Hello people,:ghug:
I stumbled onto this forum whilst trying to find information on google about bile salt malabsorption. (Does anyone know a good website i can read?) Pleased i did, as there seems to be very little information out there.
I found out today that i have this condition after 22 years of my life sat on the toilet. It has taken the same amount of time trying to convince many doctors that there is more going on than just IBS.
Over the years i have had many tests, all of which has been negative and i have taken a vast amount of medication that seems to make my symptoms worse.
I suffer from constant diarrhoea, my record 22 visits to the toilet in a day. I often wander where on earth it all comes from. The diarrhoea is rancid, yellow in colour, can be froffy, and greasy. If that isn't bad enough it's hugely embarrassing, especially when you have to use public toilets, the sweat drips from your forehead, then the chills kick in, the stomach cramps are enough to make you want to drop to your knees and pray and then it's your turn for the cubicle and by god the noise that escapes from your ass with the force of the diarrhoea can be heard by all who is still waiting. And then there's the John Wayne walk. The acid has burnt your bum so bad you can barely walk properly and typically i've forgotten my nappy-rash cream....... Anyway as i am currently trying for a baby and not having any luck i thought i would try visiting my doctors again. I was once again referred for a colonoscopy and had several biopsies taken. I am still awaiting the results. I also had a SehCAT scan which identified that i have bile salt malabsorption. Ironic, as that week my diarrhoea had gone into remission and yet the scan still managed to identify this.
So my questions if anyone could take the time to answer is: Is bile salt malbsorption the same as Chrones? and if not what is the difference. My symptons fit Chrones apart from i have never lost any weight, in fact from 9 stones i have put on a stone and half in just 12 months. A total newy for me as i have never had problems with my weight and have always been slim but healthy. And can this condition cause infertility as i am now currently saving to pay for fertility treatment.
Thank you.
Louise
I stumbled onto this forum whilst trying to find information on google about bile salt malabsorption. (Does anyone know a good website i can read?) Pleased i did, as there seems to be very little information out there.
I found out today that i have this condition after 22 years of my life sat on the toilet. It has taken the same amount of time trying to convince many doctors that there is more going on than just IBS.
Over the years i have had many tests, all of which has been negative and i have taken a vast amount of medication that seems to make my symptoms worse.
I suffer from constant diarrhoea, my record 22 visits to the toilet in a day. I often wander where on earth it all comes from. The diarrhoea is rancid, yellow in colour, can be froffy, and greasy. If that isn't bad enough it's hugely embarrassing, especially when you have to use public toilets, the sweat drips from your forehead, then the chills kick in, the stomach cramps are enough to make you want to drop to your knees and pray and then it's your turn for the cubicle and by god the noise that escapes from your ass with the force of the diarrhoea can be heard by all who is still waiting. And then there's the John Wayne walk. The acid has burnt your bum so bad you can barely walk properly and typically i've forgotten my nappy-rash cream....... Anyway as i am currently trying for a baby and not having any luck i thought i would try visiting my doctors again. I was once again referred for a colonoscopy and had several biopsies taken. I am still awaiting the results. I also had a SehCAT scan which identified that i have bile salt malabsorption. Ironic, as that week my diarrhoea had gone into remission and yet the scan still managed to identify this.
So my questions if anyone could take the time to answer is: Is bile salt malbsorption the same as Chrones? and if not what is the difference. My symptons fit Chrones apart from i have never lost any weight, in fact from 9 stones i have put on a stone and half in just 12 months. A total newy for me as i have never had problems with my weight and have always been slim but healthy. And can this condition cause infertility as i am now currently saving to pay for fertility treatment.
Thank you.
Louise