Share Facebook
Crohn's Disease Forum » Your Story » Success Stories » Update on the Holistic Route


 
02-06-2011, 01:09 PM   #31
ameslouise
Moderator
 
ameslouise's Avatar
 
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
I concur that most people would rather take a pill and live the unhealthy way they did before than do the work to change their lifestyle. I ended up going on the meds after a year of vegan eating and tens of thousands of dollars of "alternative therapies" did not improve my condition even one iota. But I had to try it.

Even though I am eating animal products again, I still try to be really good about not eating processed food and just generally eating healthy. No one ever died from a healthy diet, right?

So you are still eating dairy or are you using "fake" feta??

Go Steelers! - Amy
02-06-2011, 02:00 PM   #32
Astra
Moderator
 
Astra's Avatar
 
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hiya Shannon

I've just read all this with interest, and what a lovely articulate girl you are!
I've adjusted my diet somewhat, but I can't eat vegetables, it also worries me a lot about refined flour as I'm on a low residue diet, and white bread is my safe food. But I don't eat red meat now, only chicken and turkey or fish.
I've tried juicing and smoothies and ended up really sick, gassy and bloated, so low res is the only option for me, that and my Pentasa.
So happy this is working for you, and hope it does for many years to come!
Take care
xxxx
__________________


Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

02-06-2011, 09:02 PM   #33
Miss Spencer
Senior Member
 
Join Date: Sep 2010
Yeah, my doc even told me to drink 8 glasses of MILK a day. For Crohn's?
The specialist who first diagnosed me is one of the top UC doctors in the country.

He told me that diet had absolutely NOTHING to do with UC, and changing my diet would have absolutely NO effect on UC. And supplements were a waste of money.

Although he did say: in the early stages when I was seriously inflamed that I should stick to simple foods like meat, bread and dairy!!! And then once I felt better, I could eat what I liked.

Since discovered that meat, bread and dairy are the very worse things I could eat. They give me pain, blood, mucous and a million trips to the loo.

He also said I would have to take drugs every day for the rest of my life. I have not taken a UC drug for almost 7 years, and donít plan to ever again. I am going to stick with vegan, smoothies, juices and supplements. I feel fantastic today, not felt this good for a long time.
02-06-2011, 11:36 PM   #34
Shannon
Senior Member
 
Shannon's Avatar
 
Join Date: Sep 2010
Location: Pittsburgh, Pennsylvania
I used real feta and just had my boyfriend taste test for me - I didn't have any. It went over well! Too bad the Steelers lost, but such a good game. It's funny, everytime I'm with family, all I hear is "You look so good! Your face looks normal again. What a lovely figure. You look so much better. Do you eat yet?" Haha. I'm sorry that a lot of the alternatives did not work for you - but I feel the same, had to try it. Felt it was a responsibility.

Astra, thank you! I wonder why juicing and smoothies are difficult for you. Veggies worry me unless in a smoothie. Really miss the days when a girl could eat a salad without gambling everything. XD

Miss Spencer, meat bread and dairy I've found to be the worst as well. What holistic doctors told me, my body confirmed. Great to hear you feel fantastic! When I have days like that, my body is like a horse at the gates - I always feel like bicycling for hours, no matter the weather. All the idleness this disease imposes just builds up! AND it's amazing you haven't taken any medication in so long. What a proud achievement! That is seven years of self discipline! Gives me hope...
__________________
- Diagnosed September 2010 at age 17
- Past treatment with the top drugs, enough of that!
- Achieved remission with 100% liquid diet of Ensure, organic smoothies and specific diet (see link below).
- Read my story on Holistic Treatment here: http://www.crohnsforum.com/showthread.php?t=15655
- Currently training in figure skating to reconnect with my body! Read more at Crohnie On Ice
02-07-2011, 01:24 AM   #35
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Astra, thank you! I wonder why juicing and smoothies are difficult for you. Veggies worry me unless in a smoothie.
I hope you don't mind if I chip in but Roo can't juice either, goes through like nothing on earth! Yet she has no trouble with raw or cooked vegetables and fruits.

