Share Facebook
Crohn's Disease Forum » Diet, Fitness, and Supplements » What are your SAFE and UNSAFE foods?


 
10-05-2015, 10:34 AM   #361
ColossalBD
 
Join Date: Oct 2015
Location: Barrie, Ontario

My Support Groups:
Lately, I have been enjoying coconut water. I accidentally got some with pulp. Does pulp bother any of you?

2
pulp bugs me big time
10-05-2015, 10:36 AM   #362
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
What about cranberries or coconut?

__________________
Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
10-05-2015, 01:44 PM   #363
ColossalBD
 
Join Date: Oct 2015
Location: Barrie, Ontario

My Support Groups:
What about cranberries or coconut?
Cranberries yes, coconut never had so I wouldn't know.
10-12-2015, 02:08 PM   #364
Dax
 
Join Date: Oct 2015
I have been reading this forum now for a couple of weeks having just being diagnosed. I believe a lot of the information here is great, but unfortunately my first post here is a negative comment that I hope is not taken the wrong way. However, I read the list of foods provided and think what great information, but then I go further down the list and read Chinese Food and Indian Food and I just stop and have to say really! Does this mean that when I go to china I should not eat any of the food? I can go on, but I would just ask that these be removed and that the list be more specific in terms of the specific types of foods that trigger rather than generalizing, as I am sure that there are a great deal of Chinese and Indian foods that I believe would be just fine.
10-12-2015, 07:50 PM   #365
Phartologist
 
Phartologist's Avatar
 
Join Date: Feb 2010
Location: Melville, New York

My Support Groups:
Please be very careful when using the information provided... the foods which can trigger an attack vary from person to person AND from day to day... a food that does not trigger on Monday may be terrible the next time it is eaten! Crohns is a condition which must be understood and you must know where in your system it has caused a constriction... also the degree of constriction...the more fiber in the food the greater the chance that it will bother you...low roughage foods are the best since they will slide past constrictions, fiber can cause a blockage and should be avoided....indian, southern, etc. foods are totally up to your digestive tract and what it can handle in terms of spice... some people can't handle any spice and some can handle the hottest foods imaginable ...... good luck
__________________
Pentasa 500mg 9/day
6MP 50mg 1x day
Prilosec 20mg 1x / day
Acidopholus
L-Glutimine [anti-inflammatory]
Essential Fatty Acids [megadose]

10-12-2015, 07:53 PM   #366
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I find as I go
along it seems more foods affect me as I get older.

10-12-2015, 09:28 PM   #367
Dax
 
Join Date: Oct 2015
Thanks for the tips, I just think the list is a great idea, but to just list Chinese or Indian is not fair. Not all Indian food is spicy and not all Chinese food is deep fried ginger beef.
10-14-2015, 12:47 AM   #368
birdonastick
 
Join Date: Oct 2015
Location: Minnesota

My Support Groups:
CD.

I'm fortunate with food. This doesn't mean my disease can't be very acute in its weird ways, but I tend to operate in two modes: 1. A-OK and 2. obstructing with an NG tube in place wishing someone would hit me with a brick. No warning, rhyme or reason that I can figure out. Maybe stress but isn't everything?

Always safe if I'm not NPO or liquid only -
chicken stock
bread
saltines
applesauce and *cooked to death* veg AFTER the MD says I'm off "low residue"
plain yogurt

I tend to get myself off of white food only as quickly as my MD's allow me to and try to stay away from it as much as will power allows, choosing chicken stock and applesauce and baked apple over saltines if I'm permitted off "low residue."

The following things remind me that I have Crohn's even on a good day and give my stricture hours of entertainment.

1. Too many nuts. Sane amounts, chewed insanely well, and I'm OK. Nut butter and flour are OK.
2. Raw cabbage. I don't go there, maybe one bite of coleslaw at most.
3. If I'm craving coconut I go with it in its flour or milk or oil modes, not the rough stuff.
4. Popcorn. (Yes I was that stupid. Once.)

And I'm lucky enough to be OK with Indian and Thai and Chinese and Vietnamese, and none of these are blanket anything any more than other foodways.

