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03-25-2011, 07:33 PM   #61
Lydia
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Hows it going everyone, any updates? I am feeling a little weird so I think I am going to test in the morning. Wish me luck!
03-26-2011, 01:32 PM   #62
Maryam
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Hows it going everyone, any updates? I am feeling a little weird so I think I am going to test in the morning. Wish me luck!


I have an appointment with a fertility specialist in April. so we will see how that goes. I am preparing myself for IVF/ICSI if that is our best and only option. since I am new to this IVF/ICSI . I would love to hear if anyone is interested in sharing their story and if IVF/ICSI worked for them.

all the best Lydia.
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Wife of a Crohns Patien
Diagnosed: at age 14
Current Medications: Remicade and Reclast for Osteoporosis
supplements: vitamin D,Calcium,Cayenne pepper pill,Ginger Force,
Surgeries: fistulatomy 2010
03-26-2011, 03:05 PM   #63
Lydia
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It was negative. Boo. We are taking a break for a couple months. We dont want a christmas/winter baby. We have waited this long what is a couple months.
03-26-2011, 05:01 PM   #64
xJillx
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Sorry to hear today's test was negative.

I can understand not wanting a Christmas baby. I always felt bad for those born around the holidays, because their birthdays were easily overlooked. However, how cute would it be to have a little girl in December and to name her Noel?!
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Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
03-26-2011, 07:17 PM   #65
Lydia
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I live in an isolated mountain community that does not have a hospital that delivers babies. We are also concerned about winter driving and roads.
03-28-2011, 10:09 AM   #66
xJillx
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Oh, when you said Christmas/winter baby, my mind went in that direction.

That makes complete sense for not wanting a winter baby, especially with the way winters have been going! It is apparently spring, but it still feels very much like winter.
03-28-2011, 10:21 AM   #67
Lydia
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Oh, when you said Christmas/winter baby, my mind went in that direction.

That makes complete sense for not wanting a winter baby, especially with the way winters have been going! It is apparently spring, but it still feels very much like winter.
Its the xmas thing too. lol. Sorry if my tone didnt come through right.
03-28-2011, 02:18 PM   #68
Maryam
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It takes about 72 days for any supplements to take affect, because this is how long it takes for a sperm to develop to maturity. Avoid hot baths if he can help it.
do you get most of your vitamins from this website Lydia? www.iherb.com
i was wondering do they ship to US?

thanks,
03-29-2011, 11:24 AM   #69
Lydia
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do you get most of your vitamins from this website Lydia? www.iherb.com
i was wondering do they ship to US?

thanks,
Yes I do. They have great prices/selection and they are American actually. 4 dollars for shipping under 3 lbs.
04-04-2011, 09:01 AM   #70
Maryam
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Yes I do. They have great prices/selection and they are American actually. 4 dollars for shipping under 3 lbs.

thanks, I have an update and it might even be helpful for men who are on remiciade treatment and are trying to get their wife/ partner pregnant. my husband met with a different GI he is one of the top docs in field of crohns and very much involved with research. he gave my husband a study done on men who are taking remicade and it's effects on sperm motility and shape.

my husband is going to switch to different meds and we will give it three months to see if there is any improvement in sperm productions. if any one is in Boston, Massachusetts it might be worth a try to see this doc. he seems very knowledgeable,
04-04-2011, 05:59 PM   #71
Lydia
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Good luck Maryam.
04-14-2011, 11:07 AM   #72
Lydia
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Well my appointment with the OB/GYN got bumped up to tomorrow from July 19th. I am so thankful I get to see a specialist regarding the issues I have been having. I will update tomorrow.
04-14-2011, 02:44 PM   #73
xJillx
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Excellent news! Good luck, Lydia! Looking forward to tomorrow's update.
04-24-2011, 07:42 PM   #74
Maryam
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any up dates from lydia. hope your appointment with dr went well
04-24-2011, 09:30 PM   #75
Lydia
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any up dates from lydia. hope your appointment with dr went well
It went ok. He didnt seem to concerned and ordered a bunch of blood work. I am just waiting for the results. I was a little concerned, because he basically said there was not much that could be done, and deep down he thinks there is nothing wrong with me. I dont know how well that sits with me.
04-28-2011, 08:34 AM   #76
Maryam
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It went ok. He didnt seem to concerned and ordered a bunch of blood work. I am just waiting for the results. I was a little concerned, because he basically said there was not much that could be done, and deep down he thinks there is nothing wrong with me. I dont know how well that sits with me.
is he a fertility specialist? hopefully there may not be anything wrong with you.

