my road to freedom
hi my name is jamie i have had crohns since i was 10 yrs old had some bouts here and there the regular flair ups fistulas that needed operations but i did the remicaid treatments and whala no more fistulas but about 2 yrs ago my crohms said hello here i am hear me roar and roar it did:mad2: it started with severe anemia due to the internal bleeding first hospital trip then from there to make a long story short 40 more trips and 9 operations later i know have an ileostomy. i have lost alot in the past 2 yrs friends my boyfriend but i also have gained alot a sense of who i am and what i can be those who i say i lost it is thier loss i also have fibromyalgia anemia and have had 4 blood clots in my lung so i have had a rough trip at a time after the first couple ops i withdrew felt dispair seemed i would never get better my gi wanted me to do humara but i kept getting infections or crohns would act up and have to cut more out so all my docs said to me we are going to do the humara and something told me to push for the ostomy thank god i did they all argued and pleaded with me but i said no shots well when they went in they found so much disease and infection that if i would have done the treatment i would have died every one of my wonderful docs apologized which does not happen often lol especially my surgeon lol i have one more op coming up my stoma has been receeding so they r going to fix that well thats the gist of my journey lots not written but i am hoping to find friends with whom i can relate to my ostomy is now 7mths old mentaly still trying to come to terms. thank youu for reading my story and hope to chat with you all!!!:ybiggrin:
hi my name is jamie i have had crohns since i was 10 yrs old had some bouts here and there the regular flair ups fistulas that needed operations but i did the remicaid treatments and whala no more fistulas but about 2 yrs ago my crohms said hello here i am hear me roar and roar it did:mad2: it started with severe anemia due to the internal bleeding first hospital trip then from there to make a long story short 40 more trips and 9 operations later i know have an ileostomy. i have lost alot in the past 2 yrs friends my boyfriend but i also have gained alot a sense of who i am and what i can be those who i say i lost it is thier loss i also have fibromyalgia anemia and have had 4 blood clots in my lung so i have had a rough trip at a time after the first couple ops i withdrew felt dispair seemed i would never get better my gi wanted me to do humara but i kept getting infections or crohns would act up and have to cut more out so all my docs said to me we are going to do the humara and something told me to push for the ostomy thank god i did they all argued and pleaded with me but i said no shots well when they went in they found so much disease and infection that if i would have done the treatment i would have died every one of my wonderful docs apologized which does not happen often lol especially my surgeon lol i have one more op coming up my stoma has been receeding so they r going to fix that well thats the gist of my journey lots not written but i am hoping to find friends with whom i can relate to my ostomy is now 7mths old mentaly still trying to come to terms. thank youu for reading my story and hope to chat with you all!!!:ybiggrin:
