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02-14-2011, 12:03 AM   #1
Elise
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sore mouth

Hi,
I have been experiencing an incredibly sore mouth over the last few days and was wondering whether anyone experiences symptoms like this. There is red spots and irritation on the roof of my mouth, as well as a gross taste. Itís getting to the stage where I can't eat because it hurts too much.
02-14-2011, 05:59 AM   #2
littlemissh
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Are you on entocort/pred or immunosuppressives. If so you could have oral thrush. You can buy some gel from a pharmacy for that. Also iron, b12 and folate deficiency can cause a sore red tongue ..though wouldn't cause you to have spots on the roof of your mouth.
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Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
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Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
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02-14-2011, 10:30 AM   #3
girlygirl
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if you get mouth ulcers on the inside of your cheek, roof, tongue.. anywhere in there it could be a side effect of your crohn's and can be painful. One thing that works for that is triaminiclone dental paste. it is by prescription only.. however works great.
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02-14-2011, 07:21 PM   #4
Elise
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Thanks for your replies. Iím not on any medication, Iím still undiagnosed. I made a doctors appointment for tomorrow because it's getting worse so hopefully they will figure something out and hopefully prescribe something like the triaminiclone dental paste you suggested girlygirl.
02-14-2011, 08:57 PM   #5
David in Seattle
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Thanks for your replies. Iím not on any medication, Iím still undiagnosed. I made a doctors appointment for tomorrow because it's getting worse so hopefully they will figure something out and hopefully prescribe something like the triaminiclone dental paste you suggested girlygirl.
Elise - I think this is the product Girly Girl is referring to http://dailymed.nlm.nih.gov/dailymed...o.cfm?id=24239

It's basically a topical corticosteroid made especially for oral use.

Aphthous ulcers are pretty common in Crohn's, but can also appear for a variety of other reasons, like herpes simplex infection. These though tend to be white in color, rather than red, but of course, "your mileage may vary", as they say. Here's a good Wikipedia article on them: http://en.wikipedia.org/wiki/Aphthous_ulcer

Last edited by David in Seattle; 02-14-2011 at 09:16 PM.
02-15-2011, 08:41 AM   #6
girlygirl
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Hi guys,

David - it is the rx i was referring to. Thank you for the link!! The recurrent apthous ulcers, the RAS - i think are distinguised from other diseases. And in CD tend to show up when you are flaring, or about to go into a flare. I get them on my tongue when i start to feel bad. And i take Prilosec 40mg/day to control acid in my stomach.. and for stomach ulcers. I'm not sure if there is a connection from stomach ulcers and those, but they can be very painful! It was a good while before i received my Crohn's diagnosis, and my General Practitioner only prescribed lidocane mouth rinse for them before, so i could eat. And apparently some Dr's just aren't aware of the connection with IBD and the apthous ulcers, and the triaminiclone paste that actually helps get rid of them.

Anywho.. wanted to say hi, and thanks!
~Mon~
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