Share Facebook
Crohn's Disease Forum » Surgery » Stoma Subforum » Sleeping with a bag


 
10-30-2010, 08:17 AM   #1
ThatGuy2006
Senior Member
 
ThatGuy2006's Avatar
 
Join Date: Oct 2008
Location: Charleston, South Carolina
Sleeping with a bag

I need some tips on sleeping with my new bag because I am paranoid I am going to bust it open or spill it in my sleep.
__________________
"In the end it's not the years in your life that count. It's the life in your years."
10-30-2010, 10:03 AM   #2
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
I've lain on mine and never had a problem. It's kind of hard to control how you sleep when you're actually asleep...lol I just make sure mine's securely fastened before I lay down.

Sorry this hasn't been more helpful...
__________________
Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

10-30-2010, 04:33 PM   #3
CDDad
Senior Member
 
CDDad's Avatar
 
Join Date: Mar 2010
Location: New Jersey
Sleep has not been an issue for me. I use the Hollister 2 piece and only had one problem in 6 months (I pulled it off in my sleep). I like to have a snack at about 8pm, so my pouch is pretty full in the morning.
If my filter is working, I do very well, if clogged I might wake up at 5am with a balloon pouch.
I mostly sleep on my back or right side with the pouch resting on the bed.
__________________
-Joe
Crohns since 1989
3 Surgeries - Hemicolectomy '08, Sm Bowel Resection '09, Proctocolectomy '10. Lets hope I'm done now!
On Protonix and Humira.
10-30-2010, 06:40 PM   #4
Jer's Girl
Senior Member
 
Jer's Girl's Avatar
 
Join Date: Oct 2009
Location: Albuqerque, New Mexico
I always made sure to stop eating a few hours before bed, and empty the bag out completely before sleeping. Then, I slept on my back. If this is hard for you, maybe put some pillows on either side of you while you sleep to discourage you from rolling over when you are asleep.

No matter what, I always had to wake up at least once a night to empty the bag. This may sound inconvenient, but before the bag I was up several times a night to use the bathroom anyway due to my Crohn's symptoms. It was actually a relief to only have to wake up once, pain free.

Also, my body pretty much woke up when necessary. I never had to set an alarm clock or anything. I don't know if everyone else is that lucky.

Good luck figuring out what is right for you.
11-02-2010, 09:19 AM   #5
NCgirl
New Member
 
Join Date: Oct 2010
I've had my bag for about 4 weeks now and my only issue is that I used to sleep on my stomach and I can't now. Idk if it's more bc of the bag or bc of my incision. Either way, no stomach sleeping for me. I tend to sleep on my side cuddled with a pillow to keep the bag from hanging. I usually wake up once or twice a night to empty, depending on what I have eaten or drank. I automatically wake up (even with Ambien). Usually it's bc I have to pee so I go ahead and empty while I'm up. And I always make sure that I empty right before I lay down. Only one time have I woke up and thought my bag was gonig explode. I think that I am so paranoid now that subconciously I wake up frequently to empty.

Good luck with everything
11-25-2010, 12:11 AM   #6
Outpatient
Member
 
Join Date: Nov 2010
I have started to sleep on my back and I tend not to eat a few hours before i go to sleep as well. Also I will take two Imodium before i go to bed as well. Also it helps me that I wake up every few hours ( I can empty my bag)
__________________
http://www.youtube.com/user/outpatient83?feature=mhum

Currently on
-Humira
-imodium
-percocet
-Citalopram
-Alprazolam
11-25-2010, 03:28 PM   #7
Mr Bedfordshire
Senior Member
 
Join Date: Nov 2010
Location: Bedfordshire, United Kingdom

My Support Groups:
i used to try and fall asleep on my back when i had my bag, but would find in the night i would move to 1 side without any problems. Only thing i found was that i would itch around the edge of bag in my sleep and it would come away in the night sometimes, but no major problems.

I used to put down one of those incontinence sheet/pad thingys to not ruin the sheets or mattress.

you'll be fine, dont worry. just see what works best for you.
__________________
Mr Bedfordshire (Dunstable)

Started with Colitis 2003 after salmonella?!..
J-Pouch from 2005
Crohns Diagnosed 2010
Current meds:
**Started remicade-October 2011**
2g Pentasa Granules
Codeine (the ONLY thing that stops me going a lot!!)
esomeprazole, omega 3 and D Vitamins.
11-25-2010, 10:22 PM   #8
semicolon306
Senior Member
 
semicolon306's Avatar
 
Join Date: Mar 2010
Location: Norwich, Connecticut
I know your feeling and I have been there and done that. Sleeping on belly - NOT good, well for me. I did that a few times and ended up pushing stool behind my wafer. Then there was the time I ate a jar of pickles - WHAT the HELL was I thinking. When I awoke I had a hot air balloon on my belly, SO NOT good I moved and it POPPED.

