Share Facebook
Crohn's Disease Forum » Your Story » Success Stories » No Pain at all, anywhere!


06-22-2011, 03:45 PM   #1
Astra
Moderator
 
Astra's Avatar
 
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
No Pain at all, anywhere!

I was diagnosed in 2005 after 15 years of misery and being told I had IBS, long boring story!

Treatment - I've tried Azathioprine and 6MP but was allergic to both and was taking
Pentasa 2 x 500mg four times a day

I was hospitalised in January 2010 for a week, I was blocked and peritonitis was setting in, apparantly I was hours from rupturing and near death!
Metronidazole and Prednisolone saved my life and I avoided surgery. Phew!

I was on Pred for nearly a year and suffered terrible withdrawal symptoms when I reduced it, so I went on Entocort. This was ok but gave me terrible joint pain. So then I discovered my favourite med, Amitriptyline!
This med has given me so much relief, I haven't got any headaches or joint pain, and it helps me to sleep.
I also believe it's stopped bowel spasms too.

8 weeks ago I started with some niggly pains in LRQ and had diarrhea, this was nipped in the bud with some Entocort. This pain was shouting 'Hey! I'm still here ya know!' I only took it for a month then stopped.

Here we are, 18 months later and I'm in remission and med free, except for 2 Pentasa a day and an Amitriptyline at night.

I see gastro on 1st Aug and I'm hoping he will confirm it.
I've had a very stressful 2 weeks but haven't flared up, I feel great!
I have no belly aches, no joint pains, no D, nothing.
This is a success story!
__________________


Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

06-22-2011, 03:59 PM   #2
Soybean
Senior Member
 
Soybean's Avatar
 
Join Date: Apr 2011
Location: Cardiff, United Kingdom

My Support Groups:
Yey! So happy for you. Long may it continue xx
06-22-2011, 04:14 PM   #3
Gwen pippy
Senior Member
 
Join Date: May 2011
Location: Ireland
Hey Joan

I'm glad those two weeks are over for you and Jess is on the mend, think it's our worst nightmare when our children aren't well esp when its something we can very clearly relate too.
Can I ask you, did your GI recommend Amitriptyline? I'm coming off preds, down to 20mg but hate the idea of being off them and sliding back to flare, equally hate the sleep disturbance, the achy joints and temper of Tasmanian devil.
Can Amitriptyline be taken everyday and does it have any side effects?

Gwen xxx
06-22-2011, 04:23 PM   #4
Astra
Moderator
 
Astra's Avatar
 
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hiya Gwen
Thank you, Jessica is doing great, in pain, but ok.

No, I went to see an osteopath about the pains in my head and neck, he said it was Occipital Neuralgia aka Arnold's Neuralgia, and he recommended the Amitriptyline. I saw my GP and told him what he's said. GP thought it was an excellent idea and I've been on them nearly 8 months, maybe longer, dunno. I take one at 10.30pm and I'm in a coma by 11!
At first I was quite sedated in the morning and struggled with it. Now it's ok, I'm still sleepy and can't get up, but who can?
I haven't noticed any side effects at all, only blissful restful lovely sleep!
Try them Gwen, you never know!
xxx
06-22-2011, 04:30 PM   #5
Crohn's Mom
Moderator
 
Crohn's Mom's Avatar
 
Join Date: Mar 2011
Location: Florida

My Support Groups:
Congrats on your remission Joan!
And even more so that after the hell you have been through in the last 2 weeks that you haven't flared!
So happy for you....
here's to continued remission for many, many years!
__________________
~T~
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
06-22-2011, 04:33 PM   #6
Gwen pippy
Senior Member
 
Join Date: May 2011
Location: Ireland
Thanks Joan

Think I'll be asking for them at my next GI visit. Will have to wait till end of Aug for that though. GP's cost the earth here, 60euro for visit then cost of meds on top, recession my eye!!! Like the idea of blissful restful lovely sleep, haven't had one of them since first child was born 3 years ago. Have pain in left breast bone and shoulder last 8 months and nothing showing on tests or xrays so that could help with that as well, I'm feeling hopeful again thanks.

Take care

Gwen xxx
06-22-2011, 04:42 PM   #7
Misty-Eyed
Forum Monitor
 
Misty-Eyed's Avatar
 
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
That's excellent news!!! Also good to see people writing positive things on here.. it just shows everyone that it's not all doom and gloom having Crohn's.. being well IS possible!

Hope you continue to feel well Joan!!
__________________
Michelle

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
06-22-2011, 05:37 PM   #8
penguin
Senior Member
 
penguin's Avatar
 
Join Date: Jun 2011

My Support Groups:
So great to read a happy story and even better that it's to say you've been doing so well for so long long may it continue Joan
__________________
Penguin x

Me - Undiagnosed, awaiting test results, etc. IBS diagnosis in 2000 no longer 'fits'.

Also, Mum to a brave 4yr old daughter who has gastrostomy stoma and numerous gastro problems of her own.

06-23-2011, 10:26 AM   #9
LOSTnut
Poopy
 
LOSTnut's Avatar
 
Join Date: Mar 2010
Hey Joan, how great that you are doing so well for so long. I sure hope it will continue for a long, long, long, long time!

I am also sure you being well helped a great deal dealing with the stress of Jess' sickness and surgery.
__________________
Heike

Diagnosed: April 2005

Back on Asacol

Dec 2010: colostomy/resection - failed
Jan 2011: Ileostomy
Resection planned for: sometime
06-25-2011, 02:13 AM   #10
Jennifer
Adminstrator
 
Jennifer's Avatar
I'm glad you're doing well Joan. Keep it up!

