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Crohn's Disease Forum » Treatment » Prednisone/Entocort » Moon Face and Prednisone!


 
10-04-2010, 12:37 PM   #1
Momof2EW
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Moon Face and Prednisone!

I am about to go crazy with this prednisone and my fatty face, will my face just keep getting bigger and bigger? I go to see my GI on Friday and he is sussoped to taper my prednisone and start me on 6MP...

Another question, coming off prednisone does anyone know how hard to will be to adjust to the 6MP? I havent heard to much about the 6MP/side effects/etc. Sorry if this makes no since, I just want my face back to normal and get rid of these horrible pred side effects.
Hopefully better luck on the 6MP...

Thanks for anyone that can help
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10-04-2010, 01:27 PM   #2
2thFairy
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I've currently got a bad case of moon facies.. I think I scare my dogs even--they are too frightened to howl. Hahaha!! I have the same questions you do..
10-04-2010, 01:30 PM   #3
Momof2EW
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I've currently got a bad case of moon facies.. I think I scare my dogs even--they are too frightened to howl. Hahaha!! I have the same questions you do..
I feel the same way! Ah! We are in the same boat. Stinks so bad! I hate my fat face
10-04-2010, 01:51 PM   #4
rottengut91
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I also get moonface, along with what I call turtle feet. My legs and feet swell, sometimes they feel so tight they hurt. I hate Prednisone.
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10-04-2010, 02:06 PM   #5
Momof2EW
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I also get moonface, along with what I call turtle feet. My legs and feet swell, sometimes they feel so tight they hurt. I hate Prednisone.
Yeah my rings don't fit no more either, sucks! I swear i can't wait to get this tapering started on Friday. Sorry your going through the bad sides of pred as well Are you going to taper? How much do you take a day? Im on 20mg in the am and 20mg in the afternoon.
10-04-2010, 02:10 PM   #6
Momof2EW
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I didn't mean to click that goofy keep on topic man with the sign. Sorry... im still new at this posting stuff. Lol.
10-04-2010, 02:18 PM   #7
Astra
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Hiya Elise

I'm on 20mg of Pred now, tapered from 40mg. This is my second go on this med. I was mortified first time round too!
Once I stopped, the moonface completely went away!
You're like Shannon, you're both splitting your doses? Never heard of this, we've always taken it all first thing in the morning after breakfast, to ward off insomnia?
Hang on in there hun!
xxxx
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10-04-2010, 02:36 PM   #8
2thFairy
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I'm tapering the prednisone, currently at 15 mg in the morning and 10 mg in the afternoon, and started azathioprine two days ago. Glad to know the fat face will go away when the prednisone is gone.
10-04-2010, 04:12 PM   #9
Entchen
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What gets me about the moon face is that some days the swelling is uneven. When I smile, half my lips seem to go in one direction and half in the other!!!!

Other days it's less...grotesque.
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10-04-2010, 04:21 PM   #10
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I have been the same! I have not long come of pred and I currently have no neck! Luckily my feet have stopped swelling up so hopefully I will get my neck back soon!!
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10-04-2010, 04:59 PM   #11
rottengut91
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Are you going to taper? How much do you take a day? Im on 20mg in the am and 20mg in the afternoon.
I'm not currently on any meds...have been on Prednisone many times in the past. Just had colonoscopy, Crohn's active in rectum and at anastomosis (previous site of resections). Doc wants to do small bowel series with barium to get idea of extent of narrowing before starting meds, in case I need surgery. He knows I despise Pred., gearing towards Remicade. He says Remi will help heal my fistula as well. Can't wait to kiss that thing good-bye.
10-04-2010, 08:21 PM   #12
Momof2EW
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Hiya Elise

I'm on 20mg of Pred now, tapered from 40mg. This is my second go on this med. I was mortified first time round too!
Once I stopped, the moonface completely went away!
You're like Shannon, you're both splitting your doses? Never heard of this, we've always taken it all first thing in the morning after breakfast, to ward off insomnia?
Hang on in there hun!
xxxx
My GI says that i split it up because i will start having pains in the afternoon/ evening time. Im afraid if I take it all at once by the evening time i will be twitching and having horrible pains in my knees and legs. I see my doc on Friday so I am going to see how much he tapers me and then i think he is putting me on the 6MP... so well see... i take Ambien toto sleep at night though.
10-04-2010, 08:24 PM   #13
Momof2EW
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What gets me about the moon face is that some days the swelling is uneven. When I smile, half my lips seem to go in one direction and half in the other!!!!

