn's with UC features. Anyone here with the same diagnosis? Went to see a top Crohn's doc at a local teaching hospital - U of Penn. Dr. name is Gary Lichtenstein. More tests coming...I hate this disease!
 

Dexky

To save time...Ask Dusty!
Location
Kentucky
Hi exit4, I just wanted to welcome you!! You've been through a lot. I'm sure some of the long sufferers on here will be here soon. Hang in and good luck!!
 

Crohn's 35

Inactive Account
This was a double post, I thought I was losing it cause I know I answered it! LOL. Perhaps Ding could delete this one keep the other, and move Dexky over.
 
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