Indian food is definitely not always hot, and if you are doing SCD and you're not in a messed up flare, Raman Prasad has fantastic Indian recipes which are SCD legal.
10-19-2015, 11:42 AM   #369
Daytripper
 
Daytripper's Avatar
 
Join Date: Nov 2013
Location: Staffordshire, United Kingdom

My Support Groups:
1) Crohns Disease
2) Unsafe foods: Dairy, sweetcorn, onions, apples, coffee, white bread
3) Safe foods: Eggs, salmon, home made wholemeal bread, avocado, bananas

Interesting posts! xoxo
10-23-2015, 07:23 PM   #370
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Has anyone in here had Larabars? They have fruit and nuts in them. I thought I was safe with them but lately I have wondered.

2
10-24-2015, 08:44 AM   #371
Charlotte.
Senior Member
 
Join Date: Nov 2014

My Support Groups:
You can only know yourself, ronrush7, if Larabars are safe for you. Unfortunately, it's so highly individual what one can eat and what triggers symptoms or even a flare-up. I can't have many many foods (see my post above) but for others the exact same foods are safe. I can't have Larabars, for example, because, as you said, they have fruits and nuts in them, maybe also sugar (or are they sugar free? I think they don't) what worsens my symptoms as well.
__________________
Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
10-24-2015, 09:27 AM   #372
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Thanks.

10-25-2015, 04:35 AM   #373
bibipirula
 
Join Date: Oct 2015
Location: karmiel, Israel
1)IBD not yet classified further.

(below before I got really bad and everything seems to upset me!)

2)Any form of tortilla chips/Doritos, fresh pineapple, multi grain crackers. Salad last thing with evening meal, likewise melted cheese. Raw carrots if eaten alone.

3)White bread rolls, 99% of the time and crisps/potato chips.

Not very helpful I know.
I had IV of iron during a month, helped a lot with bood work and strength
10-27-2015, 03:35 PM   #374
samk
 
samk's Avatar
 
Join Date: Oct 2015
I was diagnosed recently with UC, its been about 5 months since my first flare up. Coffee and chocolate can sometimes be a little aggravating, but my biggest problem is Pears. They make me really sick. Canned or fresh (without the peel). I know everyone's different, but I think it's pretty strange since pears are supposed to be a super safe food.
03-13-2016, 04:16 PM   #375
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Great idea David. 1) CD over 30 years, ileostomy for 10 years hurrah pain is gone

2) unsafe: chilli, vinegar, preservative 220 in wines- if I add a drop of 'Pure Wine' avail in Oz which is basically hydrogen peroxide it neutralises t preservative so I don't look so bad but I stil react; alcohol (I do wish I cud find one if don't react to). eggs - I only just worked that out!! wheat; asparagus; BEETROOT; artichoke; caffeine - I hav decaff but stil react. read that real is better than instant & it seems 2b true. chocolate- better quality is less reactive; icecream; corn; veg skins; nut,seeds,onion, garlic, spices, pepper, shellfish - prawns n crayfish; KRILL OIL, RHUBURB ,capsicum especially raw (bell peppers I think u call them), deep fried foods; too much oil; tomatoe puree, cabbage, watermelon, apple in any form, MSG - 621,

3) there is a great book frm The Royal Prince Alfred Hospital called Elimination Diet & another one w recipes & basically it tells u how to avoid/limit sulphides, amines & glutamates. I hav never been so well as when I tried it. & it made sense of crazy things I react to that seemed to hav nothing in common.

chicken skinless, lemonade diluted, white bread, potatoe, white rice, sweet pototoe; WATER; bland well cooked veg, lettuce (preferably cooked slightly or pressed), bit of olive oil, little bit of avocado, bit of fresh orange, pineapple,

when I was first diagnosed specialist said food had nothing to do w IBD, now they admit its impt & sum r definitely triggers.

Hav u heard of FODMAPs? Its an acronmyn for t sugars - fructose, oligosaccharides, etc. it really helps to limit them so they r hard to digest.