Dusty.
__________________
Mum of 2 kids with Crohn's.
02-08-2011, 02:26 AM   #36
krbsmom
Member
 
Join Date: Feb 2011
I'm so glad I found this...I would like to do this too, control it with diet and supplements without meds. Im on a Gluten free diet at the moment my next step is to give you red meat, Im doing well with that at the moment i have it about once every two wks. Im not sure if i can go totally vegan though. I think Im too used to having some kind of meat...chicken is my thing right now, having it twice a day, roasted chicken with no seasonings at all.
Im doing smoothies also but I am doing Bolthouse farms that you buy premade organic and V-8 for veggies.
Im not sure Ive seen on here what supplements you're taking, Have you tried slippery elm or cats claw?
02-10-2011, 08:42 AM   #37
endibd
Banned
 
Join Date: Feb 2011
Yes, it is true that this is an immune disease.
Don't believe that for a minute. Keep doing what you're doing, and good for you!

No medical professional can cure what they call Crohn's (which is just a collection of symptoms) because no medical professional knows what causes it. Best any medical professional can do is alleviate some symptoms, like buffing rust off a car, cutting off a rusty part, or in most cases just painting over it.

Keep in mind all the people who told you, before you fixed yourself with diet, that diet makes no difference - including the same medical professionals who tell you it's an immune disease.

The mind is just as powerful as the body, maybe more so. Use it in your favour.

I've been medication free for several years now, it is possible.

Last edited by endibd; 02-10-2011 at 08:49 AM.
02-10-2011, 09:08 AM   #38
STLGirl
Senior Member
 
Join Date: Nov 2010
Location: Saint Louis, Missouri
Shannon, I didn't see where your Crohn's is located? For me food of any kind doesn't effect my Crohn's. I guess because it's in my Sigmoid area. My Doctors say I have NO food restrictions. So for a person like me, I wonder what I can do to stay off meds to keep my Crohn's in remission. I found out 3 months ago I had Crohn's and it seems to me that inflammation is my only problem. I already take Krill oil and turmeric for inflammation. Any other ideas for me?
__________________
~Sara

Diagnosed with CD: November 1, 2010
Been on:

Flagyl
Prednisone
Imuran - Allergic
Currently on:
Remicade (Started 4-4-11)
Vitamin D3
B Complex w/ Vitamin C
Calcium
Omega3 and Krill Oil


"A merry heart does good like medicine" Proverbs 17:22
02-10-2011, 09:29 AM   #39
Domsmom
Senior Member
 
Domsmom's Avatar
 
Join Date: Oct 2010
Location: Ontario

My Support Groups:
Hi Shannon,

Great to hear that you are doing so well! It keeps me motivated to continue with trying alternative treatments...maybe if we keep this up, crohn's patients will be the healthiest lot out there . I need to laugh at one of your comments (not in a derogatory way), but brown rice wraps! Really!? I can hardly chock them down...too dry! I've been allowed spelt bread by my NPM. Also, I do have chicken and fish.

@STLgirl. I think that even if you have no food restrictions, a different diet could do wonders. You'd be amazed at what the food you're eating might be doing to you.
__________________
Bowel Resection May 2014

Current meds: None

Past meds:
Asacol
Pentasa
Prednisone
Imuran
Cipro
Flagyl
02-10-2011, 05:43 PM   #40
endibd
Banned
 
Join Date: Feb 2011
Shannon, I didn't see where your Crohn's is located? For me food of any kind doesn't effect my Crohn's. I guess because it's in my Sigmoid area. My Doctors say I have NO food restrictions. So for a person like me, I wonder what I can do to stay off meds to keep my Crohn's in remission. I found out 3 months ago I had Crohn's and it seems to me that inflammation is my only problem. I already take Krill oil and turmeric for inflammation. Any other ideas for me?
Fresh made vegetable juices, not canned, boxed, or pasteurized. Carrot juice.

