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12-01-2010, 07:36 PM   #1
Mami
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Join Date: Oct 2010
Just saying hi

HI everyone,
I hope everyone is enjoying Dec. We are having our first BIG snowfall here in Michigan. It is absolutely beautiful and puts thoughts of snow days in all the kids' heads I check on the site regularly, on the run, but it has been such a busy time. Marilena seems to be doing well. The 6mp is at a good level, don't know what that means...but I'll take it I have a feeling we won't know what actually works until we're off the prednisone which should be end of January. Its funny though how involved you can get in your kids' poop! Everyday that's the first question I ask after school. And every tummy ache, which is still daily, I get all uptight wondering if its crohns, viral, constipation... I just am so thankful that there are wonderful people like y'all to help all us on this roller coaster
__________________
Jamie, mami to Marilena 10
dx 10-7-10 Crohn's in terminal ileum

Pentasa 1000 mg
6 mp 12.5 mg
Omega 3 1000 mg
Liquid Vitamin C
Calcium tablets
Multivitamins
Probiotics
Emulsified Vitamin D 2000 IU
Hugs (daily)
12-02-2010, 04:58 AM   #2
Dexky
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Join Date: May 2010
Location: Kentucky

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Haha, Jamie, I asked EJ about every bm he had for 6 months!! He made a cartoon that I posted. If I can find it I'll post a link.

Eh, I'm on EJ's I-Pad and I don't know how to copy and paste. If you search EJ's Chron-icles Vol. II, you can see it. Sorry, it's a shameless plug!!
__________________
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club

Last edited by Dexky; 12-02-2010 at 05:06 AM.
12-02-2010, 10:10 AM   #3
Mami
Member
 
Join Date: Oct 2010
I'll check it! And you have an ipad? Lucky! Is Ej still doing well? I thought Turkey day might push us over the edge because we had a knock down drag out about being able to have broccoli... who ever thought you would fight with your kids about not allowing them to have vegetables! I have found a lot of humor in Crohn's THankfully!
12-06-2010, 08:28 PM   #4
DadofCrohnsDaughter
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Join Date: Sep 2010
mami,

Just sent you a message, Mark has been a wealth of knowledge to me and looks like you as well.

I am in the same boat with my daughter and not having much luck with imuran at this point and not sure where our path is taking us...

Glad to hear that someone is having some luck that has just started out...hope it keeps up for you...

Scott K
12-07-2010, 06:29 AM   #5
Dexky
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Haha, Scott!! Jamie has already had to set me straight once. Don't think for a minute that I am a "wealth" of knowledge!!
12-07-2010, 06:35 AM   #6
DustyKat
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Location: New South Wales, Australia
Aww Dex , you are so modest (and such a SNAG)..........

Dusty.
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Mum of 2 kids with Crohn's.
12-07-2010, 07:25 AM   #7
DadofCrohnsDaughter
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Join Date: Sep 2010
Haha, Scott!! Jamie has already had to set me straight once. Don't think for a minute that I am a "wealth" of knowledge!!
Well you know more than I do, so I consider that a wealth of knowledge...
12-07-2010, 10:24 AM   #8
Mami
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Join Date: Oct 2010
OK... what's a SNAG?
12-07-2010, 03:27 PM   #9
DustyKat
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Join Date: May 2010
Location: New South Wales, Australia
Well it could be one of two things ~

snag = slang for a sausage.

or

SNAG = Sensitive New Age Guy.

Take ya choice of which fits Dex the best.

Dusty.
12-07-2010, 05:57 PM   #10
Mami
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Join Date: Oct 2010
How about sensitive new age sausage
12-07-2010, 09:52 PM   #11
Dexky
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snag = slang for a sausage

Dusty.
Heheh, hmmmm!! I....nah I'm not goin' there Dusty!!
12-08-2010, 12:38 AM   #12
DustyKat
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In ya dreams Dex!

Dusty.
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