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01-01-2013, 01:51 PM   #601
Catherine
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Were you seeing bile, it usually a bright yellow or sometimes green. When there is nothing left to throw you begin to bring up bile. Giving small amounts of water can help.
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Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
01-01-2013, 03:52 PM   #602
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I hope Freddy is soon feeling on top of things Suzysu. Poor little lad has enough going on, bless him.

Dusty.
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01-02-2013, 03:36 PM   #603
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Thanks everyone!
He had a load of dried bright green stuff on his sheets this morning, may have been bile but could have been from his ear as this also burst this morning although it was straw coloured creamy stuff with no green so who knows. His diarrhoea is disgusting tonnes of mucus and smells like something died! The Dr felt his tummy and said the pain he was having def wasn't appendicitis as he let the Dr touch his tummy, could be urinary although this is unlikely as he is a boy. Basically he said we had to treat what we can see ie the ear - but to keep a close eye on him and bring him back if things didn't improve. Poor thing he is so miserable and isn't really eating - he just needs a break and a chance to recover from everything.
01-02-2013, 03:43 PM   #604
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Oh Suzy I sure hope something gives soon for the lil guy - he definitely deserves a break!
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01-02-2013, 05:37 PM   #605
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Your poor little boy......he has been through so much.

He sure does deserve a break...... ..
01-02-2013, 06:12 PM   #606
my little penguin
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Hugs so frustrating
Hope they can get him better soon
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01-03-2013, 04:26 AM   #607
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Oh my goodness Suzysu...how heartbreaking for you and how unfair for him...

In my thoughts.
Dusty. xxx
01-03-2013, 06:53 AM   #608
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UTI are uncommon in young girls and even more uncommon in young boys they sometime refer to as a honeymoon disease.

There is condition called renal reflux. This is condition where due to a problem angle of the tube from the kidney to the bladder the urine is able to back flow which can cause kidney infections. It occurs in both boys and girls usually dx under the age of four.

My middle daughter was dx with renal reflux aged 2 and half. She presented with fever, vomiting of bile and what appeared to stomach pain. She had a kidney infection at dx. This one infection has resulted in scarring to her kidney.

It is a very simple test for UTI, I would ask your doctor to rule out.
01-04-2013, 09:52 PM   #609
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sorry it's so big ! How can I resize ?? Or someone ??

This is the 4th episode (or 5th?) in the last year that JJ get's these "sores" in his mouth. Can it just be a "cold sore" ? do you think?
Or should I still be thinking it's "ulcers" ? argghhh....
Attached Images
File Type: jpg user88593_pic2097_1357354080.jpg (72.4 KB, 81 views)

Last edited by DustyKat; 01-09-2013 at 11:51 PM. Reason: Photo resized
01-09-2013, 09:33 AM   #610
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Well we went to the follow up GI appointment this morning and JJ still has the ulcers in his mouth , so he is definitely getting the pill cam done !
Waiting on the appointment as we speak
Oh and he has lost 5 pounds in the last 4 weeks since he was here ... :/
01-09-2013, 12:44 PM   #611
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Sounds like the pill cam is definatly needed - I hope they can do it soon before he looses too much more weight - did they suggest supplementing with shakes or anything? sending lots of hugs xxxx
01-09-2013, 03:31 PM   #612
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Pill cam time! We're you able to get some of that magic mouth wash from the doc? My son got it and it is magic!

Hugs to you and yours!
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01-09-2013, 08:04 PM   #613
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Hugs ...
Not what you needed now but at least you know the drill.
Hope the pill cam gets you some answers soon.
01-09-2013, 11:58 PM   #614
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They are definitely apthous ulcers T.

It is good to hear that they are pursuing this hun but I hate that they feel the need to do so.

Sending my love and well wishes that it all comes to nothing mate. Is it possible that I can be as nervous as you are? YES!



Dusty.
01-10-2013, 12:50 AM   #615
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Dusty - please don't think I'm "stupid" ... But apthous ulcers are not just "cold sores" right ?
I'm sure I'm supposed to know this since I have a daughter with such severe crohns - but I don't :/
And, quite frankly I am not afraid to admit my ignorance - but it's only because I think it may benefit someone here :/
I know I said before that I was thinking if backing off , but after the follow
Up today I can't.
However , depending on the results of
The pill cam I could change my mind again...
I only admit this as well in case there is another parent feeling as I am - ...
Are we "searching" for something that just may not be there ?
It's truly a hard, hard road - especially when you already have a diagnosed child
01-10-2013, 01:06 AM   #616
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Oh T......there is nothing stupid about your question...