Even better equal parts carrot, parsley, celery, spinach. About 1L in total, daily if you are feeling well. More is better though.
02-10-2011, 07:40 PM   #41
STLGirl
Senior Member
 
Join Date: Nov 2010
Location: Saint Louis, Missouri
Endibd.......Are you saying fresh vegi juice is good for inflammation?
02-10-2011, 11:03 PM   #42
endibd
Banned
 
Join Date: Feb 2011
Endibd.......Are you saying fresh vegi juice is good for inflammation?
It works wonders. Not just for inflammation, that's buffing the rust off. It helps address one of the core issue essential to healing, which is to provide your body with both proper and adequate nutrition to allow your body to heal itself.

5-10 servings of vegetables? You can drink that with breakfast. And again with lunch. And again with dinner.

You can push all that nutrition through your body in an easy to digest manner in copious quantities with fresh vegetable juices.

Look at it this way - when you eat foods that are not proper, natural foods, whether heated, stale, insufficient quantities or missing altogether, your body does what it can with what you give it. It repairs and builds your body's cells with what it has. If it doesn't have what it really needs to work with, it will make do, but it will build a body that isn't what it should be, and is susceptible or disposed to all these ailments.

You can reverse that process and as your cells get replaced, and allow your body to build itself properly if you give it all the tools to do so. Providing those nutrients is key.

Juicing is a great way to do that, especially if you have absorption issues. It won't just stop inflammation, it will help to hit at the root of the issues that are causing it.

Now, depending where you are now, disease wise, with digestive issues it's tricky. It's like chicken and the egg. You can't eat, you can't absorb food - yet you need to eat and absorb food for your body to heal. Tough spot to be in, and that's why I think juicing is amazing.
02-10-2011, 11:16 PM   #43
Lydia
Senior Member
 
Join Date: Mar 2010
I wish I could say the vegan thing cured me, but it didnt. I did it for 9 months total. I did have some improvement for a few months and then slipped into a severe flare. I also slipped into severe denial, because I didnt want to admit to myself it wasnt working anymore and almost needed emergency surgery again. I wish I would have went back to my doctor sooner.

I will say that in my experience, a whole foods diet, supplements, exercise, avoiding toxins, and my medications have all played a role in going into remission. Even the long remission I had was triggered by immuran. I only took it for 1 year and I remained in remission for 3 more years med free after that. For me it was finding that delicate balance between natural and medical.

Doctors will always say there are no food restrictions because they have no clue about a diet connection to the disease. Also what is bad for one crohnie is good for another. People have all cut things like wheat, dairy, meat, soy, refined carbs/sugars, etc with varying degrees of success. Its all about finding what works for you. I know that wheat and non fermented dairy give me terrible bloating when flaring and probably have something to do with my illness.

Last edited by Lydia; 02-10-2011 at 11:20 PM.
02-10-2011, 11:19 PM   #44
Fog Ducker
Senior Member
 
Fog Ducker's Avatar
 
Join Date: Nov 2009
Location: London, Ontario
I just read this whole thread. I remember when I was first diagnosed, my GI told me "your gonna read all kinds of info on the Internet about food affecting it but it really doesn't at all" After I thought about that and was like, how can it not?? The problem is in my intestines and thats where whatever I put in my mouth has to go, so it seems pretty logical to me!!! He has also told me probiotics and other sups don't work and are a waste of money!!! He is supposed to be one of the leading and best GI docs around!!

Also kale chips are awesome!! I have a great recipie that you put honey, rice vinegar, and salt on them. Mmmmm so good!!

I'd love to be off the meds one day! I think once my remecade stops working, I'm gonna try to control it with just diet. I already try to stick to a paleo diet (caveman diet) and it works pretty good.

One other thing, have any of you gone for a food sensitivity test?? A friend with crohns went for one and now follows it very strictly, she says it was the best thing ever, she is down to one solid bm a day!!!!!!

