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Crohn's Disease Forum » Treatment » Medical Marijuana for Crohn's Disease and Ulcerative Colitis


 
11-09-2012, 04:53 PM   #271
TheJoeP
 
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I just came across this thread and wanted to add my 2 cents. I've had Crohn's for over 20 years now. For the first decade, I went through every medication there was, and would typically take 10-20 pills a day. I had two surgeries during that time as well. Then I was introduced to cannabis, and it has helped in almost every aspect, from pain and cramping to weight and appetite. I've also manged to get off all meds except Humira. So to anyone who hasn't tried it, talk to your doctor, because you might be surprised how much a natural substance can help compared to many of the pharmaceuticals out there. And if you live somewhere that allows you to grow your own, it won't even cost you anything!
11-09-2012, 06:57 PM   #272
FullM3lt
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I just came across this thread and wanted to add my 2 cents. I've had Crohn's for over 20 years now. For the first decade, I went through every medication there was, and would typically take 10-20 pills a day. I had two surgeries during that time as well. Then I was introduced to cannabis, and it has helped in almost every aspect, from pain and cramping to weight and appetite. I've also manged to get off all meds except Humira. So to anyone who hasn't tried it, talk to your doctor, because you might be surprised how much a natural substance can help compared to many of the pharmaceuticals out there. And if you live somewhere that allows you to grow your own, it won't even cost you anything!
That's great to hear, Joe! I've been off all medication for about 4 years now because of cannabis oil/tincture. Truly a miracle medicine and it doesn't turn my immune system into garbage!
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Diagnosed with Pancolitis 2001

Diagnosed with Costochondritis December 2012

Currently: Asymptomatic

Current Meds: Vitamin D3, Vaporized cannabis oil daily (CBD and THC)

Past (failed) Meds: Prednisone, Mesalamine, 6MP, Remicade, Flagyl, etc...all traditional western medicine has failed me time after time.
11-10-2012, 10:49 AM   #273
CLynn
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The side effects of the medicines the doctors give us are as bad as our disease, it makes me sick that they refuse to look at natural medicines.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
11-11-2012, 08:32 PM   #274
FullM3lt
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The side effects of the medicines the doctors give us are as bad as our disease, it makes me sick that they refuse to look at natural medicines.
Amen to that. I'm seeing a new GI doc on Tuesday and I know he's gonna try to push some big pharma meds on me...good thing I have no plans of doing so.

I'm all for modern medicine as far as blood tests and other invasive tests go (i.e colonoscopy, endoscopy etc....) but as for as some of these "medicines" i've been prescribed in the past 10 years...90% of them have made me feel worse than I did before!
11-12-2012, 01:09 PM   #275
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I'm very new to the disease -- about a year and a half -- but it's been a rough go and cannabis has been great for me. CBD hash has been the most effective -- allowing me to completely drop all other meds with incredible success. However, thanks to the DEA shutting things down left and right in California, I'm afraid I'll have to go back to sulfasalazine (which is like prison for me) as there just isn't enough CBD hash to go around. Other CBD buds simply aren't enough, apparently (been trying with little success).

Given all the people who aren't as fortunate as us in medical states, I decided to go public about my medical cannabis use. I am a business owner so it sort of puts my reputation on the line -- but there are too many in non-medical states that need us in the medical states to speak out. I'm hoping that I continue to improve to the point where I can dedicate large amounts of my time to helping others get their states legal cannabis.

http://bobbyearle.com/blog/ulcerativ...e-have-i-been/
11-12-2012, 01:53 PM   #276
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I'm very new to the disease -- about a year and a half -- but it's been a rough go and cannabis has been great for me. CBD hash has been the most effective -- allowing me to completely drop all other meds with incredible success. However, thanks to the DEA shutting things down left and right in California, I'm afraid I'll have to go back to sulfasalazine (which is like prison for me) as there just isn't enough CBD hash to go around. Other CBD buds simply aren't enough, apparently (been trying with little success).

Given all the people who aren't as fortunate as us in medical states, I decided to go public about my medical cannabis use. I am a business owner so it sort of puts my reputation on the line -- but there are too many in non-medical states that need us in the medical states to speak out. I'm hoping that I continue to improve to the point where I can dedicate large amounts of my time to helping others get their states legal cannabis.

http://bobbyearle.com/blog/ulcerativ...e-have-i-been/

Very cool blog, Bobbyearle.

