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04-28-2011, 03:18 PM   #1
kristen
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Join Date: Apr 2011
I am wondering?

My name is kristen,I got diagnosed in april.2011..I have suffered all my life with pain but never the right test.Until this month I have a severe case of crohns in my throat,both intestines,and my stomach with ulcers on top of it all.I hurt immediately while eating,I am eatting nothing drinkin nutrional drinks.Is there anyone who can give me advice on what to try,I am loosing weight which will be ok for a couple months,do to me bein overweight.I have back pain,and my legs hurt like in my bones.I am currently takin pentasa 4 ca day prilosec,morphine pills,and a morphine patch I wear all the time..Y'all all have a blessed day.. kristen
04-28-2011, 03:40 PM   #2
Rebecca85
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Join Date: Apr 2010
Location: Nottingham, UK
Pentasa is more to prevent inflammation recurring than to treat active inflammation. It also only treats the intestines, not your throat and stomach. You should not be in that much pain. You need stronger treatment, such as steroids, immune suppressors or biologics. Please contact your doctor and let him/her know how this is affecting you!
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Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
04-28-2011, 04:08 PM   #3
kristen
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Join Date: Apr 2011
Thanx Rebecca he mentioned steroids at my last visit.I go back to him next month.
05-05-2011, 05:32 AM   #4
hainman
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Location: glasgow, United Kingdom

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hi kristen,as rebecca says you should maybe be on steriods as they help heal the infection along with immuno's like azathioprine,methatrexate,humira,imflixamab.all these that your GI specialist should discuss.im sorry to hear you have it so bad,i was 6months after my dx that i had my surgery but it crept back in pretty quickly,hope you get things sorted pretty quick.
05-05-2011, 05:47 AM   #5
kiny
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What Rebecca said. Once you stop eating or you don't want to eat, something is wrong.

I was admitted to ER at 36kg, I didn't eat for days because it hurt too much, once you lose weight your body is not prepared for anything and crohn's hits you so much harder. What they did is they kept me in the clinic for 3 weeks and gave me food through my neck with an infuse. Once I gained weight I had enough energy to fight it again with the right medication.

Last edited by kiny; 05-05-2011 at 05:55 AM.
05-13-2011, 03:50 PM   #6
Emma England
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Join Date: Mar 2011
Location: london, United Kingdom
When i was first diagnosed with crohns i was put on pentasa also that was back in 1999 jst recently i went back to st Thomas hospital and my doctor asked me what meds i was on i informed him that i had stopped taking the pentasa years ago as i felt they were doing nothing for me in which he replied that i was 1 step ahead of them as it is a rubbish drug only they did not no this then. maybe you should check this out x good luck
05-13-2011, 04:23 PM   #7
Cookie
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I think that most people here would agree that Mesalamine (Asacol, Pentasa, Lialda) do little or nothing to help you get out of a flare. Like you, Emma, I quit taking my Asacol because I felt it was useless and after several years I ended up in another flare. I'm not sure if the Asacol would have prevented this or not. Just wondering if anyone here has spent an extended amount of time in remission on any of these drugs or if anyone was in remission and went into a flare but was still taking mesalamine? Does that make sense? In a nut shell, just wondering if they really work for keeping you in remission?
05-13-2011, 04:30 PM   #8
ambermeghan
 
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Hi Kristen! When I was first dx I was put on Pentasa and Flagyl. I was schedule to see my doc again in a month. I felt that I was getting worse. After 2 weeks I called the office and was put on steriods. Maybe this is an option instead of waiting a month? How are you feeling now?

I see that you are in Galveston. I'm on the north side of Houston
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05-13-2011, 04:41 PM   #9
Emma England
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Join Date: Mar 2011
Location: london, United Kingdom
Hey cookie
i have not taken any meds for a good 7 years and i am having my first flare in 13 years x
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