Niggly? That's a new one for me. :P
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
06-25-2011, 02:32 AM   #11
AndiGirl
Your Story Forum Monitor
 
AndiGirl's Avatar
 
Join Date: Jan 2011
Location: Alaska

My Support Groups:
That's terrific Joan!
__________________
Diagnosed with Crohn's Disease in 2005

Pentasa 2x500mg (4 times a day)
Zofran (as needed for nausea)
Ginger Capsules (for Nausea)
Multivitamin
Zoloft 150 mg
Ranitidine 150 mg (2 times a day)
Entocort 3 mg (3 capsules by mouth for 8 weeks, then tapering to 2 capsules for three months)
06-25-2011, 08:38 AM   #12
Astra
Moderator
 
Astra's Avatar
 
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
ha ha Crabby!

'Shit that Joan sez'
06-25-2011, 03:22 PM   #13
KWud
Senior Member
 
KWud's Avatar
 
Join Date: Jan 2011
Location: Whitehaven, United Kingdom
Hey Joan

It's great to read your sucess story I hope you stay well Great news about Jess too

Luvs

Paula
x
__________________
Diagnosed with Crohn's in 1995
Symptoms started 1992


Current medication:
Pentasa 3 x 1000mg granules
Azathioprine 125mg
Amitriptyline 10mg
Omeprazole 20mg
Homeopathic Remedies (when needed)
Centrum Multivitamin
Udo's Super 8 Probiotics
Codeine (when needed)
Desloratadine & Doxepin (For urticaria when needed)

Previously taken:
Prednisolone
Budesonide
06-26-2011, 03:49 AM   #14
bushydougie
Senior Member
 
bushydougie's Avatar
 
Join Date: Jun 2010
Location: Leeds, United Kingdom
Amazing news and just in time for the summer holidays!
Sweeeeeeeeeeettttt
Glad to here your daughter is getting there tok
Hope youve got lots of fun things planned to do now you're pain free?!
x
06-26-2011, 05:50 AM   #15
bruscar
Senior Member
 
bruscar's Avatar
 
Join Date: Jan 2009
Location: wexford, Ireland
Ah Sure thats great news for a change eh !!

Couldn't happen to a nicer more caring person. well ? from what i know of ya !!

Hahaha

lots of love Joan !!

XXXXX
__________________
5 surgeries,(so far!)Crohn's colitis,permanent ileostomy,post herpatic neuralgia (from shingles)
06-27-2011, 06:07 PM   #16
xJillx
Your Story Forum Monitor
 
xJillx's Avatar
 
Join Date: Jan 2011
Location: Pennsylvania

My Support Groups:
So happy to hear you feel so good, Joan! And, boy, do you deserve it!
__________________
Jill

Diagnosed with Crohn's Disease - July 2010
Diagnosis of Crohn's Disease Retracted - October 2011

I am still sick and so confused...
06-27-2011, 08:00 PM   #17
Dexky
To save time...Ask Dusty!
 
Dexky's Avatar
 
Join Date: May 2010
Location: Kentucky

My Support Groups:
Glad you're doing so well in spite of everything you've been through these last several weeks Joan! Hope things continue on an upswing for a very long time!!
__________________
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
08-11-2011, 03:12 PM   #18
Ian
Senior Member
 
Ian's Avatar
 
Join Date: Feb 2010
Location: London, UK
Great story Joan, and I'm glad you nipped those pains and D in the bud! And without Pred! I didn't know Entocort could work that quickly (not that I've ever taken it). How did the appointment go last week? Sorry if you posted about it elsewhere. Hope the 'R' word was bandied about a lot .
__________________
Dx Ulcerative Colitis Oct 2005 (age 19)
Dx Crohn's Colitis Feb 2010 (age 23)
Dx Indeterminate Colitis (IBD unclassified) Oct 2011 (age 25)
Dx likely Ulcerative Colitis July 2013 (age 27)

Currently taking:
6MP (75mg daily)
Asacol (3 x 800mg, twice daily)

Have taken: Humira, Infliximab (Remicade), Prednisolone, Predfoam
08-11-2011, 05:09 PM   #19
Astra
Moderator
 
Astra's Avatar
 
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hiya Ian!!
great to see you out and about, are you ok?

I didn't see gastro on 1st Aug, he was on his hols, so I'm waiting for a new appt, which should arrive soon.
I was offered the Big Burly Scot (remember him?) but I refused. Not having him shout me down again
I'm feeling good, hope you are too hun
xxxx
08-11-2011, 05:34 PM   #20
Ian
Senior Member
 
Ian's Avatar
 
Join Date: Feb 2010
Location: London, UK
OH, yeah, you know what I did read something about you refusing to see the Big Burly Scot recently lol. I forgot about that. He sounds scary - if he can reduce you to tears then god help anyone else haha. Hope the appointment goes well when you have it.

I'm ok thanks and feeling well at the moment, been meaning to post an update but I kind of haven't wanted to jinx it. I will do at some point though, when I have the patience ('cause knowing me it will be hefty lol). Glad you're feeling good x
Reply

Crohn's Disease Forum » Your Story » Success Stories » No Pain at all, anywhere!
Thread Tools


All times are GMT -5. The time now is 01:56 PM.
Copyright 2006-2017 Crohnsforum.com