Share Facebook


 
02-03-2012, 06:24 PM   #301
Kat
 
Join Date: Apr 2011
Location: Michigan

My Support Groups:
So excited for this journey to come to an end for you both. Please know (and let Gabs know to) that you both have be an inspiration for my family, especially my daughter. Sending our wishes and prayers that there may a lifetime of remission for Gabs.

The Simone Family
__________________
Diagnosed: My 15 year old Daughter - Ashley with Crohn's 12/2010
Medications: Pentasa - 5 tabs daily, Remicade (every 6 weeks), MultiVitamin

Currently in Remission!
02-04-2012, 06:01 PM   #302
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I'm soooo very happy for Gabs!!!! She certainly does deserve (as do YOU! ). I hope she can start on her Cimzia soon and get on with her lifetime of remission!!!!!
02-05-2012, 01:15 AM   #303
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
I am glad she is doing so well! I also hope she will continue with a lifetime of remission!
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
02-05-2012, 05:36 AM   #304
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
Oh, how I love to hear wonderful news!! Hoping those infections are gone soon and that things are going smoothly in no time!! Congrats!
__________________
Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-08-2012, 01:03 PM   #305
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
I thought we were done with things "surgery" related, and we basically are.
However, I completely forgot that she needed a follow up on her kidney issues from before the first surgery. ( I like forgetting about how bad things were actually )
So, she goes next Friday for her Nuclear Medicine Scan and another round of blood tests.
I'm hoping the kidney has repaired itself completely and she will be discharged from this doctor ! One less doctor in our list of many
__________________
~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
03-08-2012, 07:04 PM   #306
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I forgot about that too T!

God I hope the scan shows all is AOK, Gabs has had to deal with enough to last a hundred lifetimes!

Sending mega loads of love, luck and well wishes!...

Are you going with her T? Sarah had one of those scans done, it's interesting watching the dye and the scanning.

Dusty. xxx
__________________
Mum of 2 kids with Crohn's.
03-08-2012, 07:10 PM   #307
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Thanks Dusty
I went with her for the first one in June ? last year, but I didn't get to go back with her and watch :/
I'm actually not going with her this time. This will be the first appointment, ever, that I won't be! JJ and I have decided to take a road trip up to Missouri for his Spring Break next week so I asked her if she could find a friend to tag along
I'm sure she'll do just fine. She has other appointments that day as well ~ bloods drawn again and she has to pick up some machine for her sleep study appointment coming up soon.
My how times have changed when I am "ok" and know that she can handle this, and she has no hesitations about me not being there !
03-08-2012, 07:18 PM   #308
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
That's a bugger you didn't get to see the first one.

I hear ya T! Your baby is growing up! And what an incredible young lady she turning out to be!

Ooooo, have fun on holidays! Maybe something will arrive in the post before you leave!

Dusty.
03-08-2012, 10:36 PM   #309
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
I'm soooo hoping all goes well at her scan!!! Let her just put this ALL BEHIND her!!!

And love the new picture! She is really so gorgeous!
03-08-2012, 11:18 PM   #310
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
I am wishing her good luck and all good results!. Where in Missouri will you be?
03-08-2012, 11:50 PM   #311
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Awe Tess thank you!

Kim - we will be in St. Louis some but also (mostly) in Illinois as well. We're just going to relax and visit w my brother ( who also has CD) - cookouts, camp fires, four wheeling, - good ole lil "redneck" fun ! Lol my brother is a good ole boy- I just love him!
03-08-2012, 11:58 PM   #312
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Well knock me over with a feather T! I didn't know Dex was your brother!
03-09-2012, 12:00 AM   #313
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Lmao! As I was typing I swear I could hear u saying something of that nature in my ear !
03-09-2012, 12:01 AM   #314
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
I wonder if his ears are burning too?
03-09-2012, 07:36 AM   #315
Dexky
To save time...Ask Dusty!
 
Dexky's Avatar
 
Join Date: May 2010
Location: Kentucky

My Support Groups:
Har....dee...har..har!! Swing by here on the way T!! I'll hook you up with some moonshine and wacky-tobaccy! Ain't nothin' like moonshine and four-wheelin'!!
__________________
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
03-09-2012, 01:04 PM   #316
imaboveitall
Senior Member
 
imaboveitall's Avatar
 
Join Date: Feb 2012
Location: Statesville, North Carolina
What a story, I just read from the beginning...wow, just wow.
I guess this is what V's doc fears when he speaks of undertreatment.

I'm very happy to read the ultimate outcome, though.
She is so lovely
__________________
VIOLET AGED 16

Current tx:
Pediasure PEPTIDE 1000 cals nightly via NG tube
Imuran 150mg
Humira


Failed and/or past tx:
Remicade
methotrexate
prednisone
Flagyl
Pentasa
atenolol
Florinef
cyproheptadine
Humira
03-09-2012, 08:48 PM   #317
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Thank you Julie

That's exactly why I kept documenting everything...even my "crazy" "overreacting" moments; I knew in my heart it was going to be ok, and I wanted others to know it as well !
05-31-2012, 04:45 PM   #318
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
just a little Reminiscing and hoping and worrying bump
05-31-2012, 04:54 PM   #319
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
Oh T...thinking about you and your gorgeous girl hun...

Always,
Dusty. xxx
05-31-2012, 05:01 PM   #320
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
Thinking of you girls! <3
05-07-2013, 08:27 PM   #321
saddad
 
Join Date: May 2013
Har....dee...har..har!! Swing by here on the way T!! I'll hook you up with some moonshine and wacky-tobaccy! Ain't nothin' like moonshine and four-wheelin'!!
why are you no longer on the 6mp?

Last edited by saddad; 05-07-2013 at 08:29 PM. Reason: typo
05-08-2013, 05:24 AM   #322
Dexky
To save time...Ask Dusty!
 
Dexky's Avatar
 
Join Date: May 2010
Location: Kentucky

My Support Groups:
This is an odd place to ask saddad, but ds failed to maintain remission on 6mp.
Reply

Thread Tools


All times are GMT -5. The time now is 09:24 AM.
Copyright 2006-2017 Crohnsforum.com