Sorry for the novel guys!!
__________________
- Brian

Dx UC: 2006. Dx CD: 2008
Current Meds: Remecade 800mg evry 6 weeks, Methatrexate 7.5mg once a week oraly, Asacol 800mg 3 times a day.
02-12-2011, 08:23 PM   #45
AbdoAlien
 
Join Date: Jan 2011
Location: NB,Canada
Good for you Shannon! Good to hear you taking your health in your hands...I am hopefully going to get to that! I am doing a gluten free, sugar free and lactose free diet...I am still on Imuran, but hopefully getting off it soon. I am taking supplements and probiotics as well as psyillium...things are getting better and I am planning on stopping the imuran shortly...I hope my anxiety will not get the best of me...I tend to get a little anxious now if I change things up when things are going well...worried of a flare, but then again I am sure you know all about that......Good luck to you!!!
02-18-2011, 02:46 PM   #46
Shannon
Senior Member
 
Shannon's Avatar
 
Join Date: Sep 2010
Location: Pittsburgh, Pennsylvania
Well thank you all for your encouragement and interest! Sorry I haven't been responding, I've been in the hospital all week - but not for myself, for family. Had to be careful that stress didn't flare me up. Luckily, I'm flare free, but with strep throat instead. Ahh...

SO. The supplements I'm on. I actually take bovine colustrum, which if you do a bit of searching online, you'll see its highly recommended for us folk. I will list my other supplements soon, forgetting the names now...

My Crohn's is located from top to bottom, unfortunately. The disease has been concentrated in my lower colon, but I have 'crohnic inflammation' just about everywhere else. So I was suprised to hear that the location of the disease would affect the success of diet. What I would say to that, is perhaps you won't see the same results as me (?) with sigmoid focused Crohn's, but there is no denying the benefits of eating healthy. This is afterall a digestive disease, but if you're convinced it's not helping, even on meds this diet will add to your health.

I was also suprised to hear that juices and smoothies take their toll on some of you - the worst part of this disease is that everyone has such different limitations!

I have never done a food sensitivity test - what does it entail? Sounds like a good decision, takes the guess work out.

I agree 100% that fresh veggie juice is wonders for inflammation. Vegetables have healing enzymes, and juicing them ensures proper absorbtion, and less chance of irritation. I quite like vegetable broth, too.

I as always encourage those of you who are contemplating this decision - in a little over a month I have gained energy, motivation, and lost the depression that hindered me from my goals. I recently got accepted into college for English Writing and I'm looking forward to making health a priority, and by that I mean - not just taking meds!

In the spirit of proactivity, I've also been exercising for an hour a few times per week. Effect on disease to come!

Shan
02-18-2011, 03:45 PM   #47
ameslouise
Moderator
 
ameslouise's Avatar
 
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Shannon - You are an amazing bundle of positive energy! Keep it up, and keep feeling good!

- Amy
02-20-2011, 10:41 PM   #48
Ekaj
Member
 
Ekaj's Avatar
 
Join Date: Feb 2011
Location: British Columbia
A liquid diet can do wonders.

I have had really good results with plain old fibre as well. Specifically psyllium - for binding things up and healing a raw... exit.
__________________
- Crohn's 1991
- P.S.C. 2002

- Trying two anti-inflammatory plants:
1) Boswellia Serrata
2) Andrographis
02-22-2011, 08:01 AM   #49
Fog Ducker
Senior Member
 
Fog Ducker's Avatar
 
Join Date: Nov 2009
Location: London, Ontario
That's awesome Shan! So glad you are feeling so well!
The food sensitivity test is really easy, doc finger pricks you to take a sample of blood just like for a diabetic and then sends it off! The only thing is I had one done when I was really sick and not really eating anything, and mine came back not showing anything!! Doc said it was the lowest one he had seen! He said it was because I hadn't been eating, so we should try again when I return to my normal diet. I guess it can only pick up on things that you have been eating recently to have them in your body to react with.
02-22-2011, 08:12 AM   #50
Domsmom
Senior Member
 
Domsmom's Avatar
 
Join Date: Oct 2010
Location: Ontario

My Support Groups:
My NPM does a food sensitivity test that doesn't require a blood test. This is the description from her website: Non-invasive sensitivity screening through Biomeridian Stress Analysis.Cookie No scratch testing or injections.Cookie
02-22-2011, 08:35 AM   #51
Fog Ducker
Senior Member
 
Fog Ducker's Avatar
 
Join Date: Nov 2009
Location: London, Ontario
Does it say how they do the test then? That's kinda cool if they can do it without a finger prick.
02-22-2011, 08:46 AM   #52
Domsmom
Senior Member
 
