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Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira side effects


 
04-09-2011, 09:31 AM   #1
sparkles
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Humira side effects

I was just wondering which side-effects on (or off) the list of possible symptoms you all have?

I only just started last week and I've already got a LOT of bruises, and for the first 3 days I had itching, but apart from that I feel sooo much better!
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Diagnosed: December 2005, aged 12
Ileostomy Surgery: July 2008
Currently: 21 years old and on Humira, Omeprazol, Methatrexate, Folic Acid, Modulen IBD
04-09-2011, 11:16 AM   #2
Mark63
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Hi,

Nothing serious, nasal congestion with occasional sinus pain and had a hives type of itchy rash for several months. Fexofenadine helped with the itching, I've now managed to taper-off and no longer require it.

Mark
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Diagnosed late 1980ís
Azathioprine & Infliximab not tolerated
Humira since Aug 2010, weekly since Jun 2011
12 EUAs, setons removed & fistulotomy Dec 2012
04-09-2011, 03:33 PM   #3
beth
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Usually get a headache after the injection, otherwise fine.
04-09-2011, 08:37 PM   #4
aliciars
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None that I've noticed thankfully. Just went up to weekly injections this week. Hope this takes me where I need to be!
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Dx June 2010 - UC
Dx Crohns - Aug 2010
Currently: Azathioprine 150mg
Proctofoam (trying again?)

Supplements:
calcium+D, vit B, multi, aloe vera caplets & Fish oil

Tried:
Lialda 4.8 mg (Dr suspects allergic reation)
Colocort Enemas (increased bleeding)
Proctofoam (did nothing)
Prednisone (6 months did nothing but have me gain 30+ pounds...booo)
Humira weekly injections
Remicade (allergic reaction - hives)
Canasa suppository
04-09-2011, 10:19 PM   #5
tpola514
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I was on Humira for 3 months, and experienced very severe, but very very rare side effects... such as numbness in my extremities, heart palpitations, etc. I have since stopped taking it and the side effects went away within a month. I kept a diary record of the side effects so I could track their frequency and severity. Nevertheless, my doctor said I was the first of his patients to ever have such a severe reaction.
I hope it works for you!!! Good luck!
04-10-2011, 11:04 AM   #6
CDDad
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I take it every two weeks and have not noticed any side effects.
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-Joe
Crohns since 1989
3 Surgeries - Hemicolectomy '08, Sm Bowel Resection '09, Proctocolectomy '10. Lets hope I'm done now!
On Protonix and Humira.
04-10-2011, 01:39 PM   #7
jecoll
 
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I developed a form of arthritis that the docs attributed to Humira - they called it Psoriatic Arthritis because I also developed mild psoriasis with it.
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Dx'd in 2000/Crohn's
Meds: Methotrexate
Supps: Folic Acid, L-Glutamine, D3, B12, Iron, Veggie Juicing
04-10-2011, 02:41 PM   #8
ChefShazzy
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I still get injection site reactions, but taking a small dose of pred on injection days helps me out with that. Otherwise, nothing of note.
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-Sharon
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Diagnosis: Crohn's Disease (May 2007)
Meds: Double-dose of Remicade, every 6 weeks
*I'm going to start saying I'm in REMISSION now! Three years since my last hospitalization!*
05-01-2011, 10:09 PM   #9
ITSMEAGAIN
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I developed a form of arthritis that the docs attributed to Humira - they called it Psoriatic Arthritis because I also developed mild psoriasis with it.
I've just recently (since December) developed psoriasis on my hands, feet, and back. I haven't seen a Dermatologist yet. Did you stop taking Humira because of it? Do you still have it?
05-02-2011, 06:10 AM   #10
MikeinBklyn
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None.

Anything that I thought was connected with Humira was independent of it.
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Living the Dream one Day at a Time
05-06-2011, 09:24 PM   #11
Jerry
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so far no bad effects for me but seems to have taken a long time to relieve symptoms. Along with a low dose of Azathioprine (50mg daily). Started in December 2010. Relief in April. Daughter started taking humria and developed Psoriasis and other infections and had to quit
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Diagnosed fall '93.
Resection '93 no more symptoms till spring 2010
On Humira 40 every 2 weeks
Imuran 50 mg daily
05-11-2011, 09:00 PM   #12
hopeforson
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My 16 year old son started Humira in Dec. 2010. by late March he was experiencing loss of concentration, spacing out, mental confusion, leg tremors, weakness of legs/knees, extreme fatigue, lessening of motor control/hand eye coordination and joint pain. It hit him bad over about a month. It also set off the onset of Epsteins Barr. We stopped the Humira at the end of March and by late April he was back to his old self. We will not try an anti TNF blocker again for him. It was a very scary time. However, it did help clear up the remaining ulcers/inflammation from his Crohn's. We will go back to the 6mp now and see if it will keep him at this level.

For those it helps it seems to be a Godsend. Unfortunately not for my son.

Take care and Good luck!
05-12-2011, 02:44 AM   #13
Scifimom
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I have epic headaches, we are talking about the mother of headaches followed by little children headaches and aunts and uncle headaches. I get them twice a week (see my thread "Effing headaches") the only way to deal is taking paracetamol, ALOT of it. I also have a skin rush on my face which is now spreading on my neck, I talked to my GI about the rash and the headaches and he basicaly said I should STFU and be greatfull that I dont have active crohns any more.
05-13-2011, 05:42 PM   #14
tiloah
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I talked to my GI about the rash and the headaches and he basicaly said I should STFU and be greatfull that I dont have active crohns any more.
Wow, that's helpful!

