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10-18-2012, 07:38 AM   #61
Paddy Holmes
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thanks for the message. I'm going into hibernation for a while and will be back when I've got my head together.
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10-18-2012, 12:11 PM   #62
Spooky1
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I think thats what i've been about this past month. Good luck Paddy, see you when you resurface.
01-26-2013, 09:30 PM   #63
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I never experienced anxiety or depression prior to being diagnosised with Crohn's 2 years ago. I have always been a worry wart but it never progressed into anxiety until just recently. With increase occupational/environmental/and physcial stressers I have found myself to have several panic attacks throughout the day. I never trully understood how people with depression felt (and I would with these individuals daily) until I felt just this way. I get so down that it is a struggle to get off the couch or moving, but than I get so anxious that I can't stop my thoughts from racing and hands from shaking. I noticed these symptoms would increase right after my remicade treatment and when I was started on prednisone, things skyrocketed and I couldn't find the right coping mechanism that worked for me. I just went to my primary this last week and was started on ativan for the anxiety and zoloft for the depression. I have even had thoughts of just up and quiting my job (something I love and worked hard to become) because i can't handle the stress like I could before. I don't want to make any of these irrational plans but trully have found it hard to cope lately. I have never felt anything close to this before. I do hope the medication helps, i tried talk therapy as well but found I would have a conflict with the therapist as I work with them on a professional level and don't know where to turn for this.
01-27-2013, 02:37 AM   #64
tiloah
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First of all, I appreciate and understand your struggle and I'm so sorry you are experiencing this. It can absolutely be disabling and sounds like it either is or is very close in your case. If you have a conflict with a therapist, I would suggest going elsewhere. I have worked with several therapists and only recently have I found one who I work really well with and who has been able to help me by leaps and bounds.

I hope you find something that works for you. Please remember that even though it's not tangible, this is a real and serious problem and you should be proud of yourself for how you've coped with it thus far. Please don't be hard on yourself for struggling. Take care of yourself.
03-09-2013, 12:04 PM   #65
Paddy Holmes
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I always thought of myself as a stressed out guy.

But as the years go by I think that I will need help dealing with all the stress. I think that dirty dishes now stress me I think it's getting that bad.

I never thought of taking medecine for it but now I think I should. For me the more stress I have the sicker I become.
Do you think you may have OCD? That is something that I've identified in myself and find that daft things wind me up...then a flare follows soon after. My sympathies for your condition
03-09-2013, 12:09 PM   #66
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I have bad OCDs lol. I hate to say this but i'm so stressed that i have started cutting up my temazepam tablets and taking about 2.5mg during the day. I've decided i need to be kind to myself and destress. However, i am hoping that the D3 intake will help and then get off temazepam altogether.
03-19-2013, 10:03 AM   #67
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I definatly believe stress and axiety play a huge role in my crohns. I am the type person to internalize my stress or bite my tounge and just do things myself when there is a problem. Im convinced that this contributes greatly to my crohns and flares. Also ive had anxiety issues since i was a kid. Now i have the constant anxiet/fear/worry of where is the closest bathroom. When i start thinking about it or i am someplace where there is no restroom or im in a situation that i cant just run to the restroom sure enough it hits me. So the menal aspect is definatly there but at the same time its hard to turn it off and not think about it.
04-03-2013, 06:13 PM   #68
Paddy Holmes
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[
One thing that frustrates me is that my mental state is never mentioned, asked about, discussed at any point, even when I was briefly on an SSRI (which also effect digestion along with stress/anxiety)[/QUOTE]