I hav lost my hunger drive, 4got to eat yesterday til 6.30pm. If I was disciplined I wud b a whole lot better but I just eat nearly anything & suffer t consequences. Its really easy to notice allergies (stoma weeps blood) & fd sensitivities (diarhorea after 15 mins) .
03-13-2016, 05:01 PM   #376
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Good idea David!

1. Crohn's

2. Tomatoes(actually, anything red in colour) corn, red meat, any raw vegetables but especially lettuce, coffee, anything acidic, anything spicy, fast food burgers, milk, nuts, popcorn, fresh fruit, anything whole wheat, alcohol.

3. Pretty much anything white in colour. breads, pasta, rice, potatoes, chicken noodle soup and raman, flattened pop, chicken with no skin.. I don't have much of an appetite lately as I'm still flaring, so I don't really eat anything but this stuff.

Seems like everyone's list is along the same lines, for the most part.
=(
Samatha,
I do hope that u hav found out that u don't hav MS! al t best cheers
03-13-2016, 05:02 PM   #377
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Samatha,
I do hope that u hav found out that u don't hav MS! al t best cheers
Same here

03-13-2016, 05:12 PM   #378
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Just found out I can't do eggs.

2
me too, I feel so silly as I m 63 & I hav only just realised! after eggs (boiled, omelette, or scrambled) 10 mins later hav about 5 v loud strong sneezes & then after about 20 mins diarhorea. I love eggs "t perfectly packaged protein product" . I may try again a couple of times cos for breakfast I had a nice drink of water & 6 mins later trying to change my ileostomy bag v bad watery diarhorea & all I had in my stomach I reckon was bile & water.
03-13-2016, 05:14 PM   #379
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
I have a doctor who will be doing a food aloeegy test.

2
wot sort of fd allergy test & wot did it show mate?
03-13-2016, 05:27 PM   #380
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Am I the only one that finds this thread a bit nonsensical? Where's the correlation and the science?

It's like most people are responding just to "join the party". Providing absolutely zero insight and analysis. Illogical, carelessly slopped together posts are just a waste of occupied bytes on a server hard drive.

People need to know the detailed scientific research on why foods are aggravating their condition. For this they would get more out of reading books like the The Paleo Approach or The Perfect Health Diet.

Someone should lock this sucker up and remove the sticky.

Just my 2c.
Dear WV
u didn't answer the Qs. Do u hav IBD & for how long? Mayb rather than thinking safe & unsafe its better to think Foods to avoid cos I tell u we hav learnt t hard way. we don't need to go into analysis cos we all know thru hard personal experience. 30 yrs ago my Prof told me food has nothing to do w Crohns now specialists admit patients react to sum fds which can cause not t disease but bad symptoms & help precipitate a flare up. Pepper is a bowel irritant, caffeine is a laxative for everyone. Mayb u can deal w it others cant & need to know. Its wonderful to share knowledge but u hav to b intelligent enough to realise that u don't know everything.
03-13-2016, 05:49 PM   #381
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Question to all those who listed unsafe food:
What are the other factors that cause your flare-ups?
Truth is that there is NO proof that any food alone causes the flare-up.
But if your intestines are already damaged from past flare-ups then it is possible for some food to cause problems. Not because of the food itself but because your intestines are unable to absorb certain foods. Also things like tomatoes will surely cause pain to already damaged intestines because of their acidity.

My question is: do you think any food causes you problems WHEN you are perfectly healthy? (with completely healed intestines)
Problem is that most of the people, even when they are feeling better, have some degree of damage from past flare-ups.

I would especially like to hear from those who have undergone resection (as myself) and whose intestines are now completely healed. (I have Crohn's)
I have tried many different food after the operations and have not had even the slightest problems. Doctors also say: "Eat everything". (I still avoid certain foods just in case)
So I think it's hardly a food that causes or triggers the disease. (this probably also explains so many differences in people's diets)
Would like to hear your thoughts on this.

Thanks
Miki of course when intestines r raw t body reacts to everything. Don't want to scare u but hav u thought that mayb u r back where u were b4 ur Crohns was a problem? ie u can eat fds now that u shud avoid but it might take a while 4 t problem to get bad enough to cause really noticeable symptoms. al t best enjoy ur Crohns break & if u ever hav to I recommend don't hesitate to accept a stoma - t pains gone.
03-13-2016, 06:06 PM   #382
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Wanted to add something:

Sushi... I have had sushi 3 times since my last flare. It seems to be the ONLY meal that sits totally well with my entire system, even with massive amounts of wasabi (which I love because it's the only hot thing I can eat.) But of course, it's basically fish and rice with some seaweed, all gentle stuff.