Mouth ulcers, as we call them, and canker sores, as you guys do, are different to cold sores. They both often occur when you are "run down" but again they are two different things.

I know exactly how you are feeling T, that was me in November 2010. God I hope more than anything that JJ doesn't follow Gab down this path. I feel so acutely your fear and uncertainty. I don't know if you have ever seen this old thread of mine T, I want you to see it only for the fact that you will know that what you are feeling is normal and natural and you are not alone...

http://www.crohnsforum.com/showthread.php?t=14192

I don't want to say this T, and I don't want to not say anything either. It is in no way a reflection on what JJ is experiencing but one of Matt's earliest symptoms when I looked back on things was mouth ulcers. I treated them at the time with B Complex and they went away and I never gave them another thought until he was diagnosed. They were present earlier in the year he was diagnosed.

Dusty. xxx
01-10-2013, 06:20 AM   #617
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I only admit this as well in case there is another parent feeling as I am - ...
Are we "searching" for something that just may not be there ?
It's truly a hard, hard road - especially when you already have a diagnosed child
I hope you are searching for something that isn't there, but you know(more than most) that the outcome can be so much improved if it is and you find it early. Thoughts and prayers T!
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01-10-2013, 09:13 PM   #618
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Wow Dusty !
No, I have never read that one ( I guess I didn't stalk you very well ! LOL)
I think the first of Matt's story I had previously read from was Dex's "update on Dusty's Matt" thread.
So, thank you for sharing that with me !
It does make me feel a bit better about my roller coaster of emotions concerning whether or not to proceed with testing for JJ.
01-10-2013, 09:24 PM   #619
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Oh T......there is nothing stupid about your question...

Mouth ulcers, as we call them, and canker sores, as you guys do, are different to cold sores. They both often occur when you are "run down" but again they are two different things.

I know exactly how you are feeling T, that was me in November 2010. God I hope more than anything that JJ doesn't follow Gab down this path. I feel so acutely your fear and uncertainty. I don't know if you have ever seen this old thread of mine T, I want you to see it only for the fact that you will know that what you are feeling is normal and natural and you are not alone...

http://www.crohnsforum.com/showthread.php?t=14192

I don't want to say this T, and I don't want to not say anything either. It is in no way a reflection on what JJ is experiencing but one of Matt's earliest symptoms when I looked back on things was mouth ulcers. I treated them at the time with B Complex and they went away and I never gave them another thought until he was diagnosed. They were present earlier in the year he was diagnosed.

Dusty. xxx
DustyKat
Well where's the rest of the thread of that link????? I have to find out if you son did get Crohn's? (I know he did but remember my life is simple and I want to know how you found out? Very suspenseful so far.)
01-10-2013, 09:27 PM   #620
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Update on Dusty's Matt

Here it is...happy reading !
01-10-2013, 09:29 PM   #621
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Thanks. I'll pop some popcorn and get all cozy and read about Dusty's life. Feel safe Dusty?
01-11-2013, 04:32 PM   #622
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I feel very safe. It is you I feel very sorry for.

Happy reading!

Dusty. xxx
01-14-2013, 09:06 PM   #623
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I feel very safe. It is you I feel very sorry for.

Happy reading!

Dusty. xxx

Dusty,

I would think that was funny, if it wasn't so stinking true!


01-14-2013, 09:18 PM   #624
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T......... Yes, that's an aphthous ulcer. No not a cold sore. Yes I know you already know that now. Sigh.......

Staying tuned for a pillcam post.....

((((Hugs))))

J.
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Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

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No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP
01-14-2013, 09:38 PM   #625
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Thanks J - much love !
01-14-2013, 09:43 PM   #626
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By the way - I bought JJ some Boost drinks over the weekend and asked him to drink them for breakfast. They are vanilla flavored (he is a VERY picky child) he leaves for school at 5:55 a.m. So hasn't been eating breakfast this school year much (or lunch - claims he's not hungry) anyhow - today was the first day and he liked them! mommas happy, and it's easy and nutritious for him to take with him on his way to the bus
Hopefully they will help him even just get a little nutrition and stop losing weight
01-14-2013, 10:21 PM   #627
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Woohoo for boost
CAn you send one with a cold pack for lunch
So if he doesn't eat at least it's something????
We did this in the beginning with DS prior to dx
01-14-2013, 10:22 PM   #628
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And I'm still doing it with my EoE skinny kid!
01-14-2013, 10:31 PM   #629
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That's a great idea mlp -
Being so short he may be concerned with taking them to highschool for lunch for fear of being made fun of - but, I will definitely see how he feels about it
01-14-2013, 10:34 PM   #630
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He should tell anyone who asks that he's "bulking up" . That's what Hunter told his friends.
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