Other days it's less...grotesque.
I haven't experienced this yet... maybe i should look more into the mirror... lol. But, at least were not alone with this moon face thing!
10-04-2010, 08:27 PM   #14
Momof2EW
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I'm not currently on any meds...have been on Prednisone many times in the past. Just had colonoscopy, Crohn's active in rectum and at anastomosis (previous site of resections). Doc wants to do small bowel series with barium to get idea of extent of narrowing before starting meds, in case I need surgery. He knows I despise Pred., gearing towards Remicade. He says Remi will help heal my fistula as well. Can't wait to kiss that thing good-bye.
See i have heard about the Remicade but not to much... i just know i hate the pred, you should be glad you don't have toto experience this devil! It stinks! Good luck to you on starting your new meds though :-)
10-04-2010, 08:36 PM   #15
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Hi Elise, EJ came off pred and went straight to 6mp back in Feb. this year. He has had no problems with it. He takes it right before bed with a big glass of water. He is on 50mg dose. He also takes 3X800 mg/day asacol. We were told at our last GI appt that he could stop the Asacol but after trying to, EJ started having problems within a few days so we put him back on it as well. I hope the 6mp works for you!!
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10-04-2010, 08:47 PM   #16
Momof2EW
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Hi Elise, EJ came off pred and went straight to 6mp back in Feb. this year. He has had no problems with it. He takes it right before bed with a big glass of water. He is on 50mg dose. He also takes 3X800 mg/day asacol. We were told last GI appt that he could stop the Asacol but after trying to, EJ started having problems within a few days so we put him back on it as well. I hope the 6mp works for you!!
Thank you Mark! I hope I have the good luck that EJ had with coming off of pred. What exactly is the 6MP? Anything close to the side effects of pred? I hope not... I need to get my GI to explain it more to me on Friday.

Thanks for the reply!
10-04-2010, 08:56 PM   #17
vonfunk
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I've been on pred for almost 2 years straight. I had moonface bad just after the diagnosis, however I am lucky enough to be male and was able to grow a big bushy beard to hide my fat face.
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10-04-2010, 09:04 PM   #18
Dexky
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Elise, here's the Wiki article for 6mp. You get redirected to Azathioprine because they are the same drug with a different method for being metabolized in the body(I think)...

http://www.crohnsforum.com/wiki/6-mp

Always remember, when you start a new drug, you will be given regular blood tests to make sure it is working properly. I'm assuming you had the test (prometheus or something like that) to determine your bodies ability to metabolize 6mp.
10-04-2010, 09:10 PM   #19
Momof2EW
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I've been on pred for almost 2 years straight. I had moonface bad just after the diagnosis, however I am lucky enough to be male and was able to grow a big bushy beard to hide my fat face.
Too bad i can't grow a beard! Haha. If only i was a man :-)
10-04-2010, 09:14 PM   #20
Momof2EW
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Elise, here's the Wiki article for 6mp. You get redirected to Azathioprine because they are the same drug with a different method for being metabolized in the body(I think)...

http://www.crohnsforum.com/wiki/6-mp

Always remember, when you start a new drug, you will be given regular blood tests to make sure it is working properly. I'm assuming you had the test (prometheus or something like that) to determine your bodies ability to metabolize 6mp.
Yes, they have run all the correct blood work for the meds, the doctor is real strict on all that. Im sure Friday he will make me go back to the lab and do more work. Thanks for the 6MP link, Im heading to check that out now.
10-04-2010, 10:00 PM   #21
vonfunk
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Too bad i can't grow a beard! Haha. If only i was a man :-)
And with an attitude like that you never will.
10-04-2010, 10:04 PM   #22
Momof2EW
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And with an attitude like that you never will.
What's that mean? Hmm... i think i may be a little to blonde.
10-05-2010, 08:18 AM   #23
vonfunk
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it's one of those things parent/coaches/teachers say to a kid.

Kid - I can't do "x", it's too hard.
Coach/teacher/parent - well not with that attitude you won't.

It's that garbage that that adults feed kids about how with a positive mental attitude they can do anything.
10-05-2010, 08:20 AM   #24
2thFairy
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It's that garbage that that adults feed kids about how with a positive mental attitude they can do anything.

Like the doctors who tell us "this will fix you right up." Hahaha!
10-05-2010, 08:21 AM   #25
Momof2EW
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it's one of those things parent/coaches/teachers say to a kid.

Kid - I can't do "x", it's too hard.
Coach/teacher/parent - well not with that attitude you won't.

It's that garbage that that adults feed kids about how with a positive mental attitude they can do anything.
Oh ok, so something I would say to my kids. Hmm... lol.

10-05-2010, 08:22 AM   #26
Momof2EW
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Like the doctors who tell us "this will fix you right up." Hahaha!
Yeah those! Haha
10-05-2010, 08:22 AM   #27
2thFairy
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My husband is on maintenance prednisone for asthma/COPD. He shaved his beard off a while back and was shocked at his (sweet) moon face.

He went back to the beard. He suggested that I do the same. Hahahaha!!
10-05-2010, 08:41 AM   #28
vonfunk
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I've not trimmed my beard since the beginning of June, That's when they started upping my pred. I went from 5mg to 20mg, and then up to 50mg. I'm back down to 20mg, I see my GI in about 20 minutes, and hopefully I can drop it back down. But I should really get going if I want to be there on time.
10-05-2010, 08:46 AM   #29
Momof2EW
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I've not trimmed my beard since the beginning of June, That's when they started upping my pred. I went from 5mg to 20mg, and then up to 50mg. I'm back down to 20mg, I see my GI in about 20 minutes, and hopefully I can drop it back down. But I should really get going if I want to be there on time.
Good luck and update us when you return! Don't be late
10-05-2010, 01:36 PM   #30
vonfunk
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The appointment went exactly as I thought it would. We're slowly tapering my pred to 10mg. And he's having a surgeon contact me so that they can yank my colon sometime next year.
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