SO a few things I do, that work for me :

1. Had to train myself NOT to lay on my belly or on the right side (stoma side). I did this by laying on my left side with a pillow under my right side. This way I did not turn in my sleep. Once I was trained I started laying on my back.

2. I wear a belt for night, that holds the bag on and the wafer. This also had a pocket in it to hold your pouch so it does not move. It also has a plastic piece that is a stoma protector, that will pop off if your bag fills with to much gas. It is comfortable and is added protection.

http://www.celebrationostomysupportbelt.com/

3. I try not to eat anything to 4 hours before bed, to minimize the amount of gas. I can only sleep 6 hours and I need to either release the gas or empty the bag. Like others said, if you use a filter bag, this will NOT as much as a concern.

You will get used to this, just takes sometime.

Best of luck to you amd REMEMBER DO NOT eat a full jar of pickles right before bed, NOT GOOD
__________________
LMPO - "Laugh my pouch off"

E-mail - [email protected]

Age 8 - ABD pain, weight loss, no appetite
Age15 - Admitted with rectal bleeding and pain - treated as Colitis
Age 19 - Colon removal with a ileostomy
Age 20 - J Pouch with a Pull through procedure
Age 32 - Complete blockage (due to scar tissue)
Age 34 - Partial blockage and found to have Crohn's
Age 35 - J pouch has a fistula & both connected to spine
Age 36 - Ileostomy and rectum closed
11-26-2010, 02:23 AM   #9
Outpatient
Member
 
Join Date: Nov 2010
@semicolon306 what is a filter bag? I have herd of them but never had them explained to me before.
11-26-2010, 02:25 AM   #10
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
A filter bag is a bag with a charcoal filter in them to let the gas out without stinking the place up...to be blunt...lol

I use them...they're great! I never have to burp my bag at all.
11-26-2010, 02:39 AM   #11
Outpatient
Member
 
Join Date: Nov 2010
What is the brand name and part number. That sounds awesome. I must have them =)
11-26-2010, 11:42 AM   #12
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
Most brands carry them...mine just happen to be Coloplast SenSura. I don't think the part numbers will help you at all, since our stomas are most likely not the same size. But you can give any of the companies a call and they'll be happy to help you pick the right bag for you
11-26-2010, 09:22 PM   #13
semicolon306
Senior Member
 
semicolon306's Avatar
 
Join Date: Mar 2010
Location: Norwich, Connecticut
If you call the companies and tell them you would like some samples, they will send you some for free. This way you can try them out, before buying a whole box.

I use convatec autoloc, and for some reason they do not have filers in them. I called and asked why and they could not offer me an explanation other then, some do and some do not.

I know there are some products you can add to bag that all you to release the gas, but I do not understand these. Since you can just break the top seal of a two piece and release the gas. I guess it is more for one-piece designs.

I did like these filters in my old stage bag, but rather have the extra security of the autoloc.
01-21-2011, 11:41 AM   #14
Molly
New Member
 
Join Date: Jan 2011
Location: Swansea, United Kingdom
Im pretty new to this myself (Nov) but recently found sleeping with a pillow between my legs really helps, i also found it difficult at first adjusting to new sleeping positions but it gets better....
01-30-2011, 12:32 AM   #15
Outpatient
Member
 
Join Date: Nov 2010
I have found that sleeping with a bag can be difficult. I tend not to eat a big meal to late into to night. I also started sleeping with a pillow on my side to keep me from rolling over onto my bag. I take Imodium right before I go to bed as well to slow the bowl down so my bad does not over fill in the night.
01-30-2011, 01:14 AM   #16
Outpatient
Member
 
Join Date: Nov 2010
I just wanted to throw this into the information that you are getting. If you are worried about you bag leaking or have problems with your bag leaking at night I used a Chux pad while i sleep for the first 6 months after getting my Stoma. makes clean up if there is a leak so easy (you dont have to clean the sheets)
09-06-2013, 08:34 PM   #17
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I can relate to this thread as well because I am used to sleeping on my side where the stoma and bag now exist. I am afraid to burst the bag or accidentally open it if I'm on my side. I also feel the extra pressure which hurts. I am just lying on my back which is causing bad back and shoulder pain since I am not used to it.
09-07-2013, 02:07 AM   #18
annawato
Moderator
 
annawato's Avatar
 
Join Date: Apr 2012
Location: sydney, New South Wales, Australia

My Support Groups:
I sleep on my right side mainly but usually wake up on my back, I think I subconsciously move position as the bag fills. The bags are pretty secure particularly if you wear a belt so I think sleep anyway that is of comfort to you other than on your stomach. Which is unlikely to be comfortable anyway once the bag fills haha.
__________________
Anna

you name it, i've tried and failed it! currently on- waiting to see whats new and reducing pred
temp. ileostomy reversed feb 2011, new ileostomy, nov 2012
4 resections plus removal of adhesions etc, recurrent intestinal abscesses
lyme disease, depression, sacroileitis, chronic pain and......Crohn's..........
09-07-2013, 09:52 AM   #19
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I'm going to try sleeping with the belt in a few days when my abdomen isn't so raw and tender.
09-07-2013, 12:47 PM   #20
hainman
Senior Member
 