I don't have any side effects that I associate with the Humira.
05-19-2011, 01:49 PM   #15
tanya34
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I have epic headaches, we are talking about the mother of headaches followed by little children headaches and aunts and uncle headaches. I get them twice a week (see my thread "Effing headaches") the only way to deal is taking paracetamol, ALOT of it. I also have a skin rush on my face which is now spreading on my neck, I talked to my GI about the rash and the headaches and he basicaly said I should STFU and be greatfull that I dont have active crohns any more.
Sounds like my GI!! I catch colds and flus all the time, I have headaches that I can't handle and he told me to wash my hands and take tylenol and be happy my crohns is under control.....
05-19-2011, 02:38 PM   #16
tiloah
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Wow. I am really blown away by the disregard for quality of life.
05-19-2011, 07:11 PM   #17
ChefShazzy
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I realised I might have more side effects than the injection site reactions I mentioned above. It is true, I had more colds this winter than any previous years... That might have to do with the H. I also posted about another side effect, sensitivity to the sun.
05-19-2011, 09:47 PM   #18
tanya34
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my neice also has crohns and she has a major sensitivity to the sun on Humira she is also on Metheltrexate(?) but she also has injection site reactions. Poor girl 17... crohns - tube fed, imuran, prednisone, and metheltrexate and humira all in under a year she has progressed so fast....
05-20-2011, 11:20 PM   #19
jastarrett
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My daughter was on humira inj. for about 3mos. it was working for the crohns but she suffered pseudotumor cerebri (swelling of the brain) apperently there was never a recorded case of that side effect,symptoms were blurry or double vision,head aches ,ringing in her ears,and dizzieness.after a stay in the hospital and spinal tap and some meds to keep the fluid down and stopped the humira she was fine
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My daughter was diag. in 2009 at age 6
meds since diag.
6mp
methotrexate-pill form
remicade
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05-21-2011, 11:46 PM   #20
Teresa T
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I recently started Humira had my indroduction dose on the 17 of may. I have alittle bruising with little soreness on the injection sites....i did expierence a mild headache...little dizzyness but not sure if thats from the prednisone or the Humira.....but thats about it. I will keep you updates around the 1st of jusy when I take the next 2 shots...good luck with your Humira
05-28-2011, 08:16 AM   #21
dparkyn
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Hum !mixed reports then !
My wife Deborah tried Infliximab and had a very rare reaction (retrobulbar neuritis ) where the optic nerve was squeezed so she lost the sight in her left eye.
Had Colon and transverse colon removed only 500mm of large intestine left.
Crohns flared up again in the bit that is left so now tried Humira 2 days ago>Wow she is a lunatic,arms and legs jumping about,head busting with pain,cold and hot,clammy to touch,crying depressed.please advise !The surgeon is worried about removing the last bit incase it spreads to the small intestine as her strain is very aggressive.Came back 6wks post surgery.We both think surgery is better than this grief.thanks
09-09-2014, 02:52 PM   #22
Judy
 
Join Date: May 2013
Location: Newington, Connecticut
I've been taking Humira for a year now with no side effects. I am wondering though, if some recent pain in my feet is related. Has anyone had any kind of foot pain--like a stabbing pain that is brief but intense? I am seeing my doctor tomorrow, but thought I would see if anyone here has had that experience and if it was related to Humira. Thanks.
09-09-2014, 04:16 PM   #23
Mark63
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Hi Judi & welcome to the forum.

You are doing the right thing seeking the opinion of your Doctor as there could be many reasons for this pain.

I've had occasional sharp pain, particularly in the heel and most commonly when I get out of bed and start walking. Nothing to do with the Humira as it was there before I started using it. I find it goes away over a couple of weeks without any treatment.

Regards,

Mark
09-09-2014, 06:53 PM   #24
Judy
 
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Thanks Mark63
02-23-2015, 02:51 AM   #25
POTTYTIME!
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Only on my second loader doses. Massive headache, they knock me out for about a day. In between my doses, about day 9 my hips and knees was aching but went away on my next doses.

Salt has tore my tongue up.
03-01-2015, 09:17 PM   #26
jazzygirl52
 
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So I just started Humira in December for my Crohns disease... and it actually has helped a ton. My pain and inflammation seemed to go away as well as Arthritis pain and stiffness But I am on my 2nd cold or something thing. First was a cold. Have had a recurring occassional light cough,and this past week started going between being cold to hot and having major sweating. Temps varied from my 97 range (low is norm for me) to 98. And was just weak, drenched in sweat at times (not hot flashes), and had lots of upset stomach/diarhea etc.

Reading in side effects that these may be more serious side effects? Sweating/ Stomach stuff.... and now it feels like it's turning into a cold but still sweats (and it's winter freezing here outside).

Is that a serious side effect? Is it going to continue? I dont think I can live with that full time....?
03-01-2015, 09:38 PM   #27
POTTYTIME!
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I have read that a fever with the humira is not good and need to get with your doctor. The worse side effects so far for me is. Headache, extremely tired, I have not or dont feel anythings
03-01-2015, 09:41 PM   #28
jazzygirl52
 
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Thanks Pottytime! I am calling him tomorrow morning. And guess maybe need bloodwork. I also just got the Hep A and B vaccines as of course this makes you vulnerable.
03-01-2015, 10:08 PM   #29
POTTYTIME!
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I dont know what pharmacy you use, but I use acaria. They ask me questions about symptoms and if they dont like my answers, they make me talk to a nurse before they will even send my shots.

I personally dont plan on getting any vaccines even though my GI said and long as its dead virus and not live.

Lots of luck.
03-01-2015, 10:17 PM   #30
jazzygirl52
 
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Yeah my pharm just fills and ships.
If increase chance of Hep is valid, not live virus vaccine was strongly advised .
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