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05-25-2011, 05:44 PM   #1
JodiMaddie
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Join Date: Apr 2011
Kids with UC

Kids with UC

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Just wondering if anyone has any children that have Ulcerative Colitis that would be willing to chat with my daughter . She feels so alone and I think this would benefit her greatly ! Thanks so much Jodi
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Diagnosed: My 10 yr old daughter was diagnosed in 2010 with UC
Medications : Pentasa 4 tabs a day , Tapering of Prednisone again at 20mg currently , Imuran 100mg ,Prevacid OD and Multivite.
05-25-2011, 06:13 PM   #2
troydanielbecker
Senior Member
 
Join Date: Jan 2011
Location: Houston, Texas
It's a great request! Isaac is too young probably, and might need a translator but there are others you can hopefully connect with...
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Troy
Father of Isaac, dx UC in 10/2010 at 29 months old
Read details here: http://ibdinourhome.blogspot.com
05-25-2011, 07:23 PM   #3
JodiMaddie
New Member
 
Join Date: Apr 2011
lol Troy Im so sorry Isaac has this horrible disease at such a young age I thought Maddie was young being diagnosed at age 9. How is he doing ?
05-26-2011, 06:00 AM   #4
izzi'smom
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Join Date: May 2011
Location: New York

My Support Groups:
What a great idea...my daughter is too young also, but my MD told me that bigger cities have support groups (and have meetings IRL)...alas we aren't near one of them, but it may be an option for you!
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
05-26-2011, 08:25 AM   #5
troydanielbecker
Senior Member
 
Join Date: Jan 2011
Location: Houston, Texas
Isaac is doing fine these days. Getting ready for a birthday in 3 days now!

He is tapering off of steroids and seems to be pooping like a normal kiddo again...
06-01-2011, 09:54 PM   #6
gypsigirl28
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Join Date: Jul 2010

My Support Groups:
hi, I have not been on in a while due to moving and such, I jsut read this post and i to feel this is a great idea. Miss maddie is also to young being only 3yr but i hope you connect with someone that can chat..
good luck
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Rosemary
Grandmother of Madasin
Madasin was diagnosed at age 22 months old
with UC
10-15-2011, 07:43 AM   #7
QueenGothel
Senior Member
 
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Join Date: Oct 2011
Location: Michigan, USA
My 3 year old daughter Rowan was diagnosed with UC yesterday. She is too young yet. She don't understand what is happening. Neither do I. I feel so alone in this fight. Thank god for this forum. Much praying going on. Best to u and ur kids.
10-26-2011, 10:10 PM   #8
samilou
 
Join Date: Jul 2011
Our daughter Sam is 11 and was diag. at 8 and we have tried everything and finally convinced our GI to try LDN and have been on it for almost a month. So far so good blood test came back with great improvement and bm have gradually decreased from 12 to 3 times per day. Keeping fingers crossed we have finally found something that works! She would be happy to talk with any of the kids out about what they are going through.
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