Since you are a medical patient in Cali, you should try producing your own meds if that is at all possible. It's much cheaper in the end and the DEA doesn't care about people supplying themselves with medicine via a few plants.

I agree with your statement about more people going public with their medicinal use of cannabis. It's a viable non toxic treatment option to these horrible diseases.

In my experience, even buds with low levels of CBD can be a viable option, but it takes a while for the CBD to build up in your system (1-2 months of daily intake). I haven't had access to high CBD oil/tincture till recently, but it's really wonderful for my symptoms. Calms my gut and my nerves.

I'd really rather not be dependent on medication, but at this point that isn't an option. The side effects of cannabis (ingested/sublingual) are nothing compared to prednisone and other IBD medications. I feel that doctors don't take it seriously because they think we're all smoking it....I'll admit that I have smoked it in the past but tincture/ingested is much healthier and more efficient.

My gut was killing me this morning and a few drops of CBD tincture under my tongue has made it disappear within 1 hour.

Sorry for the rant, but I'm really passionate about this stuff. It's a crime that our doctors aren't more open to alternative options.

Hope you can find some relief, Bobbyearle. I'll be following your blog. Good luck
11-12-2012, 02:42 PM   #277
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Sulphasalzine causes colitis. I'll never take it again. I am also done being a guinea pig fr gastroenterology specialists. I'll take something after its been used on humans for 20+ years. I'd be dead if I would have accepted humira. I was getting terrible infections on Imuran and 6mp. Some with those too. I'd rather live and die by my own decisions, no
Matter the outcome, than die because of my doctors choices. I am truly free, and healthier than I was before diagnosis.
11-14-2012, 12:03 AM   #278
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With respect to motions and inflammatory markers I seem to be doing fine, but I periodically get days upon days of pain unresponsive to all the normal pain meds. I can't sleep when this happens. Between times I feel fine. We keep toying with doing surgery, but if i could only deal with these periods of pain I could put off that day. Anyone find canaboids useful for this sort of pain?

Anyone know if medical canaboids are available in Ireland?

Thanks
S
11-14-2012, 12:06 AM   #279
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Sativex is available in Europe. It's a spray.
11-14-2012, 12:11 AM   #280
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Thanks for that
11-14-2012, 01:58 PM   #281
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With respect to motions and inflammatory markers I seem to be doing fine, but I periodically get days upon days of pain unresponsive to all the normal pain meds. I can't sleep when this happens. Between times I feel fine. We keep toying with doing surgery, but if i could only deal with these periods of pain I could put off that day. Anyone find canaboids useful for this sort of pain?

Anyone know if medical canaboids are available in Ireland?

Thanks
S
I know JohnnyO already stated it, but if your doctor is skeptical just print this out and show it to him.

Use of cannabinoids as anti-inflammatory agents

Abstract

The application relates to the identification that cannabinoids, such as cannabidiol can be used to treat inflammatory diseases. Cannabinoids for use in treating inflammatory diseases, methods of treating inflammatory diseases and cannabinoids in combination with pharmaceutically acceptable carriers are claimed.


Patent 6410588

The doctors know it works. They are just hesitant to prescribe it for some reason. My two cents, good luck
11-15-2012, 01:57 PM   #282
FullM3lt
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I should add that since I started using my tincture/oil my flare has been reduced....solid stuff is starting to come out again My fatigue has been greatly reduced, i've actually worked out 3 days in a row The chronic pain is still there, but I can deal with pain. It's the fatigue that really gets to me.

Hopefully this gradual improvement can continue until I'm back into remission.
11-17-2012, 02:12 PM   #283
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Thanks for all that FullM3It

Seán
11-22-2012, 11:17 PM   #284
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I found out I had UC today (pancolitis). Apparently, colonoscopies don't lie. I'm not sure, I didn't get to ask the camera anything. I was just too mesmerized by the awesome show on TV. I don't watch much Reality TV you know, so this was exciting for me.

I started an Accutane treatment in January and started getting GI issues in March. By June, it had gotten pretty bad so I decided to consult. Fast forward five months later, tada, we have a diagnosis! My brand spanking new doctor tells me Accutane has recently been linked with the ability to bring out the disease in genetically predisposed people. There have been a couple multi-million dollar judgments against them in the US as a cause of IBD. I'm in Canada, so I don't care much for those cases and just chill out with my maple syrup. I just thought the timing made sense.