Going to try to remember this in the future when I'm starving during a flare!
agreed Colin but without t washabi unfortunately. When I had my ileostomy iwas starving & some idiot but wel meaning dietician cancelled my meal order cos I wrote meat ( I just wanted a taste of t sauce). 4 floors below was café w sushi which I know I cud hav eaten but I had no=one to go & fetch it for me cos I always used to cancel visitors cos I was too sick to talk. not nxt time, t drs, nurses sum of them treat u a lot better if u hav visitors. t nasty nurse I never say him except when a visitor arrived 7 then suddenly he was so solicitous. xcuse me remembering bad times, other nurses were brilliant, offered midnite massages,. etc
03-13-2016, 06:09 PM   #383
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
On that note I'm completely the opposite I think it was wasabi that triggered my crohn's in the 1st place I was totally fine until I had a really really spicy thai meal in london last yr then bang it all went downhill from there (LOL)!!! I know it probably wasn't that but it would be interesting to see how many japanese suffer from crohn's
Jap rates v low in their own country for IBD. when they cum to west their rates slowly match westerners. Incidentally 'jap' isn't meant to be disrespectful, its just anything to save sum energy typing.
03-13-2016, 06:14 PM   #384
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Sarah has short bowel syndrome and has found that a vegan diet with little fat or oils suits her best. She has narrowed it down to finding that food with 1.5grms of vegetable fat or less per serving is safe for her and this combination has her down to pooping once a day, which she is absolutely thrilled about!

Well worth the effort and sacrifice according to her.

Dusty. xxx
I may b heading sarah's way w short gut syndrome. I admire her restraint & discipline. gee I cud daydream al day about 1 BM/day. How heavenly! Does she hav ileostomy? like me I m holding well on Redicade. al t best to u al
03-13-2016, 06:17 PM   #385
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Hi Eefs. A lot of people use an elimination diets. It's tough cos you have to cut what you have right back to the bare minimum and introduce new foods gradually and systematically. Keeping a food diary also helps.
It's worth it for the relief it can bring.
Elimination Diet bks frm Prince Alfred Hospital brilliant reading. So helpful even if u cant follow it properly it certainly helps.

Also search FODMAPs re undigestible sugars in lots of food not only sweet,
03-13-2016, 06:23 PM   #386
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
1. Crohn's

2. Dairy, any red meat that isn't ground up (with the exception of the fat on steak), stick & hot spices, salt, skin on poultry, vegetables that aren't steamed or boiled, fiber from wheat, soy, chocolate sent me to the hospital, cakes, cookies - anything made with flour and baking soda - I guess caffeine - I'll have to ween myself off, food coloring, preservatives (the more cleansed my system - the more sensitive I become, soda, pizza - I can feel the crust expanding in my intestines - youch, onions - SHELL FISH KILLS ME ALIVE

3. oats, oatmeal with raw sugar and butter, granola oats left to soak in applesauce and a touch of powdered cinnamon, fruit bread made w/frozen white bread - butter - pears - raw sugar rolled up and baked - my desert; corn bread w/creamed corn added, tuna and salmon pate on saltines/saltless, peanut butter (creamy - jelly not jam) strawberries on bisquik biscuits - 1/2 of biscuit, potatoes any way - add butter. Fried foods on the stove (not deep fried) don't seem to bother me - McDonalds french fries are a saving grace when dehydrated in the summer to retain water (I have a huge problem with dehydration - must be the caffeine) Doritoes - white - they must break down easy because chips just kill my intestinal tract, soft boiled eggs, all cooked vegetables, pea soup, speghetti sause and spegheti don't seem to bother me from a can - I watch the oregano when home cooked, white noodles but not homemade egg noodles - they swell up too - white bagels and deli ham, roast beef, turkey w/cream cheese - (real light on cheese for me) Green tea, 100% Coconut milk, 1 tablespoon organic coconut oil per day, sea salt if needed, hotdogs on cheap buns, french bread with butter & provolone melted on it and parmigiana, no string vegetables, custard, tapioca, jello with real whipped cream (again light on the cream)
Yumo!
03-13-2016, 06:27 PM   #387
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
Some foods seem safe and are not. Starches like rice, or pasta ("bland" foods) don't do their damage for many hours after eating, so people think they're safe. They are complex carbohydrates which we can't easily digest, so they pass through the small intestine and go to feed the bad bacteria in the colon. This bad bacteria is the source of the symptoms. Many doctors in different countries have figured this out independently, so you have various names for the no-starch diet - SCD, GAPS, Seignalet, etc. They're not exactly the same, but they are variations on the same theme: sugars and starches are killing us. Eliminate them from your diet, and you'll be really surprised how many symptoms disappear.