hainman's Avatar
 
Join Date: Apr 2010
Location: glasgow, United Kingdom

My Support Groups:
im 6 weeks into my stoma and 1st 3 weeks were torture,hate sleeping on my back,but had no choice esp in hospital after surgery i could hardly move,since ive been home,i now move freely,can sleep on either side but only sleep on my left side kinda flatter than the side position,i have some stoma guards i should use that way i could go full on tummy mode,only down side is i do wake up most nights with a hot air balloon on my gut,up once ot twice during the night to empty but its way better than up 4 times a night and running like a crazy man down stairs to the loo and nearly shitting myself in the process,
09-09-2013, 01:16 AM   #21
annawato
Moderator
 
annawato's Avatar
 
Join Date: Apr 2012
Location: sydney, New South Wales, Australia

My Support Groups:
Yikes! I couldn't imagine having to run downstairs to the loo. The way my bag fills up at night i wonder how it doesn't just explode sometimes.
10-21-2013, 12:10 PM   #22
countrycoffeehouse
 
countrycoffeehouse's Avatar
 
Join Date: Oct 2010

My Support Groups:
I sleep with the largest hollister bag I could find at night ( switch to small mini in morning) I bought a bunch of old navy tank tops 2 sizes to small ( so it's snug but not tight across my bag) and I pull tank top over bag. And then pull my pj bottoms up over tank. It keeps my bag from flopping around a bunch and close to my body.
10-21-2013, 02:28 PM   #23
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I sleep with the largest hollister bag I could find at night ( switch to small mini in morning) I bought a bunch of old navy tank tops 2 sizes to small ( so it's snug but not tight across my bag) and I pull tank top over bag. And then pull my pj bottoms up over tank. It keeps my bag from flopping around a bunch and close to my body.
Are you throwing away your day and night bag or do you rinse them? Sounds like a lot of bags.
10-22-2013, 10:22 AM   #24
countrycoffeehouse
 
countrycoffeehouse's Avatar
 
Join Date: Oct 2010

My Support Groups:
I rinse out the bags and use them for about 7-10 days
10-22-2013, 11:50 AM   #25
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I would do that but my bags get so stinky and the waxy stuff from the Eakin ring is all over the bag smudged. I am also scared to remove the bag even for a second since I never know when Mr. Stoma wants to be social.
10-22-2013, 01:09 PM   #26
countrycoffeehouse
 
countrycoffeehouse's Avatar
 
Join Date: Oct 2010

My Support Groups:
Mine does the same thing with the Eakin ring. I just grab a bunch of toilet paper and wipe it away. I fill the bag with water from my sink and then dump it in the toilet ., I usually rinse it a couple of times. Mine does not stink.
10-23-2013, 10:44 AM   #27
Nyx
Moderator
 
Nyx's Avatar
 
Join Date: Jan 2010
Location: Barrie, Ontario

My Support Groups:
I have to pay out of pocket for all my supplies, so I reuse my bags. I just take them off and wash them out with soap and water and hang them to dry. I can get months use out of one bag.
11-09-2013, 12:28 AM   #28
Ang71
 
Ang71's Avatar
 
Join Date: Jul 2013
Location: Gold Coast, Queensland, Australia

My Support Groups:
Oh I feel sorry for you guys having to pay for your Ostomy supplies.. In Australia it's all free..
11-09-2013, 09:31 AM   #29
VeganOstomy
Senior Member
 
VeganOstomy's Avatar
 
Join Date: Oct 2013
Location: Oshawa, Ontario

My Support Groups:
Oh I feel sorry for you guys having to pay for your Ostomy supplies.. In Australia it's all free..
I was reading some ostomy publications out of Australia and apparently there's a lot of abuse with people ordering way more than they actually need. Someone pays for it in the end. Even though i found an insurance company to cover my supplies, I still shop for the best prices and never get stuff i don't need or can't use within a few months.

Having said that, supplies in Canada are about twice what you'd pay for in the United states :-(

__________________
Visit my blog to find out how I live with an ostomy while maintaining a vegan lifestyle. Tips, reviews and food

https://www.veganostomy.ca
https://www.youtube.com/user/Veganostomy/
https://www.facebook.com/Veganostomy
https://www.twitter.com/VeganOstomy

11-09-2013, 11:11 AM   #30
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
I have no guilt ordering supplies. Insurance companies are in the business of screwing people every day. If I can get adhesive removers out of them or something I don't need but want I'll try. None of these are luxury items, I didn't want to have a stoma it's not cosmetic and as such I now need new things to help improve my functioning.
Reply

Crohn's Disease Forum » Surgery » Stoma Subforum » Sleeping with a bag
Thread Tools


All times are GMT -5. The time now is 12:47 AM.
Copyright 2006-2017 Crohnsforum.com