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05-31-2011, 06:35 PM   #1
mayhavecrohn's
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my story i may have crohn's also i just joined

i may have crohns diease my reg doctor is sending me to a GI doctor to be tested for it because something is really going on with me i have been sick throwing up off and on and having the diarrhea for 2 weeks now and also having alot of stomach pain i am scared because there is something really going on at first my doctor throught it was the flu but i am not getting any better what should i know before i go to the GI doctor? and by the way my name is leah and i am 26 years old and married and i have alot of problems that is causeing me chronic pain i have a diease called endometriosis and also have fibromyalgia to its a sister to endometriosis atleast thats what i have heard and now my doctor thinks i could have crohns and also when i had my 3rd surgery for the endometriosis the doctor who done the surgery said my colon is very very inlarged its 3 times the size it should be could that be because of crohns?
05-31-2011, 06:41 PM   #2
mayhavecrohn's
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i am scared about having my first colonoscopy because my reg doctor told me i may need one to find out whats going on with me
05-31-2011, 08:13 PM   #3
lola99
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Nothing to be scared about with colonoscopies. i had my first at 20 years old and my 2nd a few months ago. You don't even know they did anything to you. ITs the prep that sucks because you have to drink a ton of liquid on an empty stomach and it can make you want to puke. Its interesting though. I got pictures of my colon. I had a egd too(went down my throat).Couldn't even tell they went down my throat. I got diagnosed with crohns just a few months ago and all i had was inflammation and swelling of my intestines. I got a partial blockage from the swelling and had to go to the er in severe pain. I've never had naseua or bloody dirrehea like alot of people with crohns. So I really think each person has their own "symptoms". My biggest problem has always been horrible abdominal cramps. I hope they figure out whats wrong and I'll pray its not crohns.Good luck!
05-31-2011, 08:16 PM   #4
aubreyl88
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I believe you are right about each person has there own symptoms for Crohns. I found out about 2 weeks ago, I went into the ER bleeding from my intestines.. Stayed there and did the upper GI then that night prepped for the lower GI (horrible stuff). I didnt feel anything on the lower gi I woke up in the middle of it in a daze. They discovered the right side of my small intestine is inflamed and swollen. And they also took biopsies.
05-31-2011, 08:44 PM   #5
mayhavecrohn's
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i am having awful abdominal cramps to i mean server in 2007 i had to have a upper scope done and i woke up when they was doing it and was fighting them i was having trouble then but they keep saying nothing is wrong with me but i know there is something wrong and i will find out when i go to the GI doctor
05-31-2011, 08:44 PM   #6
mom2twogr8tkids
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I was diagnosed with crohn's when I was 16 and I'm now 28. I've had numerous colonoscopies..they're a piece of cake! To make things easier on you...ask your Dr. about giving you pills instead of liquid. I take the pills when I have my colonoscopies..it's about 40 something pills. You take several every 15 mins for a couple of hours. They're so much better!!! I have endometriosis as well and as far as symptoms for crohn's, there are alot of general symptoms but certain symptoms may be for severe for some than they are for others. If you have any questions I'll be more than happy to help in any way I can. Good Luck to you! I'll keep you in my prayers!
06-01-2011, 09:51 PM   #7
mayhavecrohn's
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what stage are you with endo? i am stage 3 almost stage 4
06-02-2011, 09:40 AM   #8
Astra
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Hiya Leah
and welcome

We have a few Crohnie Ladies with endos, I was one of them, but I had a hysterectomy 11 years ago, Yay!
have a read of this
http://www.crohnsforum.com/wiki/Endo...=endometriosis

If you do have an IBD, discuss endos with the gastro, and keep your gynae in the loop if you get a dx of Crohn's.
Good luck and
lotsa luv
Joan xxx
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06-02-2011, 10:53 AM   #9
taylor
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i dont want to be a downer folks but i had my 1st colonoscopie when i was 10 yrs old and needless to say after i was 14 i cant ever have one again,i was diagnosed w/ulcer,colitis at 9 and crohns at 18 and still dealin with the outcome,i am new here and if u have Q,s i got some answers,and ive never discussed it with noone and im 36 and i have finally relized i need to talk cuz ive got Q,s,so there i said it i need....help.
06-02-2011, 02:54 PM   #10
mayhavecrohn's
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@ taylor i know what you mean and i am here to listen if you need to talk ok
06-02-2011, 04:13 PM   #11
ameslouise
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Hi Leah and welcome!

Deep breath and try to relax. The first step, or steps, is lots and lots of tests to see what's going on. Be patient and realize that it might take several tries to get a dx. Like Joan said, there are many ladies here with endo and it does seem to make Crohn's more complex.

Hang in there, be strong, and know that whatever you are going thru, there's someone here who has probably been thru almost the exact same thing.

Good luck and keep us posted!! - Amy
06-02-2011, 04:14 PM   #12
ameslouise
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i dont want to be a downer folks but i had my 1st colonoscopie when i was 10 yrs old and needless to say after i was 14 i cant ever have one again,i was diagnosed w/ulcer,colitis at 9 and crohns at 18 and still dealin with the outcome,i am new here and if u have Q,s i got some answers,and ive never discussed it with noone and im 36 and i have finally relized i need to talk cuz ive got Q,s,so there i said it i need....help.
Welcome to you, too, Taylor - we'd love for you to start your own thread with your story so we can all learn about you, too!!

- Amy
06-02-2011, 04:34 PM   #13
mayhavecrohn's
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i am having blood in my stool now i called the reg doctor but they have not called me back yet i am scared now
06-02-2011, 10:01 PM   #14
mom2twogr8tkids
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what stage are you with endo? i am stage 3 almost stage 4
I can't remember what stage I am...I just know it was bad. I had to injections that send you into partial menopause and had a few surgeries.
06-03-2011, 10:53 AM   #15
dreamintwilight
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Hey Leah.

Hope the doctor called you back yesterday and gave you some answers as to what to do. Hope you're doing alright.

Check in when you can.
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February 2010 - diagnosed with Crohn's disease.
January 2011 - Inflammation downgraded from moderate-severe to mild with no symptoms!
January 2014 - adopted a mostly Paleo diet
May 2015 - still in remission!


Currently Taking
Humira - 40mg/week
Imuran - 125 mg/day
Calcium magnesium citrate
Fermented cod liver oil/butter blend
Culturelle probiotics
Vitamin D
Vitamin C
Biotin
Allegra
06-03-2011, 12:25 PM   #16
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Welcome Leah!

I'm sorry to hear that you are going through this. I had blood in my crap as well and that's what forced my mom to take me back to the ER. Colonoscopies are easy and the prep is the worst part. I had my first one last month at the age of fourteen. I hope everything goes well. Good luck!
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The medicines I'm on:
Gabapentin- 400 MG
6MP- 75 MG
B12- 100 MCG
Calcium- 1200 MG
Lansoprazole- 30 MG
Prenatal Vitamins- for hair--not pregnant
One a day for teens vitamin
Biotin-5000MG
Hyoscyamine- .125 MG (when necessary)
Promethazine- 25MG(When Necessary)

I HAVE REACHED REMISSION!!
06-06-2011, 12:59 AM   #17
mayhavecrohn's
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no the doctor has not called me back yet and i am still having blood in my stool i am going to call them when i get up in the morning and see why they did not call me
06-06-2011, 11:32 AM   #18
dreamintwilight
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If they don't call you back, please go to the ER. Losing large amounts of blood is never a good thing. Hope you can get in touch with the doc today!
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