So here are my answers:

1. CD, for 45 years
2. All starches and sugars except maybe fructose. Milk. Cruciferous vegs (cabbage et al). Raw seafood.
3. BROTH including the fat. Meats, fish, eggs, esp. soft-boiled. Well-cooked vegetables. Coconut. PAPAYA. Grated carrots. Ceasar salad (without croutons).
thanks v interesting. wot is SCD, GAPS, Seignalet etc. Here in Oz I havnt heard of this
03-13-2016, 06:40 PM   #388
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
What amazes me when I read this thread is how many foods listed as safe on other's lists are so unsafe for me! Popcorn for instance has me rushing to the loo within minutes...even though I have an ileostomy, unsafe foods create chaos that sometimes even the pouch cannot contain! Tinned fish , if eaten with toast doesn't cause too many problems but anything carbonated ferments whatever is waiting to be released...
I guess a lot of the differences are caused by the amount of bowel left and the state of mind. My GI tells me that I also have IBS as well as Crohns so I have to try to be very calm, not easy when you feel the onset of an 'incident' begin whilst out.
I was very embarrassed recently when I was unable to use the disabled loo and after emptying my bag in the regular toilets, someone using the handbasins said loudly' God, what a dreadful smell'. I hid in the loo until I hoped they'd left. I always carry a small air freshener now.
Such a relief to be able to share without embarrassment!
m also an ileo. I used to carry air freshner & was so happy when little girl said "Why can I smell oranges Mummy?" cos b4 ileo I stank "like I was rotting inside" as bro said which is exactly wot was happening. I heard of guy who said he liked natural women not ones that looked liked they did not poop but "Passed perfectly packaged perfumed soap " (or product)
03-13-2016, 06:48 PM   #389
Miss Fit
 
Join Date: Mar 2016
Location: Australia, Australian Capital Territory, Australia
I have Crohn's or UC (doctors are unsure) and my newest Gastro put me on this Low-Fodmap diet and I have noticed a huge difference in how I feel. It's very odd, can have raspberries but not blackberries, red bell peppers but not green. I do recommend it because I have done low-residue and non-dairy and this is the best I have felt in a long time. (Still non-dairy but now Gluten-free on the low-fodmap) Can't eat a huge variety but I'd rather not feel like I was being stabbed and just eat some blueberries than feel like death and have real bread. (well....most of the time)
me too, raspberries but not blackberries. I tell u if not 4 this thread I wud think I was a fuss pot hyperchondiac
05-22-2016, 04:56 AM   #390
Dackelmann
Senior Member
 
Dackelmann's Avatar
 
Join Date: Sep 2013
Location: perth, Western Australia, Australia

My Support Groups:
Bad food- unfortunately I really lov(ed) yoghurt. Swiftest way for me to flare and/or bleed is Yoghurt or taking a suicide capsule aka probiotics. The swelling, wind, pain, etc were unbearable. Plus the added eyelash burning stench of death.

Most other foods are fine.
Reply

Crohn's Disease Forum » Diet, Fitness, and Supplements » What are your SAFE and UNSAFE foods?
Thread Tools


All times are GMT -5. The time now is 08:57 PM.
Copyright 2006-2017 Crohnsforum.com