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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Where is your crohns located


View Poll Results: Where is your crohn's located (you can choose multiple locations)
Small intestine 66 24.26%
Upper large intestine 41 15.07%
Lower large intestine 50 18.38%
Ileum 98 36.03%
Esophagus 7 2.57%
Mouth 10 3.68%
Multiple Choice Poll. Voters: 155. You may not vote on this poll

 
07-22-2010, 01:59 AM   #1
donna martinez
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Join Date: Jun 2010
Where is your crohns located

When I was diagnosed my crohns was located in my ileum, small intestine, and colon. But does it really make a difference because crohns could spread anywhere right. so does that mean if you have it in one place when you are diagnosed then it could spread to other locations?
07-22-2010, 08:25 AM   #2
Crohn's 35
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Join Date: Oct 2009
I have had it LRQ and as of Feb it has been also RLQ...been told IBS.. who knows?
07-22-2010, 05:04 PM   #3
Nyx
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Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
All in my colon...soon to be removed

And yes, it can spread to other areas...
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

07-22-2010, 06:57 PM   #4
dreamintwilight
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Join Date: Feb 2010

My Support Groups:
Mine is located mainly in my ileum (last part of small intestine where it connects to large intestine) and there were slight signs of colitis in the upper portion of my large intestine.
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Marisa
February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!


Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
Biotin
Allegra
07-23-2010, 05:28 AM   #5
duck68
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totally all my large intestine...everywhere else is clear at the moment...thankfully!
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Vicki



Diagnosed:
May 2010 Crohn's
(Symptoms for years, just hoped they'd go away!)
Medications:
* Prednisone 12.5mg
* Imuran 175mg
Supplements:
* Vitamin D
* Multivitamin
* Fish Oil
07-23-2010, 10:13 AM   #6
theend2
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Join Date: Mar 2010
Yes consumed my whole colon as well.
__________________
DX: Ulcerative Colitis (Pancolitis) - Jan 2007
DX: Gastritis - May 2007
DX: Osteoporosis April 2010
DX: Diabetes April 2010

Meds:
Did not work:
Apriso caused bad joint pains.
mesalamine - Asacol
6-mercaptopurine
azathioprine AZA
Entocort EC
Sulfasalazine
Remicade
Humira
Methotrexate

YES these are working:
Prednisone 40-60 mg daily. Down to 10/20mg
Cortfoam enemas
Protonix 40mg
Pain meds as needed.

Vitamin's:
Calcium
Vitamin D

07-23-2010, 12:54 PM   #7
Rebecca85
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Location: Nottingham, UK
Guess!
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Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
07-23-2010, 02:20 PM   #8
Zalanicht
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Location: Penticton, British Columbia
Used to be in the terminal ileum, but I don't have a terminal ileum anymore
__________________
28cm sm and L bowel removed, 200 mg Aza, monthly b12 injection,
calcium + vit d. Enjoying my surgery induced remission!
07-23-2010, 02:45 PM   #9
MapleLeafGirl
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Location: Hamilton, Ontario
Another terminal ileum girl
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Kelly

Diagnosed: August 2006
Current Meds: Imuran (125 mg), Budesonide (9 mg)
07-23-2010, 03:08 PM   #10
Crohn's 35
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Join Date: Oct 2009
Used to be in the terminal ileum, but I don't have a terminal ileum anymore
Hmmm, let me guess where you got that pic from on you signature?
07-24-2010, 06:10 AM   #11
SilverWillow
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Join Date: Aug 2009
In my large intestine, worse in transverse and decsending. Luckily i'm clear elsewhere as yet x
07-26-2010, 02:40 PM   #12
NFS_xtreme
 
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Join Date: Jul 2010
Location: Dobson, North Carolina
mine is at the end of my small intestine. causing more constipation than diahrea
07-26-2010, 05:51 PM   #13
markbills85
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Join Date: Nov 2009
Location: South Carolina
same end of small intestine and way more constipation then D!
07-26-2010, 08:33 PM   #14
Jennjenn
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Location: New York
Mostly my ileum but I have some areas with inflamation at the moment in my large intestine. For my ileum there is more narrowing and inflamation which I found out today the remicade is not working for me.
07-26-2010, 11:48 PM   #15
Entchen
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According to GI: Large intestine (specifics not yet known)
According to radiologist: large intestine + 2 places in ileum
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Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
07-28-2010, 06:27 PM   #16
tmgread
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Join Date: Jul 2010
All in the colon.
07-29-2010, 04:01 AM   #17
DustyKat
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Location: New South Wales, Australia
Roo's was in her ileum.
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Mum of 2 kids with Crohn's.
08-02-2010, 08:23 AM   #18
Pincushion
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Yep mine is in the terminal ileum and the cecum too
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Christina

