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Crohn's Disease Forum » Parents of Kids with IBD » Update on Dusty's Matt


 
04-04-2011, 08:45 PM   #301
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Thinking of the two of you !!
Pre-op tomorrow !

Try and get a little rest tonight ! (ha...ya right!)


~Tracy~
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04-04-2011, 09:02 PM   #302
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Good luck at the pre-op.. if it was anything like mine..it is very boring and they just did a heart test, blood, urine... speak to the anesthetist ...you know...the usual.
I hope everything goes smoothly

Big hugs sent your way
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04-05-2011, 06:40 AM   #303
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@Dex, As always, thanks mate!

@Pen, Awwww thanks hun............Yep, Pen still hangin' in there, ! Not long now until D-Day......

@T, Thanks for popping by mate when you have so much on your plate....... I reckon I might have to steal one of Matt's bedtime friends......Temaze!!!

@Wendy, Thanks buddy!............Big day for you today and I will have you close in my thoughts, best of luck my friend......


HOLY GUACAMOLE BATMAN!!!


I have never been to pre op clinic before and what an experience that was, 4 hours later we were finally released from captivity!

You ain't wrong Wendy......ECG, chest X-Ray, bloods, registration, nurse, clinic nurse, case manager, anaesthetist and surgical registrar.

When I spoke with the case manager I broached the stoma as it wasn't ticked on the sheet to see a stoma therapist. The surgeon did not flag stoma on any of the paper work but I wanted it raised in front of Matt anyway. She said that the surgeon would avoid it at all costs but that it could never really be ruled out completely. I don't know, maybe I'm wrong but I would hate to think that he woke up with a stoma without it ever having been mentioned since January. He seems to have taken it okay and said he understood that if the surgeon has no choice then so be it.

He is listed as a laparotomy and will have a vertical incision with an invisible continuous suture as closure, Sarah had this as well. He will have an indwelling catheter, probably a drain but no NG tube. Due to his weight they may put up some TPN for a few days post op. He has no bowel prep and I have to ring tomorrow afternoon to find out his fasting and admission time for Thursday.

Rest day tomorrow and then full steam ahead!

Thanks for all the love and support guys,
Dusty. xxxxxxxx
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04-05-2011, 12:57 PM   #304
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Ahh Dusty you got off easy with only 4 hours ! We had 7 !

Seriously tho, I think it is very positive news that Matt didn't even have an ostomy consultation scheduled ! Or that he didn't get "marked" ! I'm sure you remember my surprise, and fears, when Gab did...and the outcome. So, YIPPEEEE !! Things are really looking positive for Matt ! ( in my little ole opinion anyhow )

I hope you and Matt are having a little fun today !


Still thinking of you !
And here's to hoping his "bedtime friend" becomes your best friend !

Much love to you both !
~Tracy~
04-05-2011, 01:09 PM   #305
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Just like to wish you all the best Matt, you're an inspiration to all the young Crohnies out there!
Much love to you too Dusty, try and get some rest now, your strength and vitality will be needed post op.
Be thinking of you both come Thursday (it's on my calendar!)
xxx
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04-05-2011, 06:12 PM   #306
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Dusty,

I think that since Matt did not have a stoma consult that is a good sign. My doc mentioned the possibility of a stoma pre surgery and then told me that the odds were against it happening. I came out of surgery "stoma free". I am sure that will be the case for Matt.

Matt will come through this and be much better for it. From what I am reading in this thread, the outlook looks good to me!

Well be think about you folks on the 7th.
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04-05-2011, 06:34 PM   #307
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thinking of you
hang in... this long term treading water is exhausting ...isnt it...
things will get better Dusty

Please take care of yourself...
Wendy
04-05-2011, 06:45 PM   #308
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You answered my stoma question before I asked. That sounds great Dusty!!
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04-06-2011, 01:51 AM   #309
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@T, 7 hours!!! You're right, we did get off easy. Matt seems fairly relaxed today, more than me I reckon! . Thanks hun......

@Joan, Thanks mate! Trying to rest, I promise I am!......

@Doug, I sure hope he doesn't have a stoma but after all the set backs we have I'm having trouble thinking too positively! . Thanks mate for all the positive thoughts and wishes......

@Wendy, Thanks for dropping by hun, I know you are going through a very tough time at present....... I reckon my head is just bobbing above the water line!

@Dex, patience bro! Nothing to be gained by coming too soon!......


Well the call has gone in and Matt is fasting from midnight and is to be admitted to the peri-operative unit at 9:30am. The countdown is really on now, YIKES!!!


Dusty......
04-06-2011, 04:30 AM   #310
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@Dex, patience bro! Nothing to be gained by coming too soon!......
Have you been talking to my wife behind my back???

Well you may be nervous (where did you find that nail biting emoticon anyway?), but at least you still got your !!

I can finally say tomorrow w/o feeling like I'm in a time warp!! Come on tomorrow and brighter days ahead for Matt!!
04-06-2011, 10:24 AM   #311
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haha.. Dex

You both will get through this just like you all got through this with Sarah
Hopefully this will all be a think of the past in a few months!
Sending you warm thoughts and best wishes
04-06-2011, 07:00 PM   #312
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We need a drumming the fingers emoticon.....waiting and hoping all is well!!!
04-06-2011, 07:14 PM   #313
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same here... I have been thinking of someone I have never met all day
04-06-2011, 09:20 PM   #314
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I'm with the rest of you on this one (fingers going thump thump thump).