Domsmom's Avatar
 
Join Date: Oct 2010
Location: Ontario

My Support Groups:
I know it probably sounds kind of weird, but the biomeridian uses electrical currents. She's in brantford...so I'm sure there's someone in London who does it.
02-22-2011, 08:48 AM   #53
mizgarnet
Senior Member
 
Join Date: Dec 2010
Location: spartanburg, South Carolina
Want to know a funny... In 2007 I was admitted to ICU with anemia. Long story short, I have been anemic my whole life (the docs said you are okay just borderline) and it finally caught up with me. My docs stood in my room and said "Your diet is doing this to you." My diet was organic, whole foods, with limited starches and grains. They also told me to drink Coke. I supposedly drink too much water. I drink 64 to 72 ozs a day. These 2 guys are wonderful doctors but they just could not stand my healthy diet. My Crohn's was/is non existent just some inflammation. They told me to go and eat hot dogs. They are pro-probiotic and oils. They just don't understand that I am happy with my food and I am healthy with my food. I have trouble with raw veggies so I am jumping on the juicing wagon.

Natural is not a quick fix and it takes tweaking but it so worth it.

Shannon, you are an inspiration and a treasure. Enjoy the journey.

Hugs,
Wendy
02-22-2011, 11:23 AM   #54
Shannon
Senior Member
 
Shannon's Avatar
 
Join Date: Sep 2010
Location: Pittsburgh, Pennsylvania
Wow Wendy, I am dumbfounded.
So there's another testament of how some of our capable and intelligent doctors are often only capable and intelligent concerning drugs, chemicals, invasive procedures...
And that's a shame! My doctor also suggested I drink a lot of soda, especially while on my liquid diet. I was told to have jello, popsicles, jolly ranchers, and soda. (Can you smell the preservatives and coloring?) Well it happens that I got thrush from an overload of sugar, and to the extent that I could barely talk in a whisper. My holistic doctor just laughed at me. She's always cleaning up some medical doctor's mess of a patient when it comes to diet.
Thanks for the kind words, what a journey it has already been!
Good point as well, this is certainly not a quick fix, and to those of you who want to try it - take all of the direction you can but stay patient!
The biggest devastation for me upon diagnosis, was hearing "there is nothing you can do, not even diet" - which took the responsibility out of my hands. In essence I was told, some days you will be sick, others barely, but you have no control. This holistic living has given me back the responsibility to my health. If I screw up and get sick, it's because I brought it on myself. If I feel great, it's because I had self control. It is a great gift to have a say in your health. Especially with a disease that many feel doesn't respond to anything but medicine.

Let's prove them wrong!
02-25-2011, 06:44 PM   #55
SignorSteve
New Member
 
Join Date: Feb 2011
Location: Edinburgh, United Kingdom
Hi Shannon,
What an inspiring post this. Not only by what you have said, but by others too.

Im currently passing blood when I go to the toilet and I think I read in some other post that you had previously passed blood too?

Im just wondering, how did you start the healing process in stopping the blood? What kinds of things did you eat/not eat?

Any kind of advice would be much appreciated.

Thanks
Steve
02-26-2011, 12:02 AM   #56
Shannon
Senior Member
 
Shannon's Avatar
 
Join Date: Sep 2010
Location: Pittsburgh, Pennsylvania
Hi Steve,

Yes actually for me the blood was the culminating point of my year long flare, really the worst peak. I didn't experience it for long as an exploratory colonoscopy was immediately scheduled as an emergency, and I was admitted for a few days before my Crohn's diagnosis. I was started on 50mg of Prednisone a day, and 3000mg of Pentasa. I immediately saw improvement from the blood and truly all of my symptoms. That being said, I continued to eat my normal diet, which had consisted of fast food, red meat, dairy - high sugar, bad fats, loads of salt, every acidic food; what I look back on as a nightmare!
Needless to say, even with medicinal treatment, my diet began to further the flare, causing my treatment to progress to the 6mp oral chemotherapy. In December, while I suffered my same symptoms, I began experiencing the fatigue I talked about earlier, which led to depression - and finally sought a holistic route.