In any case, what brought me here (I just realized it took me two paragraphs to get to my point...) is that while I was reading other posts on these boards, one of them mentioned medical marijuana. I live somewhere where it's decriminalized, in a way. So long you don't look like you intend on selling, no cop will arrest you or give you trouble. It's weird, but it's part of our culture and it's not as stigmatized, so easy to get. And quality stuff, too.

I started vaporizing daily a month after my GI issues started. I wasn't sleeping well, and nothing like a nice vaporizing session helps me sleep like a baby. Months before that I used to do it once a week, usually on the week-end, to relax. Because I did so great on it I never questioned stopping so kept going. In August I had concentration issues and I feared my marijuana habit might have somehow been responsible, so weened off of it in a week and then stopped for a whole month to give those cannabinoid receptors a long spring break.

In about two weeks I experienced the worse cramps and the most amount of blood in my stool I had ever seen. I was still waiting for an appointment with endoscopy from my clinic visit, but went to the ER anyway because I was worried. They gave me Pantoloc and sent me home. In September I took up the habit again because sleep issues had returned, and the mind numbing cramps disappeared. I didn't see or think of any correlation back then because the most probable Dx according to the ER doc was an ulcer (hence the Pantoloc).

Until today as I read your testimonies. The contrast is stark. The timing definitely fits and I might just redo the experiment again to see if it holds up. I know a sample of one means nothing in the grand scheme of things, but it only has to work for me to be relevant in my case.

I have smoked it very few times (I find the smoke too harsh) and cannot stand cigarettes, but vaporizing is a real bliss. I can see no real cons.

I make killer brownies so will research butter making recipes (the slow cook method I heard mentioned a few times looks like a good match) and try the edible route and see if it improves the experience over vaporizing.

Thanks everyone for sharing your stories, it brought an epiphany and I am thankful for your honesty.
11-23-2012, 12:58 PM   #285
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I found out I had UC today (pancolitis). Apparently, colonoscopies don't lie. I'm not sure, I didn't get to ask the camera anything. I was just too mesmerized by the awesome show on TV. I don't watch much Reality TV you know, so this was exciting for me.

I started an Accutane treatment in January and started getting GI issues in March. By June, it had gotten pretty bad so I decided to consult. Fast forward five months later, tada, we have a diagnosis! My brand spanking new doctor tells me Accutane has recently been linked with the ability to bring out the disease in genetically predisposed people. There have been a couple multi-million dollar judgments against them in the US as a cause of IBD. I'm in Canada, so I don't care much for those cases and just chill out with my maple syrup. I just thought the timing made sense.

In any case, what brought me here (I just realized it took me two paragraphs to get to my point...) is that while I was reading other posts on these boards, one of them mentioned medical marijuana. I live somewhere where it's decriminalized, in a way. So long you don't look like you intend on selling, no cop will arrest you or give you trouble. It's weird, but it's part of our culture and it's not as stigmatized, so easy to get. And quality stuff, too.

I started vaporizing daily a month after my GI issues started. I wasn't sleeping well, and nothing like a nice vaporizing session helps me sleep like a baby. Months before that I used to do it once a week, usually on the week-end, to relax. Because I did so great on it I never questioned stopping so kept going. In August I had concentration issues and I feared my marijuana habit might have somehow been responsible, so weened off of it in a week and then stopped for a whole month to give those cannabinoid receptors a long spring break.

In about two weeks I experienced the worse cramps and the most amount of blood in my stool I had ever seen. I was still waiting for an appointment with endoscopy from my clinic visit, but went to the ER anyway because I was worried. They gave me Pantoloc and sent me home. In September I took up the habit again because sleep issues had returned, and the mind numbing cramps disappeared. I didn't see or think of any correlation back then because the most probable Dx according to the ER doc was an ulcer (hence the Pantoloc).

Until today as I read your testimonies. The contrast is stark. The timing definitely fits and I might just redo the experiment again to see if it holds up. I know a sample of one means nothing in the grand scheme of things, but it only has to work for me to be relevant in my case.

I have smoked it very few times (I find the smoke too harsh) and cannot stand cigarettes, but vaporizing is a real bliss. I can see no real cons.