You are the first person who I have come across with this opinion. I have suffered depression and anxiety for many years and I suspect they are connected to the Crohns. In my opinion we should be given the option of pyschlogical help ( if we want it ) when Crohns is persistant and has side effects. I had a thereapist for 6 years who is so good at his job that he has been promoted out of the area where I live. When I asked if I could have further assistance I was told that as I'd 6 years of therapy I should be able to deal with it myself!
Does anyone think I should make a fuss?
I have an ileostomy with short bowel syndrom and chronic frequency. I'm agraphophobic( which I don't really mind) but have noticed my mental faculties are deteriorating...short term memory loss , associated with stress, I'm sure. This last week has seen 2 mega leakages and a general feeling of unwellness.
Opinions would be very welcomed!
04-04-2013, 06:13 AM   #69
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I feel exactly the same way and, forgive me this Paddy, but i'm so pleased i'm not the only one suffering. My anxiety is awful, my mind seems to be as much of an enemy to me as the crohns itself, not to mention joints and muscle fatigue. I suspect GPs know much better than the gastro blokes cos we visit docs for everything, and the gastro blokes never refer you to another department these days.

My memory has always been bad, but my short term memory is a complete embarrassment, but at least I laugh at it. It is worrying though.
04-20-2013, 08:52 PM   #70
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So, I have noticed an overwhelming amount of people on here mentioning that they take an anti-anxiety drug for stress or anxiety. I myself take the occasional klonopin. I have to ask, is there a link, direct or indirect, between crohn's disease and anxiety issues? How many people take something for their anxiety? Is it caused by the stress of the disease? Have we as crohnies developed into highly anxious people because of it? Is there an effect on the brain of the disease itself, through blood deficiencies or something indirect? Is this common amongst people who deal with a chronic illness?
Yes I just learned there is!thank god I thought I was going crazy.....this link describes it beautifully hope everyone feels better~

drstevenenningerdailyblog.blogspot.com/2011/01/why-people-with-colitis-and-crohn.html
04-22-2013, 04:04 AM   #71
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my puter won't let me log on to this unfortunately.
could you post some basic info from his site please.
thanks
04-23-2013, 07:30 AM   #72
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The biggest link between Crohn's and anxiety for me was with meds. I got terribly anxious on prednisone. In the evenings I'd get this abstract sense that something dreadful was going to happen. It stopped when I came off the drug.

Whether I'm normally anxious or not depends on how you're defining anxiety, and whether you include things like depression. I don't think I'm depressed any more than is inevitable for someone in my situation, which doesn't just include being chronically ill but various other factors.

I'm definitely more of a worrier now than I used to be. I think this is because so many bad things have happened to me. I've learnt to expect bad things will happen. I worry a lot about illness or injury striking my family and even my pets. I don't like being in a car. I don't drive, but even as a passenger I think constantly how unsafe driving seems. I worry what will happen if I ever can't get a hold of my medications - what if they stop making them? What if my doctors refuse to prescribe them any more? Being ill gives you lots of things to worry about.


I've heard that most young people believe they are invincible. This is usually said in the context of teenage boys speeding in their cars - they think nothing can harm them. Because I know that my body can and does fail, I don't have this invincibility complex. I assume the worst will happen, to myself and others.

Because my illnesses make me quite incapable and dependent, I worry about how I'd cope if my family weren't around. Having been abused, I don't trust easily, especially doctors who have so much power over you and who put you in such vulnerable positions - e.g. when you're unconcious having surgery.

I don't have panic attacks, and my anxiety is not to the point where it interferes with my life or stops me from doing anything, but it is odd that I never used to think about all these things. I think this comes from being ill and from being abused.

I've never taken a med for anxiety. However I was prescribed amitriptyline for insomnia, which is an antidepressent which is also used to treat anxiety disorders. However, anxiety can also be a side effect in some people. It makes me feel much more calmer, however, sometimes I wonder whether it's contributing to my anxiety. I know that sounds contradictory, but it does seem sometimes that although I'm feeling calm, my thoughts are anxious ones. This is one of the medications I worry about not being able to get a hold of.
04-23-2013, 08:01 AM   #73
Paul Cronk
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The biggest link between Crohn's and anxiety for me was with meds. I got terribly anxious on prednisone. In the evenings I'd get this abstract sense that something dreadful was going to happen. It stopped when I came off the drug.

Whether I'm normally anxious or not depends on how you're defining anxiety, and whether you include things like depression. I don't think I'm depressed any more than is inevitable for someone in my situation, which doesn't just include being chronically ill but various other factors.

