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Crohn's Disease Forum » Treatment » Prednisone/Entocort » Another pred thread!!! Exciting!!!!


05-27-2011, 04:29 AM   #1
lulu2
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Another pred thread!!! Exciting!!!!

Hey guys just a teeny bit of advice please?

Just taken my 3rd dose of 40mg/day pred. Last night after 2 days on pred I was woken up in the night by my crohns again (a sure sign things are bad!). So I'm just wondering, I've never had a course of pred before... how long do these babies take to work roughly? Should I be worried that it's not working?

Thanks

xxxx
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Currently LOVING my job!!
Currently NOT loving my crohns!!

26 yrs old.
Currently taking: prednisolone 30mg/day, Azathioprine 25mg/day then 50mg in 2 weeks (well actually I've temporarily wimped out of this) 8g pentasa a day, folic acid and various cardiac meds.

Any advice I give must never ever ever replace the advice from your own doctor and care givers. They know far better than I do!
05-27-2011, 05:27 AM   #2
gmm
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ive found that about a week to feel the easing effects and a fortnight for it to really do its stuff ive neen on pred basically for 9 years ish at high ish doses, cept last year but am back on it again hoping another week and ill be able to eat normally again give it a few weeks at 40 mg im sure itll kick in for you and youll feel the difference
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have taken, pentasa, prednisolone, entecort, methotrexate, azathioprine, mercaptopurine,thalidomide,infliximab,humira,sulpa salazine
right hemicolectomy, gallbladder removed,and a few perianal abscesses operated on, currently at stalemate with the surgeons over options,2013 took a gamble on surgery and lost, ended up with an ileostomy in september
05-27-2011, 05:34 AM   #3
lulu2
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Thanks! So after just 2-3 days it's a little optimistic to expect a dramatic change? lol


Hope you're feeling well soon!

xxx
05-27-2011, 06:59 PM   #4
Chuck2008
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For me all the symptoms took about 3 or 4 days to go away.. the bowel related symptoms were the last to go. The arthritis symptoms disappeared in a few hours though, that was wonderfull
05-27-2011, 07:24 PM   #5
lola99
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When I started taking predisone my doctor said it would take 1-2 days to start to feel better. Well my dose was only 20 mg and I just have inflammation and bad cramps. So I felt better after probably the 2-3 day. I still have some cramping but not like before. I'm weaning right now and still have the occasional cramps but I am taking entocort too.
05-27-2011, 08:14 PM   #6
Crohn'sFor Life
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It takes 1 to 2 weeks for Prednisone to work for me.
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Diagnosed July 2, 2009 Crohn's Colitis

Colon removed September 26, 2011.
Pathology showed UC instead of Crohn's.

I have arthritis that is very similar to RA, but not RA because I had UC.

Autoimmune related itch.

Meds: 15 mg/week Methotrexate for RA
Cetirizine for the itch
05-28-2011, 05:40 AM   #7
lulu2
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Hey guys, I'm on day 4 and they symptoms are EASING!! I've had a relatively normal BO this morning and I slept all night without needing the loo and my HUGE mouth ulcer is smaller and less painful :-) it's WORKING!!! I'm sooooo happppyy!!

I know it wont last and I will flare again at some point, but for now I'm ecstatic!

xxx
05-28-2011, 07:58 AM   #8
deedee
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I've never been on pred, just wanted to say sorry you had to go on it, lulu, that really sucks. But SO glad to hear it's working and you're feeling better! :-)
05-28-2011, 10:51 AM   #9
Nisso
 
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Location: Oslo, Norway
Hav been on the stuff for 3 weeks now, and tapering, and just had my first normal BM in over a year! Not to loos, not to hard, no blood, no 2hour pain afterwards, just perfect! And as I have painfully learned, it IS the little things that makes a difference.
Sometimes Pred can be an awful drug, but its also the most wonderful drug in the world Good Luck!
05-28-2011, 03:15 PM   #10
lulu2
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Thanks deedee!! It is a bummer to be on it but it's not for long and it's WORKING!!! I functioned like a normal human today and went out! I'm VERY tired now, but my pain has been MUCH less, my toilet visits have amounted to ONE (I cant quite believe this myself!!) and my mouth ulcer as i mentioned before, although to look at it still quite big, its definitely shrinking and doesnt hurt like it did!

Nisso I agree, right now pred is the most wonderful drug!! :-) I've been NORMAL today.... it's been a good day and I'm so happy I could cry!!

xxx
05-28-2011, 03:48 PM   #11
Tanachild
 
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I, also, have to take prednisone. It taste terrible! I have to take thirty ml, but will start weening off soon. It makes my face swell up and I look like I have a fish bowl on my face. Normally, my face is very pale, but with the prednisone, I look like I'm sun burned and I haven't even gone outside!

When I was in the hospital, they gave me the IV steroid, but they switched me to oral and it's like I took a couple steps back. The prednisone really started to work orally after about two weeks compared to the IV which only took a few days.
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xoxo,
Tana

The medicines I'm on:
Gabapentin- 400 MG
6MP- 75 MG
B12- 100 MCG
Calcium- 1200 MG
Lansoprazole- 30 MG
Prenatal Vitamins- for hair--not pregnant
One a day for teens vitamin
Biotin-5000MG
Hyoscyamine- .125 MG (when necessary)
Promethazine- 25MG(When Necessary)

I HAVE REACHED REMISSION!!
05-28-2011, 05:11 PM   #12
bruscar
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Delighted for you lulu,

Eh not so delighted that you took your lovely photo down !! . .

xx
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5 surgeries,(so far!)Crohn's colitis,permanent ileostomy,post herpatic neuralgia (from shingles)
05-30-2011, 10:48 PM   #13
SdN
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The best description I've heard of prednisone is that it's like a credit card, buy now pay later. Happy it's working for you but please be very careful with it especially when you are tapering off of it.
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Diagnosed with Crohn's September 2009

50mg Imuran - Jun 2010
increased to 150mg Imuran - Jan 2011
5mg/kg Remicade every 8 weeks - Mar 2011
stopped Imuran - Aug 2011
7.5mg/kg Remicade every 8 weeks - Nov 2011
Remicade is still working - Nov 2014
Colonoscopy shows no Crohn's! - Dec 2014

Current meds - 7.5mg/kg Remicade
05-31-2011, 11:14 AM   #14
lulu2
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Lol buy now pay later.... well it's only been a short course so I'm optimistic it will be ok!! Just enough to reign things back into some sort of control.

Lol thanks Bruscar... I took it down cos well read the red part of my signature... I'm uncertain of how much anonymity to give myself if i'm honest... I also have to be careful of what advice i give, hence the disclaimer... im new to this and just finding my feet i guess!! :-)
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