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02-16-2011, 10:08 PM   #1
MysteryLocket
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Long time no see..

Sorry it's been a long time since i've been here. I've been off of my adhd meds and out and about trying to find somewhere to live, so my focus sucks..
But today i went to my new gi doc, and he prescribed me Imuran...
I'm also currently on Pentasa and Integra Plus, and hydrocotosone cream..
I took the Imuran about 10 minutes ago. I'm scared. For it says something about tumors and cysts, and i already have them all over my body...
I'm taking 2 - 50mg tabs daily of Imuran.
and I'm currently anemic (before i started this med, that's why i'm on integra plus, and i'm still a point on the low side).

I'm just so scared right now..
I am not in the best living situation as i have no say and am pretty much homeless without being on the streets right now. (a friend let me come in on his couch. but his little girl goes all the time to school and gets live vacienes all the time, and even if i were brave enough to ask them to hold off on her coming over here, my wishes would be a grain of salt (and i dont blame them) ...
But what exactly should I expect? I mean i hear from one person i should be a sterile room, but at the same time i can't. and I hear from others that i may end up in the emergency room - and i cant do that due to i have to take care of my very needy pets who have seperation anxiety.
What is everyones experience with this med when they first started on it?
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Meds Currently Taking:

Crohn's Related Meds=
Proctozone-HC 2.5% - After every BM, PRN

On Hold=
Klor-Con M10 ER Tablets - 1 x 12hrs
Promethazine - 1 x 4hrs PRN (25mg)
Integra Plus - 1 x daily (125mg)
02-17-2011, 01:31 AM   #2
littlemissh
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Hello mystery,
If you take a look at the various imuran threads you'll see everyones experience is different.

A few points though - you don't need to be in a sterile room or avoid children. Younger children do get immunisations but not THAT often ( in the uk 3 imms when tiny babies, 1 at 1 year and another just before school, one more as teenager) and only a few are live vaccines and even those do not make them infectious. The exception is some areas still use a live polio vaccine that is excreted by the child for a short period but a lot of places have moved away from using this- again though only given as mentioned above.
You should avoid personally having live vaccines whilst on imuran and avoid people with chicken pox though if you have had it before or the chicken pox jab your risks are significantly less.

Try not to worry so much and take one day at a time, distract yourself from worrying about taking it..if you think too much about it you'll probably end up with every side effect going. Take it with food, some take it with food before bed just if they feel nauseated with it. I haven't so take in the morning.
Just remember its been used for years and made many people better and stay better. If it was such a dreadful drug it would hav been wihdrawn as there would be no point using it! Just be aware of the things to look out for as to when to seek help such as rash, fever over 38c etc..they are on the drug info leaflet that comes with the tabs.
Good luck and hopefully you will find a place to live soon.
__________________
Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
02-17-2011, 11:15 AM   #3
MysteryLocket
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Thanks so much!
Sorry to ask this but what does 38 equal in F? my temp is all over the place since i have started this. lastnight i started feeling burning hot so i took my temp and it wasn't even a fever at 98.8F, but then I got to sweating and feeling even hotter with fan on me, and (this was less than an hour later) it was 99.7F . then this morning I felt fine-cold but fine- and the fan was off and i was under the covers, and it is 97.1F now. (honestly i've never jumped so much with temps before.. I do jump when i have a crohn's flare in the massive side. but usually hasn't happened for awhile.) Can it do something like what is going on?

I also have this cough thats bugging me that now i have sneezing attacks between the coughing attacks. I called my doc today to ask about this, but his office said he wasn't in today, so i have to wait until he comes in.. most likely tomorrow.

Thanks again!

ps. lol, is non stop gas normal? or is it just a weird coincidence that it started the morning after i started this med? lol

pss. But the good news is, the only pain i have right now is from all the gas.. the rest that was there from the uclers and inflamations is gone.
02-17-2011, 12:29 PM   #4
katiesue1506
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Being on Imuran just means you need to be more cautious of illnesses and stuff. Wash your hands after dirty things like we are told to, try not to touch your face, and avoid contact with sicklings. Its just the basic stuff that keeps everyone else healthy. I've been on Imuran for a year and a half this time around and I work as a bank teller around money. All I do is make sure I'm washing my hands or sanitizing them throughout the day and before I eat. I also try not to touch my face. I've not had anything bad happen to me yet.

I asked my doc about this last time I was there and she said that we just have to be more aware, and take those preventative steps always to make sure we stay healthy, but we don't need to be in a sterile room or locked in a bubble.

Last edited by katiesue1506; 02-17-2011 at 12:54 PM.
02-17-2011, 12:52 PM   #5
MysteryLocket
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Being on Imuran just means you need to be more cautious of illnesses and stuff. Wash your hands after dirty things like we are told to, try not to touch your face, and avoid contact with sicklings. Its just the basic stuff that keeps everyone else healthy. I've been on Imuran for a year and a half this time around and I work as a bank teller around money. All I do is make sure I'm washing my hands or sanitizing them throughout the day and before I eat. I also try not to touch my face. I've not had anything bad happen to me yet.

I asking my doc about this last time I was there and she said that we just have to be more aware, and take those preventative steps always to make sure we stay healthy, but we don't need to be in a sterile room or locked in a bubble.
thank you lots!
02-17-2011, 01:10 PM   #6
littlemissh
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38 C is 100.4 F.
02-17-2011, 01:13 PM   #7
MysteryLocket
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38 C is 100.4 F.
Thanks!
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