I make killer brownies so will research butter making recipes (the slow cook method I heard mentioned a few times looks like a good match) and try the edible route and see if it improves the experience over vaporizing.

Thanks everyone for sharing your stories, it brought an epiphany and I am thankful for your honesty.
Every positive testimony is a step in the right direction. Every time i've halted my cannabis use, i've flared. Glad to hear other people are having success with this controversial (but effective!) method.


It's like clockwork...you said you experienced a return in symptoms after two weeks of halting your use and the same happened to me. I've had problems returning to my "habit" because cannabis gives me anxiety now and it never did before. At this point in my life, it's a catch 22. It helps my UC symptoms immensely, but it really puts me on edge. I'd rather be a little on edge than on the toilet 15 times a day Like a lot of other medications, the negative effects of cannabis usually disappear once tolerance builds.

Thanks for your story, Francis. Good luck and good health to you!
12-02-2012, 07:43 AM   #286
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It's better to daily use cannabis, than once in a while. Once you have tolerance you can deal with everything while having smoked weed. I haven't had a flare up in a long while now. It relieves my stress, which can cause me a flare up, and works as a pain killer. When having smoked pot, also my appetite increases which I don't always have when having pain. Would I believe this three years ago? No. But it works for me.
12-02-2012, 12:09 PM   #287
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Sticking my neck out here as it is illegal in France. However, maybe the mature middle class white guys should put themselves on the line where others are more vulnerable. I am retired so cannot lose my business.

It helps big time. It is the only thing for me which controls nausea, enables me to eat well and control weight loss, even so I have gone from skinny fit to skeletal. I am on Humira which makes a big difference but I would go for oil if available. Can't even discuss this with the docs, though I will try to find out if sativex is available as it is for MS patients in some European countries.

Vaporizing is good if you have the patience. Don' buy on the street, could be anything. Plenty of Internet companies in Netherlands send people seeds discreetly but it would be illegal to grow here even for personal use.

It is becoming time to have the courage to speak out. Felt ill all afternoon but I am about to vape something which will relax me and get me to actually enjoy the roast chicken my lovely and supportive wife is cooking. Then I will sleep well and have the morning energy to get her to the airport to go see her 92 year old cancer patient dad in England.

We use all our mental and physical resources to deal with it all and it pisses me off that an item which can help is legally unavailable. My wife who never touched it in her life agrees.
12-11-2012, 05:13 AM   #288
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Marijuana is wonderful. It doesn't really "heal" me but it sure makes the ride a little less bumpy. I wish I had started it in the early days of my colitis while I was going though all the anxiety & nausea that sulfasalazine brought on & the "steroidal-induced psychosis" that prednisone gave me.
I don't like to smoke it, but I do. I'd rather have a cookie or something like that. The effects last much longer & are more powerful. But the butter is harder to come by than the buds.
12-11-2012, 07:45 AM   #289
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You can make the butter simply enough but the quantity of herb needed is quite high so it's the kind of thing that can be done when a grower harvests the bud and wants to extract more from the top leaves. Or when they find old jars of 2008 need using up. The technique is simple: boil water, butter and herb. Mash and strain herb. Cool then chill the liquid and the magic butter solidifies on top. Use with care.
12-11-2012, 01:31 PM   #290
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Our Science Advisor, Dr. Judith Chapman has created an amazing Medical Marijuana wiki entry for us.
12-11-2012, 01:52 PM   #291
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Thank you. I have perused that already! A lot of it is way over my head.
I used marijuana for my AS symptoms years ago. My wife would ask me, "Is your arthritis bothering you?" & I would answer, "Probably." lol!
But I find that you can't walk through the entire day stoned. You won't get much done. I try now to only use it in the evenings, or when the symptoms are very bad; I wouldn't get much done anyways in that case.
12-11-2012, 03:11 PM   #292
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But I find that you can't walk through the entire day stoned. You won't get much done. I try now to only use it in the evenings, or when the symptoms are very bad; I wouldn't get much done anyways in that case.
Some people can once tolerance builds...but I tend to agree with your statement. The medical effects of cannabis last much longer than the psychoactive effects. A few puffs of hash out of my vaporizer after dinner keeps my gut in check for 24+ hours. I've been experimenting with dosing and I think once you let the cannabinoids build up in your system, you can even switch it up to every other day.
12-11-2012, 06:16 PM   #293
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Thank you Area Man and FullM3lt. You bring up interesting points. Hopefully, pharmaceutical companies will design a drug that is effective in the body but does not cross into the brain. This should offer the best of both worlds (effective drug but minimal psychoactive effects). They are working on it now....

