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09-08-2010, 04:46 PM   #1
Jer's Girl
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Good news for Jerís girl

For those of you who donít know, I had an Ileostomy surgery back in April. My Drs could give me no time frame for how long I would have to have it and although my stoma has been very good to me; my hope was that I would be able to have it reversed in the future.

I saw my GI about a month ago and got a colonoscopy. My Dr said that my intestines looked very good, but he and my surgeon were in no hurry to reconnect me. I was very disappointed, but mostly I just wanted to know one way or the other what was going to happen to me and when so that I could plan my life.

So yesterday I went to visit my Surgeon to see if he thought that I would be able to get the reversal soon and he said that I could THIS MONTH!!!
I couldnít believe it. After months of ďI donít knowĒ the answer was suddenly, ďyes and right away!Ē

I am very excited. My surgery date is September 28. I am well aware that I may have to have a bag again at some point in my life, but I am hopeful that the ostomy has helped my body heal enough that I will have a few years at least symptom and bag free.

Anyway, just wanted to share my good news! Hope all of you are well.
09-08-2010, 05:25 PM   #2
MapleLeafGirl
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Congrats and good luck on the 28th!!!
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Kelly

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09-08-2010, 05:26 PM   #3
Nyx
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Congrats and good luck Nicole!!!
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

09-08-2010, 05:28 PM   #4
dreamintwilight
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Great news, Nicole!
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Marisa
February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!


Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
Biotin
Allegra
09-08-2010, 05:45 PM   #5
Crohn's 35
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Awesome!! Best of luck to you and keep us posted!! Yay!
09-08-2010, 09:04 PM   #6
CDDad
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That is great. Good luck and I look forward to hearing all about it!
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Crohns since 1989
3 Surgeries - Hemicolectomy '08, Sm Bowel Resection '09, Proctocolectomy '10. Lets hope I'm done now!
On Protonix and Humira.
09-08-2010, 09:48 PM   #7
5 iron
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good luck jersgirl, many many years sympton free!!
09-09-2010, 05:12 AM   #8
Dexky
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Good luck Nicole!! I'm sure you'll still look good in your swimsuit!!
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
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09-09-2010, 05:54 AM   #9
DustyKat
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Oh wow that is excellent news! So happy, happy, happy for you! YAY!

Wishing you all the luck in the world with your surgery.........................





All the best,
Dusty
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09-09-2010, 07:12 AM   #10
bushydougie
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Great news for you. Hurray! Good luck with everything
09-09-2010, 08:53 AM   #11
Astra
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Great news Nicole, no more wondering!
lots of luck on the 28th, we'll all be thinking of you!
xxxxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

09-09-2010, 09:03 AM   #12
Jer's Girl
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Thanks so much everyone! I have to admit, part of my excitement comes from the fact that I get some time off of work LOL!

I just want to make it clear that although I am happy that I am getting the reversal, having the stoma was the best thing that ever happened to me and if I need to get this done again in the future, I will be just fine with that. I want anyone who thinks that having a bag is the worst thing that could happen to them (as I did before I got mine) it is not! In fact, in many ways it has made my life so much better.

It really hasnít been an easy decision to get the reversal and I have gone back and forth on this many times. Before this journey, I never would have thought that it would have even been a question, but with the bag I have been able to experience life in a way that I never had before. I was able to eat what I want and live pain free. I was able to go on vacation without thinking about the bathroom 90 percent of the time. I cannot stress enough to those of you who might have to have a bag in the future, even a permanent one, it is not the end of your life, but the start of a new one!

In fact, my husband would prefer that I kept the bag as it has made me a whole new healthier person. He is supportive of my decision, but he cannot help but be afraid that I will go back to the way I was before, barely even functional and in and out of the hospital.

I understand his concerns, but ultimately it is my decision and despite my trepidation and fear that my symptoms will return after I get this reversed, there is a chance that that wonít happen and I feel that I need to put my fear aside and see for myself. Ultimately I decided to give life without a bag one more chance. My thinking is that I can always have another Ileostomy surgery in the future if I need one. I feel that I can live with that decision much easier if I have at least tried to see if I can live without it first. As with everyone with a stoma or with Crohns, it is a very personal journey and no one answer is right for everyone.

I just want to give a shout out to all of my stoma buddies who have been on this journey with me. All of you are so strong and I have been lucky to have people to show me the way (Thank you Cindy and Kello. Your strength gave me the strength to do this at all) and people who have taken this journey with me (Joe, Dan, Jeff and others). I have really felt like we have helped each other through this with all of our advice and commiseration. Thanks to all of you, as well as my extended Crohnís family who supported me (Pen, Marisa to name a few), I really felt like I was not alone in this.