Though I cannot speak on how to treat very concerning and serious symptoms holistically, such as blood in stool, I can say that I moved from pain, bloating, diarrhea, constipation, and the Crohn's whathaveyou's - by starting the liquid diet, 6 weeks of Ensure shakes and clear liquids. This allowed me to give my bowels rest and really induced remission because there was no digestion taking place to irritate.

So, having said that, I wouldn't recommend, just out of common sense, that anyone move from severe symptoms (I considered my pain so) straight to a vegan solid diet, or even vegan smoothies. It seems logical to me that an inflamed system must be given rest to naturally heal, and from personal experience, the results were immediate. I feel that perhaps even natural, whole foods would cause irritation in bowels in such a state.

So if you are considering the six week diet, have the greatest faith in it! It is tough but eventually you lose your romance with food. Your tastebuds also adjust to the lack of salt and chemicals that the world pollutes our food with, and when you began a solid diet of organic vegan foods - they taste better than expected because of this adjustment. When can you start eating solids? 6 weeks is recommended but I felt strong and healthy at week 5, and began the smoothie process.

So basically, the liquid diet was the first step to healing for me. I believe it would resolve the issues you're having, perhaps at a slower rate than my issues were resolved, but nonetheless. However, if you are losing a fair amount of blood, you might be anemic. That particular symptom has to be watched carefully, because it can mean all sorts of things in this disease. Perhaps you have an active bleed, say, and in that case medical attention is critical.

I hope this in some way helped - I can only share my healing process, and my very firm belief that, even though the method and timing differs from person to person, healing is absolutely available!

Shannon
02-26-2011, 04:43 AM   #57
SignorSteve
New Member
 
Join Date: Feb 2011
Location: Edinburgh, United Kingdom
Hi,
Thanks for getting back to me.

You said you spent 6 weeks on the Ensure drinks and clear liquids...Im currently taking something called Elemental 028 (215 calories per carton) which is similar. Ensure is available over here in the UK but is apparently really rather expensive.
Do you think cutting all food out for a while would be a good idea?
I recently bought a juicer too. Do you think I could have juices (veg or fruit) while being on the liquid diet or would my gut still get irritated by these rather than heal from them?

I get my blood taking on a monthly basis just now as Im on Aziathoprine and they are coming back normal so I dont think im anemic.

Thanks again,
Steve.
02-26-2011, 11:11 PM   #58
Shannon
Senior Member
 
Shannon's Avatar
 
Join Date: Sep 2010
Location: Pittsburgh, Pennsylvania
Great! Yes, I've heard of Elemental - Ensure was very expensive but I couldn't stand the taste of some other shakes out there.
Because you are seeing blood, maybe cutting out foods would be a very good idea for now. See how you feel after two, three weeks? Just make sure you are consuming enough calories via Elemental to maintain your weight.
And if you feel a great improvement, move to yummy juices with good fruits and veggies - the enzymes will add on to your healing.
But yes, I would personally try the simplest diet first (liquid), and then gradually, by listening to your body, add on juices, then smoothies, and hopefully solid food!

Wish you success!
Shan
02-27-2011, 10:02 AM   #59
SignorSteve
New Member
 
Join Date: Feb 2011
Location: Edinburgh, United Kingdom
Ok, thanks Shannon.
I'll give that a go then and see how I get on.
Thanks again for all the advice.

Steve
02-28-2011, 10:53 AM   #60
Jane
 
Join Date: Aug 2010
Location: Philadelphia, Pennsylvania

My Support Groups:
I'm curious what was your liquid diet regimen? Did you drink Ensure or Ensure plus that is available over the counter in pharmacies or did you get a prescription for a liquid drink? What clear liquids did you consume at the same time? water? tea? broth?


Thank you for sharing your post.
Reply

Crohn's Disease Forum » Your Story » Success Stories » Update on the Holistic Route
Thread Tools


All times are GMT -5. The time now is 05:23 AM.
Copyright 2006-2017 Crohnsforum.com