However, it appears that THC is not the end of the story. One study suggested that THC accounts for only about 30% of Medical Marijuana's efficacy. Many patients (at least for now) suggest Medical Marijuana offers the greatest benefit for keeping symptoms in check.
12-12-2012, 03:45 AM   #294
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Hello All,

Great posts and great information! I have been suffering from Ulcerative Colitis - pan colitis entire colon - for 4 years now. NO medications have worked for me except prednisone and even that only partially. I have even tried experimental medicines and nothing. I am curious now to give medical marijuana a shot and I live in California so it is legal here for medical reasons and I believe Ulcerative Colitis is one of the listed conditions. I have two questions:

(1) For those from California (southern California), who is a good doctor that I can see for obtaining a medical card for this?

(2) Can someone on the post advise me which strain/type in your experience has worked the best? I am not looking for highs, just to feel better and remission.

Thanks so much! Your advice is much appreciated!
12-12-2012, 03:46 AM   #295
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Oh and also preferably in southern California. Thanks! =)
12-12-2012, 04:27 AM   #296
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I don't know Southern California but that info could probably be found online w/out too much trouble.
I prefer Indica strains, I really can't explain why. I feel like Sativas kind of numb my brain too much. Also, I don't feel like marijuana has cured or even controlled my colitis, only given me some relief from the pain & discomfort associated w/the symptoms. I still need the conventional drugs. Mesalamine worked for me when I could afford it.
At this time I'm pretty sure I'm going to have to go back to sulfasalazine, even though it makes me feel like I'm coming out of my skin. I'm going to try it in conjunction w/marijuana to see if the grass will take the edge off. Hey, it might be better than the Xanax they were giving me!
12-12-2012, 10:52 AM   #297
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But I find that you can't walk through the entire day stoned.
What I did is take a week off for vacation, stoned myself solid for a week, then the week after that I was able to vaporize 3 times a day without feeling so euphoric or high I could do my job/

Now, people don't even notice anything. Hell, 99% of the people I know don't even know I consume cannabis on a daily basis multiple times a day. But to train your body to be resistant you will need to consume it on a regular (daily) basis for it to affect you only positively.
12-12-2012, 11:24 AM   #298
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How much would any form of THC cost? And do I need the leaves to make a tea or food? I'm in FL and have no insurance. Thanks
12-12-2012, 11:38 AM   #299
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How much would any form of THC cost? And do I need the leaves to make a tea or food? I'm in FL and have no insurance. Thanks
THC is a molecule, it is produced by the marijuana plant. Easiest way to get it is to buy the plant and then extract it for yourself. MM cost varies greatly and is more expensive in states in which it is illegal or still taboo (I hear Texas is a good example?). In my corner of the world, you should expect to pay between 120-250$/oz of dry manicured buds. Compassion centers may be able to help you out at much cheaper. I am unsure what the status of MM is in Florida, but compassion centers could exist.

The best way is to grow it yourself. This way you can choose exactly which strain of MM plant you want. Some plants have very low THC levels but higher CBD content, which reduces psychoactive effects and still provides pain relieving and anti inflammatory effects. You can grow a single plant very easily, stealthily in a closet for less than 200$ if you go on the cheap. A single plant may yield a few ounces every 3 months or so if you take care of it, ensuring safe, easy and very cheap access to your personal medical marijuana stash.

Once you have it, vaporizing is the safest and easiest way (by far) to get both THC and CBD molecules in your bloodstream. I find I get MORE pain relief both in duration and intensity if I make edibles. This requires making cannabutter first. If you'd like to go that route, I can help you down the line with a step by step process. You will need MM in plant form before though.

Last edited by FrancisK7; 12-12-2012 at 11:57 AM.
12-12-2012, 11:56 AM   #300
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Wow, thanks Francis, but FL is ZERO tolerance for drugs. I thought I would ask my doctor. Being from Harvard, he may not think much of this. The price is prohibitive too.
Thanks for the info!
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