goo luck with everything.
04-28-2011, 09:07 AM   #77
Lydia
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is he a fertility specialist? hopefully there may not be anything wrong with you.

goo luck with everything.
He is an OB/GYN, that about as fertility specialist as it gets around here.
04-28-2011, 09:49 AM   #78
Maryam
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He is an OB/GYN, that about as fertility specialist as it gets around here.

might be good if you see someone who specialist in fertility issues.
05-14-2011, 10:35 PM   #79
Jazzy182
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Hello, I hope you don't mind me popping in
Lydia I am sorry for your losses, I really hope you will find some answers and get a BFP soon!
I am also TTC, we have a DS who is almost 2 and have been trying to fall pregnant since Aug 2010 with no luck. I had conceived DS on our first cycle and had a reasonably good pregnancy, had a couple of minor flares which were treated with cortisone enemas. However after the birth I flared badly and so was put on prednisolone and stopped breastfeeding. A few weeks later I also developed a DVT in my leg then my lungs (which apparently could have been related to my UC flare) so I was then on warfarin for 6 months.
We have just started seeing a fertility specialist who said that my previous blood clot could be a reason why we havent fallen pregnant yet, we have been doing various tests which I haven't got the results back yet.
I hope we can find some answers, it's so heartbreaking it doesn't happen month after month.
Good luck to all!
07-03-2011, 05:39 PM   #80
Lydia
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I just had my 5th loss today. This is the suck.
07-05-2011, 08:11 PM   #81
xJillx
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Oh, Lydia, I am so sorry to read this.

I read in the Diet & Fitness forum you are trying a gluten free diet to see if this has any effect. I sure hope this helps. Please continue to keep us posted. Thinking of you.
07-08-2011, 10:37 AM   #82
Maryam
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I just had my 5th loss today. This is the suck.
I am so sorry for your loss Lydia, when I was looking ino doing IVF/ICSI, I came across fertility treatments for women with miscarriages. might be good if you see a fertility specialist and see what they recommend for you.
07-11-2011, 12:41 PM   #83
Nataliekim
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Oh Lydia,
I am so sorry. (((HUGS))) MC SUCK! mine was horrible. I'm not sure what the worse part was...the pain, no one talking about it its like a secret club, no one *warning* me what it'd be like(other than being told it would be like a period...big fat lie!), or of course the insurmountable pain of the death of my dreams.
Now here you are dealing with #5. How are you handling it? Do you have someone to talk to when you need/want to talk?? Oodles of hugs for you.
Nat
07-11-2011, 02:16 PM   #84
lookame
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I'm not ttc just yet, we're discussing it and we may be trying soon. My IUD has like 5 yrs left but I might get it taken out sooner since I'm having some trouble wih it. Anyway I'm on 6mp (50 mg) is it ok to get pregnant while on 6mp or would it hurt the baby? I know lialda alone won't keep me in remission...just curious
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Diagnosis: Confused officially diagnosed in 2010

Bloodwork is indeterminate IBD, biopsies are crohns positive, symptoms and visually it's UC

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eosinophilic esophagitis 5/2015
07-17-2011, 01:38 PM   #85
Lydia
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I'm not ttc just yet, we're discussing it and we may be trying soon. My IUD has like 5 yrs left but I might get it taken out sooner since I'm having some trouble wih it. Anyway I'm on 6mp (50 mg) is it ok to get pregnant while on 6mp or would it hurt the baby? I know lialda alone won't keep me in remission...just curious
Lots of crohnies take 6mp or immuran while pregnant. Its a class D drug when taken at doses a donor patient would take. Crohnies take a much much lower dose to control their disease, and at this dose it is considered low risk.
07-17-2011, 11:59 PM   #86
crohny66
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Hello Ladies. I have had crohn's since I was 14 (I'm 35 now). When my husband and I decided to try for a baby we had troubles. Everytime I tried to go off the pill I would end up in agony and in the ER and sex was extremely painful. Not as romantic as I thought it would be! The doctors thought I may also have endometriosis in addition to the Crohns but they did not want to go in as I had too many operations already and they were concerned because of all the adhesions and of rupturing the bowel.

