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Crohn's Disease Forum » Your Story » Success Stories » Sarah…9 Years On... :)


 
06-22-2011, 06:31 AM   #1
DustyKat
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Sarah…9 Years On... :)

Diagnosis:
Sarah went undiagnosed for 18 months until she underwent emergency surgery in July 2006. All tests, including blood and CT Scans returned normal results, she never had a colonoscopy as IBD wasn't on the radar.

Surgery:
Sarah went into theatre for a laparotomy and appendectomy and came out with an (R) Hemicolectomy. She had 59cms of small bowel removed and 9cms of large bowel.

Prescribed Medication:
Following surgery Sarah was commenced on Azathioprine 50mg daily as a maintenance medication and remains on that dosage to this day. Due to the removal of her terminal ileum she also takes Folic Acid 5mg three days a week and B12 injections every 3 months.

Ongoing Treatment:
Initially GP/GI visits and blood tests were very frequent. After 5 years she sees the GI every six months and has blood tests every 2-3 months.

Diet & Execise:
Sarah was left with the legacy of chronic diarrhoea following surgery and early on had difficulty managing it as she found the medication to deal with it be of little use for one reason or other. Over the years she has found that a vegan diet suits her best and natural psyllium husks take care of the frequent bowel motions, allowing her to lead a relatively normal day.
Sarah goes running when she gets the chance as she says she finds it both relaxing and a buzz!

Education & Extracurricular Activities:
Sarah was diagnosed in 2006 when she was 14y/o and in grade 9 at school. She has gone on to complete high school and is now in her second year at university. She moved away from home when she finished high school.
She has a part time job as the student welfare officer at the university and has a very strong interest in politics. She recently ran as a candidate in the state election and now holds a position on the executive of a political party. She is also the president of the local branch of the political party.

So 5 years in remission next month and during that time she has had no relapses. Goes without saying that I hope it lasts a lifetime!

Onward and Upward,
Dusty. xxx
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Last edited by DustyKat; 07-18-2015 at 09:07 AM. Reason: Update
06-22-2011, 06:37 AM   #2
Dexky
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I know this story as well as my own and yet am compelled to read it every time! She's truly a remarkable young lady!...and quite easy on the eyes too
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Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
06-22-2011, 06:43 AM   #3
Welsh-bird
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She follows her dad Dex!
One day I may well post here too......
xx
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Andrea


Diagnosed UC 1999, Re Dx'd CD April 2011, Gastritis Dec 2010.
Resection Jan 2011, Total Colectomy 18.03.2011
Hoping to get a break sometime soon......
06-22-2011, 08:17 AM   #4
Karissa
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She is an inspiration! You must be very proud
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Diagnosed with Crohn's in June 2001, age 11
Severe Ileocecal disease

Surgery on November 6, 2009, age 19
Open ileocecectomy
Currently in remission

Meds tried: Pentasa, Prednisone, Cimzia, Flagyl, Asacol, countless natural remedies

Meds currently taking: 6MP

My reading blog, Addicted to Reading

Walking in Take Steps for Crohn's and Colitis in September, with my team Karissa and Laura's Fabulous Friends. Make a donation here, thank you!
06-24-2011, 11:39 PM   #5
DougUte
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Her surgery was almost the same as mine. This gives me hope mine will get under control. Thanks to Roo!
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Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
06-25-2011, 12:21 AM   #6
soretum
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always great to read success stories!
06-25-2011, 01:08 AM   #7
AndiGirl
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Roo and her Crohn's history/recovery is inspirational. She is the type of girl who will go far in life.
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Diagnosed with Crohn's Disease in 2005

Pentasa 2x500mg (4 times a day)
Zofran (as needed for nausea)
Ginger Capsules (for Nausea)
Multivitamin
Zoloft 150 mg
Ranitidine 150 mg (2 times a day)
Entocort 3 mg (3 capsules by mouth for 8 weeks, then tapering to 2 capsules for three months)
06-25-2011, 02:25 AM   #8
Jennifer
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She's doing very well for herself in more ways than one. Very good job!
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
06-25-2011, 04:31 AM   #9
DustyKat
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Thanks guys. Your compliments to Sarah are so very much appreciated...

Much love,
Dusty. xxx
06-27-2011, 06:10 PM   #10
xJillx
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I really enjoyed reading about Sarah's success. It is truly inspirational. Thanks for sharing!
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Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
06-27-2011, 07:30 PM   #11
Keona
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Dx GERD 2008
Dx Gastritis & hiatal hernia Feb 2010
Dx non-definitive Crohn's June 2010
Dx Endometriosis April 2011

"if nothing changes - nothing changes

Facebook: http://www.facebook.com/profile.php?id=530585394
06-27-2011, 08:13 PM   #12
penguin
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So wonderful to read this Dusty about how far Sarah has come. She is a tough young lady. These young ones are full of so much courage at an early age :bhug:
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Penguin x

Me - Undiagnosed, awaiting test results, etc. IBS diagnosis in 2000 no longer 'fits'.