I hope you are feeling the love from far away Dusty.

J.
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04-06-2011, 11:29 PM   #315
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....
....
....
04-06-2011, 11:36 PM   #316
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04-06-2011, 11:58 PM   #317
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Oh I am glad to see I'm not the only one who keeps checking in here...over and over and over....
04-07-2011, 12:04 AM   #318
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

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Let's play cards and eat and drink while we wait!
04-07-2011, 03:30 AM   #319
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Everybody breathe, the waiting is over......

Matt has just arrived back on the ward, 6pm our time. He went into theatre at about 12.30pm and in my nervous travels around the hospital I ran into the anaesthetics registrar a couple of times so he was giving me updates and reassuring me that although it was taking longer than planned it was going well.

So I haven't seen the surgeon yet, he is still in theatre so I don't have any of the finer details. What I do know from looking at him is......

He has no stoma and no NG tube.

He does have a urinary catheter and a drain, not the pigtail though!!!

He is very groggy and sore and the green button on the PCA is getting a wonderful workout.

Will update when I know more.

Thank you so much everyone for your wishes, prayers, support and love. I felt it all the way from over the various ponds!

Much love,
Dusty
04-07-2011, 03:36 AM   #320
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I am so glad to hear this Dusty. I hope Matt is okay and can rest easy now.
Please get some rest too - and I hope Sarah is okay. Stress, huh?

What a family...
04-07-2011, 04:53 AM   #321
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Happy dance !!! Great news Dusty!! The urinary catheter and drain are normal procedure I presume?? I hope so, I know Matt is tired of appliances!!
04-07-2011, 05:40 AM   #322
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Oh Dusty, this is all great news. I'm so happy for you all. You and Matt have been in my thoughts so much. All our thoughts and prayers will continue as Matt recovers. Love and hugs to you all.
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04-07-2011, 06:11 AM   #323
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That is such wonderful news, I hope he has a speedy recovery!! Sometimes being relieved of the pain that got you to surgery makes the post op pain pale in comparison.
Lots of hugs! !!!
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04-07-2011, 11:01 AM   #324
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this is great news !! I am so happy to hear he didn't wake up with a stoma !

the catheter and drain are pretty routine (as I am sure you already know this..)

Aw i am so happy for Matt !!

Now the healing process can begin and he can get on with his normal teenage life, just as Sarah has !!




~Tracy~

I am still curious to hear the details tho....but
Get rest when you can Dusty !
04-07-2011, 11:17 AM   #325
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What wonderful news!!! Here's to a speedy recovery for Matt!
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04-07-2011, 02:27 PM   #326
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I'm glad to hear it went well! My prayers are with you and Matt and Roo too! Stay strong Dusty! We're all pulling for you guys!
04-07-2011, 02:33 PM   #327
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Oh this is the wonderful news we've all been waiting for!
Way to go Matt, speedy recovery now, and Dusty...... breathe hun, you've been so strong and brave, RESPECT sista!
xxxx
04-07-2011, 05:39 PM   #328
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Awwww, thanks everyone......

I'm lovin' the emoticons Wendy!

The surgeon has been in this morning and he said they decided to start the surgery laparoscopically but were unable to continue as he had an inflammatory mass adhered to his abdominal wall. So essentially when they opened him up he had a mass of two bowel loops that were tangled and adhered together and this had then adhered to the abdo wall. This was the mass the GP and Matt have been feeling the last couple of months. They also found another abscess. They removed his terminal ileum, ileocolic valve and caecum, all up about 40cms of bowel was removed. The surgeon was very pleased with the way things went.

Matt didn't have too bad a night and is much more settled today. We'll see how he is travelling later after he has to get out of bed and take a few steps and sit in a chair! . I think the PCA will know it's alive!

Catcha later.

Loads a love,
Dusty. xxxxxxxx
04-07-2011, 08:28 PM   #329
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We love you Dusty and it sound like things went as well as we could have expected, right? I hope you are taking care of you - I KNOW you are taking great care of your baby.

Love & hugs,
04-07-2011, 11:23 PM   #330
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Hey J,

The surgeon came in again this afternoon so he could sit and chat with Matt when he had more time. He said that he took out about 30cm of bowel and what they actually found within the mass was he had another perforation that wasn't able to be easily visualised. They can see it on the films now they know it was there, so yeah the fistula and abscess they knew was there and another set they didn't know about......lots of infection. Just too much inflamed bowel at that spot to be able to see it on CT. He is really happy with how things went and with the way Matt is looking. YAY!!!

@Dex, yeah I knew he would have a urinary catheter and I expected a drain if he was going to end up having a laparotomy.

He had a walk and then a sit in the chair this morning, he did okay but before long was looking longingly at the bed like a love sick hound dog! The nurse went weak at the knees and let him go back to bed......

Much love to all,
Dusty. xxxxxxxx
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