Share Facebook
Crohn's Disease Forum » Treatment » Low Dose Naltrexone » Going to see an LDN doctor Tuesday.


05-21-2011, 12:07 AM   #1
BosnianboyCD
Member
 
BosnianboyCD's Avatar
 
Join Date: May 2011
Location: Kent, Ohio
Going to see an LDN doctor Tuesday.

Hey guys, I'm pretty excited. I found a doctor who prescribes LDN in NYC. He doesn't work with insurance, so it's going to be a little pricey. However, if I can try LDN, then I'm willing to pay the money. I have a bunch of questions for the doctor. Whether or not I should build up the dosage, or perhaps use a cream. I'll keep everyone updated!
__________________
http://www.facebook.com/ihadzovic
21 year old student at Kent State University. Born in NJ lived in Bosnia for 6 years.
Diagnosed in 2003 at the age of 13 with UC. 2011 Diagnosis changed to Crohn's Colitis.
Had a few remicade infusions. saved my colon. Ineffective now.
Currently taking eight pills a day- Sulfasalazine. Flaring up moderately.
05-23-2011, 07:59 AM   #2
mizgarnet
Senior Member
 
Join Date: Dec 2010
Location: spartanburg, South Carolina
Yay!!! LDN has ups and downs in the beginning. I have been taking it for 6 months. I now have more energy than I had in my 20s.

Wendy
__________________
DX'd - 1991
05-23-2011, 09:02 PM   #3
BosnianboyCD
Member
 
BosnianboyCD's Avatar
 
Join Date: May 2011
Location: Kent, Ohio
Really? That's what I heard. It's probably the immune system adjusting? Has it been working for you?
05-24-2011, 07:26 AM   #4
mizgarnet
Senior Member
 
Join Date: Dec 2010
Location: spartanburg, South Carolina
Yes it is working. The only time I have Crohn's symptoms is if I eat something I shouldn't- namely fast food. I will have the big d a couple of times and then back to normal. I still have some fatigue if I eat junk. It does not last more than 2 days and it is just a "gees I want to take a nap" feeling. The really wonderful thing is that I enjoy life again and I am able to pamper myself. Now, prepare yourself, this is not a quick fix and it is not always smooth sailing. I went from d to formed and back again for weeks. I went from energy to exhausted for weeks. I had a set back at 3 months. The setback lasted 2 days. I am experiencing some immune system adjustments now that are non Crohn's related. I really hope you do as well on LDN as I have. To have my life back is an amazing gift. I do take other supplements and try to eat right. I think probiotics are very important in the healing process.

Wendy
05-24-2011, 12:14 PM   #5
BosnianboyCD
Member
 
BosnianboyCD's Avatar
 
Join Date: May 2011
Location: Kent, Ohio
Thank you so much for the feedback : ) I'm not going to give up in this drug. I'm going to give it half a year and see where I'm at!
06-02-2011, 06:59 PM   #6
Miss
Member
 
Miss's Avatar
 
Join Date: Sep 2008
Location: Pennsylvania
There is also a doc that does phone consults, this happens to be my family doc as I'm fortunate enough to be local to him in PA. I think his info is on the site at www.lowdosenaltrexone.org
I've been on LDN for two and a half years and symptom free for over two years now.

Good luck!

Miss
__________________
39 yr. old homeschooling mom of 3
Diagnosed Crohn's 06/08, then UC 08/08
Asacol made me worse, severe reactions to Remicade
Currently taking LDN since 10/08, doing very well
www.lowdosenaltrexone.org
06-07-2011, 09:23 AM   #7
gt91
New Member
 
Join Date: Mar 2011
Hi Miss, I also am very much interested in LDN, but couldn't find a doctor that is willing to prescribe. Do you have the name and the phone # of the doctor that does phone consults? I couldn't find it on the website.

Thanks so much!!


There is also a doc that does phone consults, this happens to be my family doc as I'm fortunate enough to be local to him in PA. I think his info is on the site at www.lowdosenaltrexone.org
I've been on LDN for two and a half years and symptom free for over two years now.

Good luck!

Miss
06-07-2011, 08:58 PM   #8
Miss
Member
 
Miss's Avatar
 
Join Date: Sep 2008
Location: Pennsylvania
I'm not sure if I can post something like that here but I know you can get the information on the site for a compounding pharmacy and call them and they will probably give you the nuimber for the doctor in PA that does the phone consults. Call Skips Pharmacy first. The doctor will want you to fax or email any records to support your diagnosis along with whatever current meds you are taking, etc.....

Good luck,

Miss
Reply

Crohn's Disease Forum » Treatment » Low Dose Naltrexone » Going to see an LDN doctor Tuesday.
Thread Tools


All times are GMT -5. The time now is 11:46 PM.
Copyright 2006-2017 Crohnsforum.com