To cut a long story short we ended up going through IVF in the UK. We were lucky enough to be successful on the first attempt and I am pleased to say we had twins, a boy and a girl. Due to 3 resections prior to pregnancy I did have the complication that the babies pushed on my intestine and blocked it at the resection join. The last 2 months of my pregnancy I was on a liquid diet. Small price to pay for my beautiful children. I went off Mesasal to fall pregnant and I did not flare up during or after my pregnancy.

I didn't need to go back on the pill after the babies were born. The doctors seem to think a lot of the pain may have been adhesions and the pregnancy stretched theses. I was painfree for a few years and then gradually the pain returned, each month getting a little worse.

Although we are content with our 2 children (who are now 6) we always thought if we had another child we would welcome him or her with love and have not take any precautions. Each month i am a little disappointed. I thought something would have happened by now.

In terms of looking after children while dealing with crohns disease it isn't easy at times but you do what you have to. When the kids were young they would bring there little chairs into the bathroom for me to read to them. They thought that was normal! Even today they would have a conversation with me because they know it could be awhile before I come out!

I wish you all luck that you can fall pregnant soon.
07-18-2011, 10:53 AM   #87
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I'm going to join in here too if you'll have me! I'm not officially TTC yet, but at the same time, not trying to avoid anything I'm relatively young (24), but I've had Crohn's since I was 11 and we have no idea what the meds may have done to my girly bits along with scarring etc, plus my partner has had cancer and chemo so we don't know exactly what's going on there either. Don't want to leave it too long, just in case we run into trouble.

I thought we'd hit the not avoiding jackpot in June after realising I was 2 weeks late. Was ok for about a week after, was just started to feel a bit queasy but otherwise good, when I started spotting and cramping then bleeding the next day. Luckily it wasn't too painful, but the bleeding was horrendous.

Crohny66 - your story has given me hope that it can happen, fingers crossed all of us here have the same outcome! I would love love twins, my partner's cousin has twins and they are the most gorgeous children on the planet - I helped look after them when they were tiny (and still do), and the hard times are certainly outweighed by the cute times!
07-18-2011, 01:26 PM   #88
Ms.TG
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My love and I have just decided to try for babies, I very nervous that I will have problems conceiving. I've had crohns for 10 years and about to start Remicade. Here's hoping to all us ladies we get our babies!
07-18-2011, 03:19 PM   #89
Lydia
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Join Date: Mar 2010
Oh Lydia,
I am so sorry. (((HUGS))) MC SUCK! mine was horrible. I'm not sure what the worse part was...the pain, no one talking about it its like a secret club, no one *warning* me what it'd be like(other than being told it would be like a period...big fat lie!), or of course the insurmountable pain of the death of my dreams.
Now here you are dealing with #5. How are you handling it? Do you have someone to talk to when you need/want to talk?? Oodles of hugs for you.
Nat
Physically they were all similar. Lots of cramping and heavier bleeding. Emotionally it gets worse and worse. I sobbed in the tub like a baby, full body sobs, while my husband took a wet cloth to my back. The poor guy didnt know what to say as I dont think he has ever seen me so sad and heartbroken. Then I got really drunk and went to bed. (Bad idea when you are bleeding, i know) I will still well up with tears if I think about it, and how I may never carry a pregnancy ever again. Now I dont know what to do. I have thought of going on birth control for a mental health break.
11-15-2011, 01:33 PM   #90
Jane
 
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I've been trying to conceive for over 6 months and haven't had any luck. This weekend I got a fortune in a fortune cookie that said something along the lines "you will soon receive long awaited good news." I actually hoped I was pregnant and that the fortune was correct! I am usually the least superstitious person, but I really wanted it to be true... No luck. Got my period.

I'm 39 years old, my Crohn's was diagnosed 2 years ago, it seems to be under control, but I wonder if I went gluten free or somehow was able to gain weight if I might get pregnant.

I do have two healthy children who were conceived prior to my having any crohn's symptoms. I am starting to think I should just quit trying.

Anyone else still trying to conceive?

Lydia - how are you doing? I just read this thread and am sorry to read about your losses and struggles.
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