I know that I have left people out, but really, I appreciate all of you so much! So many of you have supported me through this. Thank you to everyone who posted here wishing me luck and offering me congratulations. I know that we are all on very different journeys and Crohnís has touched us all in very different ways, but I truly feel that we are all a family of sorts and that we all understand what each other are going through better than most people who do not live with a chronic illness ever could.
09-09-2010, 06:02 PM   #13
acg101
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@ Nicole- First congratulation on your decision and on the 28th. I know how much you were looking to have this opportunity to reverse the stoma and I am excited and cant wait to hear how you did with the surgery.
Thank you for all your help (and husband ideas...) and support throughout my ordeal and helping many others here on the forum.
<<<<<<<<Big hug to you>>>>>>>>>>>>>>>>
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-Best wishes - Dan

1. Diagnosed with Crohn's UC 1995
2. Flagyl/Cipro Imuran in 80%remission 1997 2005
3. Used 5mp, asacol, 6mp, remicade, imuran, Cimzia, entocourt, Flagyl/Cipro and enemas/suppositories until 2010 with periodic relief.
4. July 9th 2010 total ProctoCollectomy surgery! Free at Last!
09-11-2010, 08:34 AM   #14
ameslouise
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Congrats and good luck! Thanks for sharing your thoughts on your stoma. Those of us that have had a temporary ostomy have probably all gone thru the same feelings - we feel so great with the stoma after being sick for so long that we question having it reversed.

Good luck with your reversal! -Amy
09-13-2010, 07:27 AM   #15
Jer's Girl
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Thanks for the well wishes guys! 15 days to go now!!!!
09-16-2010, 04:42 PM   #16
Jer's Girl
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12 days left and counting! Canít think about much else right now.
09-16-2010, 04:51 PM   #17
seaofdreams
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That's so exciting. I hope everything goes well for you and you stay symptom free
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"Never feel guilty for being sick and try to stop comparing yourself and your life to others. You're doing the best you can under the circumstances you have and you're doing great."

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09-18-2010, 10:33 AM   #18
acg101
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10 more days. I am counting with you. So very exciting for/with you Nicole!
Cant wait to hear how the surgery went and your experience post op.
09-20-2010, 01:58 PM   #19
Jer's Girl
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Thanks for being there for me guys! Only 8 days left!
09-21-2010, 08:13 AM   #20
Jerman
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Wonderful news for a wonderful lady, good for you pal!
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09-21-2010, 08:29 AM   #21
rottengut91
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Hey, I'm pretty new here, but wanted to extend my Congratulations. Hope the surgery goes well for you. I had a stoma years ago, when I was 16/17. It was not a pleasant experience for me, but after reversal, I had many years symptom free. I am currently facing possible permanent stoma and feeling a great deal of anxiety. I am much older now and do have great support from husband. I keep reminding myself that it is not the end of the world, but the beginning of another, just as you said. Good Luck.
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09-21-2010, 01:21 PM   #22
Jer's Girl
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ONE WEEK LEFT!!!!!!

Jerman, thanks buddy! Rottengut, thanks for posting. Going through this at that age must have been so hard. It hasn't been so hard for me, but I have a very suportive husband, and I was in so much pain before i would have done anything to make it stop. I am going into this knowing that I may have to have a stoma again someday and after this year, I know that it is possible to live a wonderful life with one. There truly are a lot of things that I am leaving behind with this reversal.

That being said, I am so happy that I am (hopefully) going to get a few years bag free. Here are the things I am looking forward to most:

-Skinny jeans.
-Not having to spend so much money on supplies.
-Not seeing my guts hanging out when the bag is off (still have a hard time with that one).
-Being completely naked. I never feel completely naked with the bag. Donít know why that matters but itís just a thing with me. I never felt completely naked when I had braces on my teeth either. Yes, I am a weirdo.
-Seeing my new scar. I love scars and canít wait to see my battle wound.
-Not having the skin issues that I have now.
-Not having to change it.
-Not having the fear of leaks.

I am not nervous about the surgery, but I am nervous about afterwards. I have read that right after surgery the urgency can be pretty awful. The urgency feeling is my least favorite thing about Crohns period. I just really hope that everything goes as well as possible and that it will be worth it.

I plan on posting pretty regularly after I get out of the hospital and letting you all know how it goes. I want to let others who might get a reversal know what it is like since I have found that there is very little information out there about what to expect.
09-21-2010, 01:56 PM   #23
Brindle
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Great news for you!!!! just think a week from now you will no longer need a pouch!!!! how exciting. Keep us posted and best of luck for a fast recovery.
09-23-2010, 11:43 AM   #24
Jer's Girl
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5 days now!!!! Still counting with me Dan?

Brindle- yes that is pretty cool. Can't wait!
09-23-2010, 12:51 PM   #25
acg101
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Yes, I have it marked on my calander (lol) yes, I am counting with you Nicole.
I liked the post regarding the things you are looking forward to... will you send us pictures? lol
btw, Last week I swan in the ocean without a pouch or anything and it felt great! not sure what the fish thought...
09-24-2010, 08:17 AM   #26
CDDad
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Stop - Back up. What was that Dan about swimming in the ocean without a pouch?
You must provide more details. Was a school of fish following you?
Did you have a flange on and just went without the bag? love it.

And Nicole, 4 days now!
09-24-2010, 09:32 AM   #27
acg101
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joe, hahaha, you pay attention...
09-24-2010, 10:05 AM   #28
Jer's Girl
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4 days!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
AND only one of those days will be at work (today) so I only have one more day to worry about leaks in the work place.
09-24-2010, 10:17 AM   #29
acg101
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jer's reversal.JPG

very exciting -
09-24-2010, 12:37 PM   #30
Jer's Girl
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Aww Dan! That's so sweet!
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