Crohn's Disease Diagnosed Jan 2000

30th June 2010 began Modulen for 6 weeks (Liquid diet especially for crohn's. No food allowed whatsoever )

08-02-2010, 08:30 AM   #19
Jellybean
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Join Date: Jul 2010
Been told quite severe in colon, waiting for barium x-ray to see where else it's lurking, have constipation so maybe in ileum too? ....
08-02-2010, 11:41 AM   #20
massa
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Hi.
My Crohn's is in my small bowel. which i am having it resected on 20th August !!!!

I do get it in my mouth too ... small round ulcers but not like a ordinary mouth ulcer !! if you know what i mean... it actually looks like a baked bean!! and its hard to not soft ...am i decribng it ok !!!! but they go with a few weeks....

Take care
Try and keep well
Marie
( massa)
08-02-2010, 05:03 PM   #21
Hornetsting
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small intestine
08-02-2010, 07:03 PM   #22
sdbook
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Sigmoid colon - anyone else???
08-03-2010, 01:23 AM   #23
annholaz
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Crohn's was in the ileum. which was removed in May. In the process of the surgery, they found a malignant tumor, with a lymph node affected. I am undergoing chemotherapy now

I'm on Pentasa and Endocort in the meantime, until chemo is complete (6 months)... then the GI doc will take over with other meds. D (from the Crohn's and chemo) is under control somewhat with Citrucel, Align and Questran.
It's a challenge trying to balance all the meds!
08-03-2010, 01:28 AM   #24
Entchen
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Oh Ann, I'm so sorry to hear that. Welcome to the forum; I hope we can be a good support to you as you are going through such grueling treatments.

ps: Penny (Jetta Lady) would probably pipe in at this point and welcome you to introduce yourself on the My Story thread, so I'll do that, too.
08-03-2010, 02:08 AM   #25
GoJohnnyGo
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Location: Calgary, Alberta
Terminal Ileum and duodenum (both since removed).

Now a bit of Crohn's activity where the small and large colons meet.
08-03-2010, 02:40 AM   #26
DustyKat
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Location: New South Wales, Australia
Crohn's was in the ileum. which was removed in May. In the process of the surgery, they found a malignant tumor, with a lymph node affected. I am undergoing chemotherapy now

I'm on Pentasa and Endocort in the meantime, until chemo is complete (6 months)... then the GI doc will take over with other meds. D (from the Crohn's and chemo) is under control somewhat with Citrucel, Align and Questran.
It's a challenge trying to balance all the meds!
Hi Ann and

I'm so sorry that you find yourself in this situation, how very difficult for you both mentally and physically. I'm glad you found your way here 'cause we are a friendly bunch and there are many members on here that are very knowledgeable and experienced.

Do you think you would like to post in the Your Story forum so you receive the welcome you deserve?

Welcome aboard!

All the best,
Dusty
08-10-2010, 03:29 PM   #27
Billie Selene
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Well, Dougie Howser (My GI Doc..... gawd he looks like he's an escapee from pre school! LOL!.... says it is worse in the turns from the ascending to the trans and then the trans to the descending.... but until I started the entocort and the other one..... (gawd d*** IT! I am having more and more blank outs..... not black outs..... just my mind goes blank..... WTH????.. )anyway the large brown pill..... I was having problems with constipation which sounds like the TI .... but now it is more DH with a lot of blood... is the entocort causing this????
08-10-2010, 06:43 PM   #28
Gibby87
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My entire colon and is now in the process of spreading into my small intestine. IT'S ALIVE!!! lol, sorry.
__________________
Diagnosed since 2007 with Crohn's, GERD, and Barrett's Esophagus.

Current Meds and "Treatments":
Asacol 4800 mg a day
Flagyl 750 mg a day
Gummy multivitamins
VERY restricted diet.

Also all the extra curricular activities: fatigue, painful joints, blah blah blah.

http://www.facebook.com/#!/profile.p...00000453203431

08-14-2010, 06:14 AM   #29
debs1983
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Join Date: Aug 2010
I was told at diagnosis total colon

don't know if its gone anywhere else though-but *touch wood* nothing to indicate its anywhere else
08-19-2010, 11:31 PM   #30
YogaGirl
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Join Date: Aug 2010
Do any of those of you have more constipation than d ever use Metamucil or something like that? Does it help?
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