Also, Mum to a brave 4yr old daughter who has gastrostomy stoma and numerous gastro problems of her own.

07-09-2012, 02:20 PM   #13
DustyKat
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Well another year has ticked over and Sarah is now 6 years in remission!

She looks fab and feels well, has no symptoms and is doing well on her second attempt at a raw vegan diet. She is no longer using psyllium and is having 1 or 2 solid and absolutely normal bowel motions a day.

Happy Anniversary!!!

Dusty. xxx
07-09-2012, 03:01 PM   #14
Angrybird
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Am so pleased she is still doing well, long may it continue!
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
07-09-2012, 03:04 PM   #15
Astra
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Wow, what a trooper! Excellent news. And Matt? Hope he's doing brill too.

I've had Man Flu so I've got a lot of catchin up to do!
xxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

07-09-2012, 11:26 PM   #16
David
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That's fantastic!

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It's good to be back
12-04-2012, 11:16 PM   #17
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Good story Sarah, well done
07-14-2013, 03:57 AM   #18
DustyKat
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Just updating Sarah's progress.

On the 10th of this month Sarah passed the seventh year of remission mark.

She continues to do well and is showing no signs or symptoms of Crohn's. She is still on a vegan/raw vegan diet, has moved back on campus and is in a relationship she is very happy with. She will finish her undergraduate degree this year and plans on doing a Dip Ed (Diploma of Education) next year.

She is in control of her own health so aside from the fact that she looks well and says she feels well I have no real idea of what she up to in regard to that!

Let the good times roll!

Dusty.
07-14-2013, 06:24 AM   #19
Dexky
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Let's party
07-14-2013, 07:41 AM   #20
upsetmom
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..I hope her remission lasts forever.
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Daughter dx CD March2012...
(aged 14)

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Dx Premature Ovarian Failure 2014



07-14-2013, 08:26 AM   #21
my little penguin
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and lots
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07-14-2013, 09:52 AM   #22
Crohn's Mom
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Always love to hear of Sarah's remission success and how well she is doing in life !
I love that she is also in complete control of her own health now - you've taught her well and given her the confidence to stand strong and be her own advocate mom!
Great job !

Xoxoxoxox
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~T~
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DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
07-14-2013, 11:49 AM   #23
xX_LittleMissValentine_Xx
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Good to hear Dusty! What medication is she on?
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~Holly~
Diagnosed with CD March 08 at 17
Currently on:
Infliximab

Past:
Pentasa
Prednisolone
Azathioprine

My blog: http://hollysbloggyness.blogspot.com/
07-15-2013, 06:39 AM   #24
DustyKat
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Thanks guys!

@LMV - Sarah is taking:

Prescribed meds -
Imuran 50mg daily
Folic Acid 5mg x3 weekly
B12 injections 3 monthly

OTC
Psyllium Husks
Vit D
Calcium
I know there are others but I am not sure what they are.

Dusty. xxx
07-15-2013, 07:06 AM   #25
Niks
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Excellent news!
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Daughter 22, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteopenia bordering on osteoporosis



Peristeen Irrigation every other day.
Citramag/Picolax

Waiting for bowel stimulator!
07-22-2013, 06:24 AM   #26
Angrybird
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Such brilliant news!
07-22-2013, 07:03 AM   #27
DustyKat
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Hi AB!

Hope all is well with you and bub!

Dusty. xxx
07-22-2013, 09:58 PM   #28
Tesscorm
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Sorry I missed this before! Fantastic that she's doing so well, Dusty!!! Really great to hear!!
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-12-2014, 08:20 PM   #29
DustyKat
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Well another year has passed and the title has been changed to 8 years.

On the 10th of this month Sarah passed the 8 years in remission mark. She is home again now and studying for her Masters in Primary Education and with her back under our roof I can see that she is doing well with no signs of Crohn’s. She has pulled back a little from the vegan diet and now has the occasional meal of seafood and meat but continues to juice and primarily maintains a clean eating diet.

She is a week back now from her holiday to the US and she absolutely loved it! I think everywhere she visited she made the grand statement that she could so live there. Who knows, one day she just might!

I hope these little updates give others hope and show that beyond the dark and dismal days of flaring there is a light shining for you.

Onwards and Upwards and continuing to keep my fingers crossed!

Dusty.
07-12-2014, 09:55 PM   #30
Clash
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So awesome to hear your great updates on Sarah! Glad she enjoyed her trip!
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Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
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