I'm definitely more of a worrier now than I used to be. I think this is because so many bad things have happened to me. I've learnt to expect bad things will happen. I worry a lot about illness or injury striking my family and even my pets. I don't like being in a car. I don't drive, but even as a passenger I think constantly how unsafe driving seems. I worry what will happen if I ever can't get a hold of my medications - what if they stop making them? What if my doctors refuse to prescribe them any more? Being ill gives you lots of things to worry about.


I've heard that most young people believe they are invincible. This is usually said in the context of teenage boys speeding in their cars - they think nothing can harm them. Because I know that my body can and does fail, I don't have this invincibility complex. I assume the worst will happen, to myself and others.

Because my illnesses make me quite incapable and dependent, I worry about how I'd cope if my family weren't around. Having been abused, I don't trust easily, especially doctors who have so much power over you and who put you in such vulnerable positions - e.g. when you're unconcious having surgery.

I don't have panic attacks, and my anxiety is not to the point where it interferes with my life or stops me from doing anything, but it is odd that I never used to think about all these things. I think this comes from being ill and from being abused.

I've never taken a med for anxiety. However I was prescribed amitriptyline for insomnia, which is an antidepressent which is also used to treat anxiety disorders. However, anxiety can also be a side effect in some people. It makes me feel much more calmer, however, sometimes I wonder whether it's contributing to my anxiety. I know that sounds contradictory, but it does seem sometimes that although I'm feeling calm, my thoughts are anxious ones. This is one of the medications I worry about not being able to get a hold of.

Regarding Amitriptylene (which I use myself every night) I have just read an article in the magazine of the Crohns and Colitis UK group. It makes clear that high doses of Ami were used as antidepressant. Now it is well recognised that pain relief is achieved in smaller doses and it also slows bowel function. Together these things give me a nights sleep. Confusion arises because Ami is only licensed as an antidepressant, because the manufacturers patent has expired making the drug very cheap. Therefore there is zero incentive for the drug company to apply for a new license and the medication leaflet does not address the real uses and benefits of Ami to those of us with Crohns.

Hope that helps!
04-23-2013, 08:09 AM   #74
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I can totally relate to you UnXmas. I seem to have mega insecurities. Anxiety and depression are diabolical at times. I worry about any journey, but actually due to muscle weakness and arthritis in the joints I don't travel very far!!! I just get far too exhausted before I have travelled any distance. I too worry like mad about medications.

I also worry about examinations as its a bit like sexual abuse when you're 12 and nobody forewarned me that they were going to whizz my bra up above boobs, nor whizz the undies down flip me over and put that finger up the bum. I think its possibly different in this day and age, but I hated it. I am sorry that you too have felt abuse.

I sincerely hope you are able to recover well enough as you are young and recovery would make such a difference to the rest of your life.
04-23-2013, 11:53 AM   #75
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Paul Cronk - thanks for the information. Amitriptyline does seem to have all sorts of different effects on me.

