Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Sore on tongue and mouth? New to me!!

02-28-2011, 08:07 PM   #1
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Mary's Avatar
Join Date: Nov 2009
Sore on tongue and mouth? New to me!!

Ok so I have had a sore tongue (or sore on my tongue) come and go now for a couple of weeks. Also in my mouth. Would the tongue sore be considered Crohn's related?
Mary Mack

Diagnosed 10/2010 Mild Crohn's
01/2011 Severe Crohn's with fistula

Meds I was on-

Current meds-
Humira 3/11
03-01-2011, 01:55 PM   #2
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Join Date: Oct 2010
Location: Houston, TX, Texas

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Could very well be. Cankers are part of it. Anything from your lips to your anus can be involved with this lovely condition.
I don't normally get cankers, I will get fever blisters though.
03-01-2011, 02:05 PM   #3
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DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Most likely yes. Here is a thread about mouth sores.......

Before Matt was diagnosed with CD he suffered with mouth ulcers which were successfully treated with B complex tablets.

Mum of 2 kids with Crohn's.
03-01-2011, 02:19 PM   #4
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Joleen23's Avatar
Join Date: Nov 2010
Location: Glen Vine, Isle of Man

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When im in a flare i get mouth ulcers quite bad, I use corsodyl mouthwash and bonjela
Meds :

Methotrexate 20mg per week
Omeprazole 40mg per day
Ferrous sulphate 3 x tablet per day
Folic Acid 1 per day (5 days a week)
(trammadol & Paraccetamol for painrelief

Diagnosed Nov 2010 - Crohns Colitis
(bowel problems since 16yrs) 29 Yrs old now
So far tried Asacol,Aza,6mp,Remicade
03-01-2011, 05:11 PM   #5
ameslouise's Avatar
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Hi Mary - I was just thinking about you today and wondering how you are doing!

I used to get tons of canker sores. TONS! This was right before my dx and I didn't realize at the time that they were Crohn's related. They can be super painful! There's lots of OTC remedies out there to deal with the pain.

- Amy
03-01-2011, 07:08 PM   #6
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Join Date: Feb 2010

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I have a few canker sores crop up now and then on my tongue and in the far back of my throat. I agree with taking a B vitamin to help with the healing. I've also been recommended to use an alcohol-free mouthwash to gargle with. I use this on a daily basis and I have experienced fewer canker sores with quicker healing times.
February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!

Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
03-01-2011, 10:44 PM   #7
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Join Date: Jun 2010

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It's common with people that are on antibiotics for longer than usual. It's also common for colitis/crohns patients to be on antibiotics ;-)
03-02-2011, 09:26 PM   #8
Inwe's Avatar
Join Date: Nov 2010
Location: saskatoon, Saskatchewan
I would say it's probably crohn's related. My doc told me sores or the weird white stuff on your tongue is a sign of indigestion problems, *yay for crohn's*.

I remember when I was having a super bad flare I got DOZENS...yes, dozens, of canker sores. I went to the doc and she looked in my mouth and said (and I quote): "". I also get geographic tongue with my crohn's. You can get med paste from the drug store without a presciption to help (mine was cause orabase or something) and try an antiseptic mouthwash to help future cankers from popping up.
Currently On:
- Vedolizumab (Trial Drug)
- Sulfasalazine (for Arthritis)
- Sertraline,Vitamin D, Folic Acid, Multi Vitamin, Calcium

Failed Drugs:

- Sulfasalazine, Asacol, Imuran, Remicade, Humira, Methotrexate


Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Sore on tongue and mouth? New to me!!
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