Spooky 1 - I'm so sorry that you're feeling the same. I've had some pretty insensitive examiniations as well. I hate the "finger up the bum" test! I do have a very nice colorectal specialist now, which makes it easier, but I get so worked up when I'm seeing a new doctor and don't know what she/he is going to be like.
05-03-2013, 01:24 AM   #76
kikidee1994
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Hey guys I'm just wondering like since I've become poorly I keep havin panic atacks and my blood pressure goes low last night it was 90/54
I was wondering does it come with crohns and all the tummy problems ?
I had one last Night when I was watching the telly as I felt so anxious Before I got poorly nothing like this has ever happened
05-03-2013, 09:02 AM   #77
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I don't know if it's related to the Crohn's in your case, but it could be. In any case, panic attacks are not to be trifled with, and I would think it's worth seeing a doctor about them. I hope this gets better soon! Hugs
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05-03-2013, 09:23 AM   #78
Spooky1
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I'm in agreement, my anxiety and panic attacks are far worse when I get arthritis/crohns flare up. I have started to take part of my temazepam tablet when required to help with these.
05-03-2013, 06:16 PM   #79
kikidee1994
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Thanks guys think I might go to my GP they seem to be getting more and and more often
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05-27-2013, 11:48 AM   #80
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Hi All,
I need some advice on this, I have had Crohns for 16years now and it has been getting worse as time goes by. I had my 4th resection 6weeks ago and in the last 12 months have been suffering increasing joint pain. The joint pain is now so bad I am on massive amounts of strong painkillers daily just to function. The advice I need is I am now suffering anxiety attacks more often at the slightest thing. My chest gets tight I start to shake find it hard to breath and talk sometimes I think I'm going to burst into tears but thankfully haven't yet. The last attack was waiting to see my doctor I could hardly get the words out when I was trying to speak to her but I DIDN'T say anything about the anxiety as I couldn't have coped with it at that time because I was seeing her about pain I was having after my Op These attacks have steadily increased over the past few months and I am due to go back to work next month. I am on an antidepressant as well but obviously that is not helping Part of my job is teaching either one to one or in a group and the last time I did it I had to walk out just after I started because I couldn't pull myself together. I just got through the lesson. I have plucked up the courage to see my doctor this Friday and even writing this my chest is becoming tight. Are there any tablets I can ask for to help with this? I've already tried controlling my breathing ect to calm myself but it doesn't work. If I can't get this under control I could loose my job.
Thanks in advance
05-27-2013, 01:19 PM   #81
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Hi there, Chally,
I'm sorry you're suffering so. I do find some pain meds add to anxiety, its not the strong painkillers is it? I hope not. However, I too have massive joint pain and stiffness/swelling/heat, I too take pain meds but I know they make my anxiety worse. yet I do suffer it anyway. I'm so sad for you. i'm not really sure how to help so i'm sending you this hug. you need it and deserve it.
05-27-2013, 02:47 PM   #82
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Hi Spooky thanks for the reply, I should have mentioned that the anxiety started before the painkillers and I pretty sure they are not the cause. I have no doubt though that the pain adds to it significantly.
05-27-2013, 11:50 PM   #83
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Yes, there's loads on here who suffer extreme anxiety. I for one can totally identify. Crucifies the thinking doesn't it. I have had phases where it buckled me into analysis paralysis. Terrible place to be. But I have no cure, alas. Naturally I have told myself to get a grip, woman. Doesn't really help though.
05-28-2013, 12:47 AM   #84
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Does anyone know of any medication that can help me with this?
05-28-2013, 04:49 AM   #85
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Have you not got something like Klonopin there, Chally? I hope you can talk to your doc about this, and hopefully soon. There are plenty of people on here that take anti-anxiety meds.

Good luck. keep us posted.
05-28-2013, 05:13 AM   #86
Paul Cronk
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When you see your doc you need to open up and ask fore something for these attacks. They can give you a short term calmer. I take bromazepam when required.

Maybe also you should sometimes let the tears flow as a good cry is therapeutic and is a natural way to reduce tension a bit. Many of us are affected the same way so never feel the symptoms are not real. Good luck.
06-02-2013, 12:34 PM   #87
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I have had anxiety before my Crohn's was diagnosed. Now it is worse and has been for quite sometime. I am extremely fatigued during the days. Anyone else have this?
06-02-2013, 12:58 PM   #88
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Well I certainly do!
06-02-2013, 01:05 PM   #89
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Well I certainly do!
Thanks Spooky. I did blood work and I am a little anemic and little low B12. I am taking vitamins but I come home from work at 5 and I am asleep by 7PM. It is bad. Any advice from anyone?
06-02-2013, 09:22 PM   #90
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Hi there
I suspect that its impossible to have Crohns and not suffer from some form of anxiety. Lets face it, it can be a tough gig. I have had it for about 30 years now. After trying many things, i now practice zen meditation daily, excercise regularly and do yoga twice a week. It all sounds much more difficult than taking a pill but it is worth the effort. These things enable most of us to take more control over our lives. When you have Crohns, sometimes that seems impossible------trust me, its not
Col
Oh, i also sculpt, surf, and ride pushbikes---------all help
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